So excited for you! I enjoy being part of your adventure! I chose to watch your channel for learning more about EDS because I have a friend with that diagnosis. To be supportive of her I vowed to learn more about it.❤
This is something that I never do, but I am going to comment. Watching you has honestly taught me so much. I myself am studying to go into the health care field, and I am always wanting to expose myself to more aspects in that area and you have intrigued me so much with how strong and positive you are while continuing to live your life no matter if it is a good or bad day. My niece is only 3 years old, and we are currently trying to get her tested for EDS due to multiple health complications that have occurred that make EDS seem plausible. Watching you has taught me what it's like to live with these conditions and how to cope with them and support loved ones that need help due to these illnesses. Thank you so much for the content that you continuously provide to us and being courageous while sharing your journey.
You are helping me teach my family about gastropereise. What could happen and how you can still have a life. Thank you both more than words can say. God bless!
Let me take a minute to explain to you chronic illness and chronic pain. Yesterday was Sunday in the country .. after months of preparation and being so excited to go the day finally arrives. Me and my girlfriend get all dressed up and head out . We get to the concert and are having a blast . After 2 hours one of my illnesses decide that I’ve had enough fun and my hip pops out and that is it. No more fun. We are forced to leave (but I cannot walk) so my amazing friend goes and get a police officer to golf cart us back to the car and we leave. We didn’t see not 1 performance we didn’t see the main event we didn’t sit down and enjoy the show. We spent money and time for this show.... but I had to leave . Thank god for amazing friends who don’t make me feel bad . Thank goodness she helped me and never once made me feel embarrassed or like I ruined the day. But man does that suck. That is my story for the day.
You didn't buy too many! You deserve that many tubby pads! You use them everyday. You should have things that make you feel good. ❤️ I love watching your channel . I'm training a service dog. That's how I found you and Harlow.
Glad you are good. Also glad you vlog . You see the brighter side of life. Seems like your new formula is working well. Happy to see that. Love your vids!!
That's adorable tubie pads. Can't believe that there going out of business!! Glad to see your mom. Missed her. Glad that your feeling better that your able to go to do the public speaking. Sorry to hear that you have to get a laptop. Googlechrome book is a cheap laptop and easy to use. Looking fwd to tomorrows event.
Love you guys and your channel, but I'm really curious who are the 2 of the 954 views so far that thumbs down? like who actually comes on a persons content they worked hard on and thumbs it down? geez....
Yippee! You are looking so much bettering sounding great! You turnaround so much faster than I do! I am off to my pulmonary doctor to check on the pneumonia I am fighting. Thanks for having me on your adventure!🦄
Hi there you beautiful young lady! I came across one of your videos and I'm truly addicted! I trained for CCI(Canine Companions for Independence) and all 6 dogs were placed and then I got my own for my disabilities. You r so helpful to so many as you vlog your every day life. I wanted to put a little bug in your ear if it hasn't already visited... Your anaphylaxis you deal with quite frequently, have you ever explored "stressers" to be the cause? I've been through 6 major back surgeries and I'm also epileptic so with that being said, about 17 years ago my seizures were out of control and I could no longer drive. At that time I was lead/head veterinary technician (certified) and took all the afterhour emergency calls for my town along with my full time job at the clinic and volunteering at the local animal shelter doing community outreach programs and scheduling low cost spay and neuter and vaccines. My drivers license was medically suspended and my passion of a career came to a stop. I stressed my self out so horribly to the point of having these "episodes". With a handful of Drs and a whole bunch of trial and error they finally concluded that I internalized my stress so bad, to the point of going into anaphylactic shock. Countless admissions to the hospital and thankfully I had my diagnosis. I thankfully grew out of them with the grace of God. I wanted to share this with you and wish you well. You are doing an amazing job with Harlow. You definitely have an awesome team! Maybe you could continue your college courses online??? 📚👍🏥👍🙏👍💛👍🐕👍
As a fellow spoonie, it's always so funny how daytime is soooo much better despite being sick all night. Most often I'm not even tired, despite having smooth muscle spasms at three in the morning. And four. And five. 😂 chronic illness is funny that way! Kate Farms is awesome! May start using it as a meal-replacer! Wouldn't have known about it without you!
I went to the doctor (gp) and got a great report SO glad everyone is well there! You and Judd are adorable together! the tubie pads are adorable, got to treat yourself!
Hi Jaquie, happy you're feeling really good, hope Judd feels better soon. Judd We Care. Jaquie you're so happy with little things:) that's why I say Jaquie your special, sometimes I call you a princess. your mom reminds me of my mom such a special person. We like that so much. looking forward to your next post princess. Julie and I love you!
I thought it was super sweet that you got Judd his Disney band! And then the Orion and Harlow reunion? So funny that she ran past him, but they were so funny to watch!! Love your videos Jaquie! Keep on pushing and being positive! 😘
I just wanted to say that you have helped me so much. I just got a jtube placed as I did chemotherapy for 3.5 yrs and have no stomach. I have so many questions too and I'd love to get feedback from you. Blessings and love your way!!
Judd better not forget you gave him that gift years later like he did with that shirt 😂. I'm happy you got your first order and that you're making improvements!
Yaaaaaaaaaaaay new video i check every morning for these and i had just checked and it wasn't there and decided to check again and it was theeeeere lol Yaaaaaaay 😂
I got my boyfriend to buy a Vogmask because of your channel and his boss at work is super impressed that he has it when he cleans because he doesn't about keel over from the fumes and the dust. *He works at a Pizza place hence all the employee cleaning the place*
I'm sick today, I have an ear infection! Also my dad was having a hard time eating when he had cancer and he drank Kate farms but it was different because he drank it. P.s those tubie pads are adorable
With the needle-change aftermath, I couldn't help but think that it looks like a hurricane came through. :) On the SD front, I've got it down to two or three breeds that are appropriate for me. Now to search out breeders and such.
Orion: "Aunt Jaquie, you said Harlow was looking for me but why did she run right past me?" Lol that was the cutest thing on both yours and Janiece's vlogs today!
Must be a Golden Retriever trait, that Harlow wants attention. Also a Cocker Spaniel trait, because Tucker, likes attention to. Tucker, is 15 months seizure free today.
I just realized we have the same infusion backpack! Pineapples are one of my favorite things and I love the colors! Today was my first time actually using it bc I'm finally doing my infusion on the go! Also: I know there is some awareness ribbon tubie pads like for eds, would those work for you?
Jaquie, where did you order your vogmask from? I have asthma and also living in the south and in a very dusty work environment I need to wear it almost all the time in those areas but i cannot find one that will fit my face. Keep on Keeping on Girl! I also have an auto immune disease called Crohns so i feel a strong connection to your videos so thank you so much for your confidence it does rub off on me. :) well wishes!
This is an old video so I feel like I'm writing from the future lol but in case anyone is watching and might be dissapointed in not being able to get those super cute tubie pads, never fear! The shop did not close! It looks like they changed ownership to keep from closing down :)
Julie wanted me to say, it's been her words more than mine. just when her and I talked about you guys. next post I said just Julie. she's jealous. thing is we appreciate love you guys. thanks for sharing.
Hey I should I'd share something with you and today's my birthday! I turned 22. Aaaand my parents bought two books by an autistic author because they promised they'd try their best to improve our communication and relationship (I was diagnosed with ASD this summer only) and I'm really happy about it ;a;
I have a bunch of migraines, basically every day, and I'm also struggling with SPD. I'm in the process of getting professional help, any suggestions in the meantime?
i think the main reasons she doesn’t ever record it is a because a) it’s hard to record and b) she would have to take a lot of caution to not show too much skin or flash the camera since the port is on her chest. i think she’s mentioned it before
I have a Maltese, and her eyes cry a lot and her skin is getting itchy. I think because she’s getting older. She’s 9 years old. But because how expensive it’s to get her raw foods. Do you think doing it half kibble and half raw is okay?
Taylor Reader im not 100% sure but i THINK she said she dosnt get a period for some reason I cant remember.... birth control pills without taking the sugar pills week I think....
Tiffany Ferraro in Disney World they have these bracelets (called magic bands) and it's essentially a digital version of your ticket to the park so you don't have to worry about carrying around your paper ticket. It also helps with fast passes and reservations etc.
How did you get your insurance company to cover it?? Ive gone through two different companies and both keep denying me and my Dr and they say its 1) because I wasnt born with my gastroparesis and 2) I should be able to afford the formula cus they dont pay for peoples groceries and these are MY groceries...except NO ONE spends $1200 or more a month on food for one single person...or even two people!!! Ive never spent even close to that much on groceries!! >:(
6:16 How unfortunate that this is out of focus. Well, at least you enjoyed it. 6:28 I read in their FAQ that "Tubie Whoobies will reopen November 23, 2017". 8:30 Ah! In focus again. 11:44 I couldn't understand everything Judd said here, but I don't think I want to know. Why do you have so many of those bands?
"his magic band collection is lacking so I'm helping" "well mine is cooler than yours" literally they are such a cute and funny couple!
having Insurance cover things is a major blessing and a sigh of relief and a weight lifted off your shoulders, ALL at the same time! haha
Yes it is!!!
Lol momma camera skills 😂
For real :P
Tina Garcia Atleast the camera wasn't vertical! Thats a win!
Nana can't focus. hehe
texaskc she did a good job, They cant tell if its in focus.
Disney Gamer She can tell if she is filming someone else because there is a view on the back
So excited for you! I enjoy being part of your adventure! I chose to watch your channel for learning more about EDS because I have a friend with that diagnosis. To be supportive of her I vowed to learn more about it.❤
This is something that I never do, but I am going to comment. Watching you has honestly taught me so much. I myself am studying to go into the health care field, and I am always wanting to expose myself to more aspects in that area and you have intrigued me so much with how strong and positive you are while continuing to live your life no matter if it is a good or bad day. My niece is only 3 years old, and we are currently trying to get her tested for EDS due to multiple health complications that have occurred that make EDS seem plausible. Watching you has taught me what it's like to live with these conditions and how to cope with them and support loved ones that need help due to these illnesses. Thank you so much for the content that you continuously provide to us and being courageous while sharing your journey.
You are helping me teach my family about gastropereise. What could happen and how you can still have a life. Thank you both more than words can say. God bless!
Let me take a minute to explain to you chronic illness and chronic pain.
Yesterday was Sunday in the country .. after months of preparation and being so excited to go the day finally arrives. Me and my girlfriend get all dressed up and head out . We get to the concert and are having a blast . After 2 hours one of my illnesses decide that I’ve had enough fun and my hip pops out and that is it. No more fun. We are forced to leave (but I cannot walk) so my amazing friend goes and get a police officer to golf cart us back to the car and we leave. We didn’t see not 1 performance we didn’t see the main event we didn’t sit down and enjoy the show. We spent money and time for this show.... but I had to leave . Thank god for amazing friends who don’t make me feel bad . Thank goodness she helped me and never once made me feel embarrassed or like I ruined the day. But man does that suck.
That is my story for the day.
You didn't buy too many! You deserve that many tubby pads! You use them everyday. You should have things that make you feel good. ❤️ I love watching your channel . I'm training a service dog. That's how I found you and Harlow.
Good that's wonderful that you finally have your new formula. I hope this one works well for you my friend.. Xoxo
Glad you are good. Also glad you vlog . You see the brighter side of life. Seems like your new formula is working well. Happy to see that. Love your vids!!
That's adorable tubie pads. Can't believe that there going out of business!! Glad to see your mom. Missed her. Glad that your feeling better that your able to go to do the public speaking. Sorry to hear that you have to get a laptop. Googlechrome book is a cheap laptop and easy to use. Looking fwd to tomorrows event.
I didn't know I needed to see Orion go down the stairs until now, that was so cute!
So glad it was approved!!! I hope it will help!! Glad you’re getting better!! 💖
Glad you are feeling better. Glad your transition is going well.
I'm so glad! Thank you for always making my day better, Jaq!
Yay I'm so glad everything is going well! I'm sure Kate Farms was a great choice for you
It really seems to be a great choice! Very gentle on my system :)
Have fun all of you. You all deserve a day of fun and excitement. Cheers
Love you guys and your channel, but I'm really curious who are the 2 of the 954 views so far that thumbs down? like who actually comes on a persons content they worked hard on and thumbs it down? geez....
Earl Bedison they are the heartless pips.. ☺️
They are just trolls probably
I love how happy Harlow and Orion are to see eachother! So stinkin' cute! :-)
Yippee! You are looking so much bettering sounding great! You turnaround so much faster than I do! I am off to my pulmonary doctor to check on the pneumonia I am fighting. Thanks for having me on your adventure!🦄
Helmi Kerick I hope things are good! Must be doctor day, went to mine this morning and everything is good! also got my flu shot
Hi there you beautiful young lady! I came across one of your videos and I'm truly addicted! I trained for CCI(Canine Companions for Independence) and all 6 dogs were placed and then I got my own for my disabilities. You r so helpful to so many as you vlog your every day life. I wanted to put a little bug in your ear if it hasn't already visited... Your anaphylaxis you deal with quite frequently, have you ever explored "stressers" to be the cause? I've been through 6 major back surgeries and I'm also epileptic so with that being said, about 17 years ago my seizures were out of control and I could no longer drive. At that time I was lead/head veterinary technician (certified) and took all the afterhour emergency calls for my town along with my full time job at the clinic and volunteering at the local animal shelter doing community outreach programs and scheduling low cost spay and neuter and vaccines. My drivers license was medically suspended and my passion of a career came to a stop. I stressed my self out so horribly to the point of having these "episodes". With a handful of Drs and a whole bunch of trial and error they finally concluded that I internalized my stress so bad, to the point of going into anaphylactic shock. Countless admissions to the hospital and thankfully I had my diagnosis. I thankfully grew out of them with the grace of God. I wanted to share this with you and wish you well. You are doing an amazing job with Harlow. You definitely have an awesome team! Maybe you could continue your college courses online??? 📚👍🏥👍🙏👍💛👍🐕👍
As a fellow spoonie, it's always so funny how daytime is soooo much better despite being sick all night. Most often I'm not even tired, despite having smooth muscle spasms at three in the morning. And four. And five. 😂 chronic illness is funny that way! Kate Farms is awesome! May start using it as a meal-replacer! Wouldn't have known about it without you!
I'm so happy that you both are feeling better! Great news about Kate Farms too! Enjoy ❤️
Your slippers/ socks, are adorable Jaq! With my awful circulation I always have frozen toes, those look cozy. ☺️
i use three tubie pads a day, I didnt think I needed as many as I got. I love them.
I do not have a lot of drainage but I think it is good to have extras! I love all the ones I have (:
I agree the non circle ones are not as comfortable, I have a hippo shapped one that curls now which really bothers me.
Elisabeth Wheeler do you press/iron them?
Al Funcoot I started to, it holds flat pretty well. As soon I wash them they twist and turn
Elisabeth Wheeler Have you tried washing and then drying between two heavy books (covered on both sides by something clean obviously)?
I went to the doctor (gp) and got a great report SO glad everyone is well there! You and Judd are adorable together! the tubie pads are adorable, got to treat yourself!
*general practitioner
look forward to your videos every day! so happy for you❤️
Hi Jaquie, happy you're feeling really good, hope Judd feels better soon. Judd We Care. Jaquie you're so happy with little things:) that's why I say Jaquie your special, sometimes I call you a princess. your mom reminds me of my mom such a special person. We like that so much. looking forward to your next post princess. Julie and I love you!
I thought it was super sweet that you got Judd his Disney band! And then the Orion and Harlow reunion? So funny that she ran past him, but they were so funny to watch!! Love your videos Jaquie! Keep on pushing and being positive! 😘
I just wanted to say that you have helped me so much. I just got a jtube placed as I did chemotherapy for 3.5 yrs and have no stomach. I have so many questions too and I'd love to get feedback from you. Blessings and love your way!!
Yayyy insurance approved Kate Farms!!! Harlow clearly was giving you Paul's sock as a gift. Silly girl.
Glad to see that your are beating the sinus infections fairly quickly.
Judd better not forget you gave him that gift years later like he did with that shirt 😂. I'm happy you got your first order and that you're making improvements!
Yaaaaaaaaaaaay new video i check every morning for these and i had just checked and it wasn't there and decided to check again and it was theeeeere lol Yaaaaaaay 😂
I got my boyfriend to buy a Vogmask because of your channel and his boss at work is super impressed that he has it when he cleans because he doesn't about keel over from the fumes and the dust. *He works at a Pizza place hence all the employee cleaning the place*
So cute, Harlow and Orion love each other
Hopefully you can make the tubie pads work! They're so cute, and it'd be cool to wear them for different holidays:-)
I love your slippers so much! And yay for tubie goodies!
I'm sick today, I have an ear infection! Also my dad was having a hard time eating when he had cancer and he drank Kate farms but it was different because he drank it. P.s those tubie pads are adorable
With the needle-change aftermath, I couldn't help but think that it looks like a hurricane came through. :)
On the SD front, I've got it down to two or three breeds that are appropriate for me. Now to search out breeders and such.
Orion: "Aunt Jaquie, you said Harlow was looking for me but why did she run right past me?"
Lol that was the cutest thing on both yours and Janiece's vlogs today!
Is there ever going to be a time where youll get to a point where you get rid of the feeding tube?
Katie J I dont want to presume but she had partial paralysis of her stomach that has been getting worse, so it's unlikely.
Yessss! I can't wait to see what y'all wear. I. Know you girls will look gooood!
Must be a Golden Retriever trait, that Harlow wants attention. Also a Cocker Spaniel trait, because Tucker, likes attention to. Tucker, is 15 months seizure free today.
Kimberlee_Tucker CONGRATS on the seizure free!
Kimberlee_Tucker your dog
michelle schafer yes my dog . The one in my profile picture with me
So glad that Tucker is seizure free!!!! Love and attention for Tucker because, you know, mom never loves on you. ;)
Jo Rhodes , he is my sweet boy. He comforts me when I feel sad at times. I spoil him, my dad says. I say I don't spoil him, I love him
You're having a good day. I think it's great that you got cute tubie pads. Love your pants. That was nice that you surprised Judd.
Tubie whoobies was purchased so they will be back!
I just realized we have the same infusion backpack! Pineapples are one of my favorite things and I love the colors! Today was my first time actually using it bc I'm finally doing my infusion on the go! Also: I know there is some awareness ribbon tubie pads like for eds, would those work for you?
all of your tubie pads are so cute and i am glad you got kate farms approved
Wish you had a PO box! I bet we fans would love to send you guys goodies!
I love that company! Can't believe they are closed (it says they will reopen though?).
Harlow and Orion, are cute when they play together
hahaha your mom forgets to focus! It's okay we still love you!
Mick Lim mom filming probs 😅
OMG I love that head band on you!!
I love your new leggings, so pretty! Also your new tubie pads are really cute.
So, do you have to puncture yourself with a needle every time you change it? Or is there already s hole? Does it hurt?
TJ Maxx clearance racks have saved some of my under-dressed packing dilemmas without breaking the budget..
Jaquie, where did you order your vogmask from? I have asthma and also living in the south and in a very dusty work environment I need to wear it almost all the time in those areas but i cannot find one that will fit my face. Keep on Keeping on Girl! I also have an auto immune disease called Crohns so i feel a strong connection to your videos so thank you so much for your confidence it does rub off on me. :) well wishes!
ActionParfait amazon
I bought one! They had the space invaders one in large so i got that one, hopefully it fits. Thank you! :)
This is an old video so I feel like I'm writing from the future lol but in case anyone is watching and might be dissapointed in not being able to get those super cute tubie pads, never fear! The shop did not close! It looks like they changed ownership to keep from closing down :)
omg your slippers or lil socks are so adorable!! Are they little lambs?
Julie wanted me to say, it's been her words more than mine. just when her and I talked about you guys. next post I said just Julie. she's jealous. thing is we appreciate love you guys. thanks for sharing.
Who else absolutely LOVES that Harlow has doggy best friend??
This is a really random question but
Do you have your ears pierced?
Love you xxx
Do any of your chronic illnesses affect your menstrual cycle? Just curious
Focus....love you Jaquie
Hope the new formula helps!!!
What's the event?
aweee those pads are so cute!!!!
Ah the return of that intense game of shark. Wonder how the dogs determine who wins? 😂
Hey I should I'd share something with you and today's my birthday! I turned 22. Aaaand my parents bought two books by an autistic author because they promised they'd try their best to improve our communication and relationship (I was diagnosed with ASD this summer only) and I'm really happy about it ;a;
I never get tired of the dogs playing.
they are sooo cute when they play together
I love your channel ..your family is very sweet
I have a bunch of migraines, basically every day, and I'm also struggling with SPD. I'm in the process of getting professional help, any suggestions in the meantime?
Can u record putting ur port in.
michelle hale its probably hard for some people to watch but Id love to see too
i think the main reasons she doesn’t ever record it is a because a) it’s hard to record and b) she would have to take a lot of caution to not show too much skin or flash the camera since the port is on her chest. i think she’s mentioned it before
michelle hale also because some people are very sensitive to seeing needles
michelle hale She said that she wasn't going to make a video on that because she takes her shirt off to access her port.
I have a Maltese, and her eyes cry a lot and her skin is getting itchy. I think because she’s getting older. She’s 9 years old. But because how expensive it’s to get her raw foods. Do you think doing it half kibble and half raw is okay?
It's best to consult your vet.
heyyyy jaquie!
What part of Venezuela is your mom from??? ( my mom is also Venezuelan) ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Oh man i can't wait till you get your camera back lmao
Tubie pads are clothes for feeding tubes 😂
Whats a magic band?
I have a question I was recently diogose with POTS. Is POTS a chronic illness?
Stephanie Gallegos yes it is.
Thank you for answering
What are the bands for?
tania allain967 they are like your ticket to get into Disney world, scan them as you walk in.... :)
Katie Wheeler ahh =) I haven't been to Disney in over 12 years 😂 they didn't have that when I was there
Hay I love ur videos sm I have a question how to u deal with periods n period cramps with all ur illness is it harder to deal with n is it?❤
Taylor Reader im not 100% sure but i THINK she said she dosnt get a period for some reason I cant remember.... birth control pills without taking the sugar pills week I think....
I'm horrible but what is a magic band?
Tiffany Ferraro in Disney World they have these bracelets (called magic bands) and it's essentially a digital version of your ticket to the park so you don't have to worry about carrying around your paper ticket. It also helps with fast passes and reservations etc.
Does it hurt your shoulder and neck to carry around that back pack all the time?
Where do you get your yoga headbands?
Lol I do not do yoga but I got them at Icing
Jaquie,u are AWESOME!!!
How did you get your insurance company to cover it?? Ive gone through two different companies and both keep denying me and my Dr and they say its 1) because I wasnt born with my gastroparesis and 2) I should be able to afford the formula cus they dont pay for peoples groceries and these are MY groceries...except NO ONE spends $1200 or more a month on food for one single person...or even two people!!! Ive never spent even close to that much on groceries!! >:(
your mom is adorable.
What are Disney magic bands?
You are a great wife to judd I love your pants and your tube things are so cute and Harlow 😍😍😍😍😍😍
The tube patches are cute
My Dad, doesn't like gifts that much either
Keep surprising Judd because as you said he is the best.
What is a Magic Band??
Have you watched Yuri on Ice? If not, you should! It's really good
I Love your channel
Amanda Hough samen 😘
What is a magic band ?
6:16 How unfortunate that this is out of focus. Well, at least you enjoyed it.
6:28 I read in their FAQ that "Tubie Whoobies will reopen November 23, 2017".
8:30 Ah! In focus again.
11:44 I couldn't understand everything Judd said here, but I don't think I want to know. Why do you have so many of those bands?
Forget the leggings, those slippers are adorbs!!!