Myositis Journey E02: Car & Piano

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  • Опубликовано: 24 авг 2024

Комментарии • 22

  • @monicahung3573
    @monicahung3573 3 года назад +1

    Nice car! Great content! It was a fun, entertaining, and educational video. Thanks for sharing so candidly, from your condition to behind the scene shooting secrets, it was all quite revelatory :). Awesome job, and stay fighting!! You are in my prayers.

  • @torr71
    @torr71 4 года назад +1

    In Our Prayer Dude... Great Vid!

  • @Lillymae-gq4oe
    @Lillymae-gq4oe 10 месяцев назад +1

    Can I say, fantastic piano playing first. I play piano myself and I have lost muscle ability to elongate my right arm. I’ve noticed my body will shift to the side the compensate the lack of movement from my shoulder. I struggle daily with loss of strength and drop a lot of things. And struggle to put my arms above a certain height. Right arm is affected more than the other shoulder. As Im right dominate hand. I have other members of my family that have PM and I get to be assessed soon for more thorough testing.

    • @wanderingmusic38
      @wanderingmusic38  6 месяцев назад +1

      I also started with weakness on the right side. Thanks for the compliment!

  • @JacobWong1
    @JacobWong1 4 года назад

    Wow, thanks for sharing and raising awareness. It's sad to see you go through this, but I'm glad you are keeping your good sense of humour.

    • @wanderingmusic38
      @wanderingmusic38  4 года назад

      Thanks Jacob! I'm glad I'm not the only one that finds me funny!

  • @JoeDaddyo
    @JoeDaddyo 4 года назад

    Larry Boy lives!!!

    • @wanderingmusic38
      @wanderingmusic38  4 года назад +1

      That's the Larry that was in my car when it was torched. Gee that was a bad day. He's got char marks on his eyes.

  • @mrwhale2314
    @mrwhale2314 4 года назад

    You're the Spaceboy!

    • @wanderingmusic38
      @wanderingmusic38  4 года назад

      I wonder if Takumi would drive faster in present day 86. Prolly not right? Trueno has to be the best forever!

    • @mrwhale2314
      @mrwhale2314 4 года назад

      @@wanderingmusic38 I was most impressed by that his 86 had no power to climb uphill... but he could beat everybody else going downhill. I didn't watch the later season(s) when he changed his engine though...

  • @foblivio
    @foblivio 4 года назад +1

    Nice video. Looks like it doesn’t affect your wpm while programming. Good luck with the treatment when it starts.

    • @foblivio
      @foblivio 4 года назад

      Oh, BTW foblivio == oldest male dev in WI

    • @wanderingmusic38
      @wanderingmusic38  4 года назад

      @@foblivio aha. mystery solved! :) thanks for the feedback!

  • @frugalbecky697
    @frugalbecky697 9 месяцев назад

    I was diagnosed with PM a little over a year ago and some of the problems I have with cars is getting in/out and most of the times don't have the strength to push down on my seat belt to click it closed. Not sure if its the angle or because the part thats attached to the seat sinks in and moves. Its very frustrating.

    • @wanderingmusic38
      @wanderingmusic38  6 месяцев назад

      Oh all the little things that we struggle with that are difficult to explain. Seatbelts, and door locks i haven't done in quite some time.

  • @mrwhale2314
    @mrwhale2314 4 года назад +1

    Hahaha... is it Initial-D soundtrack?!

  • @mrwhale2314
    @mrwhale2314 4 года назад

    The back spot looks like a bruise. Does it hurt? Are you repeatedly hitting something while compensating for your reach? Just wondering.

    • @wanderingmusic38
      @wanderingmusic38  4 года назад

      Hah I'm pretty sure it's not a bruise. It's not tender at all

    • @mrwhale2314
      @mrwhale2314 4 года назад

      @@wanderingmusic38 Maybe it's your shirt rubbing against your skin when you compensate for your movements? If you wear no shirt for a week and it goes away, then that would prove it.