This film brought back so many childhood memories of my own, however mine wasn't as severe as hers until I got into my late 30's then it turned. I didn't have the family support as she does, such as my parents seeking medical attention back then, most hid things such as this back then. . It wasn't until 1991 that I was formally diagnosed with Hemiplegic Migraines at John's Hopkins. I'm 62 now and with the help of my neurologist and primary care doctor I'm on a combination of medication that controls the symptoms more effectively that my attacks aren't as severe. I feel very blessed to be married for 43 years and had 2 children and 3 grandchildren. I hope my story brings comfort and some hope to this young lady and her wonderful compassionate family. Many Thanks and gratitude for making this film brining attention to this disease.
This is heartwrenching but so so imformative. Watching this and seeing them all having to endure what my own child has been going through. We've just done genetic testing so waiting for the results now..
This film brought back so many childhood memories of my own, however mine wasn't as severe as hers until I got into my late 30's then it turned. I didn't have the family support as she does, such as my parents seeking medical attention back then, most hid things such as this back then. . It wasn't until 1991 that I was formally diagnosed with Hemiplegic Migraines at John's Hopkins. I'm 62 now and with the help of my neurologist and primary care doctor I'm on a combination of medication that controls the symptoms more effectively that my attacks aren't as severe. I feel very blessed to be married for 43 years and had 2 children and 3 grandchildren. I hope my story brings comfort and some hope to this young lady and her wonderful compassionate family. Many Thanks and gratitude for making this film brining attention to this disease.
Scroll down to related disorders FHM rarediseases.org/rare-diseases/alternating-hemiplegia-of-childhood/
Thank you for sharing your experience. Do you have an email address I can send you an email? My daughter is almost three diagnosed with this condition
This is heartwrenching but so so imformative. Watching this and seeing them all having to endure what my own child has been going through. We've just done genetic testing so waiting for the results now..
Very moving story. God show us the way...we need you Jesus