Spending too much time on the floor...? [CC]
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- Опубликовано: 30 сен 2024
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Do you find "the black curtain" is actually black for you or more like a static tv / more greyish?
Instablaster...
To possibly add to your POTs jokes: an alternative Dutch word for lesbian is actually a 'pot'!
When every doctor says “just drink more water and eat more salt” and you want to scream at them
abby ehrenstein oh my god same !!!!! And also that I need to calm down. I had a treatment and it had been stopped. The product isn’t produced anymore. But because I am not diagnosed with a precise condition I cannot have any of the other medications because « it’s for people with a condition and you don’t have one » excuse me sir but that you just don’t know what’s happening to my body and I have nothing isn’t the same thing !!!!
It's the most frustrating thing
omg wait that's what mine said.. do I have POTS? I commented my symptoms but I have all the same as Jessica..
YES! Along with this my doctor told me to stop drinking coffee/espresso. The thing is I had not had a drop of caffeine in months when he said it. I explained it to him and he just said to keep not drinking it, ignoring the fact that this means that I was having symptoms without it.
@@starkid981 what an idiot lmao
Can "You're doing great darling, don't worry" be the next merch quote? ❤
Charlotte Gray co-sign
Yes, please!!!
Oh, that would be so sweet and lovely.
Charlotte Gray that’s a lovely idea!
I need it on a T-shirt and/or a notebook
Interesting-my roommate has POTs, and one of her major symptoms is that her body can’t control its temperature, so she’s constantly getting really hot and then getting really cold again
I live in the US, most of my symptoms are undiagnosed because... I'm not a millionaire.
When I was waiting to get approved for disability, I went to Social Services to see what I could qualify for as I was living with my parents, and they weren't made of gold. All they could offer me was food stamps, but once my Social Security kicked in, I got Medicaid retroactively for a short time. Also, if you have low income, you might also qualify for Medicaid. Good Luck with getting help!
@@kadeline1 it doesn't take much to be above the line of qualifications. I feel like they're too too low here, even I didn't qualify I would have no hope of affording private healthcare. I hope so much you are able to get diagnosed soon, it must be maddening to feel like you have "something" but not knowing what.
@@EEsmalls I'm sorry you can't get help. As for me, I AM diagnosed, and as time goes on, I've acquired quite a collection of diagnosis. Nevertheless, thanks to Social Security work incentives and a great doctor, I am working a little. Most communities have a clinic in association with their major private social services, and may have a free pharmacy connected with it. Sometimes the income guidelines are less stringent. If you need monthly food comodities, you might find them there too. I hope I've given you something to work with; take care.
That’s such a messed up system I’m so sorry
I got diagnosed with multiple sclerosis yet I can't afford the $100,000 a year that it takes to afford caring for myself with that disease. I'm living with my parents now again and my dad makes too much for me to get assistance but not enough to actually afford that ridiculous amount of medical costs for one of the three people he supports. It's just insane how my country thinks my life is worth nothing now yet I mentally have so much more to give as I'm making videos on my RUclips channel if you want to check out videos about coping with life and the truth of the difficulties I faced. I'm so done with the fake stuff and I love people just being real and I'm part of that now. I hope you have a beautiful day and I hope that we can make some changes in the next decade or so or we really are going to risk going extinct. These billionaires are literally killing us because they think they're more entitled to all of the money in our currency then the rest of us and it's very sick. There needs to be above others is only a mental weakness as far as I can see. Putting greed above life is just stupid. Life should always be the most sacred things in life the way I see the world.
I have never managed to make laying on the floor look as elegant as you do. 👍
People get really confused when they find out I'm on birth control, because I'm married to a female, but not having a menstrual cycle has been so amazingly helpfully for more than one of my conditions.
omg yes.. i have a lot of kidney problems and since i got on birth control, my health has drastically gotten better.
How can anyone look this good lying on the florr, sick? At that angle?!
That will always be a mystery to me.
especially the angle Jesus I look like a human blob fish at that angle
@@vaporwavedog I would have a triple chin at this angle lol
Because she is Jessica and can make anything and everything look gorgeous and stylish.
I’ve always assumed I was just an able-bodied wimp who couldn’t stand for long periods of time, especially in warm weather. I just called the vision issues “spots in front of my eyes”. The racing heart and nausea I assumed was hypoglycemia, etc. Finally since discovering your channel many of these unusual symptoms and a lifetime of avoiding any activity involving sitting or standing in warm weather have a probable explanation. Thank you so much for offering some insights into my 65+ year life - you are a joy and a treasure!
p.s. - will i get tested? Dear me, no - i already know they would bring on a very uncomfortable episode!
I can relate so much to the 'wimp who can't stand very long' idea... I thought that for the longest time, until my cousin said that she only wanted to speak to me when I was lying down, or else I would not be clear headed and would be huffing and puffing too much. Then it clicked. We're not wimps, we're POTS warriors!
I definitely thought I had hypoglycemia at first, the shaky feeling, and nausea..
I have POTS but I don't faint. A lot of doctors inexperienced in POTS think you need to faint to have POTS. I also have Idiopathic Hypersomnia.
Ditto, I didn't faint until I was in med school. Then I was forced to stand for long periods and it started. I'd adapted and would normally just naturally sit or lean of I couldn't sit.
@@emilyb5557 i rarely faint, but if i stand to long i feel like im about to go-
Ehlers-danlos Syndrome here, developed POTS after a surgery, I need to send articles to my cardiologist, she tried to convince me it was anxiety, but I'm a psychologist, and explained her my methodology to confirm that it was not.
Also, Fitbit helped a lot!
I have All PoTS symptoms but bc of diagnosed brain tumor (two actually). Surgery on number one on April 30, 2019. Send positive vibes. Bravo on how clear you are on topic and what a great advocate for your own and others health. 🌿
Hope your surgeries go well.
Hey, good luck in your surgery! Update us afterwards please so we know you're ok!
Watery Star 💫 Thank you 🙏
Twitchyboi ✨Thanks.
Rebecca White Yup. Will do. Thanks for your concern🌿
Ha! I opened RUclips whilst lying on the floor.... To find something to pass some time... On the floor! Just chronic illness things 😂
Fen Ratdad , same... sorta
Same xD
On my bed for POTS reasons, so...semi same!
On the bed today I’ve totally graduated! 🤣
I'm able-bodied but my best friend has POTS. I love learning about it so I can best help her. Thanks for your videos!!
You know, POTs was one of the first symptoms of my EDS that I dealt with, but it actually never occured to me to lie on the floor! Thanks for talking about this and spreading awareness, Jessica!
Same!!!! Mine started with chronic fatigue syndrome developed with POTS and finally all the other issues being a zebra causes. 🙃
same :) once i finally was diagnosed with pots after many years of blacking out and ending up on the floor it got the ball rolling and ive finally been diagnosed with eds and mcas
Not gonna lie, I laughed out loud when you had the flower pot in your hand! Thank you for another fun and informative video! You’re the best!
PhoebeFay RuthLouise that was def a good comedic moment
Can you please do a video about how you manage your chronic illness while on your period?
Robin McKee that’s a good idea
@@annaswanson5903 good idea
A couple of weeks ago, I was talking to my brother, and i stood up, went dizzy, and immediately ended up on the floor (which does happen a fair bit, lmao) and he just stood there for a minute, until I said 'Don't worry, we're Gucci.' and he replies with 'No, you're Tesco Value' which is still the funniest thing anyone has ever said to me.
(I feel like I should mention, I've not being diagnosed with anything, waiting on more blood tests lmao)
Mae-Lea Simon-Horton I hope they’re able to help you what is going once you get the results of the blood tests. Good luck!
Having my tilt table test and fainting half way through it was such a relief because it meant the doctors finally actually believed me.
When you are probably healthy but some hypochondriac part of your brain leaves this video convinced you have P.O.T.S. XD
Too relatable. I also got compelled by an earlier video to Google marfans syndrome - which actually matches a lot of my random and chronic symptoms I've developed over the past year (bone pain in joints, unusually long legs, random numb weakness and pain in my hands and feet). I'm amazed that I'm not more of a hypochondriac...
Emma Jenkins don't think you're a hypochondriac for having symptoms of an illness! as long as you have had the symptoms before you heard of the illness, you really should look into it. i have chronic pain, weakness, numbness in feet and legs as well as some hypermobility and i'm trying my hardest to get a diagnosis of something. its difficult, but i'm getting there! i've finally gotten a diagnosis of IBS after starting to see a gastro since i was 5, and finally being told what i have and that i won't "grow out of it." i'm in PT and my chronic pain is being helped from that and meds while we search for answers. you don't have to let yourself suffer because you're afraid of being a hypochondriac! much love 💞
Was literally just talking to my wife about how I think I probably have POTS. Oh, the irony!
You don't know what "irony" means.
@@r0bw00d look I meant something along the lines of coincidence but was really drugged up on pain meds and that was the word that came to mind
You’re phones listening too u no lie, happens to me!
As I'm currently in hospital for what my doctors think is POTS, this video was perfect timing for me!
Same!
@@fe5018 yes! Love her. It was a great video to show my mother while we sat here w/ her freaking out about it all.
I hope you gonna be okay
Take care
Hope you find out and good timing for the video 😀
This is great! Keeping a link to this handy so I can stop explaining POTS every 5 minutes. Also a fun symptom not mentioned: temperature dysregulation. I get intense hot flashes (often in the evening or when lying done) where my extremities feel like they’re on fire and painful tingling shivers when I’m cold (or tired or standing too long). This all goes with the circulatory / ANS mess.
I've been told for years that these are just symptoms of my Post Traumatic Stress Disorder... but thanks to this video (which I showed to my doctor, as well as bringing along the list of symptoms) I'm finally being tested for POTS and HOPEFULLY will be able to figure out a way to deal with these symptoms, as they've been wrecking havoc on my life for the last four years. Thankyou so much, Jessica, for finally making people listen when we say SOMETHING IS WRONG!
Educating, informing AND looking great - all with great smarts and humor...Awesome!
Diane Mc Gowan indeed!
So composed and elegant, even on the floor.
Jaz Helton agreed
Notification squad 🙌🏻
My symptoms include lightheadedness, extremely fast and hard heartbeat, vertigo/dizziness, shortness of breath with a sometimes tight chest, near fainting, orthostatic headache (in addition to migraine), exhaustion, brain fog, shakiness, digestive problems, and my vision blacking out, all of these when I sit or stand up. I’m also sensitive to caffeine, dehydration, heat, and overexertion.
Your videos contributed to my success in getting diagnosed with POTS. My possible triggers are genetics (my aunt has it, and we have a connective tissue issue, plus anxiety), but also my two rounds of mononucleosis, and a concussion. Thank you for your lovely video!
PS: the Sims jokes, I can’t 😂 and the big pot hahah I love it
Oh! I attributed my caffeine sensitivity to my lyme, but it might be POTS related, instead. Interesting! Thanks for sharing. Instead of drinking coffee, I eat a bit of high quality pure chocolate, which has the same effect on me as a cup of coffee would have on others. I don't need to feel sorry for myself hahaha
AnneloesF glad to help! Unfortunately, I have to drink one cup of coffee per day for migraines, sometimes more), but when I do I know to take it easy and be careful because my heart will go nuts and my POTS will flare a bit. Chocolate is great for a pick me up but it affects me the same too!
@@clairespahn6639 Oh no, both those things are annoying! Sorry to hear...pff. My POTS comes and goes a little, and I was always wondering why chocolate sometimes helps to keep me awake at work, and sometimes not. I will now see if it is related to my POTS being a bit better sometimes. I may have to take a few sips of coffee on the days on which staying upright is not a chore. (If that makes any sense.) Thanks again for helping me understand myself better! Very helpful to read everyone's comments here. All the best with managing your symptoms as well as possible!
Oh my god you literally just described every single one of my symptoms!
Unrelated to my previous comment, after watching the whole video, I have already several doctor appointments coming up in relation to blood and digestive issues and basically 90% of the issues discussed here seem to apply to me so suddenly this might be a whole lot more useful to me personally. Joy!...
Hazel Irons good luck !!! I feel some symptoms apply to me too...
me too! haven't been diagnosed because "you're just tall" "eat more salt" "stand up slower" "you can't have an MRI because theres no reason" though I have all the symptoms and get intense shooting pains in the center of my brain that leave me exhausted and crying.. doctors🙄
I have all of the symptoms, yaaaayyyyy! I've actually been considering making videos to talk about my experience with POTS, the utter hell it was to get it diagnosed, realising that I had actually been struggling with this all my life and had been misdiagnosed (or rather, ignored and brushed off) since childhood, etc. But then I get annoyed with myself just even thinking about it because I already feel sick every day, I don't want to think and talk about it even more... and then I think about how much videos like Jessica's have helped me and that maybe I could help someone else... and then get annoyed with myself again and the endless cycle continues lol
Nat GL I will totally watch your videos if you make them 😀
This was really helpful because I've had it suggested that my mystery fainting illness is POTS, thank you! Also that dress is absolutely beautiful! 😍
If it is, I highly recommend Vitassium Salt Sticks as a sodium/potassium supplement! You get them on Amazon, it's the one with the blue bottle cap. They help to raise your BP, which can help slow your heart rate down a little and give you a break. (Only take them though if you have no other issues with salt intake, and your doctor says it's alright!)
Jenny T it’s a great video
Jessica, you just may have helped me solve a mystery for somebody I care about! Thank you!💖 You've just relieved quite a bit of worry!
2CuteMadHatter ❤️
Jessica it's like you KNEW I went in for my tilt table test yesterday.
Bree Mae 💛
Casual been laying on the floor for hours and then see the title for this 😂
🤣
I'm so DOWN with this format
Robyn& Raven same
No, you have no idea what your own heart feels like.
Why are doctors like that?!
The Patriarchy. Seriously. The paternalistic nonsense than runs right through the medical profession is gross.
@@RadioJunkie04 my lady doctors are ten times worse. Smh.
Because your heartrate increases a lot. And you can get aware of that. And if your bp is normal (and possibly hormone levels) are normal. Then it's fine. Also at time of check up. Your hearteate can be normal and if not it can be anxiety from the check up.
Heartrate is such a common symptom influenced by so so many things, that saying it's cause of pots or any heart condition. Because it's influenced by everything.
And especially if a heart echo shows nothing (how you can see you have gotten a heart attack) if you have no other symptoms, there would be no grounds for a diagnosis
Literally had this shouted at me today. Along with how I was anxious and being "dramatic" mhhhmmm.. eh... Lord.
Seeing all these stories makes me feel so lucky about my doctors. I don't have POTS but had a tachycardia condition and when I went and told my doctor she just, believed me! I feel like I've been incredibly lucky in general with doctors, as several things that I had read horror stories of not being believed about online have been treated respectfully and helpfully by GPs and nurses for me.
It seems like having other existing conditions makes it much harder as doctors can tend to write off symptoms as related to another condition (I guess that is hard to dissect for anyone!).
Thank you for making videos like this, there are so few easy to digest non medical jargen information sources out there on rarer disabilities and I know this will surely help alot of people. Xx
Hazel Irons same
My honest to God first reaction. Signs you have pots, you open your cabinets, and there they are! LOL. Seriously though, life with chronic illness is poop when doctors are just like Yay drink water!
SinginginD or tell you to loose weight or gain it... not very helpful.
Basically every symptom listed here, I have. I also have most of the symptoms for fybromyalgia.
Struggle is, all these symptoms overlap with a fun condition of mine- oh yes, it's anorexia nervosa, everyone's favourite. For the umpteenth time, I'm starting recovery and none of the symptoms have gone away yet. I think I will wait a few months, try not to relapse, and if the symptoms persist, consult my doctor.
Also, excellent title. Never related more. I'm on the floor a lot.
Like a lot. I may or may not be on the floor right now.
...
I am.
Though I know that my mother gets extreme palpitations. She asked her doctor about it and they basically just told her that oh, we don't really know but don't worry about it, I guess, might be normal!
An Acquired Taste sending you hugs and good vibes x x
Anorexic POTSie here too. I’m recovered but when I was I’ll nobody believed I had POTS and even went as far as saying it would go away with weight gain. I faint just as much when I was 40 lbs lighter lol. But at least I bruise less when I hit the floor 😅
An Acquired Taste I think you should go to the doctor and get blood work done. Even if you don’t have anything it could really help with getting healthy
@@Stuartette I did, I'm lowkey everything-deficient. Especially iron and B12, also my blood sugar is "alarmingly low." I'm on a whole pile of supplements.
I used to have all of these symptoms in my teens... I guess I grew out of it?
Probably so, you lucky duck!
That’s amazing 👏🏻👏🏻👏🏻
I was vlogging through getting diagnosed with POTS, but haven’t been well enough to make videos recently. Hoping to get back to it soon! 🤞
Emily Cricket I hope you feel better soon!
One of the symptoms I don't often see people bring up is TERRIBLE depersonilzation and derealization!! If you suddenly feel like you're not a person or that you're not real, it could definitely be your POTS!!
When I first started watching your videos I was very lost regarding my body, as I was very slowly coming to terms with my declining health. Thanks to your videos I managed to learn more and more about having a chronic illness as my chronic fatigue syndrome started to rear its ugly head. You have been such a help to me and still continue to be such a positive role model in all aspects, particularly accepting my disabled body! Not to mention how I feel comfortable laughing along with your jokes about pots and chronic illness lol! Never stop being amazing, lost of love 💕
artificially basic same
OMG this is what my former girlfriend was finally diagnosed with, after years of me worrying about her !
She had been dealing with such a strange variety of symptoms and it was such a mystery for years.
We would travel and (trying to) work out together but I'd constantly have to stop and help her just keep from falling over. :(
Never blamed her or anything impatient like that, of course. I believed her that it was more than just feeling tired or hungry... but it was so mysterious.
I'm glad she finally went to an ACTUAL doctor to get diagnosed and she says she's taking care of it better these days.
BTW, one strange symptom that she had (which I'm assuming was related to her POTS) was compulsive BURPING.
Yes, she'd have painful burping spells, the way most people would have the hiccups.
She'd pass it off as being funny when we started dating... lol but then it got a bit concerning........ and she'd be embarrassed in restaurants.
The burping can be caused by acid reflux and other stomach issues. Sounds pretty frustrating. I'm glad she finally got a diagnosis.
Jessica: Poisoning you can get from some metals
Me: * Pauses midway through picking my tooth with a metal bobby pin *
Mine is affected by heat. Vasodilation coupled with standing up is a recipe for syncope.
I had a tilt table test which showed that I had an episode of low blood pressure. The neurologist that organised it sent me back to my GP to test for Addison’s disease, when that came back negative, he just said to try wearing compression stockings and tilting my bed...I asked him what it could be then if not addisons, and he said ‘sometimes girls your age just have low blood pressure, you’ll grow out of it’..honestly at this point if I don’t laugh I’ll cry! Thanks for making me feel less alone Jessica, it’s not easy being ill for 3 years with doctors not caring ❤️
Just so you know, I’ve been through the EXACT SAME THING with so many doctors, and it sucks, but you’re not alone. Your problems are absolutely 100% real no matter how doctors treat you.
Kathryn Barnhart I just turned 30 last week, so the whole blaming it on your age thing doesn’t change as you get older either! I’ve had the whole anxiety thing too, I swear they just don’t care ☹️
McKaya Pugh Thank you so so much, honestly that means more to me than you know ❤️
Hi!! Love your videos and how inspiring you are to the disabled community!! Also we’re Palsy Twins! (I have CP)
I receive my "Some Such Tosh" mug, very quickly, as a matter of fact. It's lovely and I'm thinking of taking it to the next meeting at work and showing it off (whenever appropriate to what someone has to say).
I'm watching this on the floor because POTs lol. I love this video
OceanicMarauder what were your symptoms? I think I might have it too
OceanicMarauder same!
@@HippieNikkiTheTopeteTribe For me the most notable symptom was dizziness upon standing. I have a couple other chronic conditions that have a lot of similar symptoms. It was getting to the point where I would almost pass out almost every time I stood up. I went to my Primary doc, and we ruled out any sort of imbalances and medication interactions. Once that was all fine and good, I went to a cardiologist. We did a scan of my heart to check for abnormalities, then a tilt table test (TTT). We also did a 2 week test with a heart monitor. Between the two I was diagnosed.
I know this is a lot to read, but if you have any concerns about your health, track them and bring it into your primary. I'm really lucky that medication helps me to the point where I'm symptomatic maybe 20% of the time, instead of 80-90% like I was before diagnosis.
I'm also on the floor haha! It's astonishing how many of us like the floor
Sarcoidosis peep here. Have all POTS symptoms as well. Bonus 👍🏻 Appreciate your videos 💖
So...I watched this video just because I love Jessica and watch all of her videos, but it made me realize I might have POTS. It’s hard to tell for sure because I also have anxiety issues, but I’ve always felt lightheaded after standing and have trouble standing for long periods of time. I’m going to have to research this now, thank you! This video was incredibly helpful.
fellow potsie here, bless you for this video! I had pots symptoms since I was 10/11 and didn’t get diagnosed until I was 17/18, and my symptoms were constantly explained away by doctors as other things until I had about 10 different tests done. I SORELY needed a video like this back then!
In terms of symptoms I get:
Mild to extreme dizziness/light headedness as upon sitting up/standing up from sitting/lying down;
EXTREME palpitations to the point that the sensation makes me nauseous/is painful;
Migraines;
Tiredness/Weakness (usually severely for periods of weeks at a time, then periods without, but also more minor daily effects);
Shakiness;
Shortness of breath;
DIGESTIVE PROBLEMS (near constant nausea, stomach ache, etc);
Tunnel vision/total vision loss;
Poor temperature regulation;
However I don’t get blackouts or brain fog!
Before I was diagnosed, doctors told me my symptoms were IBS/Chronic Fatigue/Symptoms of my anxiety/depression (which I do actually have), so this made it very difficult to get diagnosed - I had every single one of the tests Jessica mentioned at least once before they finally confirmed it, especially as a lot of doctors who aren’t specialists seem to not know a lot about it. So if you think you may have pots, I would ask about if specifically with your doctors as my diagnosis really changed my life for the better as now I finally know how to manage my symptoms :)
your earlier video is what helped me realize i have it!! mine developed suddenly and we think it might be related to my chronic pain (yay! no going away!)
my current symptoms:
-actually fainting when standing too long
-feeling super lightheaded when i sit up for too long
-migraines !
-ironically,, i have high blood pressure which my cardiologist thinks is a symptom because when i go off my hbp medication, my pots gets worse
-BRAIN FOG !
-nausea oh my god
-getting hot makes me lightheaded
fun fact when getting tested for pots: my cardiologist had me do a standing test and after just 4 minutes and 19 seconds, my heart rate was almost 150! safe to say that he was pretty confident in my diagnosis. i now use a wheelchair for most activities just to show you how much it effects me personally.
*watching from the floor squad*
Also: MATILDA!
Me: whaaat ! This is exactly what I've been experiencing. I need to make a drs appointment soon.
Me: *in the process of opening a can of irn bru*
Jessica : CUT OUT SUGAR NOW. YOU WILL FEEL MUCH BETTER ... Once your body adjusts to life without sugar
Me *sips can*
*foil wrappers crinkling*
Me: What? What chocolate?
*more crinkling*
Thank you for another awesome (and very informative) video!! :) You make my day ^^
You are so stunning and I think it’s admirable that you do videos from the floor when you’re not able to get up. I also love how informative your videos are and I think us able-bodied people benefit from watching these as well. I’m currently down with a bad cold and watching your videos always lifts my mood up, lots of love from my floor 💕
what’s that emoji next to your username?
Bitesize Berty i’m part of the kellgren-fozard club 😌 one of the perks is these cute emojis next to your name, it also changes the longer you’ve been a member
Minja M that’s cute! how do you join? x
My symptoms:
Dizziness
Near fainting
Temporary loss of vision
Brain fog
Weakness
Pail/yellowish skin
Clamminess
Headache
Forgetfulness
Shaking
Short of breath
Never hungry
Not regulating temp
Maybe some other stuff... My brain is ✨foggy✨ rn
I don't have:
Fainting (I almost have but it hasn't happened)
Temporary loss of hearing
Anything else not listen above
When I was little (ages 5 to 12) I used to get incredibly scared of dying and then - I don't know if this is the cause of or an effect of it - my heart would beat incredibly quickly for a long time and I was afraid that it might explode. I also had a lot of chest pains. but again, could have just been psychosomatic. that's what everyone said it was anyway ¯\_(o.o)_/¯
It doesn't usually happen to me any more but now I just kind of have vaguely low blood pressure (I think) and I get headaches and dizziness from that. I've never been anywhere close to fainting though
I'm very confident that I don't have pots I was just wandering if maybe someone had a similar experience and maybe tips (the symptoms are vaguely similar to some of those of pots so I figured might as well try)
Oh my god. I think I might have this. I have so many of these symptoms… syncope, heart palpitations, brain fog, fatigue, shaking, bowel issues, migraines… I’ve been told it’s literally a ton of different things/in my head.. if my GP weren’t absolutely incompetent I’d go to them now.. but it’s nearly impossible to even get them to handle emergencies..
As someone with pots, my most noticeable symptoms are dizziness and blackouts, real bad brain fog (especially when taking an important test because of course), v bad heat intolerance/I can barely go outside in the summer, migraines, and anxiety. I also drink an ungodly amount of water. But I don't actually faint very often or have digestive issues. So it's true, pots is very different for everybody. Loved the video, Jessica!
Hello all! I have dysautonomia but not specifically POTS. Mine is secondary to a genetic metabolic condition I have. I have both passed and failed a tilt table test in the same day bc my issues are primarily surrounding my blood sugar and hydration. When my blood sugar drops suddenly... the POTS-like symptoms return. So it’s imperative I eat at very specific times and drink plenty of water. Doing so will never cure me but has helped me live a better quality of life. Everyone with dysautonomia is different so I hope this may be helpful to someone out there :)
Also.... side note.... my heat intolerance issues in which my heart rate would pass 200 beats per minute was just diagnosed as Mast Cell Activation Syndrome. A separate issue from my dysautonomia related just to heat intolerance.
I’m so glad Jessica makes these videos, it’s great to see I’m not alone!
*On the period thing (Time stampish **8:42**)*
I hate getting my period not just because of the "normal" period cramps. But the overwhelming stomach craps, sleeping all most/all day, and god help you if you move or eat/drink anything.
I have a *lot* of POTS symptoms, but had an ECG and tilt table test last year and they said I didn't have it. I do have EDS and other conditions though, so… //shrug//
Hello internet. I feel faint when I stand up frequently and I feel sick quite a lot and I think I might have PoTS but I don’t want to be over dramatic. I have hyper mobile joints too. Please help me. I would really like to know why I feel ill all the time. Also my mom has chronic fatigue syndrome. Xx
Tbh I think I have this. 4 Years ago I went to docs and complained, they sent me back with pain killers.. fucking hell.
I did see that exercise helps me but I sit too much, both due to all my hobbies etc being on pc, my agorophobia and depression.. i'ts really shitty.
Omg where do you get your clothes and can you make a video about how you do your make up and like a 1950's try on haul
She includes a link in her description to wherever you can get whichever dress she’s wearing
@@soapibubblesthestrange9972 ok thanks I don't check the description sometimes 😂
Hiya fellow PoTs warrior. I have all of the symptoms, but unlike most people I have PoTs as a primary disorder, it has also caused me to get Gastroparesis yaaaaayyyy *sarcasm* I was diagnosed with the active standing test laying sitting standing so much fun *sarcasm* again
‘Slowly feel the blood draining from my head and whoops that’s my face on the floor’ Ugh I swear my fainting chooses the most inconvenient timing to screw with me. My favourites were the time I was washing my hands, fainted and smashed my head off my bathroom mirror to then wake up on the stone floor with an ass load of glass in my face, or the time I was taking a bowl of soup to sit and eat in bed then proceeded to faint, spill the soup everywhere, and crack my sternum by falling against my bed frame - I was more upset about losing my soup than the ribs to be honest 😂
7:34 I know exactly what you mean! I caught a bad stomach bug for the first time a few months back and I felt the same exact way!!
I have POTS as well thanks for sharing this video
@@rockportschool9172 my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots its POTS not POTTS unless you want to call the mayo clinic, Cleveland clinic my doctors and this channel a liar
the k simmer girl No.... it's not.
@@rockportschool9172 I'd like to also add that POTTS is a totally separate illness that SHE is not talking about nor I. POTTS is a form of Terburculosis
I really enjoy your positive content. I've been going through some things and your channels have really helped.
Finding your channel is a great way for me to learn and to keep smiling. Keep up the great work.
Symptoms I have
Dizziness and light headedness fs in general but certainly with position changes.
Fainting
Palpitations
Chest pain
Orthostatic headaches (migraines too but very rarely)
Tiredness 100%
Brain fog is honestly the worst part
Shakiness and tour description is PERFECT
Digestive problems are really bad. I also get cold after eating cause it.
Dark curtain isn't something I've heard explained but yeah
Periods are all kinds of messed up.
I also have Ehlers Danlos, Celiac, Gastroparisis, hyper stimulation of the esophagus and a few other things.
Also yeah dude I literally drink two gallons of water a day.
Menstruating isn't all bad. As long as you can still menstruate then you won't be as prone to bone density loss. After you stop menstruating regularly this becomes a problem.
My symptoms are : dizziness, light headedness, almost fainting (pre-syncope), SO MUCH FATIGUE, getting tired really easily, brain fog, abdominal cramps, nausea, pain when lying down, shortness of breath, the black curtain thing
Stuff I don’t have: feeling my heart speed up, getting low blood pressure, actually fainting, headaches, shakiness
My treatment: drinking tons of water and taking salt tablets, exercise, fludrocortisone, medodrine, increase in anxiety meds
I’m a case where I pretty much have pots but I’m not sure I technically have been diagnosed because my heart rate didn’t increase enough but like come on. Like almost everyone with pots I went through the trying to convince doctors there was something wrong and that I wasn’t supposed to be this tired all the time. Eventually I stood up for a while in front of a cardiologist and was about to faint so they finally gave me a prescription for fludrocortisone ( florinef).
Lovely video but I just kept laughing at how I wouldn’t have a neck if I was in the same position as you are 😂
Great video again, but now I have to rush off and watch Hannah Witton and AshandGrace's videos as they released at the same time.
I had this very bad during puberty and it felt like my heart was about to jump out sometimes.
Felt really strange but mine actually did get better over the years so yay me I guess.
I didn't have the normal "black curtain" before fainting most of the time I get more something I would describe as white static that slowly closes in then suddenly turns to black.
Doctors are currently suspecting I might have EDS.
MarvelousSandstone I have the fade to black sort of thing too. Also got POTS during puberty so hoping it goes away eventually
I accidentally clicked this video, and I am grateful cuz it really helped me out. I've been wondering for years what is wrong with me, I do have HASHIMOTO'S, which makes me tired but this makes so much more sense with the tiredness I feel. Like I feel like my blood is suffocating. I'm going to talk to my doc about it tomorrow. Thank you.
I feel like I might be developing pots as I already have a few of the symptoms and they've gotten worse and more over the last year.
Hi I've been diagnosed by two different cardiologists with pots! I get dizziness when changing positions, standing for long periods, sitting for long periods, eating (especially hearty/heavy meals), when its super hot out, after doing physical activity, when dehydrated. Other symptoms I have are brain fog, the shakiness (great description, I always just said feeling flu-like), occasional convulsions from the chest, gnarly leg color changes in the shower (red/purple splotchy), temperature intolerance (cold really hurts, even things from the fridge), blacking out when sneezing (doc said sneezing can cut off blood flow to brain?!?), and I have digestion issues but got diagnosed and treated for the infection H pylori which helped. I also have lots of joint pain, undiagnosed and don't know if its related. Treatment wise, gatorade and water are my life as well as salt salt salt. Then my current cardiologist has me on two medicines, one for fluid retention and one for managing my heart rate (atenolol and fludrocortisone, can't remember which is which haha but figured someone may be curious). Things have gotten waaay better on the meds and my docs and my current plan is to build up my leg strength and general strength over the next several months so I can hopefully get off the meds. Also I am transmasculine and going to transition using testosterone soon, my cardiologist said that T helps with fluid retention, raising blood pressure, and building muscle so we are hopeful that T may actually become a replacement for my medicines! Thanks for the video Jessica, this is a very confusing health condition and kinda embarrassing to end up on the floor randomly or to not be able to talk/think. Anyways theres my long ramble about symptoms and treatment, I hope someone finds it useful or can relate!
Ok I just came here out of interest but now I’m convinced I have this
I dont have POTS but I do have SVT...thank you for making this vid as it helps me to know the difference! Fun fact, I did have POTS like symptoms when I was a teenager and they went away like you said they sometimes do. My doctor also 100% advised I dunk my face in ice water if I had an episode. Something about stimulating the vagus nerve. Our bodies are weird, huh!
Your dog is so sweet!
Is getting up too quickly and/or stretching and then blacking out for a couple seconds related to Pots?
It is a symptom.
Right my POTS symptoms:
Heart palpitations
Dizzy
Fainting
Light headed
Nausea
Blood pooling
Aches
Chest pain
Headache
And so much more... Brain fog is robbing me of remembering them😂😂😂
I get you haha it took me a solid 20 minutes to write out my symptoms
Holy shit, I know about POTS but I didn't know about all of that stuff, symptoms, I have many of these been trying to get doctors to listen to me for ages, they keep saying I have IBS but it's more than that I know it, was diagnosed with chronic fatigue as a teen.
I've never ever heard anyone mention sarcoidosis in a video!! My mum, her mum etc have/had it so I'm likely to get it.
I'm currently devoting parts of each session with my psychologist to us trying to decide if my symptoms are POTS or anxiety! She's got a lot of spoonie patients so she's super understanding, even if we haven't been able to figure things out, it's better than the frustration of seeing doctors as a mentally ill person who is also regular ill.
Oh my God I knew! I have the pots. I will check to get diagnosed first if any of my doctors know about it. Before I researched any of the symptoms I was dealing with, I often asked my mother if this was normal. She often replied anxiety but it didn't make sense to me. As well as the fact I have little to nothing of anxiety myself. Once I researched and found what could be the answer (pots) I just need it had to be it but I wasn't sure because I didn't have all the symptoms that I could be dealing with. Thank you for this video!
I don't have any physical disabilities (unless you count eczema?) but these videos are super interesting! They've let me look at things from a different point of view and helped me see that not all physical disabilities can be seen.
Thank you for making this video I'm going to bring it up with my dr. I dont faint but my heart beats like it's trying to leave my body, an ultra fast heartbeat (130+bpm unmedicated) & and the faster the beat the lower the blood pressure. It's so weird. I'm on medication & seeing a cardiologist to try to sort it out.
Mine is related to mast cell disease which was always labeled as bad allergies and eczema. I don’t have any hypermobility and rarely faint. Before diagnosis I was always telling my doctors my symptoms felt exactly like what I experienced as a child when we took a trip high in the mountains. I still feel that experience almost perfectly correlates (difficultly thinking, moving breathing, everything is so much more difficult. Etc.) that helped us determine that it was an issue with oxygen getting to the brain. It happens to be related to blood rather than low oxygen in the air. Also anything over 70 degrees is miserable but I can do activities in the water perfectly easily. I also don’t sweat because those nerves don’t work so I overheat easily
(I'm pretty certain I dont have POTS, but I figured I'd share my woes about diagnosis anyways) My problem is that I do have pre-existing mental health conditions (from childhood, and at this point are under control) so trying to convince any doctor that my widespread pain or fatigue or nausea is or the fact that sometimes my muscles just stop!! Working!! Is NOT related to my mental health (Shocker, I know) is a feat that I still have not managed to overcome. But one day!! I will!! I don't have a moral to this story, I just wanted to vent and I know you lovely people will let me here. ❤
Vent away! I’ve been in this position too. My response has always been: “if it’s in my head, fix my head!” but they can’t, because it isn’t, or is no longer, a psychological/emotional issue. That isn’t to say that seeing a counsellor or therapist isn’t useful for some people and can make it much easier to cope with the pain fatigue, nausea etc. But I believe that by this point my nervous system is f**ked by a lifetime of chronic pain and anxiety - it’s gone into overdrive and is really disabling me. There are no reliable treatments, yet, but in theory it ought to be possible to it the reset button! Hope that’ll be in my lifetime.
KC Is Confused I have Generalised Anxiety Disorder and bouts of depression and for almost 5 years doctors were convinced that the symptoms were from my mental health (despite the fact that there were physical symptoms affecting my mental health, like my blood pressure being so low it would be dangerous to go on antidepressants). If you’re convinced that you have symptoms that aren’t tied to your mental health, keep trying/visit a specialist if you can! It took 5 years but finally getting my physical pots diagnosis has made my life a lot better! Sending you love ❤️
i have pots and meniere's disease, so deciphering whether my dizziness requires more or less salt is difficult LOL. i either lose my hearing and not be dizzy, or i hear fine and am dizzy. no win
also have eds, and horrible periods, but too eds-y to get an iud. so i just have to stop my period with an overload of progesterone
I was recently diagnosed with Ehlers Danlos Syndrome and I’m developing POTS (and the super fun one MCAD) Is your hypermobility disorder the same thing or is it different entirely?
As far as my POTS symptoms: I get the crazy heartbeat too (you’re the only one I’ve heard of having that one)
I get really dizzy and I get vertigo super easily.
Headaches and nausea and the tiredness and weakness too.
Also I can’t kneel down without losing my vision.
And the blood OHHH THE BLOOD POOLING. Especially as a redhead. Constantly being purple is awful.
I totally have POTS, I have all of the symptoms, just now piecing it all together 💙 thank you!
Okay I cry laughed at the sims 4 joke
While I know for a fact I don't have this, the number of symptoms we share is kinda astonishing. I find it kinda hilarious and also very comforting.
Oh the pre vomit shaky feeling hit home!