Living With NMOSD & MOGAD: Patient Perspectives panel

We were joined by patients and caregivers to learn about the daily lived experiences of NMOSD & MOGAD. This panel was moderated by Rebecca Whitney, an advocate and caregiver for her son who lives with a rare disease.
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On April 1, 2023, TSF hosted Patient Day for NMOSD & MOGAD in Dallas in collaboration with Dr. Ben Greenberg at UT Southwestern. Our hybrid event was joined by 150 patients, caregivers, clinicians and advocates and we were delighted to welcome Christine Ha as a special guest to this one-of-a-kind community event! Special thanks to our sponsors Horizon, Genentech and UCB.

[@nellygreen3171]

Thank for all the encouraging, I’m am diagnosed in 2009 with MS. At the end of the year 2023. My right eye start getting blurry. February 2024 they diagnosed me with NMOSD. I’ll already started my first infusion therapy last March 4. I have a good days and also a bad days. I’m adjusting of everything.

[@bridiellewellyn8469]

wow. There are a few of us around! i’m in England and now under Oxford hospital always hearing how rare it is, so it’s great to be able to see and hear other stories so similar

[@tdroney1]

My 21yo son is currently going through this. Where is Dr. Greenburg located? We're in need of his assistance asap.

[@tdroney1]

Did the panelists go through rehab?