Like you predicted on Patreon, there was that one person who took incredibly hostile offense to your "No More Diet Suggestions, Please!" I'm so glad you made the video and you've helped me to understand how to be more understanding of people with chronic illnesses and have probably tried everything under the sun to try and get better. Sending so much love to your family ❤️
New sub here and I have to say thanks for that video too. As someone who is overweight, controlling blood pressure through medication, and dealing with late-onset food allergies, I have lost track of the diet suggestions I have to field. You were a lot nicer then I would be.
I appreciated your "please no more diet suggestions" video. I have chronic illnesses as well. Multiple like you do. I am also overweight because of the weight gain effects of one of my medicines that save my life. I get suggestions all the time. But like you, I have already tried these and negatively affect my illnesses. I'm glad that you posted that video.
It's so nice that even though your parents are divorced that they can still get along. Great to see everyone having fun even though it was over almost leaving your walker. YEAH! Mom will be closer to you! That's awesome. What a huge help. Harlow loves her grandpa. Sending prayers. I hope you have a great weekend.
As a fellow EDS warrior, I love your diet suggestions video. Every time I get diet advice I hear myself replying in my head, "I know you love me, but..." because it's so frequent that people have the perfect cure or perfect diet that works for them. I love your and Judd's relationship. I wish my husband could stop seeing me as sick. This is just life and I try to enjoy it however I can.
I am so happy your mom will be moving closer to you so she can help when Judd can't. It will be a lot less stressful for you...Having loved ones nearby to help is awesome.
lol this damn near had me rollin on the floor with laughter. You and your parents have a great sense of humour. Also wish you luck with your citizenship.
It warms my heart to see the love that Judd has for you. My husband loves me but the last 11 years that I've been really sick have been hard on him bc he worries about me when he is away with the Army and such. I tell him all the time that he agreed to sickness and health. He said he wasn't expecting this though. I had a good five years after we married and wasn't that sick then it hit the fan! Love you guys!
I loved your 'No More Diet Suggestions, Please!' Video, it was informative, you sounded nice and not 'forceful' to get the message out, and it wasn't too long, just the right length to get the info across, some people hated it but thats just to each there own, haters gonna hate!
It was nice to see you with your parents. That's what mom's do. You are lucky to have her. So glad she will be close to you. You also have the home health nurse, Judd, Harlow, Janiece and Paul. How wonderful for you!
My husband & I have been married 12 years and he has helped me from day one. We try not to use the word caretaker now. In the past we have but it got to the point where it was patient & caregiver not husband & wife. Since we are a young married couple we make sure if I have a bad day and he has had to take care of me a lot then on a good day we try and have us time. But I love seeing the love between you two. It shows that even though a partner is ill there still can be the fun & laughter. That is what my husband & I try to show others too
Hey Jaquie - your videos are keeping me going. I've got POTS, EDS, MCAS, autoimmune...etc also and just watching you helps me remember to take it step by step day by day, and be grateful for what I can do. You just embody how to live well with this. You've helped me allow myself to feel frustrated and discouraged, but also be constantly celebrating. Thank you. I'm in a flare right now and have had a lot of moments of feeling discouraged, but I've been watching all your videos and it's helping me believe I can do this. Means more than you know. Thank you so much.
i met a girl in Florida when i was on vacation and she has spina bifida and she has a custom wheel chair and that helps her a lot and i know it will help you too. even though you don't have spina bifida you have other debilitating chronic illnesses. love your videos jaquie❤️❤️
Hannah Richardson Yep, they do. I have Spina Bifida as well and sometimes our back and joints just are like..."nope, don't even try it" even though its good for us. Same with Jaquie.
I really appreciate the new video about diet suggestions! Even for people who don't have chronic illnesses, it's so frustrating when you eat a certain way and receive unsolicited advice about how you need to change. I'm a vegetarian for various reasons and also track my caloric intake for weight loss, and I'm sick of people telling me that I need to eat meat and do a low carb diet and go gluten free! The only thing I wanted to add to your video (for those who care!) is that veganism doesn't actually mean low calorie. It's fairly easy to eat calorie-dense plant-based foods, and I know quite a few overweight vegans. Heck, Oreos are vegan! I don't think you were implying that veganism means low calorie in the caption on your video, but I thought I'd comment just in case someone interprets it that way but is interested in a vegan diet.
Thank you so much for the second video from today! If only I was getting a penny each time people suggest me going gluten-free/dairy-free/vegan... Please leave me and my safe food alone and come back when you have a medical degree. I know that people do it with best intentions but they also can't understand how does it feel when someone is constantly telling you that all your problems are because you eat *insert product category* and don't do enough yoga.
Крис П yes! Every time I tell my dad who is a former body builder about any joint pain he tells me to work out and strengthen my joints more and it won't happen. And I'm just like ok tell me what in the gym will keep the end joint of my big toe in because that's been popping out lately and swollen and painful.
I love that you did the diet suggestions video bc I get the same thing all the time. I also have an implanted pump for my chronic pain and my mom tells me all the time that I'd get better if I got off the pain meds. They help me have the little life that I do have. Anywho I'm on ur side all the way! Oh and I am a us citizen but I grew up in Germany so I traveled a lot too.
There's always that one user that will get offended. Let me add that if you never made the video and only continued to address the suggestions in your daily vlogs then it would not reach newcomers or the majority of your current subscribers. Also while I'm at it - you're one of the most humble, kind people on this platform and the only thing that's changed about you is the quality of your videos. That's coming from one of the the first 100 subscribers. I know I can't speak for anyone, but I do want to thank you for taking time out of your day to pick up the camera, record your day, and sit down to edit and upload your videos. It must be a long process for RUclipsrs, let alone one with a chronic illness. Kudos to you, Jaquie ❤
Thank you so much! That really means a lot to me. It is really nice to hear it from one of my first subscribers, too! I do work really hard to learn new things in order to improve video quality, etc, so I am really happy to know you've noticed!
I think it's so great your mom is moving closer to help! My mom is my biggest and truest supporter and my main caretaker. I still have a decent amount of independence but she still help me so much! I'm so close to my mom and I love seeing you and your mom interact. I'm just so happy for you guys and that you're going to be closer!
You are a joy to watch and an inspiration to all as is Judd. I have you in my prayers everyday when I think I hurt all over I think it is nothing to what you deal with each day. Many blessings and peace and joy to you both. It is also so good to see how much you and Judd love Harlow and what great care you take for him, animals are a joy and a blessing and a comfort, God sure knew that humans need animals.
I live with my folks, they support me, they are even both my pcas, but yeah, I hear you, caretaker is not a word any of us would choose. It's fun seeing Judd play with Harlow. My service dog Fred gets a lot of play time in with my dad and it's pretty fun to watch and I'm grateful that even when I feel too sick to play with him in the yard, someone he loves and is attached to does. Watching your channel is often validating and helps remind me I am not alone in dealing with these chronic health issues. Thanks for putting yourself out there and telling your story. It matters!
Happy Friday! I tried to go out today, but my issues flared up. Oh well, I'm trying not to feel guilty about myself listening to my body, and your positivity really helps, Jaq, so thank you!
You are a really inspirational person, i think it is amazing that you can live a (mostly) happy life even with all your setbacks. I started watching around three months ago and you made me want to live a more productive life. Thank you so much for making these vlogs. Btw i don't have any like disability stuff.
Your No More Diet Suggestions video is life!!! Thank you for doing something about it. You're so inspiring and watching your videos is something I look forward to everyday! Thank you for letting us into a small portion of your daily life. ❤
Thank you for doing the food suggestions video I have gastroparesis and people around me don't understand that even if I eat fast food instead of healthy food I feel more comfortable eating certain foods
I watched your No More Diet Suggestions video and it was a great explanation. One thing you didn't mention that some of us might forget is that there are thousands of us. Just what you don't need is thousands of us suggesting what you should eat! How great that your mom can move to Tampa Bay! I know you are thrilled!😄😄😄🐩🐩❤️ and love from me‼️
2 vids? YAY 😊 I love you and your channel and I know what struggles you go through with dizziness, nausea, and headaches I suffer from those things due to my daily 240 dose of Verapamil I have a heart condition called ventricular tachycardia so with my Dose I get those all the time I wish you the best and keep up the good work! ❤️ love you so much ❤️❤️
I love your videos so much. I was 52 when West Nile virus (meningoencephalitis) left my right leg paralyzed among other things. I walk with a afo and forearm crutches. You just are so inspirational and help me so much to be positive and accept my limitations. You are a beautiful, articulate individual with so much to offer the world. I wish you all things good.
Hello jaquie I love watching your videos I have learned a lot from you about how some illness are not visible I also love to see you and Harlow interact she is so cute and i use to always think that service dogs never get fun time you definitely changed that thank you you have changed how I see the world
I love your videos! I've recently found out after a year of dealing with chronic pain that I have fibromyalgia. I also have gastroparesis, GERD, IBS, and a hiatal hernia. Your videos have helped me learn to keep being positive and try to take things one day at a time. Good luck on with citizenship!!
I love seeing you and your parents enjoy eachother's company. My parents divorced and will not speak to eachother since 1998, sick or not! It is super refreshing to see you having their support in times of need since I know what it's like not to have that. Give them an extra hug for me, if you actually read this lol. XOXO!!
Congrats that ur mom is living with u guys. That's great news!! I agree too about the whole caretaker thing. I don't like the word "caretaker" too. You and Judd have a great communication. I love you guys!!
Chronically Jaquie oh. I thought she was gonna move in with you guys permenantly. But its still great news. What a great mom. Is she going to find a job in teaching near you guys or is she doing something else?
She wants to do something else for this year, a job that gives her more time off during the day and maybe a weekday off (she would work a weekend day) so she has more availability for me. She really is going above and beyond!
Hey Jaquie, I'm Samuel, I love you videos they really help me, my friend has pits and I was never able to understand what that meant but. You helped me figure it out ne I don't know everything but I know enough and I'm eager to learn. Thanks -Sammy
You and Harlow and Judd are so funny. I enjoy watching you videos because it makes me so happy to see somone who is sick, always happy and playing around with the only animal you arent allergic to... its really inspiring. 😂😂😂 Def watching more.
loved this video. I watch all of them but your mom forgetting the walker was so funny , with my chronic health issues ( a lot like yours ) I laughed so hard , t was great. I am so happy your mom is going to be there to help you now.
YaY for AMAZING parents! Lol, Jaquie's mom it happens even when you have it down! You explained things perfect in the other video, it applies to others. We just now narrowed my weight gain to my meds.... Aww Judd!❤️
You and Judd are so great together as a couple! That kiss at 14:46 and Judd playing with Harlow made my day. And I love that you have such a great understanding for each other. I also couldn't agree more on the diet advice subject. I hate when people give me unwanted dietary advice.
I'm so glad you are becoming an American Citizen! Very exciting. I only refer to those who care for me as "caretakers" when People ask me who my "caretakers" are. I agree with you and Judd, they are family and friends who love me. I took care of my Mother-in-Law for Years, but never considered myself her caretakers--to me, her caretakers were the doctors providing her with the medication and tools she needed at the time to sustain life! I was her daughter in law who loved her and helped her follow her physicians' instructions. I'm glad you have an awesome support system!
Glad you had a good day, Jaquie! Just wanted to drop a note and let you know that my daily routine has been coming home from work and watching The Frey Life, and then watching Chronically Jaquie. You are doing a great job with your vlogs. It's a lot harder than it looks to make daily videos. I tried several times and failed!! :-P
I had a good laugh last night because someone told me boiled milk would cure my gastroparesis 😂😂 so when I saw the other video uploaded I cracked up laughing and couldn't believe the coincidence
neverlandlost x yep he said me pursuing western medicine was me giving up on my life and if I wanted cure my eds I should do a certain form of yoga and he said it like this " do (insert yoga type) if you want to live but if you want to die then keep doing what your doing" I just about died laughing 😂😂😂
Raven Moore yeah I got frustrated I was like how can you be so dense to not get it I told him milk is not going to magically make my stomach regenerate itself 😂😂 but after a while I just found it funny and this is on a dating app I'm pretty open with my chronic illness and he's like " to be honest I'm just here to f@@k but as an army vet I feel compelled to save your life and inform you that boiling milk will and drinking it will cure your stomach problems it may cause you to have diarrhea but you will be cured and you will live you won't have any of your CIs because the power of milk" and I just started rolling on the floor laughing so hard I almost passed out and my reply was I'm sorry your wasting your time on this I'm going to talk to my doctors about a central line that has minimal side effects and will dramatically help improve my quality of life" and so on to keep going on about my plans to battle my CIs and he says why your killing yourself and giving up its so sad to see I again almost died from laughter it was a great way to end the night 😂😂😂
Such a great childhood, living in all those different places :D I've actually heard of Anguilla: my former in-laws used to vacation there yearly, because a woman in there Methodist congregation (in NJ) was originally from there, and was instrumental to developing it as a tourist spot!
YES YES Jaquie ! go with TiLite ! they are number one ! i live all the way in the Mediterranean and i have had a TiLite for the last 3 years and haven't been happier ! :) IF you can go with a Titanium frame over Aluminum its much lighter although i know there are some issues with Titanium frame chairs in the US
Caretakers are usually known as carers or caregivers in the UK. Our family has never called themselves a carer for my brother unless it's in a formal setting like paperwork or meetings etc.
I get diet suggestions all the time. Now that I have a POTS diagnosis people freak out about how much salt I keep putting on my food. Earlier this month I went to the pot luck family reunion. Because we were camping I brought a dish that I could not eat due to food allergies and had eaten a full meal before attending. I brought a bag of chips to eat while every one else was eating and got so many people coming up to tell me how I need to change my diet.
My surgery went better than expected today. Yay! It's the first time I was able to get premedication for my MCAS and so far, I haven't had any strange or painful reactions to the anesthesia like I normally do. Hurray!
I used to have stomach problems that often woke me at odd hours of the night. I would often sleep sitting up against my wall to help the acid stay down. Not sure, though, if anyone has suggested leaning toward or sleeping on your left side. My doctor suggested it while we were treating my issue and it helped reduce the pain some.
Really really needed this video to laugh I almost burst into tears laughing so hard. Had such a rough sad day thanks Jaquie girl hahahahahaha. Your mom is so awesome I love her
I love this video. I've been dating my boyfriend since a few months before I got my concussion that led to all of my health issues. I have POTS and Gastroparesis now with an NJ feeding tube. I feel so lucky to have my boyfriend helping me so much with all of my health issues. We're only 18 & 19, I feel like so many people expected him to just leave me when things got hard but he has braced the storm with me. We are both lucky with amazing family and significant others 😊
I'm so intrested in this kind of stuff because when i was 8 years old i had scoliosis and i had 12 surgerys to fix my curve I'm now 14. But I like watching your vlogs because it makes me feel better knowing that I'm not the only one out there who has to deal with something every day because with scoliosis i have medal in my back and to make sure the sscrews that are in my back don't come loose i can't ride a horse and it was always a dream of mine to ride a horse but now i can't. And i can't do stuff that a normal teenager can do. Thanks for doing what you do...I'm not good at talking :/
Ruby Gold hey, i was operated for scoliosis too about seven years ago now. I have multiple screws and two rods in my back since then. I only had to have one surgeon (or his team, anyway) to fix it, but except for my yearly checkup I've never had to have my screws checked, and I can do everything according to my surgeon, ride horses (which I often do), ski, ... I don't know if your procedure was a lot more complex than mine was for you to have so many restrictions? In any event I'm sorry you have to live with those, I know it's no fun... I still feel really lucky when I see people like Jaqui who have to battle illnesses everyday. Chronical illness warriors, I admire you! Keep on fighting I believe in you :)
:3 thanks. i only have those restrictions right now because because i don't have alot of screws in my back at the moment because my surgeon wants to keep opening up my back to lengthen my rods because i'm still growing. I have 4 screws in my back and i did have spinal fluid leaks a few times because i was to active.
Ruby Gold ouch! My surgeon waited for me to stop growing before he operated, I had a corset for about two or three years as I was growing up, but it proved to be useless on me because I apparently have crooked articulations between my vertebrae, so the second they took my corset off my back just slumped back to about a 50 degree curve :/ I think I currently have something like 8 screws in my back, but obviously there was no need for my surgeon to go back and lengthen my rod, so I was in and out of the hospital in just over a week, had no PT at all and got to start riding again and everything else about 6 months later. I was really surprised at how fast my body recuperated after such a big surgery! I was terrified when they told me I had to get operated, but in the end I have no regrets, my surgeon saved my quality of life as I'll get older :) Hang in there, you'll be glad once it's all over, and it will save you a lot of back pain in the long run :)
Your understanding of the why's and hows of what's going on with your body, along with how independent you are never made me think of you needing "caretakers."
I understand how you feel about the word caretakeer. My 18 year old (who has fibro & autism) sometimes uses it to describe me and I don't like it. i didn't realize exactly why until you said it sounds like it's obligation - and that is so it. I'm their Mum, not someone who is obliged or paid to look after them.
Omg yes I'm constantly told to use turmeric for joint pain etc... They don't ever understand when I explain that that will make me sick in another way- turmeric thins the blood which isn't good with my Von willebrand disease. And then they tell me ibuprofen... But my clotting disorder also means strictly no NSAIDS. it's the most frustrating thing ever.
im n Jacksonville aww wish u guys lived here but glad ur mama is moving there for u.. ur so awesome with the info u give.. thanks for being so transparent with ur life!!
I love how silly Harlow is she makes me laugh! I agree with you on the word caregiver, my husband helps me but he isn't my carer he's my husband! Love is the difference
Hey Jaquie, I help my husband at the nursing home where he resides. I don't like the term caretaker, however I find the term caregiver is more accurate. To me caregiver clarifies that it's not just a random choice we make, but rather a willful decision we choose to do for our loved ones. Maybe that might be a word that refers to your family. Take care
that's funny that you mentioned you're a citizen of canada! i had a feeling. i'm not from there, but by the way you say "bag" and "vitamins" i just knew it! hope you're feeling better!
I want to thank you for making your most recent video about your diet. Being a vegan and new to your channel, I couldn't understand fully why you didn't try this, or so I thought. I didn't think about how many questions you must get about this, which must be tiring.
Megan Bowden it's so hard when ppl don't understand an illness. my husband has POTS n NCS n I have endometriosis among many others and there are a good number of ppl incld family that do not understand and think we are just lazy. it's hard!! I'm sry you deal w that w your mom :(
I love this. And the diet video. My chronic illness affects my breathing with my severe allergies. I just got my 3rd Xolair injection today and I am starting to see some positive results, so for the long term relief of my most difficult sinus issues and drainage I understand will take the longest to see results. I get suggestions of oh here have a echinacea or this remedy or that. I have tried them all and found out for example that echinacea is actually dangerous for me to take. Any ways. I have been having some temporary immediate successes with essential oils. I am moving away from chemical cleansers to things like backing soda, salt, vinegar and essential oils like tea tree oil and lemon because they are non toxic. I have less breathing issues when I use them.
In the UK we have carers instead of caretakers. I find using carer when at meetings etc means that my partner is taken more seriously when he voices opinions about my health. Also as my partner he can't stay with me at the hospital etc but he can if I make it clear he is also my carer. It's stupid that it is that way. He helps me because he loves me. You are so lucky to have such a caring and thoughtful husband and family and Harlow too. She is so cute.
Like you predicted on Patreon, there was that one person who took incredibly hostile offense to your "No More Diet Suggestions, Please!" I'm so glad you made the video and you've helped me to understand how to be more understanding of people with chronic illnesses and have probably tried everything under the sun to try and get better.
Sending so much love to your family ❤️
Thank you for backing me up!
New sub here and I have to say thanks for that video too. As someone who is overweight, controlling blood pressure through medication, and dealing with late-onset food allergies, I have lost track of the diet suggestions I have to field. You were a lot nicer then I would be.
I appreciated your "please no more diet suggestions" video. I have chronic illnesses as well. Multiple like you do. I am also overweight because of the weight gain effects of one of my medicines that save my life. I get suggestions all the time. But like you, I have already tried these and negatively affect my illnesses. I'm glad that you posted that video.
So glad you enjoyed it!
It's so nice that even though your parents are divorced that they can still get along. Great to see everyone having fun even though it was over almost leaving your walker. YEAH! Mom will be closer to you! That's awesome. What a huge help. Harlow loves her grandpa. Sending prayers. I hope you have a great weekend.
As a fellow EDS warrior, I love your diet suggestions video. Every time I get diet advice I hear myself replying in my head, "I know you love me, but..." because it's so frequent that people have the perfect cure or perfect diet that works for them. I love your and Judd's relationship. I wish my husband could stop seeing me as sick. This is just life and I try to enjoy it however I can.
I am so happy your mom will be moving closer to you so she can help when Judd can't. It will be a lot less stressful for you...Having loved ones nearby to help is awesome.
lol this damn near had me rollin on the floor with laughter. You and your parents have a great sense of humour. Also wish you luck with your citizenship.
Lol, SAME! I rewatched that part so many times!
It warms my heart to see the love that Judd has for you. My husband loves me but the last 11 years that I've been really sick have been hard on him bc he worries about me when he is away with the Army and such. I tell him all the time that he agreed to sickness and health. He said he wasn't expecting this though. I had a good five years after we married and wasn't that sick then it hit the fan! Love you guys!
I loved your 'No More Diet Suggestions, Please!' Video, it was informative, you sounded nice and not 'forceful' to get the message out, and it wasn't too long, just the right length to get the info across, some people hated it but thats just to each there own, haters gonna hate!
YAY TODAY IS A TWO VIDEO DAY!! Loved your vlog Jaquie!!
It was nice to see you with your parents. That's what mom's do. You are lucky to have her. So glad she will be close to you. You also have the home health nurse, Judd, Harlow, Janiece and Paul. How wonderful for you!
My husband & I have been married 12 years and he has helped me from day one. We try not to use the word caretaker now. In the past we have but it got to the point where it was patient & caregiver not husband & wife. Since we are a young married couple we make sure if I have a bad day and he has had to take care of me a lot then on a good day we try and have us time.
But I love seeing the love between you two. It shows that even though a partner is ill there still can be the fun & laughter. That is what my husband & I try to show others too
Hey Jaquie - your videos are keeping me going. I've got POTS, EDS, MCAS, autoimmune...etc also and just watching you helps me remember to take it step by step day by day, and be grateful for what I can do. You just embody how to live well with this. You've helped me allow myself to feel frustrated and discouraged, but also be constantly celebrating. Thank you. I'm in a flare right now and have had a lot of moments of feeling discouraged, but I've been watching all your videos and it's helping me believe I can do this. Means more than you know. Thank you so much.
i met a girl in Florida when i was on vacation and she has spina bifida and she has a custom wheel chair and that helps her a lot and i know it will help you too. even though you don't have spina bifida you have other debilitating chronic illnesses. love your videos jaquie❤️❤️
Hannah Richardson Yep, they do. I have Spina Bifida as well and sometimes our back and joints just are like..."nope, don't even try it" even though its good for us. Same with Jaquie.
I just watched the no more diet suggestions please you did a GREAT job!
Thank you! I tried :D
I really appreciate the new video about diet suggestions! Even for people who don't have chronic illnesses, it's so frustrating when you eat a certain way and receive unsolicited advice about how you need to change. I'm a vegetarian for various reasons and also track my caloric intake for weight loss, and I'm sick of people telling me that I need to eat meat and do a low carb diet and go gluten free!
The only thing I wanted to add to your video (for those who care!) is that veganism doesn't actually mean low calorie. It's fairly easy to eat calorie-dense plant-based foods, and I know quite a few overweight vegans. Heck, Oreos are vegan! I don't think you were implying that veganism means low calorie in the caption on your video, but I thought I'd comment just in case someone interprets it that way but is interested in a vegan diet.
Jaquie --- Great Job. Thank you for your definition of a caretaker. Right on target.
Thank you so much for the second video from today! If only I was getting a penny each time people suggest me going gluten-free/dairy-free/vegan... Please leave me and my safe food alone and come back when you have a medical degree. I know that people do it with best intentions but they also can't understand how does it feel when someone is constantly telling you that all your problems are because you eat *insert product category* and don't do enough yoga.
YES. Totally understand.
Крис П yes! Every time I tell my dad who is a former body builder about any joint pain he tells me to work out and strengthen my joints more and it won't happen. And I'm just like ok tell me what in the gym will keep the end joint of my big toe in because that's been popping out lately and swollen and painful.
I love that you did the diet suggestions video bc I get the same thing all the time. I also have an implanted pump for my chronic pain and my mom tells me all the time that I'd get better if I got off the pain meds. They help me have the little life that I do have. Anywho I'm on ur side all the way! Oh and I am a us citizen but I grew up in Germany so I traveled a lot too.
There's always that one user that will get offended. Let me add that if you never made the video and only continued to address the suggestions in your daily vlogs then it would not reach newcomers or the majority of your current subscribers. Also while I'm at it - you're one of the most humble, kind people on this platform and the only thing that's changed about you is the quality of your videos. That's coming from one of the the first 100 subscribers. I know I can't speak for anyone, but I do want to thank you for taking time out of your day to pick up the camera, record your day, and sit down to edit and upload your videos. It must be a long process for RUclipsrs, let alone one with a chronic illness. Kudos to you, Jaquie ❤
Thank you so much! That really means a lot to me. It is really nice to hear it from one of my first subscribers, too! I do work really hard to learn new things in order to improve video quality, etc, so I am really happy to know you've noticed!
I think it's so great your mom is moving closer to help! My mom is my biggest and truest supporter and my main caretaker. I still have a decent amount of independence but she still help me so much! I'm so close to my mom and I love seeing you and your mom interact. I'm just so happy for you guys and that you're going to be closer!
I think it's so sweet that your mom is moving to Tampa Bay to be near you and help out you and Judd :)
You are a joy to watch and an inspiration to all as is Judd. I have you in my prayers everyday when I think I hurt all over I think it is nothing to what you deal with each day. Many blessings and peace and joy to you both. It is also so good to see how much you and Judd love Harlow and what great care you take for him, animals are a joy and a blessing and a comfort, God sure knew that humans need animals.
Whoever did the captions for this, thank you! They really helped ;)
I live with my folks, they support me, they are even both my pcas, but yeah, I hear you, caretaker is not a word any of us would choose. It's fun seeing Judd play with Harlow. My service dog Fred gets a lot of play time in with my dad and it's pretty fun to watch and I'm grateful that even when I feel too sick to play with him in the yard, someone he loves and is attached to does. Watching your channel is often validating and helps remind me I am not alone in dealing with these chronic health issues. Thanks for putting yourself out there and telling your story. It matters!
Yay two videos!!!! I'm so glad you were feeling a bit better compared to the other days and I hope you continue to feel better :)
Happy Friday! I tried to go out today, but my issues flared up. Oh well, I'm trying not to feel guilty about myself listening to my body, and your positivity really helps, Jaq, so thank you!
Aw cool! I am also in the process of doing my citizenship :) I've done my finger prints a month or 2 ago and was given the study guide too!
You are a really inspirational person, i think it is amazing that you can live a (mostly) happy life even with all your setbacks. I started watching around three months ago and you made me want to live a more productive life. Thank you so much for making these vlogs.
Btw i don't have any like disability stuff.
Your No More Diet Suggestions video is life!!! Thank you for doing something about it. You're so inspiring and watching your videos is something I look forward to everyday! Thank you for letting us into a small portion of your daily life. ❤
Thank you for doing the food suggestions video I have gastroparesis and people around me don't understand that even if I eat fast food instead of healthy food I feel more comfortable eating certain foods
I watched your No More Diet Suggestions video and it was a great explanation. One thing you didn't mention that some of us might forget is that there are thousands of us. Just what you don't need is thousands of us suggesting what you should eat! How great that your mom can move to Tampa Bay! I know you are thrilled!😄😄😄🐩🐩❤️ and love from me‼️
2 vids? YAY 😊 I love you and your channel and I know what struggles you go through with dizziness, nausea, and headaches I suffer from those things due to my daily 240 dose of Verapamil I have a heart condition called ventricular tachycardia so with my Dose I get those all the time I wish you the best and keep up the good work! ❤️ love you so much ❤️❤️
I love your videos so much. I was 52 when West Nile virus (meningoencephalitis) left my right leg paralyzed among other things. I walk with a afo and forearm crutches. You just are so inspirational and help me so much to be positive and accept my limitations. You are a beautiful, articulate individual with so much to offer the world. I wish you all things good.
They aren't caretakers they are family. ❤️
Wonderful if you can say that, #ElianaWhelan ! Caregivers can be like the 2d person on your tandem bicycle through life :>
Seeing the way Harlow was playing with the blanket made my night!!
Hello jaquie I love watching your videos I have learned a lot from you about how some illness are not visible I also love to see you and Harlow interact she is so cute and i use to always think that service dogs never get fun time you definitely changed that thank you you have changed how I see the world
So happy to know I helped to break that stigma for you! :)
"Sshhhh you have an entire vlog to talk!" 😂😂😂
It's so heartwarming to watch you and your beautiful and loving family, Jaq.
I love her laugh & smile, it always makes me smile .
I love your videos! I've recently found out after a year of dealing with chronic pain that I have fibromyalgia. I also have gastroparesis, GERD, IBS, and a hiatal hernia. Your videos have helped me learn to keep being positive and try to take things one day at a time. Good luck on with citizenship!!
I love seeing you and your parents enjoy eachother's company. My parents divorced and will not speak to eachother since 1998, sick or not! It is super refreshing to see you having their support in times of need since I know what it's like not to have that. Give them an extra hug for me, if you actually read this lol. XOXO!!
Congrats that ur mom is living with u guys. That's great news!!
I agree too about the whole caretaker thing. I don't like the word "caretaker" too. You and Judd have a great communication. I love you guys!!
Christina Forge ok. That's your point of view.
Wakako she will live with us until she starts working next month and then find her own place near us but we are so happy to have her close! :D
Chronically Jaquie oh. I thought she was gonna move in with you guys permenantly. But its still great news. What a great mom. Is she going to find a job in teaching near you guys or is she doing something else?
She wants to do something else for this year, a job that gives her more time off during the day and maybe a weekday off (she would work a weekend day) so she has more availability for me. She really is going above and beyond!
Chronically Jaquie what a special mom. It shows that she loves you a lot. What a great mom u have!!
You are blessed to have a husband and family that support and help you. I wish everyone with chronic illness had this great fortune.
Hey Jaquie, I'm Samuel, I love you videos they really help me, my friend has pits and I was never able to understand what that meant but. You helped me figure it out ne I don't know everything but I know enough and I'm eager to learn. Thanks -Sammy
You and Harlow and Judd are so funny. I enjoy watching you videos because it makes me so happy to see somone who is sick, always happy and playing around with the only animal you arent allergic to... its really inspiring. 😂😂😂 Def watching more.
I love how kind Jaquie and Judd are! Love them!!❤️❤️
thats so wonderful and exciting about your Mom moving to be closer!
loved this video. I watch all of them but your mom forgetting the walker was so funny , with my chronic health issues ( a lot like yours ) I laughed so hard , t was great. I am so happy your mom is going to be there to help you now.
Harlow's coat looks so incredibly healthy and lush... I love it!
2 videos in 1 day!!!!! Yayyyyyyyyyyyyyyyy!!!!!! I luv ur channel u r so amazing💜💜💜
YaY for AMAZING parents! Lol, Jaquie's mom it happens even when you have it down! You explained things perfect in the other video, it applies to others. We just now narrowed my weight gain to my meds.... Aww Judd!❤️
Your dad is too funny! Great video.
You and Judd are so great together as a couple! That kiss at 14:46 and Judd playing with Harlow made my day. And I love that you have such a great understanding for each other.
I also couldn't agree more on the diet advice subject. I hate when people give me unwanted dietary advice.
you guys are such a cute couple !! harlow gave me a good laugh after a long day of work !
I'm so glad you are becoming an American Citizen! Very exciting. I only refer to those who care for me as "caretakers" when People ask me who my "caretakers" are. I agree with you and Judd, they are family and friends who love me. I took care of my Mother-in-Law for Years, but never considered myself her caretakers--to me, her caretakers were the doctors providing her with the medication and tools she needed at the time to sustain life! I was her daughter in law who loved her and helped her follow her physicians' instructions. I'm glad you have an awesome support system!
Your mum is amazing! I am looking forward to seeing her in vlogs more
Glad you had a good day, Jaquie! Just wanted to drop a note and let you know that my daily routine has been coming home from work and watching The Frey Life, and then watching Chronically Jaquie. You are doing a great job with your vlogs. It's a lot harder than it looks to make daily videos. I tried several times and failed!! :-P
I love how you are so positive about everything! You are so inspiring, and I'm so glad you post every day. I look forward for when you post!
I had a good laugh last night because someone told me boiled milk would cure my gastroparesis 😂😂 so when I saw the other video uploaded I cracked up laughing and couldn't believe the coincidence
Rachel Cone Boiled milk? 😂🤢
neverlandlost x yep he said me pursuing western medicine was me giving up on my life and if I wanted cure my eds I should do a certain form of yoga and he said it like this " do (insert yoga type) if you want to live but if you want to die then keep doing what your doing" I just about died laughing 😂😂😂
Rachel Cone 😐✋ Some people.. Thanks for the laugh
Rachel Cone oh geeze!! 😂😂😂 I've been told similar things n it's like seriously?!?! I get frustrated sometimes but most times I just have to laugh.
Raven Moore yeah I got frustrated I was like how can you be so dense to not get it I told him milk is not going to magically make my stomach regenerate itself 😂😂 but after a while I just found it funny and this is on a dating app I'm pretty open with my chronic illness and he's like " to be honest I'm just here to f@@k but as an army vet I feel compelled to save your life and inform you that boiling milk will and drinking it will cure your stomach problems it may cause you to have diarrhea but you will be cured and you will live you won't have any of your CIs because the power of milk" and I just started rolling on the floor laughing so hard I almost passed out and my reply was I'm sorry your wasting your time on this I'm going to talk to my doctors about a central line that has minimal side effects and will dramatically help improve my quality of life" and so on to keep going on about my plans to battle my CIs and he says why your killing yourself and giving up its so sad to see I again almost died from laughter it was a great way to end the night 😂😂😂
You both are so courageous!
LOL, The look on Harlow's face was priceless.
You gave some great perspective today. And yay for your mom moving to Tampa to help you!!! And closer to your citizenship!!!
I have a Ti Lite and love it :) The process can be long but worth it
Such a great childhood, living in all those different places :D I've actually heard of Anguilla: my former in-laws used to vacation there yearly, because a woman in there Methodist congregation (in NJ) was originally from there, and was instrumental to developing it as a tourist spot!
YES YES Jaquie ! go with TiLite ! they are number one ! i live all the way in the Mediterranean and i have had a TiLite for the last 3 years and haven't been happier ! :) IF you can go with a Titanium frame over Aluminum its much lighter although i know there are some issues with Titanium frame chairs in the US
Caretakers are usually known as carers or caregivers in the UK. Our family has never called themselves a carer for my brother unless it's in a formal setting like paperwork or meetings etc.
We have done that in formal settings too but I am usually thinking, "No, he is my husband!" haha
"These people" Judd's reaction to her saying that was hilarious 😂. You guys are so cute ^-^
People tell me diet and exercise will help with my chronic illnesses all the time. It's pretty frustrating sometimes.
I get diet suggestions all the time. Now that I have a POTS diagnosis people freak out about how much salt I keep putting on my food.
Earlier this month I went to the pot luck family reunion. Because we were camping I brought a dish that I could not eat due to food allergies and had eaten a full meal before attending. I brought a bag of chips to eat while every one else was eating and got so many people coming up to tell me how I need to change my diet.
My surgery went better than expected today. Yay! It's the first time I was able to get premedication for my MCAS and so far, I haven't had any strange or painful reactions to the anesthesia like I normally do. Hurray!
Judd is a blessing to you Jacquie. Godbless you all!
I used to have stomach problems that often woke me at odd hours of the night. I would often sleep sitting up against my wall to help the acid stay down. Not sure, though, if anyone has suggested leaning toward or sleeping on your left side. My doctor suggested it while we were treating my issue and it helped reduce the pain some.
Really really needed this video to laugh I almost burst into tears laughing so hard. Had such a rough sad day thanks Jaquie girl hahahahahaha. Your mom is so awesome I love her
i agree 100% on the word 'caretaker', best explanation ever 💕
I love this video. I've been dating my boyfriend since a few months before I got my concussion that led to all of my health issues. I have POTS and Gastroparesis now with an NJ feeding tube. I feel so lucky to have my boyfriend helping me so much with all of my health issues. We're only 18 & 19, I feel like so many people expected him to just leave me when things got hard but he has braced the storm with me. We are both lucky with amazing family and significant others 😊
LOVE YOU SO MUCH 😭😭😍
I'm so intrested in this kind of stuff because when i was 8 years old i had scoliosis and i had 12 surgerys to fix my curve I'm now 14. But I like watching your vlogs because it makes me feel better knowing that I'm not the only one out there who has to deal with something every day because with scoliosis i have medal in my back and to make sure the sscrews that are in my back don't come loose i can't ride a horse and it was always a dream of mine to ride a horse but now i can't. And i can't do stuff that a normal teenager can do. Thanks for doing what you do...I'm not good at talking :/
Ruby Gold hey, i was operated for scoliosis too about seven years ago now. I have multiple screws and two rods in my back since then. I only had to have one surgeon (or his team, anyway) to fix it, but except for my yearly checkup I've never had to have my screws checked, and I can do everything according to my surgeon, ride horses (which I often do), ski, ...
I don't know if your procedure was a lot more complex than mine was for you to have so many restrictions? In any event I'm sorry you have to live with those, I know it's no fun...
I still feel really lucky when I see people like Jaqui who have to battle illnesses everyday. Chronical illness warriors, I admire you! Keep on fighting I believe in you :)
:3 thanks. i only have those restrictions right now because because i don't have alot of screws in my back at the moment because my surgeon wants to keep opening up my back to lengthen my rods because i'm still growing. I have 4 screws in my back and i did have spinal fluid leaks a few times because i was to active.
Ruby Gold ouch!
My surgeon waited for me to stop growing before he operated, I had a corset for about two or three years as I was growing up, but it proved to be useless on me because I apparently have crooked articulations between my vertebrae, so the second they took my corset off my back just slumped back to about a 50 degree curve :/
I think I currently have something like 8 screws in my back, but obviously there was no need for my surgeon to go back and lengthen my rod, so I was in and out of the hospital in just over a week, had no PT at all and got to start riding again and everything else about 6 months later. I was really surprised at how fast my body recuperated after such a big surgery!
I was terrified when they told me I had to get operated, but in the end I have no regrets, my surgeon saved my quality of life as I'll get older :)
Hang in there, you'll be glad once it's all over, and it will save you a lot of back pain in the long run :)
Your understanding of the why's and hows of what's going on with your body, along with how independent you are never made me think of you needing "caretakers."
hippo makes me laugh! so excited your mom will be closer to help.
Judd is a bad influence on Hippo lol. So cute
I tell him this all the time!
I understand how you feel about the word caretakeer. My 18 year old (who has fibro & autism) sometimes uses it to describe me and I don't like it. i didn't realize exactly why until you said it sounds like it's obligation - and that is so it. I'm their Mum, not someone who is obliged or paid to look after them.
You guys are so sweet. I couldn't stop looking at the one hair on Judd's blanket though 😂
Omg yes I'm constantly told to use turmeric for joint pain etc... They don't ever understand when I explain that that will make me sick in another way- turmeric thins the blood which isn't good with my Von willebrand disease. And then they tell me ibuprofen... But my clotting disorder also means strictly no NSAIDS. it's the most frustrating thing ever.
2 videos!! I don't believe it's my birthday yet...
Isabella C it's not mine either. That's so weird. I'll take it though
im n Jacksonville aww wish u guys lived here but glad ur mama is moving there for u.. ur so awesome with the info u give.. thanks for being so transparent with ur life!!
I love how you two began dating so young and it was so obviously meant to be
No wonder you're so out going you've traveled a lot meeting so many different people. What a great education!
I love how silly Harlow is she makes me laugh! I agree with you on the word caregiver, my husband helps me but he isn't my carer he's my husband! Love is the difference
Totally agree! :)
Hey Jaquie, I help my husband at the nursing home where he resides. I don't like the term caretaker, however I find the term caregiver is more accurate. To me caregiver clarifies that it's not just a random choice we make, but rather a willful decision we choose to do for our loved ones. Maybe that might be a word that refers to your family. Take care
that's funny that you mentioned you're a citizen of canada! i had a feeling. i'm not from there, but by the way you say "bag" and "vitamins" i just knew it! hope you're feeling better!
I'm so happy your insurance covers a custom wheelchair for you !!
I want to thank you for making your most recent video about your diet. Being a vegan and new to your channel, I couldn't understand fully why you didn't try this, or so I thought. I didn't think about how many questions you must get about this, which must be tiring.
You are so lucky. My mom doesnt believe in dysautonomia and has pretty much abandoned us.
Megan Bowden it's so hard when ppl don't understand an illness. my husband has POTS n NCS n I have endometriosis among many others and there are a good number of ppl incld family that do not understand and think we are just lazy. it's hard!! I'm sry you deal w that w your mom :(
Sorry to hear that :( I have had to remove important people from my life for similar reasons.
Honestly preach it about the diet recommendations girl
So glad you understand!
I love how Jacquie can always keep a good mood as hard as she can
u always make me laugh when your family is around.
I love this. And the diet video. My chronic illness affects my breathing with my severe allergies. I just got my 3rd Xolair injection today and I am starting to see some positive results, so for the long term relief of my most difficult sinus issues and drainage I understand will take the longest to see results. I get suggestions of oh here have a echinacea or this remedy or that. I have tried them all and found out for example that echinacea is actually dangerous for me to take.
Any ways. I have been having some temporary immediate successes with essential oils.
I am moving away from chemical cleansers to things like backing soda, salt, vinegar and essential oils like tea tree oil and lemon because they are non toxic. I have less breathing issues when I use them.
In the UK we have carers instead of caretakers. I find using carer when at meetings etc means that my partner is taken more seriously when he voices opinions about my health. Also as my partner he can't stay with me at the hospital etc but he can if I make it clear he is also my carer. It's stupid that it is that way. He helps me because he loves me. You are so lucky to have such a caring and thoughtful husband and family and Harlow too. She is so cute.
I am going through the same thing getting my new chair. After insurance approval it's nothing but wait.
Yeah it could take several months, but I think it is worth it!
Chronically Jaquie just got the call it was approved so now I wait till it's made
It was neat hearing from Judd and hearing how you 2 met and all...very neat! He should be in all your vlogs! lol
Unfortunately he can't because of his work schedule, but he appears in them when he's able to! (: