Bone Marrow Transplant Experience vlog : day 0 to +10 (hospital day 6-16)

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  • Опубликовано: 22 мар 2022
  • I am not a medical professional, I am sharing my personal experience.
    This is the first day of going into hospital for my transplant.
    Hospital Day 6 to 16: Transplant Day 0 to +10
    Day 0 is the day that you get the stem cell transition.
    Day -5 to -1 is preparation days with chemo and other medications.
    Day +1 to +12 is approximately the time you have minimal blood cells until your new stem cells begin to make new blood cells.
    I was in hospital total of 26 days. It was one of the most difficult months of my life, I hope these videos help anyone who is going to go through a transplant or have a loved one who will go through one.
    I have been dealing with Chronic Myeloid Leukemia CML since 2011. Nothing has worked to get to to remission, me cancer began to show signs of progressing to AML, so a bone marrow transplant was advised.
    I was lucky enough to have time to prepare mentally and physically for the transplant.
    Bone marrow transplant / Stem cell transplant story experience vlog Blood Cancer
    Some of the Medications during the process: Fludarabine Chemo , Busulphan Chemo , imatinib , nilotinib , Allopurinol , Clonazepam , Ursodeoxycholic acid , Rabbit ATG Anti Thymocyte Globulin Genzyme , Methylpred , Phenergan , Cyclosporin , Vitamin K , Loratadine , Hydrocortisone , Fluconazole , Valaciclovir , Methotrexate Chemo , NG tube

Комментарии • 12

  • @autismmomjoy
    @autismmomjoy 11 месяцев назад +1

    Bless you and thanks for sharing

  • @kevanhubbard9673
    @kevanhubbard9673 6 месяцев назад

    I am going to have one of those this year and it is the loss of my freedom to be outside that I fear the most but I don't think that I have much choice as I developed Mycosis Fungoides, pretty rare T Cell Lymphoma, and it has advanced to the aggressive stage and will probably die in a few years if it is not stopped.Nothing else has slowed it progressing through my body and they have tried loads of things.

  • @TV-ob1if
    @TV-ob1if 10 месяцев назад +1

    Bless you child

  • @dnm2106
    @dnm2106 2 месяца назад

    Have it in 12 hours and I'm freaking out.

  • @Skits_Missions
    @Skits_Missions 6 месяцев назад +1

    Not a fun experience. I’m about 1 year post mt SCT. I’m remission but having monthly chemo. Strange getting chemo after the cells went back in.

  • @salphone01
    @salphone01 2 года назад

    Oh my god when I heard cyclosporine!!
    Nightmare
    Made me high blood pressure to my head went to coma
    And epilepsy

    Transplant are not easy guys
    I wish all peoples will be ok ✅

    • @Ajaykumarchoreo
      @Ajaykumarchoreo 7 месяцев назад

      I have been taking cyclosporine, my BP stays very high. Also different things going on my body specially related to my stomach

    • @skygirlanjali2558
      @skygirlanjali2558 6 месяцев назад

      R u under bmt treatment? ​@@Ajaykumarchoreo

  • @Ajaykumarchoreo
    @Ajaykumarchoreo 7 месяцев назад +3

    Hey, I'm at day +68 post transplant (AML)
    May I know how you are doing now. How's your condition.

    • @musfiqrahman-cm8pu
      @musfiqrahman-cm8pu 4 месяца назад

      What about u? And how's your condition?

    • @Ajaykumarchoreo
      @Ajaykumarchoreo 4 месяца назад

      @@musfiqrahman-cm8pu I'm much better now. Day + 140. My cyclosporine (immunoglobulin) has stopped, so feeling much better but have to go through bone marrow test on day 150 and 180 to check my donors cell.
      And Thankyou for asking

  • @offline670
    @offline670 5 месяцев назад

    Go posason owl fahr kante pahblek mahron 🪓 me wife Joan cat bagladas sotahpor mahron asah hoday posason ahsraf ahbeb nadeah pole melon rme rab rme poles debe farsabes owl gorop cat joan maseg hoday posason baek wolpahpar foto Lok folo oief hoday pon mobael baek wolpahpar bnp jamat uomelek kola bedas owl monte posason owl kante posason monte joan log col me fasan hoday posason joj kot hoday somate bagladas go owl uoproson hoday ok bode