5 Side Effects to Expect on Tamoxifen
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- Опубликовано: 7 ноя 2015
- I've been taking tamoxifen for 1 year and half now and these are the side effects that I have experienced so far! Tamoxifen was prescribed because my breast cancer was hormonal, therefore taking an estrogen receptor reduces my chances of recurrence. The side effects seem scary, and sometimes it may seem like the risks outweigh the benefits. But in my case... I chose to take the medication. Read more at www.nalie.ca
I really appreciate you taking the time to do this video. Taking tamoxifen has been the scariest thing about having cancer to me. You pretty much answered all the questions I had, and it helps to see someone around my age living life after diagnosis.
I've been on tamoxifen for 2 years and have had terrible side effects - brutal fatigue, migraines and yes - major weight gain, despite working out 5x/wk, tracking my macros etc. So while, I love that not everyone has these side effects, just know that like cancer itself, everyone has a different experience and they are all equally valid.
Thank you for posting this! My oncologist emailed me this morning reminding me it's almost time to start Tamoxifen. I freaked out and restarted my research on this drug. So far all of my cancer treatments for my HER2+ breast cancer haven't been that bad but the thought of taking a drug for 10 years is scary. Thank you for adding some light on something not everyone understands !
+Nubia B Yes. definitely scary... but I have heard from women who've been taking it for 5 years and they are doing fine. xo
To God be the Glory. l started my pill( Tamoxifen )
today..
Yes This Pill is going to help me I’m a OVERCOMER 😊 I feel confident in taking my Pill I also trust my team of Doctors.. I HAVE BEEN TRULY BLESSED During my Breast Cancer journey . GOD IS SO GOOD !
So how do you feel now?
Thank you, Nallie. You look great. I am happy to know that you made it through you got through it. I just started taking tamoxifen citrate three months ago after a partial mastectomy. I am in radiation now. My menstrual cycle has begun to end. I am 46 years old so I may be entering full menopause. My ovaries and uterus are showing signs of trouble. I am a stage 1 grade 2 IDC/DCIS breast cancer. I hope I will get a bilateral mastectomy with reconstruction so that I can move on and not wait for my left breast to become cancerous or worse.
You are are an inspiration at such a young age.
+Michelle-Lee “Michelle” White Thanks for sharing! Hope your treatments go smoothly. Take it on step at a time. If I can do it, so can you! :) xo
You are AMAZING, Nalie! Tonight is my day #1 on tamoxifen. I am 'triple positive'. I know this is an older Vlog but I've been following you! You're such an inspiration!
Hi .can you tell me plz how was going with you with tamoxifen I just finish the chemotherapy and now going for surgery and radiotherapy and my doctor tolded me I m going to have tamoxifen but I m not thinking to have it as have yo much side effect plus can bring the uterine cancer I m confused 😔😔😔
Thanks Natalie, i have been experiencing some of these side effects, and now i know its pretty normal. And hair looks wonderful.
Girl, you are a great inspiration! God continued blessing you. I was very happy seeing you looking so great.
I’ve been on it for almost a year and I keep a journal and talk to my oncologist when something feels off. My major effects have been weight gain, cycle stopped completely, fatigue and range of emotions. Absolutely add gyn and therapy to your wellness plan.
I have to start to use Tamoxifen and ai am scared, but your personality in this video make it so much less scary.
I ja ga uzimam 😔
I know this an old video. I hope you are doing well. Thank you so much you gave me more hope for my wife.
You are lovely :) I get so inspired by your positive energy! I hope you stay well :)
Thanks Nalie for making this vid. You look fab! I chose to take Tamoxifen because I want to keep fighting and stay alive for my loved ones. Some people told me to stop taking it as it may cause cancer in other parts of my body but I told them that's a risk worth taking. I believe if I do my part to go for regular check-ups with my gynecologist, I should be safe. Just like you, I trust my oncologist. I've only been taking Tamoxifen for 5 months but I do experience some of the side effects like hot flushes, mood swings, weight gain and I haven't had my period since I started taking it. I'll keep fighting to stay cancer free! xxx
+Branda Azwar Im so happy to know this helped. Yeah i think it's about being aware of our body. If if its causing us pain, then we have the choice to stop! I just wanted to do whatever I could to stay cancer free right...
Thanks for your reply. Yes I know this already and when I wrote the doctors advised me that it was estrogen as well. Happy to be cancer free, I decided to no do the tamoxifen. I’ve been super busy I need to make time for videos again. Take care
Raawiya conesise Clark: if you didn’t do timoxfen what did you take instead i was stage 1 low grade invasive and also cancer in situ . 2 types
It ie so nice to see your beautiful face. I followed your videos when I lost my hair 2 years ago. Thank you
I'm so happy for you. congratulations n stay healthy God bless, I wish you the best of luck
+Kettly Desiral Thank you so much!
How are you doing now?
I'll be starting on Tamoxifen in about a month and a half. Waiting on surgery and genetic testing results. Thanks for this video!! Im looking into what others have went through while using this drug.
Every time when I take my tamoxifen I say "the happiness project"
Thank you so much for making this informative and cheerful video! Watching this video cheers me up a lot, thank you so much. You look great! Energetic and absolutely gorgeous! One extra question please: will hormone therapy makes us grow older faster than we are supposed to? Since estrogen, to my knowledge, is also in charge of our skin. Thank you
+Min Fang It can... but it's not guaranteed. I think stress makes you look older... so just relax and take it day by day darling xo
Instead of saying to yourself this drug can help me be cancer free, why don’t you lays hands on the breasts and pray to the Almighty God for healing?
Exactly, all I hear when I go to the hospital is that they want to shove pills down your throat
God also uses medicine. In fact medicines are useless if not for the power of God.
Thank you Natalie for updating us with your status. I just started taking Tamoxifen 8 days ago, and have heard so many negative comments, that its scared me. However, I'm going to be positive and tell myself the pill is going to help me. My only current side affect is .....ugh "constipation". I'm a very healthy eater, so this is a new thing for me to deal with. I'm going to up the fiber......ha ha. Just want to say congrats on your status and thank you for providing such valuable information.
Thank you for listening into comments :).
+cbrcoder Of course!!! I don't do it for anyone else but all of you in need xo
You are adorable! Thanks for the info.
Dear Natalie you so stronge young women
Very good advice.
How did this work for her or make her feel?
God Bless You!
What did you do for your hair? To keep it healthy?
thanks Nalie for the video! i am currently taking tamoxifen for 6 mos now. I decided to take it because i did every hard part of the theraphy and why not this one. Side effects are hot flashes and weight gain. i am at my heaviest weight 175lbs for 5'3 tall female. my family doctor told me to take cold shower for 1minute in the morning and at night before going to sleep to help with the hot flashes.
your hair looks great in the video. my hair is slowly growing. any tips to grow hair faster?
thanks Nalie! God bless!
+Baby Osang Hi there! Thank you so much for sharing your side effects with us. My best tip is to just let it grow... no dye... no blow drying... no flat iron. Let it breathe. Also, coconut oil head massages are great!
NUMBER 1 FOR ME IS GYNO THANX FOR THE MENTION
Beautiful and God bless you.
+Alice Ng Thank you and you too! :)
Hi nalie im watching ur video i take tamoxifen for 2yrs now.
CONGRATULATION!!!
+Yeap Junkun Thank you!!!
Thank you sooo much you are great
I took tamoxifen and my period stopped. So it’s sudden menopause. I only took it for 3 years because I developed endometrial thickness which is a no no for me, since I was diagnosed first with precancerous cells in my endometrium. My Dr. substitute it with evista. I have no other choice other than tamoxifen because I had breast cancer premenopausal.
I am been on tamoxifen for about 3 months. I have lost weight, fatigue, joint and muscle stiffness. I have times of depression and dispair. But the anastrozle I was on were horrible. Hurting all over. Then came the crying fits. Depression I couldn't control. Tamoxifen has its own issues. But I'm ok with it, if it keeps my cancer at bay. Thank you.
I have severe bone and muscle pain with tamoxifen
Me too have body ache and joint pain.
your an inspiration 😊
+mandy ebury Thank you love!
Hi natalie, glad to see your doing awesome, yes I have experience all those side effects, but I wouldn't stop taking it for my fear of cancer coming back. But your correct if your feeling that if might not be for you please speak with your oncologist.
Hi. Are you her2 positive? Did you take herceptin treatment?
I was HER 2 positive estrogen based, I had chemo, lymph nodes removed, radiation and now tamoxifen. So far so good
I've been on tamoxifen for 2 months now and I'm feeling bone and joint pain and muscle soreness. Also lost weight too. I feel fatigued and tired most of the time.
That went away for me after the first few months. Increase water and walk more. And I put Tumeric and pepper in everything, even my water sometimes and it helps.
@@ashawatson2618 turmeric interacts with tamoxifen. It makes tamoxifen less effective
A tip for hot flashes besides a life jacket....keep ice with you wherever you go.Insulated jug...especially in hot weather..Peace be with you,Pink Sisters!💓🌟💓🌋💥🌋💥🌋💥💥💎😌💎💥💥🌋
I took tamoxifen for seven years and I could say that I had excruciating bone pain. I couldn't take it for ten years Women we need quality of life and tamoxifen wasn't that for me. Be your own advocate and do research. I feel so much better.
I can’t imagine taking this drug for very long. I’ve taken it a few months and my bone and muscle pain is so severe. But the oncologist said it has nothing to do with tamoxifen. So I stopped taking it because I feel like that is a lie. Due to so many people on here complaining about bone pain too.
@@cyndistrasburg1948 Good for you Cyndi. I also have arthritis on my knee and I know it's because of the tamoxifen.
Is your cancer gone or in remission? I’m supposed to be having surgery (mastectomy) but I’ve heard that doesn’t mean the cancer won’t come back.
@@cyndistrasburg1948 Yes Cyndi I have been in remission since 2011. My oncologist told me that it wasn't a guarantee that the cancer wouldn't come back that's why I stopped taking the tamoxifen.
@@nancydagostino3145 sis how are u now after stopping tamoxifen
I'm concern, what will happen if time when you choose to have children? I'm currently going through the reconstruction after a bilateral mastectomy. I'm scared because I would like kids two to three years from now. I will have to take Tamoxifen anytime now.
Thanks. I’ll start this at the end of summer when I complete radiation treatments.
Thank you so much for this info. I am currently undergoing radiation but will start Tamoxifen afterward. I'm a little nervous about it. I am going to take it because earlier this year ( prior to finding out about my breast cancer) I had a hysterectomy due to urine fibroids and I still have my ovaries because I'm still fairly young. I'm starting to feel the side effects of radiation after 19 rounds of treatment so far. Good to know that people are ok with Tamoxifen and the side effects doing sound so bad.
I have been on tamoxifen gor over one and half years now but its not easy for me. Musle pains, joint pains, fatigue and so many others. Its Tough on me
So sorry the cancer metastasized Nalie!
My wife is facing heavy menstual period after nine month of using tamoxifen. How abnormal is this?
I've been on tamoxifen for over a year now but I feel like the only side effect I have is definitely the decrease in libido.
+danilynn1217 Yes. I agree... ! Many of the other women i spoke to said the same too
danilynn1217 That's the main one I've noticed. I've been taking Tamoxifen for 3 years now.
Fatigue and dizziness!
Thank you for posting your very helpful video. I hope you are well. I have recently had a mastectomy for breast cancer and I have been told I will have to take Tamoxifen for 10 years after I have had my chemo. My chemo came back borderline so I am now having to decide if I want chemo or not. (Epirubicin and Cyclophosphamide). If I don't have chemo then I have to start taking Tamoxifen straight away. I don't know what I am going to do yet but I only have 1 week to decide as they want to start it as soon as possible. Plus if I have chemo it can effect my nerve endings in my fingers and I am a musician for a living. If anyone can help advise me it would be very much appreciated!
Thank you. I am now thinking of trying natural cures. Essiac is supposed to be excellent.
I hope all is well with you too.
@@rabbotts1 hi there how was going with u did u take the tamoxifen I just wondering to update me about the result after 4 years I m going soon through tamoxifen and I m very scared can you plz answer me ..
@@karimasamahi2786 hi I've only just seen this. Understandably you're very scared. I was too. I'm pleased to say I'm still all clear 5 years on. There are a few side effects with the medication. It can give you menopausal symptoms such as hot and cold sweats and it can also reduce your sex drive. I would still recommend you taking the medication though. I hope that helps.
Thnk u love.inspired
I'm going to pray for all I'm 60 and I been taking this drug since Feb 2017 yes it's scary but better safe then sorry All of my mammogram and songram shows nothing all my tests are clear I don't have cacner but it's very high in my family I lost my auntie and Uncle to this monster so I'm going to fight for the rest of my life I'm going threw post menapause and now and then I get hot flashes but it's not bad yes gyn is very important and I get checked also 1 year thank God I'm free and I want to stay that way weight gain no I was already trying to lose weight before I started taking it so at this point I am blessed amen amen
Amen ..god bless you
Does Tamoxifen cause memory loss or forgetfulness. I’m experiencing memory loss to the point where I’m scared.
At the time of chemo and now with tamoxifen I feel memory loss.
What abt in men?
Hallo, great video, great courage! Since last Febraury iam been living a nightmare....Anyways, I am going to cirurgie then i think, iam going to tamoxifen bcs iam positive receptores, was result 2 biopsies...let's see after for sure this cirurgie on left breast... anyways let me ask, abt hair loss? you didnt suffer i see that, but you know some women do? kisses***
I really depressed with my breast cancer after just married 31 yrs old
Ruwani Chathurika I was diagnosed at 30. I feel your pain.
My mom brest ca
nsar take 1year please advise my mom
Nalie but my phone type your name wrong, sorry love.
Please realize, even if people choose not to go this route with this particular drug, it doesn't mean they have chosen not to "fight"...every journey is an individual one and even those who choose other routes for their own personal battle are every bit justified as "fighters" as a person who chooses to use this particular drug...let's support each other and not just judge and label...we all need God regardless of what route we take in our personal cancer journey because in life we all need God. Take care, sisters!
I chose NOT to take Tamoxifen and ended Taxol chemo early due to CIPN, blurry vision, constant nose bleeds and unbelievable fatigue. I did continue with the herceptin for a year. I over came the chemo induced neuropathy (CIPN) with the help of an integrated or functional MD through natural means.
No regrets and still cancer free two years later. I was triple positive. I am drug free and cancer free! I am a strict KETO eater. I ended eating sugar, refined, processed foods and junk foods. I have never felt better and no more brain fog!
God is in control and He has the final say. God is good! I don't let people frighten me into treatments I don't want. God' will is fine with me.
Thank you for sharing your story. My doctor just prescribed tamoxiphen. He said if I have discharge to see the gyno. Ovarian cancer and blood clots are side effects. The crazy part is that after doing some research I learned that the fluoxetine inhibits tamoxifen my doctor didn’t even catch it at first until I brought to his nurse attention. Human error I guess, thank God I am always advocating for myself and asking questions. So my antidepressant has been changed to something else so I can go ahead and take the tamoxifen
Why would you ever take something so deadly as fkuoxetine or any fluoride based medicine?
Im on tamoxifen too.....1 yr!!! Side effects galore....bone pain and fatigue!!!!
Me too. I’m not sure it’s that helpful so I stopped taking it.
i'm terrified to take my Tamoxifin :(
Tricia Bgirl I just started taking tamoxifen
I just started tamoxifen. I was suppose to start it at the beginning of the month. However I delayed it for many reasons. I'm still. It sure if its right for me. The doc says 2-5 yrs and I'm not a pill person despite the side effects and I'm thinking about a 6mo trial on this. I've already gained 30lbs from the chemo I'm not up for more. Well I have lots more to say on my FB and channel I hope I remember everything I need to say this chemo fog has done uts toll on me.
@@ConeiseLequanRawiya, actually it's not chemo fog, but actually hormone fog to help block. estrogen, but do they know that it's estrogen that causes cancer in the first place or might too much estrogen be the result of some other underlying problem?
I've been taking tamoxifen for about 1 mth plus. I'm experiencing nausea, hot flashes, anxiety & mood swing. those side effects really driving me crazy. whenever I eat I feel like vomiting and I always got panic attack. It's torturing. I can't do any daily task as my bc has spread to my bones. My vertebras fractured and I have to wead brace and use a rollator whenever I walk. Any tips to make those side effects go away. I'm seriously gonna go insane.
joey ee, Not sure if your still dealing with this but my bc has metastasized to my bones as well. extremely painful, couldnt walk or even move my legs. I was put on a lupron shot once every 3 months and ibrance which is an oral chemo and femara. This shrunk my tumors drastically. stay blessed
@@youdontknowmyname8835 , I did read that zinc may help you gain appetite but you would have to ask your doctor if it would conflict with other things you are taking.
@@youdontknowmyname8835 Pleased this worked for you. Never heard of it but will look up side effects. Thanks for sharing.
#RIP Beautiful Nalie #2022... can't help but feel the deception of false hope watching her excitement at her then clear scans. Wonder if the tamoxifen caused her recurrence which tamoxifen does and/or can cause uterine cancer?! ✨🌹💐🕊️✨
omg she passed????
@@MaliiFrmCalii22 unfortunately yes she passed away in 2022! 🥺🤧😓
I was on Anastrazole before which KILLED my libido. With Tamoxifen I am having sexual desire again. Thank God. The hot flashes are totally manageable. But can anyone share with me how it is affecting your skin? Facial, mostly. I am so much more oily. Anyone else?
Wow. I hope i get those effects. Are you still on tamoxifen?
Yes. All good. Sending you all good healing vibes.❤️
girl I thank god for u u keep me living positive I have a chanele called loves bigger than cancer baby
Has any one gained wight by taking tablet
Stage 2 breast cancer q
Twice Tamoxifen 5 years no problems or any side effects @ the age of 58. Five years later stage 1 aremedex 5 years all were node negative
you are cute as a button! I hope you are well.
Super well :)
Rip
Hi can Tamoxifen or Nolvadex-d cause gastric problems? Pls advise
💖
Hi I was wondering if I could talk to you personally, can I message you on insta?? X
false, tamoxifen is not a "receptor" it is in the Drug class: Estrogen receptor antagonist antineoplastic agent