I have always felt that insurances should not be the ones to determine the meds we take. If a Dr orders it, there is a reason and inshurance should not have the final words.
I've been f ollowg you since the beginning your breathing and speaking is unbelievably better it's so amazing!! Having someone to lo ve and share a life together I'm sure makes a difference to.
The American healthcare system always shocks me as a non-American. This is just crazy. Isn’t the whole point to actually give people medication if they need it? Seems like the system is built around finding loopholes to not treat people :/
@@roostersideburns3440 it is also a wake up call. I have learned that a great number of americans are hateful toward their fellow citizens [even if they don't act upon it] and are easily lead astray by a charlatan. those things put the rest of us on thin ice.
So happy that your drs appointments went pretty well ❤. I’m 53 and was born with cerebral palsy and was diagnosed with epilepsy at 15 so I go through certain things like that to maintain SSI . My daughter is an occupational therapist who works with geriatric patients at a rehabilitation facility and she turned me onto your channel almost 2 years ago . You two are amazing and an adorable couple 💕
For what it’s worth, I have been watching your videos for a while now, and honestly to me you do look stronger and healthier than you used to. Your voice sounds stronger, and you move your head and arms more. Or maybe it’s just that your onscreen presence has evolved 😊 In any case, I’m glad you are done with those silly tests for another year and that you’re officially doing great!
This reminds me of IEP Goals and Objectives I had to create for students with medical conditions of which regression is expected. I had to document progress. I had to go to great lengths to show data that supported “maintenance IS progress for this student”. I’m happy that you are maintaining and that your medication was approved…for another year…where you hit “repeat” once again.
Yes! Some IEPs are ridiculous. I adopt medically fragile children and they usually are stuck at a newborn level. We have to set goals anyway for pushing buttons and taking tests. The state makes it so hard on the teachers just doing the paperwork instead of concentrating on the kids.
STAWPPPP 😂😂😂 your intro killed me! Lmao. Love you Shane. You are one of the funniest people and I remember going to school with you. I live in Doylestown now and enjoy when you pop up on my YT. You are still as awesome as you were back then. ❤ Xoxo
Hannah’s easy breezy beautiful fresh cut and Shane’s humor being sharp as ever, plus good news regarding Shane maintaining his disability status! That’s a lot to celebrate! Hip hip hooray and cheers 🥂 to you both ♥️ Much love XXOO
RUclips shows me subscribed, yet it doesn't show your videos in the menu options - I get a lot of crap that I'm not subscribed to and dislike. But I got this video and am so happy for you! It's good to see you after not seeing you for perhaps two years Love you folks . . .
Hannah your haircut is SO cute! the little hair style you did is so adorable 😊 and Shane never fails to make me laugh! kudos to him for persevering through those tests every year. Sending love from the UK, you two are so lovely to watch ❤
Thank you for the update. I am very happy for you both. I'm sure it was a great relief to you guys. Shane, with his start of the video, got me good. My heart sank at first and then you spoke up and I was so relieved to find out he was joking 😂😂. I love longer hair, but you look very pretty with the new haircut. Take care and I'll see you later. ❤
My brother is severely disabled and I dread his yearly check up. Luckily he doesn't understand the severity and even enjoys the attention, but for me it is the worst day of the year. I can't lift my brother by my own, so I need to drag my mother along, who has PTSD from my brothers complications. It is draining.
Way to go shane! By the way you can hold your breath for as long as I can so while I applaud you I'm not sure if I should be worried about my lung capacity😮
So great to see you both- and as adorable as ever!! Very happy those nasty test results prove you are maintaining your strength, Shane- and Hannah's new hair style looks fabulous!❤
It reminds me of the SSI evals I have to do for my multiply disabled daughter. I just want to fill it in with the answer "No, we still haven't received our miracle."
I know how you feel. Multiple disability since birth. About to be 46 years old and they still think she could improve before the end of her life. We are going to have to advocate better. This is just so ridiculous😢
I had to tell an evaluator that my sister had down syndrome and will always have down syndrome unless she knew of any miraculous cures. That was the last time we had to go through that!
Yes! I literally just filled out a 21 page packet for this today. And all my records show I was born disabled. What do they think is going to change? They should just flag certain files of people with permanent disabilities so we don't have to be bothered.
My granddaughter just had her SMA Clinic last week too. This is the first time she had the paper rip and moving the weight test. She just turned 7 so maybe as they get older they do different tests. Cute haircut Hannah ... I enjoy watching you two so much!
Way to go Shane! Funny moment during my last muscle strength eval, I wrote down that I didn’t know if I could open a can (first time I’ve ever been asked about a can, usually they ask about jars lol) My doctor read it and said “what do you mean you don’t know if you can open a can!?” I replied back “well I’ve never tried and I’m not much of a soup person”
Yaaay! Happy for good results, Shane! I don’t have SMA, just severe asthma and I failed the PFT’s terribly!!! Hannah, your hair cut looks great! I’m debating going shorter with my hair, but I haven’t made the cut yet! lol 😂
Shane, you are so funny! Hannah your haircut looks amazing. Shane, I’m so glad you’re doing well, obviously being married to Hannah is paying off lol. ❤ I had my pulmonary function tests today, all is well.
Glad youre maintaining! Thats always the goal when you are disabled. Try not to go backwards. Congratulations, its wonderful news. Hannah gorgeous as always. Hair cuts really can perk a lady right up.
Thanks for another great video from you lovebirds. I was so happy seeing a new video from you two =). Your hair cut is cute, Hannah. Congratulations on having a higher score then last year, Shane. God Bless you both. 💖🧡💛💚💙💜
Hannah, i love the new haircut! You look beautiful like always. Shane, I'm glad you're fine! You almost got me at the beggining, such a good actor 😂 But I hate to hear about the dehumanizing part of it, it's actually so infuriating.
I've been watching you & subscribing to you for years and years. I love you guys so much!💜 Shane, you are a joy! For reals! You make me laugh - and I thank you.🙂 Hannah, you're looking so pretty in your new hairstyle. Have fun with it! Glad you're doing well, Shane.🫂💙
My hubby gets the occasional letter from the council. It states, 'If your condition changes, you must tell us blah'. Hubby says, "I'll let you know if my legs grow back😂😂😂😂😂😂😂😂😂
Hannah, cutest haircut ever! Shane, you literally scared me at the very beginning, but honestly, I’ve been watching you guys so long, I should’ve known better!! 😂 Glad you’re healthy and full of it as always! ❤❤
That's fantastic news!🙌🏽 So happy for you! Now... we expect to see some training videos for next year's Olympic battle to beat your personal bests in each category! 📃🦞🤭
Hannah is always stunning, and Shane is always entertaining, and together you are magical! So happy you're staying strong, Shane! We love you both! Hugs!😊🙏🏼🌟💕
Sign up for RUclips Premium with our link to get 2 months free! Link is in the description.
I believed you Shane. oh my
God bless you beautiful people ❤️🙏✝️
That hair cut is SO flattering on you, Hannah! Shane, I'm so happy your tests turned out well. Love you both!!!
I have always felt that insurances should not be the ones to determine the meds we take. If a Dr orders it, there is a reason and inshurance should not have the final words.
💯💯💯
I've been f ollowg you since the beginning your breathing and speaking is unbelievably better it's so amazing!! Having someone to lo ve and share a life together I'm sure makes a difference to.
CUTE HAIRCUT HANNAH!! SHANE IS 😂 HILARIOUS!💞🥰
The American healthcare system always shocks me as a non-American. This is just crazy. Isn’t the whole point to actually give people medication if they need it? Seems like the system is built around finding loopholes to not treat people :/
look at who half of america wants as president
@@roostersideburns3440 we don't REALLY know that until election day.
@@jv-ep2tc something is still wrong even if he loses the fact that hes a viable candidate is saddening
@@roostersideburns3440 it is also a wake up call. I have learned that a great number of americans are hateful toward their fellow citizens [even if they don't act upon it] and are easily lead astray by a charlatan. those things put the rest of us on thin ice.
@@jv-ep2tcunfortunately we know for sure now
So happy that your drs appointments went pretty well ❤. I’m 53 and was born with cerebral palsy and was diagnosed with epilepsy at 15 so I go through certain things like that to maintain SSI . My daughter is an occupational therapist who works with geriatric patients at a rehabilitation facility and she turned me onto your channel almost 2 years ago . You two are amazing and an adorable couple 💕
For what it’s worth, I have been watching your videos for a while now, and honestly to me you do look stronger and healthier than you used to. Your voice sounds stronger, and you move your head and arms more. Or maybe it’s just that your onscreen presence has evolved 😊
In any case, I’m glad you are done with those silly tests for another year and that you’re officially doing great!
This reminds me of IEP Goals and Objectives I had to create for students with medical conditions of which regression is expected. I had to document progress. I had to go to great lengths to show data that supported “maintenance IS progress for this student”.
I’m happy that you are maintaining and that your medication was approved…for another year…where you hit “repeat” once again.
Yes! Some IEPs are ridiculous. I adopt medically fragile children and they usually are stuck at a newborn level. We have to set goals anyway for pushing buttons and taking tests. The state makes it so hard on the teachers just doing the paperwork instead of concentrating on the kids.
Good news, Shane! And Hannah, your hair is so flattering. I mean, you'd look pretty in anything, but that cut is great.
A very flattering style which accentuates your face much more than the longer hair style!
“Lightening thumbs”…🤣🤣🤣 you crack me up Shane! So glad you were approved. You are much loved you two.🥰
Shane looking dapper with the fresh cut ,he's really funny .😂❤😂❤
Hannah is a sweet heart.
STAWPPPP 😂😂😂 your intro killed me! Lmao. Love you Shane. You are one of the funniest people and I remember going to school with you. I live in Doylestown now and enjoy when you pop up on my YT. You are still as awesome as you were back then. ❤ Xoxo
Great to see you two so happy and on top of things. ❤
STUNNING HANNAH! Beautiful hair cut for a beautiful lady!
I agree!❤🤗
Your humor is fantastic Shane! Good news on your continued medication. Hannah is always beautiful!
Hannah’s easy breezy beautiful fresh cut and Shane’s humor being sharp as ever, plus good news regarding Shane maintaining his disability status! That’s a lot to celebrate! Hip hip hooray and cheers 🥂 to you both ♥️ Much love XXOO
That close...Shane you absolutely rock!
Hannah that hairdo is adorable! And Congratulations Shane on your new wife, and your stable test results!
Your annual evaluation is like an SMA birthday. Happy SMA birthday Shane! 🎉
Glad you're well Shane :)
Love your new haircut, Hannah! Glad for your test results, Shane! You two are awesome and I love watching/listening to you both.
RUclips shows me subscribed, yet it doesn't show your videos in the menu options - I get a lot of crap that I'm not subscribed to and dislike. But I got this video and am so happy for you! It's good to see you after not seeing you for perhaps two years Love you folks . . .
I contribute Shanes good growth to having a good dose of Hannah constantly.
YES! That was my first thought, too.
Hannah your haircut is SO cute! the little hair style you did is so adorable 😊 and Shane never fails to make me laugh! kudos to him for persevering through those tests every year. Sending love from the UK, you two are so lovely to watch ❤
Shane is just so hilarious!😂😂😂😂Hannah you are so lucky to have such a dude with a great sense of humour!
Exactly that's why I keep watching. His personality is so strong you don't even think about the disability. Makes me smile 😃 ❤
My niece has a disability and a strong personality. She cracks me up on a regular basis.
I was just going to say the same thing!
Amazing man so so positive with such a lovely caring wife. ❤❤❤
Thank you for the update. I am very happy for you both. I'm sure it was a great relief to you guys. Shane, with his start of the video, got me good. My heart sank at first and then you spoke up and I was so relieved to find out he was joking 😂😂. I love longer hair, but you look very pretty with the new haircut. Take care and I'll see you later. ❤
Hannah - I absolutely LOVE the color of your Door County sweatshirt!!! It was made for you!
My brother is severely disabled and I dread his yearly check up. Luckily he doesn't understand the severity and even enjoys the attention, but for me it is the worst day of the year. I can't lift my brother by my own, so I need to drag my mother along, who has PTSD from my brothers complications. It is draining.
I'm so sorry you have to deal with extra hardship. Sending my empathy for what it's worth ❤
🙏🏽💐
I am sorry this weight has been put on your shoulders 😢 the stress has to be immeasurable. Sending love, light,strength and hugs ❤
Does anybody asses your sense of humor? You score so well there for sure! Great job Shane!
Love the haircut Hannah❤ Shane I’m so happy that your appointment went well 😊You two are truly my favorite people 🎃🍁
I’m glad Shane got a good report, good to hear. I love your new hair cut, super cute.❤️
EVER DAY IS A GIFT
Shane, I swear your neck is stronger now than it's been in previous years! Excellent!
Love the haircut Hannah!!! But man ,I should know by now with Shane and wait for a bit to hear the whole story! It scared me..
It wouldn't be a Squirmy and Grubs video unless Shane goes off the rails at least once! Glad your tests went well Shane!😀
Exactly 😂😂😂Shane's humour is something else😂😂😂😂
Way to go shane! By the way you can hold your breath for as long as I can so while I applaud you I'm not sure if I should be worried about my lung capacity😮
So great to see you both- and as adorable as ever!! Very happy those nasty test results prove you are maintaining your strength, Shane- and Hannah's new hair style looks fabulous!❤
It reminds me of the SSI evals I have to do for my multiply disabled daughter. I just want to fill it in with the answer "No, we still haven't received our miracle."
I know how you feel. Multiple disability since birth. About to be 46 years old and they still think she could improve before the end of her life. We are going to have to advocate better. This is just so ridiculous😢
I know an amputee who gets asked if they’re still an amputee. I’m pretty sure you’d see it on the news if someone’s leg and foot grew back😂
I had to tell an evaluator that my sister had down syndrome and will always have down syndrome unless she knew of any miraculous cures. That was the last time we had to go through that!
Right? Disabled since birth and permanent obviously don’t mean anything to them.
Yes! I literally just filled out a 21 page packet for this today. And all my records show I was born disabled. What do they think is going to change? They should just flag certain files of people with permanent disabilities so we don't have to be bothered.
You two were made to be together. I love you guys!
My granddaughter just had her SMA Clinic last week too. This is the first time she had the paper rip and moving the weight test. She just turned 7 so maybe as they get older they do different tests. Cute haircut Hannah ... I enjoy watching you two so much!
Adorable hair cut Hannah. And Shane , you’re as handsome as ever 😊. Love you guys.
Way to go Shane! Funny moment during my last muscle strength eval, I wrote down that I didn’t know if I could open a can (first time I’ve ever been asked about a can, usually they ask about jars lol) My doctor read it and said “what do you mean you don’t know if you can open a can!?” I replied back “well I’ve never tried and I’m not much of a soup person”
“I’m Stable!”
Well in some ways buddy lol *insert cookoo clock*
That intro is a course on how to end up in the dog house if your wife doesn't share your sense of humor if ever there was one!
Hannah's hair is so cute!
Those are terrific results! I can see that your head and neck look stronger. I love Hannah's hair cut, too. ❤❤❤
Hanna u are definitely an angel u have devoted u r life for Shane God bless Hanna long live hanna
The new haircut is beautiful, looks great Hannah😁So glad Shane's tests are stable. God Bless you both.💕🙏
😄Best intro, Shane!
Hannah's new haircut is great! So glad that Shane is doing well. Of course we can count on him to make up crazy stuff when put alone behind a mike. 😀
Yaaay! Happy for good results, Shane! I don’t have SMA, just severe asthma and I failed the PFT’s terribly!!! Hannah, your hair cut looks great! I’m debating going shorter with my hair, but I haven’t made the cut yet! lol 😂
Shane , you are so positive and funny . Love to see y’all together
I wonder how many people typed I knew it then had to delete their hater comments. lol
Surely the over the top music and lighting would give away that it was a joke even if you thought that
I haven't been here for some 18 months and Shane does look stronger!
And his sense of humor is still up there! A new wife 😆 !
Love your new haircut, Hannah!
Your hair cut is adorable Hanna. ❤
Geez you guys are such beautiful humans.. ❤❤
Wow this hairstyle suits you! So cute and those clips! Beautiful.
I love that haircut on you Hannah! Glad the tests went well Shane.
Shane, you are so funny!
Hannah your haircut looks amazing. Shane, I’m so glad you’re doing well, obviously being married to Hannah is paying off lol. ❤
I had my pulmonary function tests today, all is well.
Glad youre maintaining! Thats always the goal when you are disabled. Try not to go backwards.
Congratulations, its wonderful news.
Hannah gorgeous as always. Hair cuts really can perk a lady right up.
Hanna's hair is so cute!
Thanks for another great video from you lovebirds. I was so happy seeing a new video from you two =). Your hair cut is cute, Hannah. Congratulations on having a higher score then last year, Shane. God Bless you both. 💖🧡💛💚💙💜
Your haircut is adorable!!! Love you guys❤❤
Luv your new cut Hannah. Your the bomb. Shane u kill me with the humor. Luv you both
❤😂Ik geniet iedere keer opnieuw van jullie filmjes.Dank je wel dat jullie dit delen. Heerlijk die humor van jullie. ❤
Hannah, i love the new haircut! You look beautiful like always. Shane, I'm glad you're fine! You almost got me at the beggining, such a good actor 😂 But I hate to hear about the dehumanizing part of it, it's actually so infuriating.
I've been watching you & subscribing to you for years and years. I love you guys so much!💜
Shane, you are a joy! For reals! You make me laugh - and I thank you.🙂
Hannah, you're looking so pretty in your new hairstyle. Have fun with it!
Glad you're doing well, Shane.🫂💙
You two are a adorable couple. I am glad you both are doing well. ❤❤❤❤
Cute hair cut Hannah. Glad you are stable Shane but holding your breath that long made me nervous! lol
😮💨😮💨😮💨I'm stable!😀😮💨😮💨😮💨 Great News!
Y’all are such a great team!
I love your haircut and I'm glad that Shane did good on all his tests. I really enjoy your videos and thank you for educating all of us.
Your new haircut is so perfect for you. I love it.
Shane is such a scream! Love you guys.
👏❤️ thanks guys for the strength update. We like to know everything about you both.
Glad your test were good. Hannah you look gorgeous with new hair cut, long or short you look gorgeous. Hugs to you both.
Thank you for sharing your life with us, you are both beautiful people ❤
Shane mouthing “19” after Hannah said he has 18% lung function made me snort laugh 😂
You both are my absolute fav✨the haircut looks so good, Hannah!! Wishing you all the best❤ love from
Germany
Hannah, the haircut is very becoming to you.. Like it much better than long.
Makes you look younger and more sprightly, that new look, Hannah 😊
Shane you're a pig, but a lovable one 😂
Thx for the important update 👍
I've been watching you guys for years and Shane seems stronger.
Praise God! This is such good news!
One day, there will be an actual SERIOUS intro made by Shane, and only then will we all be fooled. LOL
My hubby gets the occasional letter from the council. It states, 'If your condition changes, you must tell us blah'. Hubby says, "I'll let you know if my legs grow back😂😂😂😂😂😂😂😂😂
I love you both and the hummer . Shane you crack me up
Shane I commend your acting skills, I believed that something was up and it was serious. You lost me at I had to get a new wife. 😂 Nice try!
Shane you’re so dramatic but it’s awesome love you guys.
I love your banter, you are a light of love.
Shane you do look healthy you guys are an inspiration for me I am such a hypochondriac I totally get scared if I even get a head cold
Hannah, cutest haircut ever! Shane, you literally scared me at the very beginning, but honestly, I’ve been watching you guys so long, I should’ve known better!! 😂 Glad you’re healthy and full of it as always! ❤❤
I panic after holding my breath for 30 seconds. He did a whole minute and talked a little while doing it. LOL. Wow.
That's fantastic news!🙌🏽 So happy for you!
Now... we expect to see some training videos for next year's Olympic battle to beat your personal bests in each category! 📃🦞🤭
Hannah’s hair looks so good!!
Hannah is always stunning, and Shane is always entertaining, and together you are magical! So happy you're staying strong, Shane! We love you both! Hugs!😊🙏🏼🌟💕
You look stunning Hannah!!
Nice to hear you haven’t got worse Shane 🥰💪🏼
Shawn lol