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I have stool come out an anus with mucus n blood. So hard have to dig it out. Sorry 😢. I have a loop stoma. I have had a two scoped. When cleaning out colon the water backed up into bag. I have see GI n colorectal surgeon cat scan scope by GI n in the office scope by surgeon. Any help out there? They like. It’s normal

I’m so sorry that you are struggling with the stress and anxiety associated with being an ostomate.If you ever need someone to talk to or just listen I’m here to help.You are never alone I have a colostomy.❤️😎🙏

100% on point !!!!

Yes please i need a copy of this booklet, my mom's had this surgery recently and we're dealing with blockages, not having received proper info from the hospital and surgeon😢

Can you send me the low fiber list. Thanks

How long is the surgery I’m just waiting for my pre op 😢 x

Maybe start irrigating or flushing your stoma. I have AAs procedure which I flushing water through a whole that goes straight to my: and out my rectum.

I have felt this as I’m 4 weeks post op and having and having issues getting a good deal with my ileostomy, my skin was so raw and sore and I was full of despair, my two adult daughters realised I was extremely down and turned up on my doorstep with my grand babies and yummy food, it didn’t solve all my problems but made them easier to deal with. I think I have the leaking under control and my skin is so much better. Thank you for sharing and caring.

RUclips channel - pain free you - worth checking out. Best to all going thru this 🤯 journey.🌸 ❤

Sooo very true...I hear you 100% your story, like you wrote about me. Also I am so medically traumatized mostly from be it surgeries/medications/even chiropractors etc All have made me permanently worse more symptoms n severe under treated chronic pain 🤯 has been over 20 years. Now at 65 and homebound. So frightening to go or think about any further trtmts!! Self care only for oast five years... Now have large lump in breast , under arm and few other places ,. I am most certain cancer really cause mire wow pain throughout body... Yet id rather die than deal with any medical wow ever again...idk ... Best to all 💖🙏✨

I've an ileostomy.Never got blocked.

I have no issues with light. Also, I do live in a care home.

I'm in that constant state of extreme stress and anxiety. It's horrible, and has made my situation worse. But, my life was completely destroyed. I lost my family, I lost my career job, then Lost so much more... im hurting so horrible... I can't take it. I got horrible depression... my life I knew, and loved.... it's over and I can't accept it no matter what the psychologist says... I'm completely devastated... and depression, anxiety, insomnia... added to my misery... has killed my soul. I'm all alone now, without my family, and my job.... Im unable to leave the apt with these mental illnesses. I feel totally afraid, and lost.. I don't want to live anymore.

Nothing helps pancaking. Used all sorts of oils to lubricate the bag. The problem is that the lubricant doesn't get around the stoma. Also, another problem is that Holister, Coloplast, and Other manufacturers insist on making these stupid bags with too much space above the stoma. The top of the bag should start just above the stoma and get rid of that ridiculous carbon filter that does absolutely nothing. I don't know why these manufacturers insist on making oatomy bags in the shape of an achordian or hot water bottle. I hate having my ileostomy. If I could help design a new bag witha company, I would, because they are totally dead from thr neck up and only care about the money as usual.

I feel like you’re reading my diary and the lack of understanding from everyone. The loss of friends and family.

How do you guys get thru em so quick I'm normally in the hospital for days and getting pain meds because I'm bent over and cannot move

Having a stoma stole my life from me

I have chronic illness and i love that you're talking about this. I am bedbound today and sat here i feel like I've got a friend talking to me who understands, now I don't need to keep on trying to vent to people who won't understand, hunting for validation they cannot give me. Thank you for making me feel less alone and i wish you all the best in your illness recovery <3

Yes, if possible I would like a copy of the food list.

Thanks for sharing this, I can defo relate. I thought I was doing really badly and that I was the only one who felt like this. I was really positive in hospital and for a couple of weeks after coming out. But since I have been really struggling. I had surgery on my leg 6 weeks ago and have a long rehab process ahead. Also having difficulties in my relationship at the same time so struggling without that support. I haven’t been able to go back to my flat since the surgery because of all the stairs so have been going between my parents and my partners and friends. Really want some sort of stability and sense of normal right now. Your video has helped me feel more normal emotionally though so thank you!

So I had my stomach reversal a week ago…. Just sore is all. No issues shitting, no colon pain, already shitting solid ….. I don’t know why everyone has these stupid videos with all these side effects…

Your observation is exactly the same as mine

I will need an ostomy of some type. I’m scared to fly

I no longer have peristasis in my colon. I need lots of laxatives so I can go. I feel sick most days. My dr said don’t rush surgery. Keep taking laxatives until they stop working. My GI said I could come out worse than when I went in. I don’t have a choice because without a colectomy or colostomy I will die. I will need some type of ostomy. I’m scared but that’s my life. This has ruined my life. I hope surgery can help somewhat.

From my experience, once you have breached the primary 'seal', those extenders and those fabric extensions are not keeping output from your skin. You've breached the primary, output is getting to the edges underneath IT, so, time to change. My output seems to occur mostly in the early hours of the morning, anywhere from 12:00 a.m. till empty. I usually awaken by 2:30 and typically have to empty about 2 or 3 times right away. Leaks happen at these times. When they do, you hope that the 'safety flanges' have done their job and you don't have too big a mess.

I am also experiencing this, especially after a extremely physically & emotionally traumatic hospital stay with multiple surgeries & coming close to not making it recently. I have had multiple chronic illnesses for 30 yrs.

I just watched a video about medical ptsd (medical induced trauma) and this is where my trauma comes from, not the illness.

❤

thank you !

hlo madam from Nepal colostomy pessant already

This!! You sharing this has me in tears. This is exactly what I'm going through. I have been at the end of my rope, but I just emailed this to myself. But it's not just for me. This will now be shared with my therapist, my NP, my family, my friends, and whoever else needs to hear about this. Thank you...may your day be peaceful and kind. 💗

Thanks

Good info! Never knew they existed. Thanks

Is that urinary stoma you are cathing from?

very helpful!

Thank you I am going to have surgery soon. Will have to wear a bag. Need all the advice.

Is this a colostomy or an ileostomy?

I had open heart surgery and its bin 9 months and I’m still not recovered. Feeling depressed and tired all the time. No matter what I have tried I’m not getting better. So frustrating.

❤❤❤

2 stomas that looks

The agony i had one this week i ate a banana wtf went to hospital after 10 hours as i had to wait 2 hours i vomited then my stoma started working and decided to leave the hospital

Oh no you didn’t just touch your noggin when you said touch wood. 💀 😂 Thanks for the tips! I don’t have a stoma yet but its a real possibility at my next surgery and I am arming myself with information. 😊

WOW,........ SO RELATE!!!!!!!!!!!!! I have had complex health issues for over twenty years - you are speaking my life experience!!!!! How do we raise awareness of this??? Can we set up a support group?

Ty

Watching this again two year's later and I'm still so angry. Is it because we are women? I complained of lower abdomen pain for four years! I was given endless antidepressants...which just didn't compute. The pressure was so severe that I struggled to urinate. And one day my intestines ruptured and poisoned every square inch of my body. My organs shut down and I died only to be brought back with an ostomy bag and the worse pain I've ever experienced. I will never be ok again...and had they done a simply CT scan they would have seen I had severe diverticulitis. Four year's later and I get constant blockages...candida everywhere and can drink nothing but water and eat bland foods. When I beg for help they offer me antidepressants...because that will solve bleeding from my stoma.

Praying all is going well. ❤ Do you have another channel that I've missed?

I often think about you and the impact you've had on so many people's lives. This video changed everything for me. I haven't seen you in awhile and pray everything is going well for you. And a great big thank you! You saved my sanity and dignity ❤

Thank you! I am an ischemic stroke survivor and I am experiencing this trauma

I used those but found that Sure Seal full circle rings work much better for me. I live in Florida and I use our hot tub and pool for hours and never a leak!

How are you now