It warms my heart knowing that your so happy in your life. I to am a hemophilia patient factor 8 ,life is a maze. And I'm not alone in it. God Bless,All the best.
My baby has recently been diagnosed with severe haemophilia, I have no family history and never heard of it before Bobby’s diagnosis. He is 3 months old now and I As a parent of a newly diagnosed baby with severe haemophilia I really hope he has the opportunity to have access to this new drug/treatment of Hemlibra instead of having the port operation 🙏🏼.ill be documenting his journey on my RUclips page with any updates but I hope he is one of the first severe babies in the U.K not to have the port installed and to go straight onto Hemlibra . I can’t imagine what you’ve been through going daily to the hospital for treatment, thanks goodness for the recent medical breakthroughs - It’s good to watch your video and get a better understanding. Thank you! 🙏🏼
I didn't have a port. I have severe hemophilia a and have been on factor 8 therapy for 26 /27 years of my life. I also started doing my own infusions when I was 7. I think it looks better, less infectious and it's highly important that he knows how to treat himself. What if you were in an accident and he was the only coherent one available.
Hello Maynilyn, Thank you for getting in touch with us and we're sorry to hear about your situation. I'd like to invite you to get in touch with our office in your country as they might be able to assist you best. You can find a list of all Roche offices at this link: www.roche.com/about/business/roche_worldwide.htm Wishing you all the very best, Tom on behalf of Roche Social Media team
@@roche hello Po..thank you for the reply...hope amd pray there's a foundation here that can help my son medical care..he can't barely walk almost 2 mos..he nvr tried any medications at all..and so disappointed as a mother to her feeling.so helpless and so irresponsible coz I can't help my son for lack.of finances
@@Ladyloca1981 I feel so sorry for you, It really makes me understand how blessed I am for being born in a country where I can get such healthcare. I'll pray for your son today
@@Ladyloca1981 i am poor. Best luck is to do what you must to get to the US and pretty much free healthcare. The ones who say we dont have it are too rich to say anything relatable to yourself.
My women issues always so terrible twice in a month losing loads blood in three days my head absolutely throbbing after cycle finished taken natural medications try help me constant hormones in my parts whole month is worst not sure this condition
It warms my heart knowing that your so happy in your life.
I to am a hemophilia patient factor 8 ,life is a maze. And I'm not alone in it. God Bless,All the best.
These stories need to be HEARD and SEEN more
im a nursing student doing a paper! THANK YOU!!!
Am also haemophilia patient and it is like going through hell!
well i am also a haemophilia A patient , and its feel good that u are living ur life in good condition .
I am also hemophilia a patient .no. 8085615831
My baby has recently been diagnosed with severe haemophilia, I have no family history and never heard of it before Bobby’s diagnosis. He is 3 months old now and I As a parent of a newly diagnosed baby with severe haemophilia I really hope he has the opportunity to have access to this new drug/treatment of Hemlibra instead of having the port operation 🙏🏼.ill be documenting his journey on my RUclips page with any updates but I hope he is one of the first severe babies in the U.K not to have the port installed and to go straight onto Hemlibra . I can’t imagine what you’ve been through going daily to the hospital for treatment, thanks goodness for the recent medical breakthroughs - It’s good to watch your video and get a better understanding. Thank you! 🙏🏼
I didn't have a port. I have severe hemophilia a and have been on factor 8 therapy for 26 /27 years of my life. I also started doing my own infusions when I was 7.
I think it looks better, less infectious and it's highly important that he knows how to treat himself. What if you were in an accident and he was the only coherent one available.
Hello,,
How is your baby now..God bless your baby
Mooi. Hoop dat je het nog goed doet.
I am a hemophillia A patient to.
I have a son who.has a hemophilia A...is there any foundation who can help??from Philippines here
Hello Maynilyn,
Thank you for getting in touch with us and we're sorry to hear about your situation. I'd like to invite you to get in touch with our office in your country as they might be able to assist you best. You can find a list of all Roche offices at this link: www.roche.com/about/business/roche_worldwide.htm
Wishing you all the very best,
Tom on behalf of Roche Social Media team
@@roche hello Po..thank you for the reply...hope amd pray there's a foundation here that can help my son medical care..he can't barely walk almost 2 mos..he nvr tried any medications at all..and so disappointed as a mother to her feeling.so helpless and so irresponsible coz I can't help my son for lack.of finances
@@Ladyloca1981 I feel so sorry for you, It really makes me understand how blessed I am for being born in a country where I can get such healthcare. I'll pray for your son today
@@Ladyloca1981 i am poor. Best luck is to do what you must to get to the US and pretty much free healthcare. The ones who say we dont have it are too rich to say anything relatable to yourself.
My women issues always so terrible twice in a month losing loads blood in three days my head absolutely throbbing after cycle finished taken natural medications try help me constant hormones in my parts whole month is worst not sure this condition
Hay bro...im hemophilia from INDONESIA 😊
i am a Glanzmann's thrombasthenia patient.. you may know it... its like haemophilia
I am from Germany, my son also hemophilia A. I also tobtesed
i think you meant as 18 years old
I am heaimophila for Nepal feaictor viii my brother heaimophila
Bhai factor milta hai apko?
Iam hemophilia A inhibitors high titer
I am doctor
Please speak tamill, i am not interested.