Hi, your channel just popped up on my home page, I guess that’s what it’s called. I was originally diagnosed, back in 2002, with Polymyositis by a local dr but Mayo said IBM. Then NIH said PM and Dr Ottis at University of Pittsburgh said IBM and a skin biopsy showed DM. Now it’s thought I have all 3. I’ve done 8 study meds along with the usual IVIG, methotrexate and other useless meds. Prednisone for over 20 years now. I’m 57 now and in a wheelchair. I fell and shattered my femur 3 years ago and haven’t walked since. I can’t roll a wheelchair but I have a Jazzy air. I haven’t given up standing yet. I can stand in the pool. My hamstrings are strong enough but quads and hip flexors are a joke. Trying to follow a study done a few years ago that says I need to eat 1gm of protein per 1 kilo of body weight, vitamin D and testosterone where it should be and creatine 10gm per day. 100 gm of Protein is tough. Plus some exercise, of course. Supposedly this averaged a 38% increase in muscle strength 🤷🏼♂️. It’s worth a shot. I’ll keep watching, take care.
Wow. Thanks for sharing! 20 years is a long time. With necrotizing myositis the decline was extremely rapid for me, but for the last 6 months I've had steady improvement. (Albeit extremely slow). Here is hoping we both get back to walking in the near future! 🙏
Hi, your channel just popped up on my home page, I guess that’s what it’s called. I was originally diagnosed, back in 2002, with Polymyositis by a local dr but Mayo said IBM. Then NIH said PM and Dr Ottis at University of Pittsburgh said IBM and a skin biopsy showed DM. Now it’s thought I have all 3. I’ve done 8 study meds along with the usual IVIG, methotrexate and other useless meds. Prednisone for over 20 years now. I’m 57 now and in a wheelchair. I fell and shattered my femur 3 years ago and haven’t walked since. I can’t roll a wheelchair but I have a Jazzy air. I haven’t given up standing yet. I can stand in the pool. My hamstrings are strong enough but quads and hip flexors are a joke. Trying to follow a study done a few years ago that says I need to eat 1gm of protein per 1 kilo of body weight, vitamin D and testosterone where it should be and creatine 10gm per day. 100 gm of Protein is tough. Plus some exercise, of course. Supposedly this averaged a 38% increase in muscle strength 🤷🏼♂️. It’s worth a shot. I’ll keep watching, take care.
Wow. Thanks for sharing! 20 years is a long time. With necrotizing myositis the decline was extremely rapid for me, but for the last 6 months I've had steady improvement. (Albeit extremely slow). Here is hoping we both get back to walking in the near future! 🙏
Amen to that brother. I was very athletic with bigger muscles so it’s taken a while
Great update! I'm so glad to see things are improving!
Thank you!
Kevin you're looking good man!
I try I try :)
Thx for the update.
Any time!
Just dropping a comment to say Hi and hope you had a chance to celebrate mother's day.
Thanks. Our celebration was mostly a nap for Mom :). Been so crazy lately. Hope your family had a good Mother's Day!