Living with multiple sclerosis | Felix's story

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  • Опубликовано: 24 ноя 2024

Комментарии • 148

  • @ecyornozaj7851
    @ecyornozaj7851 3 года назад +291

    Hey, Im Royce! Im currently 17 now and I was diagnosed with MS when I was only 8 years old. Just know that its gonna be alright! 😄

    • @saradove5789
      @saradove5789 3 года назад +15

      Good luck , ur the strongest ever

    • @BTBExcobarIbaakaCortez
      @BTBExcobarIbaakaCortez 3 года назад +9

      God bless you!

    • @alijahim
      @alijahim 3 года назад +10

      I was diagnosed when I was 11yrs old. I’m 28 now. How are you doing nowadays? I’ve recently went through some blurry vision recently and have just realized my terrible memory is part of this. I guess my disassociation with my problems isn’t the best way to deal with this.

    • @Joe-zg2gt
      @Joe-zg2gt 3 года назад +1

      Hey just a question what are some early signs of it because I have had muscle twitches and pins and needles everywhere

    • @ShaqsCheeks
      @ShaqsCheeks 3 года назад +5

      @@Joe-zg2gt you have it. 100%

  • @KissesFromCanada
    @KissesFromCanada 4 года назад +105

    I just got the first start of a diagnosis. I’m worried. Lots of testing to come. I appreciate all the positive info!

    • @jillianocon1149
      @jillianocon1149 4 года назад +9

      hope it goes well. Take care always!

    • @okletstryyyy
      @okletstryyyy 4 года назад +5

      I’ll pray for you!

    • @viyank6644
      @viyank6644 3 года назад +3

      Hope you're okay

    • @KissesFromCanada
      @KissesFromCanada 3 года назад +7

      Thank you for the kindnesses. I am RRMS now, on Tysabri treatments, off work since April. My hubby and young kids are struggling with what it all means. I guess I am too…

    • @gamewithloki8382
      @gamewithloki8382 3 года назад

      Hello sir can you help me for differenting the symptom

  • @healthagenda6690
    @healthagenda6690 6 лет назад +60

    These videos with the personal stories are really helpful for people and it is great that a pharmaceutical company had the idea to do this informative series of videos.

  • @nehafatima1781
    @nehafatima1781 2 года назад +29

    I'm 21 and diagnosed with MS but I am not going to give up on myself 👍

    • @wrenbyrd1093
      @wrenbyrd1093 Год назад

      👍👍

    • @drose3312
      @drose3312 Год назад +3

      Keep going ❤

    • @neetujogi8087
      @neetujogi8087 Год назад

      Hey neha . I feel I have symptoms of ms. I am in agony from one year. Doctors cannot diagnose my problem I am almost wanting to give up. Plz can u help me with ur symptoms so that I can understand what is wrong with me

    • @TheDetoxCureGuide
      @TheDetoxCureGuide 2 месяца назад

      I made a video about how MS can be improved by detoxification and anti oxidant supplementation. I had many of the symptoms but have now recovered.

  • @optimus6858
    @optimus6858 2 года назад +11

    I like how calm he is

  • @indeelift7495
    @indeelift7495 3 года назад +8

    Such a great testimony. We are proud to support people with MS and others with mobility and fall recovery assistance.

  • @kemocali6504
    @kemocali6504 2 года назад +12

    I was diagnosed 2021 , stay strong y'all . I understand .

  • @lovelybeginner4082
    @lovelybeginner4082 3 года назад +27

    Hi I would like to tell few tips to reduce the intensity of MS symptoms
    1) Yoga or meditation as Stress triggers the symptoms
    2) Stop smoking ( If u r a smoker)
    3) Get enough sleep
    And remember anything can be dealt be confident be happy stay safe 😷

    • @fifun8479
      @fifun8479 3 года назад

      Ru sure? What symptoms do u have?

    • @ari-jv
      @ari-jv 2 года назад

      Take cod liver oil as well. It has vitamin d

    • @juliathigpen7070
      @juliathigpen7070 2 года назад

      It sucks bc I can feel it getting worse after smoking but it’s been the only thing that’s helped my anxiety and now that I haven’t been able to without an attack my anxiety has gotten worse

  • @hannodiaz-vogel9415
    @hannodiaz-vogel9415 2 года назад +8

    Thanks For your Clip Brother.
    My Sister and I have too MS.
    And the Motto is never give Up.
    Best Wishes Luis-Juan

  • @StephanWiesner
    @StephanWiesner 5 лет назад +85

    Keep on photographing Felix!

    • @malachiaxl3178
      @malachiaxl3178 3 года назад

      i guess I'm quite off topic but do anyone know of a good website to stream new tv shows online ?

    • @thegoat7628
      @thegoat7628 2 года назад

      @@malachiaxl3178 Fbox.To

  • @incontroldiapers
    @incontroldiapers 4 месяца назад +1

    Stay Strong! We are always here to help! 💙

  • @queenbecks9913
    @queenbecks9913 2 года назад +15

    Hi, Felix! It looks like you have a great attitude. I am 26, and started experiencing symptoms just two years ago. Everyone is certainly different, but it sounds like staying active and living independently will help us both stay healthy! :)

    • @Sandro-qq4xb
      @Sandro-qq4xb Год назад +2

      This means a lot. I am exhibiting numerous symptoms that are linked to MS.

  • @mediencoach1
    @mediencoach1 3 года назад +8

    Stay strong Felix!

  • @westhawk9599
    @westhawk9599 3 года назад +13

    Positive attitude, being pro-active, and never letting go of your smile, will see you through very challenging times. Know that so many people care and are eager to be a friend and help in whatever way we can!

  • @professorinvestidor-aprend7702
    @professorinvestidor-aprend7702 4 года назад +12

    Extremely informative and useful to both new patients and new scientists.

  • @theresam9513
    @theresam9513 3 года назад +40

    I got officially diagnosed today. I am 22 years old. I´m a 2nd-year med student and I found out just a couple of hours ago that I will probably never be able to work in a hospital. I have never felt worse and I don´t know what to do.

    • @asadullahkhan3825
      @asadullahkhan3825 3 года назад +4

      I am so sorry that you have to go through this. I hope things work out for you.

    • @kittikadda
      @kittikadda 3 года назад +7

      I got the diagnosis MS when I just started my master in chemistry. I exactly know, how you feel. All dreams are crushed and it is difficult to find a new plan. I keep on studying, but it takes much longer and I don't know how much longer I can be working in the lab. Whish is the most important part for me. Maybe you can switch to Clinical Studies or something in that direction. If you would like some help. The scariest part for me was in the beginning. We could talk about it, if you want. Just say it =)

    • @bookssssss
      @bookssssss 3 года назад +3

      Wishing u all the love in the world. I believe you can get through this. You're a beautiful and smart person. I know you will pick it back up and find a way to do what you love no matter what.

    • @saradove5789
      @saradove5789 3 года назад +3

      U can do this, im just so sure :)

    • @BTBExcobarIbaakaCortez
      @BTBExcobarIbaakaCortez 3 года назад

      God bless you.

  • @suvikhyasiingh
    @suvikhyasiingh 6 месяцев назад +1

    😢 I relapsed 4-5 times and every relapse happening I get bouts of depression and after them I cannot feel myself the older one who was energetic previously but now a lethargic one with no wish or will to do simple tasks. In my country nobody is educated about this disease and when told they stigmatize the patients even blame them that they deserve it. Only I know how much I cope and struggle to remain calm and contented and I try best to just live my life.
    The disease is already killing us and the uneducated population also take toll on our mental health. 💔

  • @wrenbyrd1093
    @wrenbyrd1093 Год назад +3

    I’m afraid I have it too. I have problems with my limbs where it feels like they are being ripped off if I lift them for days sometimes. It happened to my arm and now my leg. I have feelings in my toes like being stuck with a hot needle. I have numbness for no reason in my hands. I have pains sometimes in my arms that seems to shoot down that whole side of my body. I’m seeing double sometimes. The list goes on……

  • @lenaeross4384
    @lenaeross4384 3 года назад +8

    Don't worry your not alone I'm 26 and I have multiple sclerosis

    • @vince7528
      @vince7528 2 года назад +1

      Same...

    • @Skybluewindcool
      @Skybluewindcool Год назад

      @@vince7528 What is your symptomps

    • @Sandro-qq4xb
      @Sandro-qq4xb Год назад +1

      Hi! What were the symptoms that made you seek a professional help? Thank you!

  • @kathleencruise145
    @kathleencruise145 6 лет назад +32

    God Bless you.Thank you for sharing your story

  • @Mlemonsxo
    @Mlemonsxo 3 года назад +12

    My name is Meonica and I have ms. I was told I lost cartilage out of my right knee which was really the ms . From there it took over my left foot. It took them a long time to get to the results but I can now say what’s wrong with me .

  • @cactuslietuva
    @cactuslietuva 4 года назад +30

    Just got diagnosed with multiple sclerosis. I can't feel my legs and im scared cause im only 25 years old.

    • @jingly1000
      @jingly1000 3 года назад +10

      Im so sorry !!! Please keep praying, stay positive ,I can understand only a little of how scared u must be. But imma keep u in my prayers. GOD BLESS DEAR ONE

    • @jonoalf1986
      @jonoalf1986 3 года назад +5

      Give it time, I lost sensation from the neck down with my first episode and over about a month I started to recover.

    • @cactuslietuva
      @cactuslietuva 3 года назад +7

      @@jingly1000 Okay. So almost a month passed from my first complications. I didn't had any previous symptoms except of tiredness and slight headache from time to time. And on the 26th on novermber i started feeling both my legs started to 'freeze' (sorry im not native English speaker), but it just slight sensation and next day i woke up i didn't felt half my body. From the waist down and couldn't walk. I was rushed to the hospital and i was diagnosed MS. They gave me hormonic medicine for 5 days and after that i was given reabilitation for 20 days. I will have a meeting next month regarding futher healing. At the moment i dont drink any medication only vitamins. Now i can walk pretty good now, but still feel some 'freezing', in my both legs. I don't really know how to feel cause in the last 2 years i lost my father, grandfather and cousin. Life just dont give me a brake and it is ironic that i was in perfect health and none of my family members had this disease.

    • @cactuslietuva
      @cactuslietuva 3 года назад +4

      @@jonoalf1986 Thank you for your comment. Im feeling a lot better. I can walk again normally. But i still sense the 'freezing' sensation, just a lot less then before.

    • @noo8160
      @noo8160 3 года назад

      @@cactuslietuva i am sorry for you hope you feel better now , i have ms too I can’t feel my half body and one eye is blurring and i am going under medication for 5 days hope i will feel my legs again and my eye back to nromal its sucks but we have to be strong 💪🏻 ....

  • @gavhinds8190
    @gavhinds8190 3 года назад +3

    Stay strong felix..and well done

  • @md008
    @md008 2 года назад +6

    I was diagnosed with MS over a year ago at 19 years old. I still haven't taken any medication yet, I think they caught it early because I haven't relapsed yet.

    • @dermlover1
      @dermlover1 2 года назад

      How does catching it early help without medications?

    • @Sandro-qq4xb
      @Sandro-qq4xb Год назад +1

      Hi, I hope your condition has gotten better since your diagnosis. May I know what were the initial symptoms you exhibited that led you to seek a professional help?

    • @aal6585
      @aal6585 Год назад

      I was daignosed age 17 on 2004 they didnt start till i became 20 when i became 24 i stopped the treatment 5 yrs

    • @aal6585
      @aal6585 Год назад

      Then gilenya till now i can wall run jump but no coordination on stairs 🌚

  • @lillyrocks2011
    @lillyrocks2011 2 года назад +3

    I hope a cure or something can be found to cure or better treatments. Every time are more ppl with Multiple Sclerosis and the quality of life is very bad in most cases.
    Please find a cure or better treatments! 🙏🏽🙏🏽🙏🏽🙏🏽💚💗

  • @mohamedorayith4626
    @mohamedorayith4626 4 года назад +8

    Hope you are doing Well Felix.
    Make sure you work on your balance bare feet, particularly on that cushion to improve sensory input and awareness+ better balance :)

  • @جعفرالعلي-ص6ع
    @جعفرالعلي-ص6ع 2 года назад +2

    In multiple sclerosis, myelin sheath that surrounds axons is damaged by
    autoimmune mechanism. Microglia and T lymphocytes destructive
    activity is much more than the ability of oligodendrocyte to produce
    myelin

  • @abouteverythingwithmartyar5212
    @abouteverythingwithmartyar5212 2 месяца назад

    I have ms also 😢 keep fighting the fight. I also subscribed 😊

  • @gauravsharma893
    @gauravsharma893 4 года назад +24

    I have just been diagnosed with MS.. I am 28 year old male.. suddenly left portion of my body below my shoulders has gone numb with constant feeling of pins and needle.. I m just discovering about this today and I am really scared to death .. where I live medical facilities are inadequate.. pls help me if you know what should i do

    • @angelarodriguez1813
      @angelarodriguez1813 4 года назад +1

      How are you now Sir?

    • @shaungarrigan6192
      @shaungarrigan6192 3 года назад +2

      Sorry to hear, dealing with similar issues. How are you now? Try to keep in mind symptoms come and go the bad bits will pass..

    • @aparnajoshi7710
      @aparnajoshi7710 3 года назад +4

      Come to our medical colleage in Jabalpur Madhya Pradesh where multiple sclerosis is treated by specialist

    • @Royal109618
      @Royal109618 3 года назад

      You have e.d. too ?

    • @Okie343
      @Okie343 3 года назад +1

      Guarav, get a methylmalonic acid blood test, which will show you your B12 tissue level. A low B12 at the tissue level will cause the M acid to elevate and dissolve the sheaths from the nerves. It's often misdiagnosed as MS. A normal B12 blood test won't show the tissue level, you need the methylmalonic acid test. If this is your problem, you can take B12 injections to bring the M acid down and eventually the damage to your nerves will be healed. Good luck

  • @jonhard1049
    @jonhard1049 Год назад +2

    My mom has sclerosis and it has just begun to get way worse every year. It has made her hallucinate and made her nearly forget all of the basics (she used to work in pharmaceutical companies but now she doesn't even know that smoking kills). Everytime I talk to her she keeps changing the subject wit hsomething else and then trreats me like I am a baby when I'm actually 20 years old. It is mostly troublesome when my mom forces my little sister to stay with her so she won't feel lonely, while my sister goes to a school that she lives in that is many kilometers away and then makes my sister skip her classes. My mom doesn't even admit she has the disease anymore and has never ever gotten help for it, so now I just wonder how can I help my mom, what should I do with her?

  • @joe_a_mc3283
    @joe_a_mc3283 3 года назад +11

    Hey my mum was just diagnosed with ms and I’m really scared and I don’t know how to handle it

    • @stephanielynch5146
      @stephanielynch5146 3 года назад +5

      My dad was as well, we have to be strong for them and just be the support system that they need.

    • @eliskapathova4380
      @eliskapathova4380 3 года назад +6

      hey sorry im late, my mum has it too. I was very scared too but remember this isnt the worst thing ever. My mom is ok because she knows that. Having this doesnt mean your mum will be invalid. Our moms wont be :). Just stay strong please, im saying the truth. A lot of people have it and they arent invalid and they are living a literally normal lifes. Thats it. ❤️

    • @clariesjackson6616
      @clariesjackson6616 2 года назад +2

      Don’t be scared. As someone who has a sister with MS I can say that it more affects the way you live your life than how long you’re going to live. In fact the average life expectancy for someone with MS is 5-10 years lower than someone without MS, but that gap seems to be getting lower so that’s great news!! Also most people with MS live active and healthy lives (aside from the fact they have MS)

    • @clariesjackson6616
      @clariesjackson6616 2 года назад +1

      Stay strong and continue supporting your mom 🥰

    • @Sandro-qq4xb
      @Sandro-qq4xb Год назад

      Your mom got this, Joe! MS may cause great damage to one's quality of life, but it's less about how long a person with MS can live. I hope your mom's condition gets better over time.

  • @markday6406
    @markday6406 Год назад +1

    Felix you rock buddy

  • @bleepersoffgrid
    @bleepersoffgrid 2 года назад +4

    I was only diagnosed last week and been having the symptoms since about 2009 I noticed during sex and after that my dissertation spells were daily the blurred vision got worse ....I thought I was always just unhealthy the only reason they noticed is from a year ago til now they were tracking my brain threw mri every three months then my spine ...the past 3 weeks I've gotten progressively worse, I wish they found it earlier, but better late then never

    • @roche
      @roche  2 года назад

      If you have questions regarding a treatment or medication, please consult your healthcare provider first or get in touch with one of our offices in your country. You can find a detailed list of Roche offices: www.roche.com/about/business/roche_worldwide.htm

    • @Sandro-qq4xb
      @Sandro-qq4xb Год назад

      Hi, how are you now? I hope you're doing better than before.

    • @drose3312
      @drose3312 Год назад

      Hope your good ❤

  • @feliciabosch8110
    @feliciabosch8110 2 года назад +4

    Exercise is so important

  • @aal6585
    @aal6585 Год назад +1

    I can remember the pages but my eyes cant focus on the lines i skip some diagnosed 2004

  • @sonamilia2229
    @sonamilia2229 5 лет назад +6

    Your infobox is wrong, its about Craig but the Video is about Felix. Or is this on purpose?

    • @roche
      @roche  5 лет назад +1

      Hi Sophia, thank you for bringing this to our attention, much appreciated!

  • @tumi.meraki
    @tumi.meraki 2 месяца назад

    I love him💕I hope he's well.

  • @playedJ
    @playedJ 3 года назад +4

    Inspirational!👍🏽

  • @thedenticle1337
    @thedenticle1337 2 года назад

    Diagnosed with primary progressive multiple sclerosis since 3 years💔

    • @erikanapoles2216
      @erikanapoles2216 2 года назад

      How old are you ? Diagnosed with rrms at 23.

  • @Hillary_swonk
    @Hillary_swonk 2 года назад +3

    I can’t read book also 😂I also don’t remember previous page )

  • @raniabelkheir
    @raniabelkheir 2 года назад

    Wish you the best ❤️

  • @sup2320
    @sup2320 3 года назад +9

    I am scared:(

  • @NENUO1
    @NENUO1 3 года назад +1

    Keep living keep inspiring

  • @nicksmith3746
    @nicksmith3746 3 года назад +1

    All the best Felix 😁

  • @hellomynameis5520
    @hellomynameis5520 Год назад

    Hi, thanks for your story and insights. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now, what do you think or should I rule out MS? Thanks

    • @roche
      @roche  Год назад

      Hi
      Thank you for getting in touch with us.
      If you have questions regarding a treatment or medication, please consult your healthcare provider first or get in touch with one of our
      offices in your country. You can find a detailed list of Roche offices: https:/
      /www.roche.com/about/business/roche_worldwide.htm
      Wishing you all the very best.
      Ana on behalf of the Roche Social Media team

  • @hellomynameis5520
    @hellomynameis5520 Год назад

    Hi, thanks for your story. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now? Thanks

    • @aprilmingone3271
      @aprilmingone3271 3 месяца назад

      so did mine ! my daddy did too. god i miss him everyday :(

  • @manuzacharias1989
    @manuzacharias1989 4 года назад +3

    Hi I have been suffering from dizziness since 8 years

    • @donaldbasalo5872
      @donaldbasalo5872 3 года назад

      My wife too. Suffering of balancing and dizziness. Dont know what to do.5 yrs of suffering

    • @shadabhussain9284
      @shadabhussain9284 2 года назад +1

      @@donaldbasalo5872 check vitamins level

    • @Skybluewindcool
      @Skybluewindcool Год назад

      @@shadabhussain9284 Do u have MS ?

  • @Hillary_swonk
    @Hillary_swonk 2 года назад +1

    Hey)be strong 🤛🏻☺️

  • @Quixote-vd2se
    @Quixote-vd2se 2 года назад

    my friend jospeh macias has scoliosis 😿

  • @Msciwoj-j4x
    @Msciwoj-j4x 3 года назад +1

    Poor fella :(

  • @lynneheal-xc2qg
    @lynneheal-xc2qg 2 месяца назад +1

    Watch living proof with George Ebers and Matt Embry MS truths .

  • @R-skl
    @R-skl 6 месяцев назад

    I was found at 33

  • @hookerhawk22
    @hookerhawk22 3 года назад +4

    35 year old with ms. I feel your pain my friend