I'm autistic and I have hypotonia. My upper body is worse affected. I dribbled until I was well into high school At age 24 still haven't fully mastered chewing with my mouth shut. I used to have my neck tilted to one side, but I didn't know, I thought my head wasn't tilted, affecting my ability to walk in a straight line. I have only recently learned to chew using my whole mouth, not just the front of my mouth and got through most of my life not realising I chewed differently. I just thought taking ages to chew meat was normal. On a Christmas dinner as a young adult I was still chewing my meat long after everyone had finished. I also bit straws, which was fine if the straws are plastic. When paper straws were introduced I couldn't use them for long. My mum had to teach me how to suck a straw without biting it. I tended to learn to use my bigger muscles for small tasks, like using my whole arm for handwriting and using my shoulder for lifting cutlery for example. In addition I was weaker thsn my peers. Age 10 I wasn't strong enough to do CPR on ResussiAnna, while everyone else was, and when I joined army cadets, I really noticed the difference in strength. I also did the big muscles for small tasks in my lower body. I used my knee to lift my foot up, rather than my ankle, resulting in my feet dragging when I got tired and annoying people I was with. I could never understand why people got annoyed at me for it until a physiotherapist pointed out that I wasn't walking as efficiently as I should and taught me how to walk better. I can walk without getting tired though, I go hiking when I can, so endurance wise my leg muscles are good, always have been, then my mum didn't drive and walked to a lot of places
The only Eye Issues I have Is Astigmatism , and Hypotonia ISNT Going to Go Away As the Child Gets Older. it. IS A LifeLong Condition . I’ve Got Hypotonia,
If a mitochondrial or other biochemical issue is at the root of hypotonia, people can definitely benefit from nutritional treatment. Many times though, that’s not looked at and sadly, those people don’t get the help they need.
@@yourautismgameplan1637 It’s a Condition A Person is Born with That Affects the Muscles and Joints in the entire Body From head to toe , Eating Healthy isn’t going to Cure this Condition Sadly. Same Nearly All my issues They are All life long & Permanent , At times I wish it would though. I’ve Learned to live with them . None of my condition can be cured.
My girl has muscular hypotonia, giftedness, signs of adhd and autism, duane syndrome in her eye, and vertigo in childhood. But the doctors won’t investigate for autism since they think she’s too outgoing, but I think that’s due to her adhd. It’s different to be outgoing and to be aware of the social cues. She’s very impulsive, but smart and has hyperlexia as she reads at 3 years old. I wish our doctor would investigate her for autism, but they wont :( I’m trying my best to have it done, but it’s the same place that has to approve no matter who send for it. Anyway, Thank you for your video! I’m just casually looking at different videos about things my daughter has 😅😆
Having a label can be a double edged sword. A label of autism does open the door to more therapies - although, she may already qualify based on her existing diagnoses for a lot of necessary therapies. Whatever we want to call our kids’ symptoms, the bottom line is that we want to get to the root of what’s going on. Autism or anything else. I know it can feel relieving to find a name to what’s “wrong” with our kids, but it’s not always strictly necessary. If a child is constipated, treat her constipation. Look at the symptoms and start there, diagnosis or not.
@@yourautismgameplan1637 yeah, I’m not necesarily looking for therapies. They’re not too common in my country, as they are in the US. But we do have possibility for an extra grown up in school for example to help both with guiding through school assignments and in social interactions. Our pre-school is right now having a lot of problems tho with that the teachers are loosing their temper when my daughter is loosing hers. Instead of guiding her to calming down or expressing herself they are getting angry at her. But yeah, the biggest reason I want her to get the diagnosis is because I feel like she has it and that it’s unfair that boys are seen and not the smart adhd/autism girls. But I just called an expert in guiding preschools to deal with them bring angry with her lots lately :) So we’re trying to adjust her enviroment and getting the other adults in her life aware of how she works :) Thank you for your reply!! 🌼✨
@@MrsMrsBecky I find the diagnosis important. What country are u from pls? Can you find another Doctor? I would look to people who have the most up to date diagnosis tools including the Asperger’s girl tool and they’re aware of the fact that autism doesn’t always mean ‘not’ outgoing and yes adhd can definitely make her more outgoing so I would personally seek out another doctor. If you just so happen to be in QLD Aussie then I could refer u 😆 if not, please keep looking; it SUCKED for me to grow up without my diagnosis.
Great video, thank you! My unborn daughter has a chromosome deletion (I am 23 weeks, 1 day pregnant today) that is often linked to hypotonia, autism, adhd, small kidneys or in some cases kidney disease, among many other abnormalities, she does have micrognathia and clubfoot which will be treated at birth depending on the severity. We won't know how severe any of these things are or if she has any of them until birth and as she develops but I really want to advocate for her and get her to the right specialists to give her the best chance later on. I have heard hypotonia can affect their speech as well which then causes speech delay. I will see if when she is born they can do a a test on all of her nutrients to see where they are at, is that how they diagnose it? along with obviously the physical part of hypotonia? Great video again, thank you :)
Hello ! I would like to know the origin of this hypotonia, is it metabolic? If so, has it any influence in metabolism in brain or organs?. I have seen in my family ("aspergers") hypotonia when little but not severe and fades out growing up like another developmental issue in our autism... I can't find any scientific literature on this...do you know if to exist? Thank you so much
In some cases, it can be metabolic. The mitochondria often play a role. Genetics certainly play a role as well. Sometimes it’s a genetic mitochondrial issue, sometimes not.
@@yourautismgameplan1637 ok. Thank you. In this case it could also affect other metabolism implicated in general metabolism? Do you have bibliografy to look at? Thank you! Do you know the name of mutation?
Hey what are all these vitamins? I haven't even heard of half of them before! Could you roughly break them down or which one is the most important (for an adult) I find that getting vitamins D, B12 and a pro-biotic and magnesium at least does make the hypotonia symptoms subside even without doing all the self soothing and calming techniques etc that are a pain in the a** to do but I would rather not have to force myself to do these things if the right vitamins will help Any light you could shed on that? thankyou :)
Definitely, but not in the presence of mitochondrial issues or nutritional deficiencies. Our kids are often missing the essential building blocks for healthy mitochondria and are unable to perform exercises (including resistance) and if they are, don’t benefit in the same ways as others would because of their unique genetics and nutritional status.
Great insight about Hypotonia. Eye movement, wow, it is nice to know and I think our son doing that
I'm autistic and I have hypotonia. My upper body is worse affected.
I dribbled until I was well into high school
At age 24 still haven't fully mastered chewing with my mouth shut.
I used to have my neck tilted to one side, but I didn't know, I thought my head wasn't tilted, affecting my ability to walk in a straight line.
I have only recently learned to chew using my whole mouth, not just the front of my mouth and got through most of my life not realising I chewed differently. I just thought taking ages to chew meat was normal. On a Christmas dinner as a young adult I was still chewing my meat long after everyone had finished.
I also bit straws, which was fine if the straws are plastic. When paper straws were introduced I couldn't use them for long. My mum had to teach me how to suck a straw without biting it.
I tended to learn to use my bigger muscles for small tasks, like using my whole arm for handwriting and using my shoulder for lifting cutlery for example.
In addition I was weaker thsn my peers. Age 10 I wasn't strong enough to do CPR on ResussiAnna, while everyone else was, and when I joined army cadets, I really noticed the difference in strength.
I also did the big muscles for small tasks in my lower body. I used my knee to lift my foot up, rather than my ankle, resulting in my feet dragging when I got tired and annoying people I was with. I could never understand why people got annoyed at me for it until a physiotherapist pointed out that I wasn't walking as efficiently as I should and taught me how to walk better.
I can walk without getting tired though, I go hiking when I can, so endurance wise my leg muscles are good, always have been, then my mum didn't drive and walked to a lot of places
The only Eye Issues I have Is Astigmatism , and Hypotonia ISNT Going to Go Away As the Child Gets Older. it. IS A LifeLong Condition . I’ve Got Hypotonia,
If a mitochondrial or other biochemical issue is at the root of hypotonia, people can definitely benefit from nutritional treatment. Many times though, that’s not looked at and sadly, those people don’t get the help they need.
@@yourautismgameplan1637 It’s a Condition A Person is Born with That Affects the Muscles and Joints in the entire Body From head to toe , Eating Healthy isn’t going to Cure this Condition Sadly. Same Nearly All my issues They are All life long & Permanent , At times I wish it would though. I’ve Learned to live with them . None of my condition can be cured.
My girl has muscular hypotonia, giftedness, signs of adhd and autism, duane syndrome in her eye, and vertigo in childhood. But the doctors won’t investigate for autism since they think she’s too outgoing, but I think that’s due to her adhd. It’s different to be outgoing and to be aware of the social cues. She’s very impulsive, but smart and has hyperlexia as she reads at 3 years old. I wish our doctor would investigate her for autism, but they wont :( I’m trying my best to have it done, but it’s the same place that has to approve no matter who send for it. Anyway, Thank you for your video! I’m just casually looking at different videos about things my daughter has 😅😆
Having a label can be a double edged sword. A label of autism does open the door to more therapies - although, she may already qualify based on her existing diagnoses for a lot of necessary therapies. Whatever we want to call our kids’ symptoms, the bottom line is that we want to get to the root of what’s going on. Autism or anything else. I know it can feel relieving to find a name to what’s “wrong” with our kids, but it’s not always strictly necessary. If a child is constipated, treat her constipation. Look at the symptoms and start there, diagnosis or not.
@@yourautismgameplan1637 yeah, I’m not necesarily looking for therapies. They’re not too common in my country, as they are in the US. But we do have possibility for an extra grown up in school for example to help both with guiding through school assignments and in social interactions. Our pre-school is right now having a lot of problems tho with that the teachers are loosing their temper when my daughter is loosing hers. Instead of guiding her to calming down or expressing herself they are getting angry at her. But yeah, the biggest reason I want her to get the diagnosis is because I feel like she has it and that it’s unfair that boys are seen and not the smart adhd/autism girls. But I just called an expert in guiding preschools to deal with them bring angry with her lots lately :) So we’re trying to adjust her enviroment and getting the other adults in her life aware of how she works :)
Thank you for your reply!! 🌼✨
@@MrsMrsBecky I find the diagnosis important. What country are u from pls? Can you find another Doctor? I would look to people who have the most up to date diagnosis tools including the Asperger’s girl tool and they’re aware of the fact that autism doesn’t always mean ‘not’ outgoing and yes adhd can definitely make her more outgoing so I would personally seek out another doctor. If you just so happen to be in QLD Aussie then I could refer u 😆 if not, please keep looking; it SUCKED for me to grow up without my diagnosis.
@@MrsMrsBecky United States is the worst I am in the same boot as you and we cannot know what is wrong with her
Interested in your opinion on Dr Lee Merritts video on the microscopic parasites
Great video, thank you! My unborn daughter has a chromosome deletion (I am 23 weeks, 1 day pregnant today) that is often linked to hypotonia, autism, adhd, small kidneys or in some cases kidney disease, among many other abnormalities, she does have micrognathia and clubfoot which will be treated at birth depending on the severity. We won't know how severe any of these things are or if she has any of them until birth and as she develops but I really want to advocate for her and get her to the right specialists to give her the best chance later on. I have heard hypotonia can affect their speech as well which then causes speech delay. I will see if when she is born they can do a a test on all of her nutrients to see where they are at, is that how they diagnose it? along with obviously the physical part of hypotonia?
Great video again, thank you :)
Have you done a webinar for the NMCDD Imagine Conference? You look familiar.
I haven't, but I get told all the time that I look familiar. I guess I have that sort of face :-)
Hello ! I would like to know the origin of this hypotonia, is it metabolic? If so, has it any influence in metabolism in brain or organs?.
I have seen in my family ("aspergers") hypotonia when little but not severe and fades out growing up like another developmental issue in our autism...
I can't find any scientific literature on this...do you know if to exist? Thank you so much
In some cases, it can be metabolic. The mitochondria often play a role. Genetics certainly play a role as well. Sometimes it’s a genetic mitochondrial issue, sometimes not.
@@yourautismgameplan1637 ok. Thank you. In this case it could also affect other metabolism implicated in general metabolism? Do you have bibliografy to look at? Thank you! Do you know the name of mutation?
Hey what are all these vitamins? I haven't even heard of half of them before! Could you roughly break them down or which one is the most important (for an adult)
I find that getting vitamins D, B12 and a pro-biotic and magnesium at least does make the hypotonia symptoms subside even without doing all the self soothing and calming techniques etc that are a pain in the a** to do but I would rather not have to force myself to do these things if the right vitamins will help
Any light you could shed on that? thankyou :)
I go through all of these in depth in my online course. I hope you’ll check it out at www.yourautismgameplan.com/course
Love it❤️❤️❤️
What about resistance exercise to increase the number and size of the mitochondria in the muscles? Will this improve things?
Definitely, but not in the presence of mitochondrial issues or nutritional deficiencies. Our kids are often missing the essential building blocks for healthy mitochondria and are unable to perform exercises (including resistance) and if they are, don’t benefit in the same ways as others would because of their unique genetics and nutritional status.