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Thank you for posting these! My husband was recently diagnosed and we are trying to learn how to cope

Thanks for allowing us to be part of your journey, Rob. Love you, my friend!

Do you have a great team of doctors and allied medical professionals who help you manage symptoms and know what to expect in the future?

Thanks for sharing your journey with us. So many people love you, and we appreciate the ability to be with you throughout.

I'm incredibly grateful to have you in my life!

Also very thankful for all those doctors. 💜 Love this and love you!

Rob, glad you found it early - and that you have such great docs. Thanks for sharing so that others might also get tested! Also, I wasn't aware that you are dealing with Parkinson. Sounds like you're doing well with that, too. Fir all the things you are dealing with, you have a great attitude! Good for you! Hugs! Santo

Thank you for good suggestions for balance training on the BOSU ball. I have one, and now feel more inspired to use it.

I love that my dog Roxie hung out for a quick cameo. I didn't even realize she was there. :)

Thank you very much. You've mentioned your left hand and left foot. Are you left-handed? One more question: When you have the word you want to say, but can't get it out, do you want any assistance from a wife or friend verbalizing possible words?

from another viewer "1) inability to write, and 2) a disconnect in my brain to right foot while bowling." he also commented about balance issues and "brain power" especially prior to taking his first dose of sinemet

Comments from elsewhere "From my husband's experience, his "invisible" problems include sleep difficulties, constipation and issues with regulating his body temperature, being especially sensitive to heat. All of these problems seriously and negatively impact his activities of daily living."

One I forgot to mention was the loss of smell and taste, which may seem like an inconvenience more than anything but it's easy to forget warnings often come from smells, like food being rotten or gas lines leaking. I'm glad at this point to have both smell and taste but those are often among the early signs/symptoms of Parkinson's Disease.

Rob, I am sorry to hear that you are battling cancer in addition to Parkinson's Disease. It takes courage to allow a RUclips audience to watch you face both health issues. I've followed your Parkinson’s journey since you first posted your RUclips channel address on the Fox Buddy Network. Your videos are natural and honest, especially because you do not hesitate to let the audience see your tremor and explain how the tremor affects you in a variety of situations. I hope you continue to document your story for years because it is valuable way to increase the awareness of the day-to-day life of people with Parkinson’s. At the end of your first video, you explained that you want to “get things out” rather than waiting to make the perfect video and you expect to improve as more videos are posted. Your realistic attitude about posting videos has been an inspiration to the two women and myself who are authors of a blog about Parkinson’s. Our blog has written posts, and we even found the courage to post two podcasts. We recorded a video twice to post on RUclips, but we just couldn’t get past our yearning for perfection. Recently, we decided that we need to follow your inspiration, allow our dyskinesias to show in the video, worry less about perfection, and to “get-things-out-like-Rob.” If you are interested, take a look at our blog at parkinsonsfromtheinside.com Our purpose is to share our feelings about our experiences. While you are at the beginning of your journey, we are at various stages along our journey. Thank you for sharing your daily life, your courage, and for teaching us. We are proud to stand with you as “one of us.”

I appreciate your spontaneity!

1111 am. Interesting

Thank you.

Just officially diagnosed May 15 after return from Alaska cruise (bucket list). Thanks for putting your experiences out there for newbies. Invisible symptoms for me are apathy, some short term memory issues and frustration with tasks requiring planning like cooking/shopping. My husband is a musician too.

Rob, the video is great. It’s very helpful for those of us that care deeply for you while wanting to know more about how you are personally managing. Sounds like the trial will be fruitful either way!❤

First, thank you for sharing your experience with Parkinson’s because many people don’t have clinical support with a Movement Disorder Specialist, much less a Neurologist. Right now, our PCP doesn’t agree with the findings of a 2nd opinion. What you’re doing with the concurrent use of the MDS/Clinical Trials are the only way to get the clinical support that you need when Parkinson’s Disease progresses. Meanwhile, all of the best!

Thank you for posting!

good luck in your journey brother..

April is Parkinson's Awareness month so I wanted to get this posted before the month was over.