Specially Haniya
Specially Haniya
  • Видео 17
  • Просмотров 150 414
What I Pack in my Special Needs Diaper Bag | Specially Haniya
Hello beautiful people! Each special needs child has different needs and this video is a peek into my everyday needs when traveling with a special needs child. For many special needs families, the diaper bag not only handles basic baby needs, but also functions as a medical house. To someone not familiar with the 'special’ requirements of our children, this bag may seem like a standard travel accessory. However, it is more than that. Sometimes, there is life-saving equipment packed into this innocuous bag. And sometimes, it houses the treatment to all the emergency scenarios we play in our heads before we muster up the courage to step outside the house. I keep it organized in a way that w...
Просмотров: 4 467

Видео

Organizing Special Needs Medical Closet | Specially Haniya
Просмотров 1,8 тыс.4 года назад
Hello beautiful people! I'm doing a tour of Haniya's medical supplies and talking about how I label, organize, and store her various supplies. As always, items that are not used are donated. I try and keep everyday items next to each other, like her g-tube extensions, tape, gauze, and feeding bags. I grouped her oxygen supplies from pulse ox probes to nasal cannulas in one box. I have the emerg...
Special Needs Bathchair: Reviewing the Rifton Wave and the Otter | Specially Haniya
Просмотров 8 тыс.5 лет назад
Hello beautiful people! As our children grow older and can no longer fit into the conventional baby bath tubs, it is important to know of the bathtub/bath chair options available for safety purposes-for both you and your child. There are several brands that make bath chairs for growing kids but the two most popular ones are the Rifton Wave bath chair and the Wenzelite Otter bath chair. I decide...
Packing Respiratory Equipment + Portable Oxygen Concentrator | Specially Haniya
Просмотров 6165 лет назад
Hello beautiful people! Traveling by air with respiratory equipment requires some pre-planning. Not only do you have to be sure to follow any airplane regulations, but you need to remember to pack all possible respiratory items you might need during the flight. The most important thing making sure you have an approved portable oxygen concentrator (POCs) and learning how to master it before leav...
Kangaroo Joey Pump: All the Essentials | Specially Haniya
Просмотров 44 тыс.5 лет назад
Hello beautiful people! There are different brands of tube feeding pumps for G-tube, NG tube, or JG tube fed children. I’ve made a super detailed video on the Covidien Kangaroo Joey pump everything from information on the bags, their installation, storage, and disposal to understanding hold errors, calculating feeding rates, and traveling with the pump. We’ve been using the same pump for two ye...
Using a Pediatric Pulse Oximeter | Specially Haniya
Просмотров 13 тыс.6 лет назад
Hello beautiful people! Haniya started having trouble maintaining her oxygen levels at night and was also on the Trilogy Ventilator (also a CPAP or a BiPAP depending on the settings). To monitor her oxygen levels effectively, we were given the Masimo pulse oximeter machine to use. It took some time for us to figure out what all the buttons meant and how to place the probe or sensor. This device...
Rhino Brace for Treatment of Hip Dysplasia | Specially Haniya
Просмотров 31 тыс.6 лет назад
Hello beautiful people! Hip dysplasia is a condition where the ball of the femur does not fully remain in the socket of the pelvis. This can be due to a variety of reasons. Haniya has low tone (hypotonia) and subluxation in one of her legs. The ligaments that would normally hold up the femur into the pelvic joint are lax. This resulted in the underdevelopment of the socket, where it was not dee...
What to Pack when Flying with a Feeding Tube: Ultimate List! | Specially Haniya
Просмотров 3,9 тыс.6 лет назад
Flying with children is never easy. Flying with children with feeding tubes (aka tubies!) adds to the stress. I hope this video eases some of your worries. We've flown many times over the past year, and each time we make and follow this list. I've tried to be as inclusive as I possibly could and showed you how I pack for the backpack carry-on with an emergency g-tube kit as well as the checked ...
POSITIVE RESULTS | Benik Vests (including G-tube) and Hand/Wrist Splints | Specially Haniya
Просмотров 4,7 тыс.6 лет назад
Hello beautiful people! My daughter's medical needs require her to wear orthotics, specifically the truncal orthosis and the hand and wrist splints. We've seen improvement in some of the negative changes that were occurring prior to ordering these. It's important to detect any abnormalities in your child's skeletal system early in order to slow down the progression, especially in children diagn...
Toddler Girl Carter's Haul for the Summer! | Specially Haniya
Просмотров 1526 лет назад
Hello beautiful people! I love Carter's clothing and I am super excited about sharing some of the clothes I picked up from their recent summer line! Let me know which one was your favorite! :) Thank you all for your support. I hope my videos continue to help! :) This video was NOT sponsored. #carters #clothinghaul #babyclothes
LOOKBOOK: Eid Outfit Ideas for Kids | Pepperland clothes
Просмотров 4276 лет назад
Hello beautiful people! I bought a couple of outfits from a new Pakistani company for the first time and loved everything about them so I decided to share it! This is my daughter's first shalwar kameez with dupatta. The tiny kurtas are adorable! The footwear (khussay) and bracelets (churian) were bought from local shops in Pakistan. I hope you enjoy and comment what your kids will wear on Eid! ...
Top 3 Diaper Creams for Stubborn Rashes | LIFE-CHANGING | Specially Haniya
Просмотров 6236 лет назад
Hello beautiful people! These are my top three recommended diaper creams that I stand by. Do you ever feel that some rashes take so long to go away? I think I might have found an answer for you! Being in and out of hospitals opens up a greater chance of diaper rashes, and through trial and error, I've found that these three are the only ones that seem to work for us! Give it a try and let me kn...
Tube Feeding Options for Infants and Toddlers | Specially Haniya
Просмотров 3,3 тыс.6 лет назад
Hello beautiful people! This video narrows down the many options that are out there in the market. This is by no means the full list of formulas. These are just some types that I have become familiar with over the years and the recommendations through nurses, doctors, and nutritionists. Children with G-tubes or NG tubes (aka Tubies!) have different nutritional requirements. Hope this video make...
Intro to Seating for Special Needs Kids | Special Tomato
Просмотров 17 тыс.6 лет назад
Hello beautiful people! Special needs children require multiple adaptive equipment to suit their various medical needs. If your child is hypotonic, this chair is especially useful in keeping him/her in a more upright position. Feeding in a more upright position is good for digestion. Also weight bearing on the joints is achievable in this position. The Special Tomato soft touch sitter can be at...
Tips on a Pediatric Holter monitor | Specially Haniya
Просмотров 3,2 тыс.6 лет назад
Hello beautiful people! My daughter, Haniya, had to wear the heart monitor for 30 days. This particular one is by CardioNet and is mobile. A Holter monitor records and monitors heart activity. There are many reasons why a cardiac monitor is prescribed. Haniya had episodes of bradycardia, or slow heart rates. I made a video explaining how to use one, where to place leads on the chest, and some g...
Cleaning an Infant G-tube | Tips and How to | Specially Haniya
Просмотров 3,4 тыс.7 лет назад
Cleaning an Infant G-tube | Tips and How to | Specially Haniya
How to give an ACTH injection in an Infant | ACTHAR | Specially Haniya
Просмотров 11 тыс.7 лет назад
How to give an ACTH injection in an Infant | ACTHAR | Specially Haniya

Комментарии

  • @robert1930juliette
    @robert1930juliette 26 дней назад

    Can't understand her, talks way to fast ! !

  • @micu7005
    @micu7005 Месяц назад

    How about 250ml how many ml/hour to be consumed in one hour

  • @NAYMITA
    @NAYMITA 3 месяца назад

    Hi!!! Could you please share the link for the bag? I just received my kangaroo pumpb for my baby.. i usually use infinity

  • @bucktrail1
    @bucktrail1 4 месяца назад

    The Rifton is much higher quality than Otter. The value ratio for the difference in quality is better as well. I have had several Otters and a couple Riftons over the years (my girl is 22 now) and the otter is more affordable if paying out of pocket but there are some significant safety issues that one should be aware of with Otter. They use the cheapest of materials and so there is no grip to the feet or the wheels so it slides all over the place during use, very unsafe for caregiver and user. I added rubber feet to mine. Also, the plastic parts break easily. My daughter fell backwards when something broke during positioning the back bar. The latches in the height extender also break easily. It’s just inferior quality. BUT, it is much lighter to use if you like to store when not in use, or for transporting for trips etc. so as long as you are aware of the dangers of inferior quality and keep that in mind then the otter is ok.

  • @ThereIsNoWifi
    @ThereIsNoWifi 9 месяцев назад

    Hi! I work in a group home and have an individual with this exact pump, I'm currently having an issue where all of the buttons except for the power button are not responding.

    • @speciallyhaniya5757
      @speciallyhaniya5757 6 месяцев назад

      Hi! I would reach out to the DME company to replace it or troubleshoot with the Kangaroo company's customer service! Hope that helps!

  • @skylacomer6751
    @skylacomer6751 9 месяцев назад

    The otter comes with a base as well and the same head straps and wast strap

  • @Alex-jk7cp
    @Alex-jk7cp 10 месяцев назад

    Ik its been a while since u posted this but by any chance do u remember which one dried faster? Did your daughter seem more comfortable with the softer fabric?

    • @speciallyhaniya5757
      @speciallyhaniya5757 10 месяцев назад

      Hi! I am not entirely sure if she found the softer fabric better, but I felt like it would be more comfortable. In terms of drying time, there was honestly no significant difference I found between the two. I hope that helps! 😊

  • @dianastretcher5300
    @dianastretcher5300 Год назад

    We just got the rifton bath chair, and your video was super helpful!!!!! Thank you so much for taking the time to make it and post it :)

    • @speciallyhaniya5757
      @speciallyhaniya5757 11 месяцев назад

      You are so welcome! I am glad it was helpful!☺️

  • @ashleyreynolds7886
    @ashleyreynolds7886 Год назад

    My 3 year old justed started wearing her brace today and she isn't liking it

    • @speciallyhaniya5757
      @speciallyhaniya5757 11 месяцев назад

      I am sorry to hear that! Hopefully she will be done with the treatment soon❤️

  • @sharonzamora7410
    @sharonzamora7410 Год назад

    Does it need to be by feeding tube? Can’t be drinker only like that?

    • @speciallyhaniya5757
      @speciallyhaniya5757 11 месяцев назад

      Some, but not all, of the options I mentioned can be drank without the need of a tube! However, all these are appropriate choices for feeding tubes ☺️

  • @tinav4jc
    @tinav4jc Год назад

    Hi, thanks for this video. my son has a special tomato chair. I am interested in finding out more about the companies that loan it out to see if we can borrow one when when we go out of state.

    • @speciallyhaniya5757
      @speciallyhaniya5757 11 месяцев назад

      Hi! I am glad you found the video helpful! Unfortunately, I am unaware of any companies. Try reaching out to the Durable Medical Equipment companies or local Occupational Therapists to ask about rentals! ☺️

  • @vijithavishnu7874
    @vijithavishnu7874 Год назад

    This brace can use hip can be corrected but muscle atrophy can affected.2 Year old

  • @carolleonzuniga2512
    @carolleonzuniga2512 Год назад

    Holaaa, yo tengo una pregunta porfa si pongo en velocidad de flujo 100, quiere decir que el alimento Pasara en una hora ??

    • @speciallyhaniya5757
      @speciallyhaniya5757 Год назад

      ¡Hola! Sí, si establece el caudal en 100 ml, funcionará durante una hora.¡Espero que esto haya ayudado!😊

  • @minimia28
    @minimia28 Год назад

    Perfect video that i needed, have a 2 month old, i was concerned about the oxymeter levels but i realized age difference matters and the correct oxymeter peds chart showed my baby has normal levels! So ready to get this freaking oxygen tank out of my home, just looking at it gives me anxeity. Im debating on dressing it up and putting a hat on it but at night thatd be even more scary. One victory at a time! 🎉

    • @speciallyhaniya5757
      @speciallyhaniya5757 Год назад

      I am so glad this helped! Congrats on another milestone! ☺️

  • @bobonalvarado7975
    @bobonalvarado7975 Год назад

    Is these available in the philippines?

    • @speciallyhaniya5757
      @speciallyhaniya5757 Год назад

      Sorry, I am not sure. Please check with local medical equipment companies!

  • @revpeterson
    @revpeterson Год назад

    Thank you for providing this. I am a disabled veteran 52 yo with my wife fighting her second battle of breast cancer. My mind can only absorb so much. Did I mention I have Parkinson’s Lewy body? So videos like this are wonderful for people like me and my hospice help. God bless, best wishes for you and your little angel.

    • @speciallyhaniya5757
      @speciallyhaniya5757 Год назад

      You're welcome! I am so glad this helped! I wish you peace and blessings.

  • @rupamsonu2555
    @rupamsonu2555 Год назад

    Hi, how is your daughter now. Is she completely fine

  • @ip6685
    @ip6685 2 года назад

    Mine is showing clog error even when I'm doing water

    • @speciallyhaniya5757
      @speciallyhaniya5757 Год назад

      Hello! Check for kinks in the tubing as you set up the bag into the pump and re-prime it. I hope that helps!☺️

  • @kailashdahal7016
    @kailashdahal7016 2 года назад

    Is your daughter cured of dysplasia?? Length of both legs are equal now??

  • @HannahTinsel
    @HannahTinsel 2 года назад

    You are a blessing thank you for helping me figure out how to get my pump off the damn clamp😂

  • @nimasamy4805
    @nimasamy4805 2 года назад

    Hi how r U& haniya.how is her hip.normal

  • @ashfiyaruknuddin4318
    @ashfiyaruknuddin4318 2 года назад

    Hi, I just stumbled upon your channel.. My son is also a special needs child.. Would love to know more about Haniya. Do upload videos .. Or May be I can follow you up through Instagram?

    • @speciallyhaniya5757
      @speciallyhaniya5757 Год назад

      Hello! Sorry, I do not have an instagram account. Thank you for following!

  • @arunp8653
    @arunp8653 2 года назад

    Ethra month kond shari avum

  • @Trans_Edits06
    @Trans_Edits06 2 года назад

    Hey! Just a quick suggestion could you show how to deal with errors of the pump? Like flow error and feed error?

    • @speciallyhaniya5757
      @speciallyhaniya5757 2 года назад

      Hi Morgan! For those errors, I would replace the entire pump bag. It usually means that either the bag is empty or there is an occlusion somewhere in the tubing. Hope that helps!

    • @ip6685
      @ip6685 2 года назад

      I'm getting clog error even on water

  • @rihansaid2608
    @rihansaid2608 2 года назад

    Hi, what size are you showing in the video (the Otter)? Because there are 3 : small medium and large

  • @rauldiaz7429
    @rauldiaz7429 2 года назад

    Love to hear about it

  • @movetherapies5179
    @movetherapies5179 2 года назад

    thank you so much for this video - very clear and had loads of info. :) Bathing is one of our son's favourite parts of the day, so this video was very helpful. xox

  • @GiornoIsYourDaddy
    @GiornoIsYourDaddy 2 года назад

    Which skip hop diaper bag is this? My son has airway & severe feeding issues so I’ve been looking for the best bag to organize all his medical stuff & extra g-tube supplies 💕 your video is SO helpful

    • @speciallyhaniya5757
      @speciallyhaniya5757 2 года назад

      Hi! I am unable to unfortunately find the exact one in the video but the Skip Hop Forma Diaper Bag Backpack is similar in that it has the two separate bags included! ❤️

  • @annoommen7278
    @annoommen7278 2 года назад

    so helpful.Thanks again for sharing.keep up the good work!!

  • @ashleymh912
    @ashleymh912 3 года назад

    Have you seen where there is still meds in the needle part once you started to taper? Like .06 isn't that much on the syringe so to me it appears most of meds drawn was in the top of blue tip

    • @speciallyhaniya5757
      @speciallyhaniya5757 2 года назад

      Hi Ashley! You can draw up the medication, pull back, and then switch out for other syringe for injection.

  • @ivonnehorta4508
    @ivonnehorta4508 3 года назад

    Thank you for these videos. There so helpful.

  • @bencaldecott6583
    @bencaldecott6583 3 года назад

    Aww Haniya is such a sweetie pie. New subscribers here from Ontario, CANADA. Love Maddi and I ❤️😘

  • @taylorbargnesi7341
    @taylorbargnesi7341 3 года назад

    This was SO helpful!!!!!!!

  • @hollycutts5032
    @hollycutts5032 3 года назад

    Baby

  • @hollycutts5032
    @hollycutts5032 3 года назад

    13

  • @hollycutts5032
    @hollycutts5032 3 года назад

    Baby

  • @hollycutts5032
    @hollycutts5032 3 года назад

    19

  • @everydayvic
    @everydayvic 3 года назад

    External tubes

  • @totalllyme
    @totalllyme 3 года назад

    I bought such a thing and put it on for my child, it is very satisfied and it is very helpful

  • @chzafargujjar7411
    @chzafargujjar7411 3 года назад

    Order Karne Ka Tarika bata do

  • @sweetsharbear84
    @sweetsharbear84 3 года назад

    My son has a G-tube and I'm confident in everything except calculating whenever we change the amount. Lol. Thank you so much!

  • @aprilgonzalez2101
    @aprilgonzalez2101 3 года назад

    My bbys left bar turns all the way red when he’s moving or angry his oxygen goes down to 80s sometimes 70s but once he stops moving and calm it goes right back up to 97 his norm his nurse said maybe the signal also is weak???

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      Hi April! It could be a true reading or a weak signal. It would be hard to tell which one unless a physician was present.

    • @CarmaWright
      @CarmaWright 9 месяцев назад

      @@speciallyhaniya5757n V

  • @Cmanjp427
    @Cmanjp427 3 года назад

    I wonder what it would be like to sit in it

  • @infamousnova
    @infamousnova 3 года назад

    Why this baby didn't Cry? I must be doing it wrong

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      My daughter does not cry in response to the needle prick, but shows other pain behaviors.

    • @infamousnova
      @infamousnova 3 года назад

      @@speciallyhaniya5757 my needle is 23 gauge

  • @trellitrelle
    @trellitrelle 3 года назад

    What if the sig is red and green at the same time? Is this reading accurate? If the signal is red all the way Is this a accurate reading ?

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      Hi Trelle! Which signals are you referring to? The bar on the left shows the quality of the signal; the higher the bar, the better the signal. It also rises and falls with the pulse. The bar on the right determines how much perfusion is at that site; the higher the bar, the better the quality. Hope that helps 🙂

    • @trellitrelle
      @trellitrelle 3 года назад

      @@speciallyhaniya5757 so the bar on the left turns red when my baby is crying or moving around. I wanted to know if those reading were accurate readings, if the bar is red. Thank you so much.

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      That could be an accurate reading. Movement can cause an inaccurate measurement. When there is low oxygen available, it will turn red as well. So it's important to assess your child if it is alarming. Have your doctor take a look to make sure the readings are correct! ❤️

    • @trellitrelle
      @trellitrelle 3 года назад

      @@speciallyhaniya5757 Thank you.

  • @juliewebb3127
    @juliewebb3127 3 года назад

    My angry that they charge so much for seating for special needs.

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      Hi Julie! There are several resources available to assist in receiving medical equipment if you are in the US. Please reach out to a social worker who would be able to link you!❤️

  • @speciallyhaniya5757
    @speciallyhaniya5757 3 года назад

    Hello beautiful people! I hope this helped you out! What else do you add to your diaper bag?

  • @indianhutiyapa1247
    @indianhutiyapa1247 3 года назад

    Hi please help me from where I get this injection for my 2 years old daughter , she is suffering from infertile spasms... She can't talk, walk etc ...

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      Hi! Unfortunately, I do not know where else to find this medication outside of the U.S.. Please talk to a pediatric neurologist in India because they would be better able to help you!❤️

  • @kiruthikak6949
    @kiruthikak6949 3 года назад

    Hi I need this injection for my baby but not available in india. We're we get the same products?? Pls let me know

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      HI Kiruthika! Unfortunately, I don't know where this medication can be found outside of the U.S. You can try reaching out to a neurologist in India who would be better able to help!

    • @kiruthikak6949
      @kiruthikak6949 3 года назад

      @@speciallyhaniya5757 india neuro also tried not available last 3 month in india. Alternative injection is available synacthen and acton prolangatum. I don't know which one is best and also I'm scared and worried about my baby

    • @speciallyhaniya5757
      @speciallyhaniya5757 3 года назад

      Kiruthika, the medications you listed are both ACTH which is the hormone ACTHAR also contains. Unfortunately, I do not know much about either one of them and their efficacies, so I cannot tell you which one is best. Whatever decision you chose to make, is the best choice for your child because you are doing it out of love with the best intentions. You are the best mother for your baby!❤️

  • @trucvu2862
    @trucvu2862 3 года назад

    Can I apply on the foot instead of the nails?