I have all the symptoms of MS (double vision too, but not optic neuritis). I’m struggling to walk, have severe muscle pain, mainly in my legs, weird numbness/loss of sensation that has been spreading for years now, nausea, dizzyness, gastrointestinal problems, problems with sexual dysfunction, problems with bladder and bowels, electric shock when I turn my head (not every time), unbearable itching whenever I get out of water or brush/bang against something… You name the MS symptom, I probably have it. My brother has MS, and he believes I do too. I do have lesions on my brain consistent with MS, but ALL my tests have been normal. We even did a lumbar puncture. Normal. So I have no diagnosis, and my doctors feel there isn’t anything else to do. But I was an athlete. I was a graceful dancer and martial artist. And suddenly, I lost it all. I can’t walk very far without cramping up, and if I push it, my legs will buckle and give out. I struggle even to push an empty grocery cart. It’s like my body doesn’t remember how to work. I’m really scared it will just keep getting worse. Meanwhile, no one believes me but my brother, and there is no treatment for me. I would do better with keg braces, but I can’t get my doctors to take me seriously. One said, “Let’s try Lyrica for merve pain, and maybe if you have less pain, you won’t have to walk so slowly.” I don’t walk slowly because it hurts! I walk slowly because my legs don’t work! I don’t know how else to say it! I’m scared and alone and feel like I’m watching life from the outside now.
Thank you for sharing what you're going through. That must be such a difficult situation to be in. If you're UK based, we have a free, confidential helpline. They offer information and resources that could help. You can contact them via phone or email. pulse.ly/sy3isx9tri Sending you best wishes from the MS Trust. 💙
I have all the symptoms of MS (double vision too, but not optic neuritis). I’m struggling to walk, have severe muscle pain, mainly in my legs, weird numbness/loss of sensation that has been spreading for years now, nausea, dizzyness, gastrointestinal problems, problems with sexual dysfunction, problems with bladder and bowels, electric shock when I turn my head (not every time), unbearable itching whenever I get out of water or brush/bang against something… You name the MS symptom, I probably have it.
My brother has MS, and he believes I do too. I do have lesions on my brain consistent with MS, but ALL my tests have been normal. We even did a lumbar puncture. Normal.
So I have no diagnosis, and my doctors feel there isn’t anything else to do. But I was an athlete. I was a graceful dancer and martial artist. And suddenly, I lost it all. I can’t walk very far without cramping up, and if I push it, my legs will buckle and give out. I struggle even to push an empty grocery cart. It’s like my body doesn’t remember how to work.
I’m really scared it will just keep getting worse. Meanwhile, no one believes me but my brother, and there is no treatment for me. I would do better with keg braces, but I can’t get my doctors to take me seriously. One said, “Let’s try Lyrica for merve pain, and maybe if you have less pain, you won’t have to walk so slowly.” I don’t walk slowly because it hurts! I walk slowly because my legs don’t work! I don’t know how else to say it!
I’m scared and alone and feel like I’m watching life from the outside now.
Sorry about the typos. I’m also having trouble typing the right letters.
Thank you for sharing what you're going through. That must be such a difficult situation to be in. If you're UK based, we have a free, confidential helpline. They offer information and resources that could help.
You can contact them via phone or email.
pulse.ly/sy3isx9tri
Sending you best wishes from the MS Trust. 💙