Answering Your Questions While Doing Paint By Numbers 🎨

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  • Опубликовано: 3 июл 2024
  • It's time to answer your questions! Every wondered about who is the most famous person I've worked with? What Hollywood films I've made costumes for? How I got into Knitting/Crochet/Sewing? It's all in this video!
    There's also an in depth discussion about my disability, M.E. including discussion of medical abuse, medical trauma and death. To skip this section please use the chapters below or scroll over/tap the video and use the on screen chapters.
    Chapters:
    00:00 Something Different
    02:28 About me
    03:16 TW Disability About M.E.
    07:15 TW Death/Medical Abuse M.E. Shouldn't be Fatal
    09:06 What is Pacing?
    09:59 Asking about Disability?
    11:49 Sewing Community Inclusive?
    17:12 How I got into knitting/sewing/crochet
    28:16 Are you a theatre kid?
    33:31 Dream project? Favourite Project?
    35:34 Quick Fire Round!
    39:30 Film Work and Famous People?
    43:21 More Quick Fire Questions!
    49:06 Why the 1940s?
    52:10 Advice for Younger Claude
    53:05 Vintage Gadgets, Tante Ingrid, More Crafts
    55:24 Getting into the Costume Industry
    57:32 How am I doing?
    🧾For more information about M.E. and what you can do to help people with M.E:
    www.meaction.net/
    You can also follow the hashtags #TeachMETreatME and #MillionsMissing
    💷To donate to M.E. Research:
    www.investinme.org/index.shtml
    ❎Or if you cannot donate to research please vote for Invest in M.E. at My Giving Circle:
    mygivingcircle.org/invest-in-...
    📝Petitions to sign to save people experiencing medical neglect in the UK:
    www.change.org/p/save-millie-...
    www.change.org/p/save-karen-g...
    For my fellow theatre kids 😉 Brass the Musical:
    • We Are The Barnbow Las...
    • Brass [Billy Whistle] ...
    And if you'd like a look behind the scenes:
    • Brass: The Musical Mac...
    For more information about the supplies I used in this video see below:
    The painting I'm working on: uk.figuredart.com/products/ge...
    ☕If you enjoyed this video or found it helpful, please consider buying my a cup of coffee. This helps me to buy fabric and notions so that I can make more sewing videos for you! All contributions greatly appreciated: ko-fi.com/retroclaude
    Follow me elsewhere for more sewing inspiration:
    📸Instagram: / retroclaude
    📌Pinterest: www.pinterest.co.uk/retroclaude/
    🛍️Etsy: retroclaude.etsy.com
    ☕Ko-fi Shop: ko-fi.com/retroclaude/shop
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Комментарии • 289

  • @revealingme
    @revealingme Месяц назад +75

    Thank you for talking about ME and ableism. It's still a huge problem trying to get people to understand about ME and all the rubbish we have to go through, and not just the horrendous amount of symptoms we have to deal with.

  • @RoxanneRichardson
    @RoxanneRichardson Месяц назад +58

    It's wonderful to "watch" one of your videos where I could listen to you chat while I worked on my buttonband (it needs focused attention!). Really enjoyed this!

    • @RetroClaude
      @RetroClaude  Месяц назад +6

      I'm glad I could keep you company! Good luck with the button band :)

    • @Nerdygoddess
      @Nerdygoddess Месяц назад

      Similar, I have a can collection that needs rinsed and crushed before I can trade them for crafting money.

    • @leilasimon2057
      @leilasimon2057 11 дней назад

      Same, you're helping me get the washing up done!

  • @PopcornEmma
    @PopcornEmma Месяц назад +10

    I’ve had ME for 7 years and no one has ever actually explained what was actually happening in my body before so thank you! It’s always so meaningful to me to hear you talk about ME, it’s really validating to see someone else going through similar stuff (even though obviously it all sucks). Also, glad to hear that your channel has been doing well! Hello new people, welcome to the club :)

  • @tanakability
    @tanakability Месяц назад +69

    I once shared the fact I was on disability on Reddit, and my experiences with it (it's horrendous). People just straight up asking what was "wrong" with me to be on disability. It felt so invasive; the only reason I imagined these people asking would be to judge me as a 'benefit scrounger' or not, because why else would you want to know? It sucks having to have a disability, it sucks even more to be on disability/benefits, and it sucks the most that people that have no clue what any of that entails judge you so, so hard for it.

    • @RetroClaude
      @RetroClaude  Месяц назад +21

      I'm sorry that happened to you. It's part of why I try and show up as authentically as possible online. In the hope that people might see my videos by chance, because they like sewing or knitting, and see the reality of being disabled, in all it's ups and downs.

    • @missisbeautyfly
      @missisbeautyfly Месяц назад +6

      ⁠and that works! I found your channel due to a love for vintage costumeing and your videos have made me realise so many disability -unfriendlinesses in my local costumeing community, just by making me open my eyes

    • @punkrocksocks6390
      @punkrocksocks6390 Месяц назад +3

      I get that so much, I have fibromyalgia and the amount of anxiety that i feel discussing money and being on disability is horrendous. I’ve had people actually call me a scrounger because some days are better than others. I’m sorry you have to experience this too ❤

    • @therewillbecatswithgwenhwyfar
      @therewillbecatswithgwenhwyfar Месяц назад +7

      I don't know what it's like in the UK, but it's so frustrating in the US to hear people insinuate or outright say that they think we are getting benefits that we shouldn't be getting. If they had any idea how hard it is to initially be granted disability status and then stay on disability And how little money we actually collect they would maybe shut up. They should all be thinking they're lucky stars they don't know what it's like to be in our position because being disabled and living in state capitalism in a dystopia that is increasingly clamoring for a dictatorship…to say it's not as much fun as it sounds.

    • @therewillbecatswithgwenhwyfar
      @therewillbecatswithgwenhwyfar Месяц назад +4

      And considering that one of my friends in England has told me that rickets is coming back and children… I am going to go out on a limb and suggest that it's not any better across the pond.

  • @horsemaskreplica
    @horsemaskreplica Месяц назад +25

    I personally love your chatty videos! I find sewing videos interesting, but as someone who has no interest in actually sewing, listening to detailed explanations is not really the draw for me - it's more of the satisfaction of watching a project take shape, and seeing what difficulties inevitably pop up and how they are solved. If/when you get back to sewing, I don't think you need to worry about doing detailed pre-written scripts; vlog style chatty sewing videos would be lovely! I think most of us are just here because we like you

  • @emilysmith2784
    @emilysmith2784 Месяц назад +22

    I loved when you combined the shorts into a long form video. I try to watch your shorts but as I don’t usually watch shorts and usually tell RUclips I’m not interested I don’t see them. So please continue posting the shorts into a long form video ❤

  • @valasaur
    @valasaur Месяц назад +4

    "At the end of the day, you don't have to be disabled to benefit from those things." YES! Universal design is fantastic and should be normalized everywhere. There are so many things that we think of as "just" accommodations for long-term disabilities that would be massively helpful for people with short-term disabilities, different personal or learning preferences, or in general. The more we implement them into everything we do, the more normalized they are and the more included different people are. A go-to example here in the states is curb cut-outs (where the curb dips down so pedestrians can cross) - those are pretty new, but they've become universal. They were originally implemented as a mobility accommodation but people with strollers (for example) find them super helpful too. This idea is being expanded into schools ("Universal Design for Learning"), although higher education has been a bit slow on the pick up. Captions have been commonly treated as an accommodation for the hard of hearing, but it helps people who can't have sound on videos they watch (for example: baby is napping, but need to hear when baby wakes up), or watch videos during their bus commute (where even with headphones it can be difficult to hear the video), or aren't familiar with the speaker's accent.
    Accommodations like these benefit EVERYONE. It lets more people engage with and enjoy content or a product, regardless of disability status. It shouldn't take dozens of people constantly requesting an accommodation for it to be implemented. It shouldn't be implemented on a case-by-case basis, either. They should be the default.

  • @lavendercottagefibrearts
    @lavendercottagefibrearts Месяц назад +14

    I have had chronic neuropathic pain since about 2013. I'm 34 and still live with my parents. Sometimes I feel a bit ashamed about it, and looking at me I think a lot of people wouldn't think there's anything wrong as I am still able to work, have hobbies, socialise etc, but what they don't see is that for me to be at work and produce the same amount of output as someone else, might have taken me triple the effort, and I'm just exhausted all the time. I went through a really bad period where I was having to set my alarm at about 5am every day because it took me about 3 hours to get out of bed. Thank you for sharing your story about your disability - I think talking more about invisible disability helps people understand better that someone "looking normal" doesn't mean anything in terms of their actual experience.

  • @karianne7796
    @karianne7796 Месяц назад +37

    ✋🏻 person who saw you on shorts and binges your videos now💜 I love listening to your thought process making stuff. You keep me company while I do my own crafting💜. (I'm currently homebound disabled)

    • @RetroClaude
      @RetroClaude  Месяц назад +7

      Yay!!! You do exist!!

    • @fatigue_ling
      @fatigue_ling Месяц назад +2

      Me too! I have had ME since 2001 but still get so excited whenever I come across people with it (especially in spaces not specifically focused on chronic illnesses).
      I've been completely housebound since 2022 so these parasocial "friends" are all the more important for my mental health ❤️

  • @shaetenn
    @shaetenn Месяц назад +24

    Thank you for being so real and honest about your experiences and feelings. I have multiple disabilities and often feel isolated and listless. I have a lot of ideas for crafting but due to limitations of energy or finances can't always finish my grand plans. Having you share your circumstances creates a certain comraderie. Cheers, darling.

    • @RetroClaude
      @RetroClaude  Месяц назад +5

      We're in this together 😊

  • @rebeccasimpkins8231
    @rebeccasimpkins8231 Месяц назад +14

    My day brightened up when I took a lunch break and my daughter came running into the kitchen yelling "Claude released a new video!!" I love listening to you and appreciate you answering so many questions. I love to learn about other countries so as some one from the US hearing even a little about your education system is fascinating to me. I also appreciate how comfortable you are sharing information about ME. It's frustrating to hear about another disorder that has little to no research and even less good information available. Thank you for sharing and educating in your video. I'm looking forward to the next thing you release weather a short or long video. Meanwhile I'm on my 7th or 8th play through of stash busting. It helps make working from home more interesting. :)

  • @SarcasticShrubbery
    @SarcasticShrubbery Месяц назад +18

    Wow, thank you so much for that thorough explanation of ME. I have long covid and I had typed out a long comment about those two diagnoses being similar, but then I came to the point where you mentioned it 😄 Apparently long covid also has something to do with the mitochondria not working properly. I also practice pacing and am currently on the mild end of the spectrum, luckily. I've also been very lucky to have a very understanding boss (partly due to another coworker having long covid already) and competent medical help, I've mostly felt taken seriously. I believe the large number of people getting long covid all at once has shown the medical field how debilitating these symptoms are and will hopefully lead to more research and better care for everyone, including ME patients. It's a terrible silver lining to a terrible pandemic, but there it is.

    • @RetroClaude
      @RetroClaude  Месяц назад +10

      It was awful to be an M.E. patient watching all these new people suffer in an all too familiar way and know that there was so little help available. Like you say the only silver lining is we now how strength in numbers 💜💙

    • @SarcasticShrubbery
      @SarcasticShrubbery Месяц назад +2

      💚

  • @starsweptt
    @starsweptt Месяц назад +25

    Thank you for such a good, honest explanation of ME and the medical negligence we face, it's so hard to get people to understand and I always really appreciate you being open about it. I really enjoyed this chatty casual video!

  • @lynn858
    @lynn858 Месяц назад +13

    Algorithm recommended you ages ago because I watched a lot of costube. The disability perspective was what kept me around. And it was lovely to have some company for an hour.

  • @leaf2576
    @leaf2576 Месяц назад +18

    I spent most of my year age 17 shut up in a hospital, so I can really relate to your story about using crafting to cope through that. I knit up so many poorly-constructed hats in that year! This video was lovely to watch whilst sewing a spring blouse. I'm glad you're enjoying your new painting hobby :)

  • @dannilion
    @dannilion Месяц назад +21

    Thank you for this. Too foggy for a better comment (I have severe ME) but I really enjoyed it and I'm happy to watch you try new things 😊

  • @emmaRBC
    @emmaRBC Месяц назад +22

    I got a terrible stomach bug at some point and it trashed my ME. I was stuck in bed for a month and barely ate for most of that time. Doctors weren't doing anything and it was very scary. Thank you for speaking it about our illness. It helps people who've never encountered it to learn

  • @Shetooktothewoods
    @Shetooktothewoods Месяц назад +18

    Fellow ME/CFS tribe member. I think, back in the day, it started with a knitting video. It may have been sewing, but I’m not a sewist (am a knitter).
    I LOVE this new chatty kind. And the compilations! I’ve seen them broken up, but I think I lose the thread when they are, so the compilations are lovely and coherent to my fried brain. I confess that I’ll also put one on, take a nap, and slide it back to where I left the chat when I wake up. I also fall asleep every night to audiobooks, which I slide back to the last thing I remember the next night, so it’s a bit like you’re telling a story as you sew through a multi piece project. ❤

    • @RetroClaude
      @RetroClaude  Месяц назад +4

      You are more than welcome to sleep through my videos! I'm just glad I can keep you company 😊

    • @m.maclellan7147
      @m.maclellan7147 Месяц назад

      Maybe @claude should look into being an audio book narrator? You DO have a lovely voice !

  • @therewillbecatswithgwenhwyfar
    @therewillbecatswithgwenhwyfar Месяц назад +27

    I'm so grateful to you have creators who also have chronic illness who can do videos like this because you get it. And we get it.
    ❤❤❤❤

    • @therewillbecatswithgwenhwyfar
      @therewillbecatswithgwenhwyfar Месяц назад +6

      7:18 I was thinking of the RUclips creator physics girl who had a very successful growing channel and she was bound for success and then she got Covid and it triggered ME to the point where she had at least in the beginning because I don't know how she's doing this minute but she was unable to do anything but lie in a certain position in her bed with noise canceling headphones and an eye mask so that there was absolutely no sensory information coming in and she had to be fed in bed by her partner and was literally unable to do anything for herself.

    • @RetroClaude
      @RetroClaude  Месяц назад +8

      I've followed her story. It's heart breaking to see and yet I'm so grateful she, and the people around her, have shared her story so bravely. So often when we get sick we disappear.

    • @therewillbecatswithgwenhwyfar
      @therewillbecatswithgwenhwyfar Месяц назад +1

      @@RetroClaude Yes!

    • @luuky.33
      @luuky.33 Месяц назад +3

      ​​@@therewillbecatswithgwenhwyfar I thought of her too, she's the reason I got into physics. Last time I saw a video of her, a few months ago, she was doing a bit better, but I think she's still bed-bound. It's so great that her husband and a bunch of people who care about her are helping her so much, and she is slowly getting a bit better, I think.

    • @therewillbecatswithgwenhwyfar
      @therewillbecatswithgwenhwyfar Месяц назад +2

      @@luuky.33 I hope you've let her know! ❤️❤️❤️

  • @cherylrosbak4092
    @cherylrosbak4092 Месяц назад +8

    If anyone wants a deeper dive into ME and related issues This Podcast Will Kill You did a great episode recently.

  • @katevinee
    @katevinee Месяц назад +5

    Thank you for talking about ME and giving such a wonderful explanation of it. I find it really difficult to explain to people, and your discussion of it is so good and so easy to understand that I think I might start directing people here.
    I love these chatty, vloggy videos, and this sort of body-doubling-friendly video where the viewer can work on their own craft while you work on yours is really enjoyable. So if these are easier for you to make, I'll be happy to see more of them (although honestly you've never made a video I didn't enjoy, so I don't really mind what direction you go in. I must've originally come for the sewing but I stayed for the Claudeness of it all).

  • @traceywelsh5837
    @traceywelsh5837 Месяц назад +4

    I have moderate Chronic Fatigue Syndrome, Fibromyalgia, Degen Disc Disease in my lower back, costochondritis, calcifying right shoulder, dropped and tilted right hip, recently diagnosed with neuropathy in my left hip. List is bloody endless. My favourites are when people say "You're not crook, you look fine!!!" Or "Just go to bed earlier..."
    *rolls eyes*
    I want my life back...

    • @junimondify
      @junimondify 29 дней назад +1

      Seriously, just because they cannot see it, it doesn't mean everything's as it should be. I struggle with depression and psychosis and people keep telling me all I need is a holiday and pull myself together.

  • @TheHappyKnittingPodcast
    @TheHappyKnittingPodcast Месяц назад +7

    So lovely to see you - I think I would listen to you talk about almost everything :) thanks for sharing about disability and ableism!

  • @Nessi-dances
    @Nessi-dances Месяц назад +12

    The story from your childhood was very cute! 🥰 Those little paint pots are so difficult, I don't think that's a 'you' issue, I think they're just garbage. 😅💜

    • @RetroClaude
      @RetroClaude  Месяц назад +3

      Thank goodness 😅 I'm not the strongest and I often struggle with things like that, but the little pots were particularly tricky!!

  • @songindarkness
    @songindarkness Месяц назад +2

    I just love this chatty Q&A long form video. I admire your openness (including being frank about what it’s not ok to ask and what you don’t want to talk about.) It must be hard to be the disabled representation you want to see - especially because you’re challenging stereotypes and ableism. I’m not physically disabled and don’t at all claim I know what it’s like but I have mental health issues and possible neurodivergence which have affected my life hugely. So I appreciate hearing about lived experience of disability. I also want to say there is no shame in living with your parents (or there shouldn’t be) because for millennia most people lived in extended family units and it’s only a very recent concept that we should all move out on our own immediately at 18. I feel like a lot of loneliness and isolation in modern society is artificially created by these sorts of unrealistic expectations. I had to move back in with my parents when my mental health was so severe I was barely able to leave the house.
    It’s so interesting to hear about your experiences as a costume designer in the theatre world. I would love to see you do your dream project one day! It’s also wonderful to see you enjoying a different craft and talking about future projects. I am so here for anything you want to do. Can’t wait for another Retro Claude video!

  • @elainehickman4200
    @elainehickman4200 Месяц назад +6

    🖐 Exception to the rule here, I first came across your content via Shorts, Stashbuster.... Got intrigued and follow you on YT, thoroughly enjoyed.this video. Fascinating to understand your career progression etc. Good to hear you are exploring new creative outlets, thank you for sharing your opinions on diversity. Fascinating. I am a retired partially deaf female, with all that entails. Have enjoyed the tribulations of the daisy dress. The update on the journey to the Historical Ball, costume and knitted stockings! Thank you for sharing these thoughts etc. Love the painting, though topic NOT my thing. Be well Claude and I for one will be continuing to follow your long form stuff, with the occasional short thrown in. Best wishes from North West Britain.

  • @matthodek
    @matthodek Месяц назад +12

    You wonderful human. There are too many funny, or poignant, or thoughtful moments in here to pick a favorite (favorite poignant moment?!🤷). Thank you for taking the time and energy to make this video. I'm am currently between craft projects, but having a rest and just listening was very nice. Take care, and I will see you in the next one. 🦆

    • @armedvsokord
      @armedvsokord Месяц назад +1

      This expressed my feelings in a much better way than I could have. I can only agree with all that you said. ❤❤

    • @RetroClaude
      @RetroClaude  Месяц назад +2

      🦆🥰

  • @yojeffschott
    @yojeffschott Месяц назад +2

    Claude,
    I found your RUclips channel through Engineering Knits and I have always love your 'no sugar coating' any answer. You are so funny and talented. Thank you for sharing all your thoughts and talents.

  • @haycjones
    @haycjones Месяц назад +2

    The way long covid has basically turned into ME made me realise I'd caught swine flu when i was in my teens and i don't think my body ever truly recovered. After years of intense stress and less energy overall than other people i got sick around Christmas and never recovered. Ive been diagnosed with ME ever since and was forced to get a part time job which lasted 3 weeks before my body couldn't cope anymore and i was left in agony for 2 years as my body healed extremely slowly

  • @elsterbean7909
    @elsterbean7909 Месяц назад +1

    So many interesting topics discussed. I found your explanation for your interest in the 1940s interesting as I have always thought that there was very much a rose tinted view of this period in British culture, and therefore it was not something that should be glorified as it appears to be. There is also a general lack of understanding in the British narrative of WW2 about the impact of war on countries that experienced on the ground fighting or the vast movement of refugees across Europe during this period, let alone the horrors of the holocaust. Also, I had not heard that explanation for the causes of ME and it really brought home to me how little modern medicine actually understands how the body works. And it is just frankly depressing how little time is invested into researching conditions that have such a dramatic impact of quality of life.

  • @Sleepless_Chaos
    @Sleepless_Chaos Месяц назад +3

    I'm actually really interested to learn more about your experience with re-learning how to read.
    I've been dealing with a chronic (as yet unidentified; my DNA test is pending results) periodic fever disorder that has a few features similar to the symptoms you've described. I have energy limitations, fevers, gut malabsorption issues (which caused scary weight drop last year), sound sensitivity, light sensitivity, easy bruising, iron levels that fall off the cliff suddenly, and arthritis in my fingers, knees, ankles, and feet.
    When I told my doctors I couldn't really read anymore in about 2021, they threw me to a psychiatrist (who ended up being very helpful in getting me ADHD accommodations anyway), and then my condition actually forced me to leave in my second year of medical school. I thought I was *crazy* for suddenly being unable to read, and it's a hell of thing learning that I am not indeed bonkers. I'm still struggling more than before, but I found that video and audio is way easier for me to learn from--and I can't for the life of me follow plots anymore. I've even stalled out on writing, and that's something I've done for 19 *years.*

    • @Lisa_Flowers
      @Lisa_Flowers Месяц назад +1

      Not to this part of the video yet, but I also have really big issues reading. I used to be an avid reader and writer but out of nowhere when a lot of my (undiagnosed because I don't have access to healthcare) issues came up, I almost entirely lost the ability to read or write anymore. Which was especially hard because I was in the middle of an English and Creative Writing degree! I barely graduated lol. That was 4 years ago, and I still have issues reading and writing. And it takes me like 40 minutes to watch a 25 minute episode of TV because I have to keep rewinding to stay on top of the plot and keep track of what's actually going on

  • @yessica3420
    @yessica3420 Месяц назад +2

    I didn’t realize how much ME can effect someone. I ignorantly only knew about the fatigue. Thanks for being willing to share about it.

  • @lisabelloli
    @lisabelloli Месяц назад +4

    In America housing is so expensive lots of young people live with parents. They also can save money. 😊

  • @Lisa_Flowers
    @Lisa_Flowers Месяц назад +2

    I don't have ME/CFS, but as a mostly housebound person with weird, ambiguous relatively severe health issues that I currently cannot get diagnosed, don't really understand, and none of my family believes me about, it's comforting to find RUclipsrs who talk about their experiences witn chronic illness. Even if I don't know what's going on with me, and that can be really discouraging (and I sometimes gaslight myself into thinking i'm being lazy when I know that isn't true), there is overlap between our experiences and I've learned a lot about things like pacing that I likely would have never heard of because I have never thought of myself as being 'disabled enough' to need to look up or benefit from that information. You speaking openly about your experiences with chronic illness has helped me understand other people better, but it has also validated to me that my health issues are real and given me tools to try to address them.

  • @genevievehandley7106
    @genevievehandley7106 Месяц назад +2

    I really do enjoy your videos. I understand your disability as my daughter had the same condition. She passed away in 2021 from a blood clot. Keep yourself safe and listen to your body. ❤

  • @alexiskaine6336
    @alexiskaine6336 Месяц назад +2

    Thank you for sharing. You have helped me open the communication with my husband about getting a walker/wheelchair. You helped me rethink our disability. ❤

  • @arilibove-goldfarb4717
    @arilibove-goldfarb4717 Месяц назад +2

    Thank you for talking so candidly about ME and your journey to find a way to adapt to your limitations over and over again. I’m going through some of the same things right now and it’s good to listen to a RUclips video and crochet in bed to actually rest before my body forces me to

  • @bernadmanny
    @bernadmanny Месяц назад +1

    The bustle era, now that's making a rod for your own back...or cage more accurately. Happy that I was honoured to be answered.

  • @cecinestpasuneidee
    @cecinestpasuneidee Месяц назад +1

    I found you through shorts, stayed for the historical costuming, and then re-found my love of knitting through your various vintage patterns!

  • @winterdoescrafts
    @winterdoescrafts Месяц назад +2

    thank you so much for sharing, especially about M.E. and ableism ❤

  • @briannahenry8339
    @briannahenry8339 Месяц назад +5

    Hi Claude! I don't Ever comment on videos but I just want to say I found you from your shorts and your long form videos have been amazing comfort ever since. I particularly loved the stash busting videos, one as a newer knitter but two because of the vlog style nature of how you chat with your viewers. Your videos have made me feel much more confident as a knitter and your sharing of disability experience is so helpful. Dealing with the ADHD medication shortage here in the US, I've actually started using your "good, better, best" methodology as well to help curb that shame cycle with not being able to complete quite as much as I may have wanted on task. Looking forward to what comes next! ❤

  • @MyFocusVaries
    @MyFocusVaries Месяц назад +5

    Very interesting explanation of ME. My good friend has had a very successful treatment using neural plasticity training through our local university hospital, the university of British Columbia. She's not 100 percent but she's gotten back to many of her regular activities.

  • @abbielynnjuett4031
    @abbielynnjuett4031 Месяц назад +2

    I found you during your post about working with a disability. Because I have a disability, I subscribed. Now I watch most of what you post. I do not have the ability to watch the 2-hour or 3-hour videos. I apologize. A 1-hour is pushing my limits. This was a fun video to watch and listen to. I did get some knitting accomplished as well.💚💚💚

  • @coolcat020
    @coolcat020 Месяц назад +2

    Im very new to your channel (i found you from Bernadette Banners book actually) but its been so amazing to see a creator with ME. I have moderate/severe ME (and the wonderful hEDS and POTS to go along with it) and I want to get into sewing or making things. Its so great to hear you talk openly about it and explain it in a more coherant way than I could. Its also been great to see what you do for accommodations so I can implement them from the start and hopefully make it easier. This is a long way to basically say thank you and I appreciate all the work you do, sewing content or not.

  • @soolee8747
    @soolee8747 Месяц назад +2

    Thanks so much for answering my question. Also, as a fellow person with a disability, I really appreciate it when you take the opportunity to address ableism-and I related so much to the absence of disability inclusion in DEI spaces. I enjoyed this episode, and it looks like others did too.
    I found your channel because of your stash busting compilation, and have a great time rewatching the different segments. But for whatever it’s worth, this style is of video is also really great. While I do get satisfaction in seeing you get closer to your stash goals, I imagine you might sometimes feel pressure to finish projects by a certain time, simply for the sake of your content release schedule. I’m all for more episodes like this, especially if they make things easier for you!

  • @nniffa393
    @nniffa393 Месяц назад +1

    I'm also in my 30s and I live with my parents because I'm disabled and it's very nice to know I'm not alone in that so thank you 💚
    I enjoyed this video a lot, it was nice to chill with you!

  • @acutelyalex8700
    @acutelyalex8700 Месяц назад +2

    Thank you for the explanation of ME. As someone who has severe chronic fatigue but (as far as I know) doesn't have ME (it's from PCS), I always hear about ME and know a bit about it but haven't heard it explained so well. I shared your video and timestamp with my friends in case they wanted to learn about ME because it was so good!

    • @acutelyalex8700
      @acutelyalex8700 Месяц назад +1

      I also want to say I really, really like this chatty vlog style video. I really like your videos, and I think you should lean into what is accessible and what you'd be good at content wise. I understand the desire to want to do video essays, but doing vlogs has their own audience too and I think your audience loves them. People are here to watch you. So I definitely encourage you to do content that's accessible regardless, but I do think it happens to line up with what your audience likes too! ❤

  • @arianahocking6834
    @arianahocking6834 Месяц назад +1

    As someone else in the ME community, I really appreciate your discussion of it in this video. Even though it’s something I’ve struggled with for multiple years, I’ve also experienced a lack of information on what it actually is due to a lack of care, and didn’t understand the potential severity of pushing past my limits, which you explained so well in the beginning of this video. I know it’s a small portion of what this video is about, but I wanted to thank you for the wake up call.

  • @m.maclellan7147
    @m.maclellan7147 Месяц назад +2

    Popping in at minute 5 to say, "Thanks!" for talking about M.E. I knew nothing about it ! ( I did know you had a chronic disease)
    Back to the video, though, I can not watch the entire video now. I will tune in tonight & finish it !

  • @robynnedorion3900
    @robynnedorion3900 Месяц назад +1

    I have been diagnosed with fibromyalgia. The same with this. I am finding that it encompasses so many systems of the body. I am finding it difficult to manage at this point.

  • @stefthomas5339
    @stefthomas5339 Месяц назад +3

    Pretty sure the 6hours of stash busting was my first introduction to your channel! Wonderful stuff 😊

  • @DrLampshade
    @DrLampshade 5 дней назад

    I really appreciate how open you are about your chronic illness and disability. As a 30 year old who also lives with their parents due to health issues it’s nice to not feel so alone. It’s only recently that I have accepted the chronic illness/pain labels for myself (14 years of medical gaslighting does numbers) and your videos have really helped with tips and tricks I can try in my own crafting, and overall accepting the limitations of my body and brain. I really like the chatty videos, and paint by numbers so I hope we see more of them in the future. Those dang paint pots are so hard to open though 😅 I have to get my mom to open them for me

  • @carolinaazevedo2088
    @carolinaazevedo2088 Месяц назад +2

    I don't have ME but I am always thankful to live in a country where you can get the treatment for these type of conditions for free. It is one less thing to worry about when having a disability or a health condition.

  • @ladyflimflam
    @ladyflimflam Месяц назад +8

    The sad truth is that it’s easier to put a wheelchair user in a photo than to actually make your patterns and instructions accessible and a company will get more publicity and glow from a single photoshoot than from actual inclusion.

    • @RetroClaude
      @RetroClaude  Месяц назад +2

      Exactly. I'm all for having disabled models too, but it's not enough.

  • @lisaku6886
    @lisaku6886 Месяц назад +4

    Oh I have been patiently waiting for another Video of yours! I used to do paint by numbers until I got back issues. So glad you are having fun with it!

  • @RosieP_2876
    @RosieP_2876 Месяц назад +3

    I really like this format and I am leaving a comment to make the algorithm happy with you!

  • @steffipowell8950
    @steffipowell8950 21 день назад

    I grew up with a mum who had ME. It was horrible. Thankfully she is in remission now but still gets migraines and fatigue. I never actually thought about what ME was caused by so that was an interesting learn. My mum is also the one who got me into sewing and knitting when I was a kid.

  • @lolofunslayer4953
    @lolofunslayer4953 21 день назад

    I am one of the strange few who found one of your shorts and then came to find your longer form videos. The short I saw was your reaction to a comment about Emma Stone’s zip breaking and an explanation of couture.

  • @wolkehauch7445
    @wolkehauch7445 26 дней назад

    I'm all for the chatty videos, they feel like I have a friend visiting while I do whatever slow crafting I can manage. I often find myself talking back to the video or just going mhm and nodding. It's easier than talking to a person on the phone or irl and having to carry a conversation.
    I have moderate ME, I have so many obstacles in my life and I hate having to plan everything so as not to exhert myself and crash, I hate not being able to be spontaneous anymore but I am fortunate enough to have a mostly wonderful partner and I am still able to take my dog for short walks so I get outside and get som fresh air a few times a day.
    Came for the historical sewing content, stayed for you and who you are. ❤

  • @MicahAndersenNeverStopWriting
    @MicahAndersenNeverStopWriting 23 дня назад

    I found your channel through shorts! Now I'm enjoying watching your backlog. I started crocheting in March of last year and have taken a deep dive into crafty and sewing and historical RUclips corners leading to the recent purchase of a sewing machine I'm learning how to use. Loved this chatty video style and happy to be here

  • @caroltaylor5682
    @caroltaylor5682 28 дней назад

    I have a fascination with the 1930s and 1940 too. I have recently listened to a series of novels by Rory Clements covering these periods. The rise of fascism across Europe including the UK is covered. I think that my interest developed because my father died in 1963 and all his photos are of war time and before. His grandfather was Prussian and legend has it that French and German were spoken in the home.

  • @crystilmurch5659
    @crystilmurch5659 27 дней назад

    My ME journey started when I was 15/16. There was nearly no available info on it in the mid to late 90's when it happened. I just learned a bunch of new info on it that I hadn't come across, so thank you so much for sharing. Also, I know I should be better about staying informed so I can be a better advocate for myself, and now my daughter who we believe has long covid but no doctors want to actually diagnose her, instead just opting to treat some of the symptoms, which isn't working, but on top of working and parenting in general, it ends up being overloading and I struggle to even call for appointments on my days off for any of us.

  • @lindalieser4537
    @lindalieser4537 Месяц назад +1

    Glad you're taking care of yourself first. I got your Budeliah blouse pattern and I am hung up on the long stitch . No attempt comes out close to the picture. Would you be able to do a short on that particular stitch? Or point me in the direction of other directions. Really enjoy your knitting and sewing videos.

  • @rebeccathistle5874
    @rebeccathistle5874 Месяц назад +2

    Hi Claude. Nice to meet you officially! I discovered you from your shorts about crochet/knitting and I love your style (creative style/video style etc).
    Thank you for trusting us disclosing personal facts such as ME. I think it's important for everybody to be aware of the many issues people could have, in order to always be respectful and kind with strangers (and people in general). I hope you'll be able one day to cross all of your dream projects from your bucket list and that you will be able to live a fulfilling life.
    And in the video you say that life is unexpected and I agree 💯 ... I grew up saying that I wanted to become a vet...but at 18 yo my high school gave the opportunity to try the Engineering admission exam for free.. I passed it and I ended up being an engineer (I'm one exam away from the master degree) and I started to work on the field and I'm so happy and now I think it won't be like that if I had chosen vet school.

  • @Mums_a_knitter
    @Mums_a_knitter Месяц назад +1

    Hi! I loved the part about knitting for wellbeing, and I want to say thank you for your content. Between you and engineering Knits, you inspired me to give knitting a go two years ago when I was heavily pregnant and in need of a low stakes craft project. Since then it has helped me through some difficult times. Now I'm even getting on to some historical knitting by making a copy of the Prince of Wales Fair Isle Jersey from the 20s. Without you and your content I'd never have made it this far.

  • @Mountlougallops
    @Mountlougallops Месяц назад +3

    Thank you very much. I have fibromyalgia. I had thyroid cancer so I had a thyroidectomy. The thyroid controls the metabolism of every cell.
    My daughter has MS, my other daughter has Hashimoto’s disease. All of these are immune system related.
    Is EM about mitochondria’s metabolism?
    Thanks for the info. I’ll check out the links

  • @BunnyStephania
    @BunnyStephania Месяц назад +3

    I found your channel a few weeks ago for the vintage dress sewing videos. While I also have been a pretty successful knitter I can't keep it up due to my hand problems. As someone with an invisible disabling condition (peripheral neuropathy) I struggle with my limitations. Thank you for sharing your experiences.

  • @petapendlebury9024
    @petapendlebury9024 Месяц назад +1

    I had no idea that ME had so many different issues - I feel so much more informed. Thank you. If you already have videos ready but waiting for voice-over could you cope with watching and commenting in the moment on what you're doing? Or like watching TV that's going to be too much overload? I've been a follower for a while and loved the compilations. Perfect company for when I want something that I only need to pay half attention to. And I am now seriously thankful that I have the ability to both sew and have tv on in the background. I hope that your health improves so that you can get back to sewing in the future.

  • @LochNessie2626
    @LochNessie2626 Месяц назад +1

    Me working on granny squares while watching this 😂. Though tbh I don't entirely get the hype either. But I'm enjoying working on the bright colours for this one. And I appreciate how mindless they are
    Loved this chatty video to keep me company while I craft

  • @catherinejustcatherine1778
    @catherinejustcatherine1778 Месяц назад +4

    Paint by numbers sounds lovely

  • @susanwood1445
    @susanwood1445 Месяц назад

    Great explanation of ME. A lot of people just think it's fatigue. I have fibromyalgia and FND, people will often think I just have pain- pain is easy the neurological problems are the problem. I now just tell people that I have got a broken brain-they seem to get it then.

  • @999Giustina
    @999Giustina Месяц назад

    I had fibromyalgia for 15 years and was not helped by all the treatments. My doctors were able to keep me semi-functioning but not fixed. I did recover by taking vitamin D. My doctors all said I had good vit D levels but that was all I changed and saw significant improvements after 6 months. Not everyone needs more vitamins or minerals but my point is that doctors don't have all the answers and neither do the snake oil sales people. Not everyone has an obvious disability but we are here and we are a force together.

  • @brooke_reiverrose2949
    @brooke_reiverrose2949 Месяц назад +1

    Having to pause several times because what you are saying is SO relatable
    And just when I thought I couldn’t love you more we get #JusticeForJacob I’m dying 😭 I scream laughed out loud in the kitchen while getting the pets their dinner

  • @maisiecat71
    @maisiecat71 Месяц назад +1

    I love both your long and short form content. Would love to see the painting as you progress! Thank you for your honesty, advocacy, humour and sharing your crafting with us.

  • @mariadowney9776
    @mariadowney9776 28 дней назад

    It's nice to see these more chatty videos, it feels like sitting and crafting with a friend! I got a good bit of a crochet top done

  • @yasmingeorge5173
    @yasmingeorge5173 Месяц назад +2

    I have missed your videos I did watch your shorts when RUclips showed me they are there, loved the stash busting and have an interest in 1940s I think because I had older parents and a grand parent who lived through both wars, I grew up on old musicals and loved the style of the day. Now I'm crochet obsessed and still learning to knit 😀

  • @redjuju9807
    @redjuju9807 26 дней назад

    Hi! I’m one of your “exceptions that prove the rule” that started on your shorts and made my way to the longer videos. Also again true- the compiled stash busting video was great :)
    Thank you for sharing about ME and why you don’t call it chronic fatigue syndrome - as someone starting in the medical field (pharmacy), it is always helpful to hear the experience of anyone who deals with a not so common health issue (I now know to be carefully aware of ME and nutritional needs, and while I hope I never have to use that knowledge I am genuinely grateful to know about it. I would also like to acknowledge that is *not* why you shared your experiences and I in no way want to take away from what you’ve been through. ). I really appreciate the way you talk about your experiences and being real that sometimes it just sucks even when it was “okay” before - I needed a mobility aid recently (26) for the first time. I didn’t and haven’t known how to feel about it but seeing your attitude over the course of the stash busting video both validated the “it sucks” moments and has given me a lot of hope about the “it can get better/ life is what you make of it.”
    On a different note - I primarily crochet and am trying to learn to knit and your videos are making me want to try so many things!!
    Best of wishes from the USA (Texas) and thank you again for sharing about yourself and all your crafting knowledge!

  • @BYBabbra
    @BYBabbra Месяц назад +2

    Such a wonderful catch up. I've been watching your videos for quite a few years now and if I had done only half of what you have I would be so proud. You are a very accomplished lady and I should really pull my finger out and got on with stuff. Thank you.

  • @danielletdg8423
    @danielletdg8423 Месяц назад +2

    I like these kinds of videos, and it was nice to get answers to some questions I've had over the years.
    Also, I found you because pf your historical sewing. I've fallen in love with your stash busting series, despite not knowing how to knit. Have a good week, and best of luck on the alterations.

  • @allisongetscrafty545
    @allisongetscrafty545 Месяц назад +1

    This was really lovely to listen to while lying in bed trying not to think about being sick so I can get a bit of rest. I love the compilations - I’ll listen to them while I work and feel like I’m being kept company, and then I’ll listen while crafting as a bit of motivation. I’m currently watching Clodmas 2022 and honestly find it motivating seeing how you adjust when things aren’t going quite to plan - it makes it feel more approachable to just get a little bit done and inch toward my goals.

  • @catarinaveiga8030
    @catarinaveiga8030 Месяц назад

    I am an absolute fan of your work and I identify massively with your struggles since I'm cronically ill myself. Your and other fiber arts creators have inspired me to return to crochet (I've learned from my grandmother and from a family friend in childhood but had sort of abandoned it to pursue a career in education) when I no longer could safely do my job and had to quit... It literally saved my life and helped lift my depression, so thank you very much! I wish you health and hapiness ☺ love from Portugal

  • @lucyhenshall2544
    @lucyhenshall2544 Месяц назад

    I'm a subscriber who came from shorts! I saw a couple of your daisy blouse shorts and then went to your channel and started watching your long form videos and now I often watch your stash busting videos while crafting or programming code for my job so I'm so glad I found your channel! It was a great day when your 6 hour stash busting video appeared :D So hopefully that's helpful for you to know! Really enjoyed this video too, thanks Claude!

  • @moonhunter9993
    @moonhunter9993 12 дней назад

    Great videos. Really enjoy your style, talent and personality. Thank you for talking about chronic disease and pacing. I have celiac disease and together with a very careful diet, pacing is the only thing that helps me to keep my life/health manageable. Until the pandemic. Then pacing wasn't possible any more as I lost my business and had to continually work to start a new one to feed me and my daughter. There's no social benefits/security where I live. You don't work, you don't eat. And many did starve here. I was lucky enough to be able to keep going long enough to make it through the pandemic but then I had a breakdown and couldn't walk for 6 months. On my way to recovery now. Knitting, sewing, crocheting is helping me mentally a lot.

  • @dexaria
    @dexaria Месяц назад

    I also have ME/CFS and I hate how I feel I have to justify my existence constantly. I’m lucky to be well enough to work part time but so many people just think I’m being lazy and it frustrates me a lot
    PS thanks for answering my question!

  • @liav4102
    @liav4102 28 дней назад

    Most of the people I follow and am most excited to see an upload from are the more vlog style folks.

  • @ceem5915
    @ceem5915 27 дней назад

    Listened/watched this while I was at work. It was like time with a friend. Glad you're soldering on.

  • @franny5156
    @franny5156 Месяц назад

    I'm one of the people that saw the 6h stash busting video first, I only saw the shorts after I watched a few more videos I think... I think the reason I watch more knitting and crochet is cause I can relate more? And I feel like your videos are a bit more instructiony than other costubers? And I know I won't sew costumes but I do crochet and I might start knitting at some point. The 6h one was finished playing in the background while learning for exams so I like those vids

  • @annachapman8369
    @annachapman8369 Месяц назад +5

    i'm so with you on disliking circular yoke construction... not for me, and for fewer people than make them imo

    • @RetroClaude
      @RetroClaude  Месяц назад +1

      I might be biased after my Ranunculus went so wrong.....

  • @nexusstorm4790
    @nexusstorm4790 Месяц назад

    checking in to say that I believe I came from shorts! not directly because I was seeing a bunch of shorts about your daisy blouse so the algorithm thought I liked your channel but I still didn't really know who you were until I clicked on your 6 hour stash busting video after being recommended it for weeks straight, and only after that and I saw some of your shorts again I probably realized it was the same person, haha. I'm obviously not everyone but you got at least one new viewer that way

  • @ellie38gwen
    @ellie38gwen Месяц назад

    Love the video. Will finish later 😊

  • @MonaSkovJensen
    @MonaSkovJensen Месяц назад

    This was so lovely to watch! Thank you!

  • @sewme1468
    @sewme1468 Месяц назад

    i just love your spirit!

  • @erescrochet3428
    @erescrochet3428 Месяц назад

    So glad to hear from you!

  • @mikeymullins5305
    @mikeymullins5305 Месяц назад

    loved listening to you!

  • @leilasimon2057
    @leilasimon2057 10 дней назад

    From my little corner of the historical costuming side, I found you from the Pockets collaborations with Jimmy the Welsh Viking (also I met you at the Moggerhanger Romantic Weekend!) and stayed because I liked your style. The ME was not off-putting, and in fact interesting for providing another point of view! And helped me in understanding what a few friends are going through. Thank you! ❤

  • @HungryOrca
    @HungryOrca 29 дней назад

    I found you through shorts, I think it was your hexi puff videos. I came to check out your long form videos because I liked your content, and as a conscious choice because I had heard that shorts didn’t make creators any money.

  • @louisalowry6229
    @louisalowry6229 Месяц назад

    Interesting that two of the things you talk about are so relevant to what I watch on RUclips. Sockmatician - a knitter and actor whose husband wrote the brass musical. And Dr Steven Hicks from CEE has just done a thought provoking series on Nietzsche and the Nazis because he is so worried about the rise of fascism.

  • @fatimarauf4312
    @fatimarauf4312 Месяц назад +1

    Hi Claude! It's great to have you back!

  • @user-vn2vw8et3h
    @user-vn2vw8et3h Месяц назад

    I love hearing you talk about history!! Would you ever consider doing a series on topics you're passionate about/podcast or something? Love your videos!!

  • @simonrobson1929
    @simonrobson1929 Месяц назад +1

    Great to see you back Claude. Was worried you were having a very bad spell and not feeling up to talking to us.