I have a few types of severe, chronic migraine disease and I hear you. Finding your channel and knowing there are other people like me who are living with this illness has made a huge difference in the way I feel. It's hugely validating to hear my own struggles reflected in the words and experiences of others especially because our shared disease is so misunderstood and misrepresented. I don't have a formal platform to help correct the tide of harmful inaccuracies and stigmas, but in my daily life and on social media I have been very careful about how I talk about migraine disease and attacks and symptoms I experience. I have had extensive, candid conversations with people in my life about what migraine disease is and that head pain is only one symptom not everyone experiences. Language absolutely matters and if we change the perspective of even one person we are making a difference. That's how change happens.
I am so happy I am able to help and be an advocate for others. Having those conversations in every day life is very important, that is how awareness and change starts to happen.
Thank you for this video, a year ago you were the reason for my change in the I talk about migraine. I really do hope that one day that medical community will start to listen and change one day. ☺️
Thank you for going against the grain. When you spoke about what doctors are taught, it reminded me of a conversation with my doctor who explained how diet isn't spoken about much in med school. The effects of certain foods on our symptoms, which they get one lecture on - that's it! The very fuel that can change how you feel, how your body reacts, the hormones etc - one lecture?! I thought it was so unfair and unjust to patients who aren't given the information they need to manage their symptoms. And then treatments never evolve, the language never evolves, everything is so easily dismissed. I once met an old neurologist who said that when doctors say "it's in your head" - the truth is, they don't know themselves. He went on to say that there isn't enough research and we don't know enough, therefore we have no right to dismiss a patient like that. He was fantastic and helped me loads. But sadly, such doctors are rare. Hope a time comes when they're not.
I have a few types of severe, chronic migraine disease and I hear you. Finding your channel and knowing there are other people like me who are living with this illness has made a huge difference in the way I feel. It's hugely validating to hear my own struggles reflected in the words and experiences of others especially because our shared disease is so misunderstood and misrepresented. I don't have a formal platform to help correct the tide of harmful inaccuracies and stigmas, but in my daily life and on social media I have been very careful about how I talk about migraine disease and attacks and symptoms I experience. I have had extensive, candid conversations with people in my life about what migraine disease is and that head pain is only one symptom not everyone experiences. Language absolutely matters and if we change the perspective of even one person we are making a difference. That's how change happens.
I am so happy I am able to help and be an advocate for others. Having those conversations in every day life is very important, that is how awareness and change starts to happen.
Thank you for your videos ❤️I’m listening
You are so welcome
Thank you for this video, a year ago you were the reason for my change in the I talk about migraine. I really do hope that one day that medical community will start to listen and change one day. ☺️
Thank you so much!
I love this 💕
Thank you for going against the grain.
When you spoke about what doctors are taught, it reminded me of a conversation with my doctor who explained how diet isn't spoken about much in med school. The effects of certain foods on our symptoms, which they get one lecture on - that's it! The very fuel that can change how you feel, how your body reacts, the hormones etc - one lecture?! I thought it was so unfair and unjust to patients who aren't given the information they need to manage their symptoms. And then treatments never evolve, the language never evolves, everything is so easily dismissed.
I once met an old neurologist who said that when doctors say "it's in your head" - the truth is, they don't know themselves. He went on to say that there isn't enough research and we don't know enough, therefore we have no right to dismiss a patient like that. He was fantastic and helped me loads. But sadly, such doctors are rare. Hope a time comes when they're not.
Thank you for the support