Hi Robyn, I'm so sorry for your loss. Encephalitis affects the whole family equally. It's a life-threatening and often fatal neurological condition. I'm sorry your mum has dementia. It's so emotional being a caregiver. I'm very passionate about encephalitis awareness, everyone who has had encephalitis their loved ones all across the world. I am sending you my sincere condolences. It's so heartbreaking. Time is a healer. Look after yourself and your mum. It's important to take time out for yourself. In a different way I can emphasise about how it felt to lose a parent (my mum) 5 and a half years ago, she had dementia. I'm the one who had Herpes Simplex encephalitis the day after my first birthday. No, it was horrible at the time losing my mum, it took about a year to register with me, I still miss her to this day, but I feel I can talk about it better now, My dad is not in the best of health, but I think I will now know what to do and when to do it, whenever the time comes, so I completely empathise with having a parent to care for, not long after losing one. I fully understand, Back to my point, there needs to be new, better nedical treatments coming out, education all about encephalitis for health professionals, and the more professionals , treatments, earky access to treatments for all cahses of encephalitis. Together, we can build better futures globally. Take good care of yourself. I pray for you. 🙏❤️
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Thanks, Encephalitis International for excellent and very informative stories
Sincerely, I spent 1 year watching Encephalitis International. I would love to connect with you, but how can I contact you?
Hi Robyn,
I'm so sorry for your loss. Encephalitis affects the whole family equally. It's a life-threatening and often fatal neurological condition. I'm sorry your mum has dementia. It's so emotional being a caregiver. I'm very passionate about encephalitis awareness, everyone who has had encephalitis their loved ones all across the world.
I am sending you my sincere condolences. It's so heartbreaking. Time is a healer. Look after yourself and your mum. It's important to take time out for yourself.
In a different way I can emphasise about how it felt to lose a parent (my mum) 5 and a half years ago, she had dementia. I'm the one who had Herpes Simplex encephalitis the day after my first birthday. No, it was horrible at the time losing my mum, it took about a year to register with me, I still miss her to this day, but I feel I can talk about it better now,
My dad is not in the best of health, but I think I will now know what to do and when to do it, whenever the time comes, so I completely empathise with having a parent to care for, not long after losing one. I fully understand,
Back to my point, there needs to be new, better nedical treatments coming out, education all about encephalitis for health professionals, and the more professionals , treatments, earky access to treatments for all cahses of encephalitis. Together, we can build better futures globally. Take good care of yourself. I pray for you. 🙏❤️