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Your comment just made my day!! Thank you soo much!! I have to constantly remind myself that I can't win every day, and it's alright, not to be alright. :) Thank you again!

I has worked really well for me. I hope you have the same experience and better. As I mentioned in the video, the ramp up on Kesimpta was a little rough but it definitely got a lot better over time. Good luck and please keep me updated if you make the switch.

Thank you!!

@@nievesab12 I agree, mental health consideration or lack there of is incredibly frustrating. See my latest video for my rant about it. Haha. Thanks for the comment!

@@timlittle1286 so far so good, but I hear you about the bender. I took a while off and felt great but the MS was definitely progressing. The fatigue from the DMT is a beast for me. Thanks for taking the time to share, I truly appreciate it.

Hi, I had that experience too! especially when I was laying down. Coffee definitely made it worse. I have had the heart thing as recently as earlier this month. It comes and goes. I hope this helps. One patient to another. Thanks for the comment!

@@NeuroNerdyX I'd love to know if it was more during your first injections; then I guess and hope it calms down? I don't see it as a side effect anywhere in writing so I'm glad to see someone who has also had the same thing; it must play on the heart. I hope it will go down because I only had my first injection on Tuesday, the second on Tuesday. You know the procedure for the first month, I'm not going to tell you. Hopefully, the problems with the heart will be minor and will disappear and not occur as a bad habit. Take care my brother

@@nicolaslefebvre1803 hi, it definitely seems to have calmed down, it only happens for a few days after the injection. I'll take note of it this time, I'm due to inject in a few days. I will certainly keep you updated to date! Thanks for sharing!

@@NeuroNerdyX I look forward to hearing from you :) I hope it goes well for you (and for me too lol ). Let's talk in a while :) tomorrow will be my second, my only worry is my heart, it's how can we say... Important? Entoucas it's been 6 days since my first Kesimpta and I can say that I have to be "careful" with my heart (I don't have any heart problems) and that I've been sleeping pretty badly since then. Is everything connected or do I need to rest a bit more this month? I don't know, we'll see ^^ see you soon and be well buddy 😋

Great to hear that you are still mobile! Ai is interesting, sometimes it has good information, other times, it's way off the mark. You gave me an idea for a new video about Ai answers to common MS issues. Thanks for the comment! Much appreciated!

Thanks for the feedback. Yes, the BTK stuff looks super interesting. I've been listening to @realtalkms, Jon is great at staying on top of it. Weird how the gap creeps up after a while. I didn't notice it at first either. Have a great day! Appreciate you!

@@thres34 Hi! Thanks for sharing! I was 42 when diagnosed, and I'm on Kesimpte now after a rough start with Ocrevus. It took over a decade to get my diagnosis. Your first symptoms sound a lot like mine. How do you feel?

I would say early days - fatigue and memory issue I start to notice more and stiffness back. I love your channel pls keep posting ms and other life matters if possible ❤

@@thres34 Thanks for all the feedback. I very much appreciate it!!! I'll keep doing what I'm doing. :)

@@SassyLeeHillius thanks for the comment. Is she progressive? Or RLRM?

Thank you! I will definitely be back. I'll look into those areas you mentioned. I want to bring my son, he will love the people and the place. You all are wonderful!

@@NeuroNerdyX great, I hope you will enjoy a lot again next time. Another place you could visit is Tortuguero National Park, is our version of the Amazon River, but with much more animals here (in the Amazon they hunt a lot, here is prohibbed with jail) If you go in the nesting season, you could watch turtles laying his eggs at night, is really amazing, during June and July is the nesting seasons, and during late July, August, September and October until November they hatch, that is also something amazing to watch. To Nauyaca Warterfalls there is an option that they carry you in a vehicle, to the two entrances of the waterfalls, because walking there is very tired. Pura vida!

@@timlittle1286 as an injection?

@@NeuroNerdyX yes in the thighs,hips or stomach or anywhere there is loose skin

@@partofyoursquirrel sounds like a good plan. The crap gap killed my cycling when I was on Ocrevus. Happy weekend!

If it helps, I'm 6'3" and about 175 lbs, so not a lot of flab to grab and jab, but if I sit down, I can usually find enough around my mid section. It doesn't take much. The needle is very small. I'll make a video of how I do it and post it soon. It has made things a lot easier. Thanks for the comment! Have a great weekend!

It was fun! I highly recommend it! It is hot though.

That's nice!!! Sounds like they cranked it up for you.

HAHA!! Nice.

Sorry to hear about your situation. I have a friend that got a respiratory infection while on Tysabri. He has been battling the infection for 7 months. I think he's going to take a drug holiday to see if he can clear the lung scum. Believe me when I say that the self injection gets much easier every time you do it. Keep me posted. Thanks for the comment!

⁠I will update after 2 months see where I’m at.. Thanks for replying and the information you provide

Sorry to hear it. I was on a walker for a while and also pissing my pants non-stop. For some reason, that went away for a while, hopefully it stays that way. How long have you needed the walker?

@@NeuroNerdyX walker for a year now but I’m thankful I’m still walking and not on a wheelchair I’m 45 years old so I got regular aging to battle but trick is to not give up… keep making your videos they are informative and entertaining 👍

Thanks! I'll keep doing them. They really help take my mind off the suck of the disease, ironically, they are always about the disease. Haha. Thx again!

Great to hear it is working for you. Full speed ahead!

Shame you haven’t realized Trump is an Idiot yet. You have to wake up. 😳

Are you serious? - OR Trump for jail asap!

@@Jennifyr-wo5cv Dead Serious!!We need Bullet Dodging Trump out there who would do a way better job helping find the cure for MS👍

@@VerbalOnLifekeep dreaming Trump ain’t gonna do anything but help the rich

Indeed! so hard to see in the wild.

Thank you!!

That's possible! I did get a lot of pre- stuff prior to the actual Ocrevus bag.

Thanks! Have a great weekend!

@@BenLeitch that's awesome Ben! Happy to hear that it's working for you. Onward and upward! Thanks for the feedback!

Thanks for the feedback. Have a great weekend!

Hope it works!! ❤

Thanks! Just posted a new one to highlight the joys of drug prices for this disease. Enjoy!

It's a kernel of knowledge?

@@NeuroNerdyX LOL

You are so welcome!

I've learned to stop before I overdue it. That seems to be the only way for me. This particular ride was 2 days, but I opted out of the second day because I could tell the second day would have done me in. I hope this helps, it seems different with everyone I meet that has MS. Everyone has their strategy or is working on figuring it out. Thanks for the comment!

I'll check those out!

I wish you the best! I hope it helps.

Ohh excellent idea!!!

I am on Kesimpta now and it is working much better, no crap gap. Good luck with your journey and thank you for the comment.

Thank you!!

Thank you!!!

Good guesses!! :) I was born in Colorado, lived there for 10 years, it was rough. Idaho is nice! I'll announce the newest location soon. I shot a bunch of cool video and accidently erased it. Haha.. So going to reshoot this weekend. :) Thanks for the guesses!

Definitely, except Hell doesn't require insanely expensive insurance. (so I'm told.)

I figure nothing looks as dumb as when I piss my pants because I'm too hot. That's always a fun symptom. Haha.

Hi Daneil, I am releasing an update soon. It has been crazy. More on that soon. How are you?

@@NeuroNerdyX in the fight of a lifetime with and invisible enemy thank you for asking 🙏

I have used Tysabri for three years without a problem and no ms progress . It’s a monthly infusion and by week three I would feel the “crap gap” but nothing too severe. Had no ill effects from the 1 hour infusion and didn’t have to stay for the 1 hour observation period. Was happy with the drug. But then I tested high titer for positive JCV virus. My neurologist decided it was too much of a risk so in 2 days ( after many many blood tests) I’m getting my first Ocrevus infusion. I’m going to give it at least 3 or 4 infusions to make a decision on it.

@@undefinable68I too recently was diagnosed with jc at what number on the index are you? I was 2.1. At what point should this be a concern IYO? The continued use of steroids that have to be given at infusion is what I’m fearing not the ocravus. Thanks

⁠@@danielmcinerney9949 I think I was 3.3 or 3.5 titer. In true transparency though, my doctor thinks the risk is not worth it with so many other decent drugs available, so I think any result of JCV , she would have pulled me from Tysabri. Interestingly enough, one of her nurses told me they had been getting a lot of high titer results lately. Hopefully the Ocrevus will work, but if it becomes too problematic, I have no aversion to changing to another drug. Luckily , my neurologist is amazing and orders bloodwork and MRIs every three months. She works with me and heavily pushes exercise, water, mental health support and clean eating. She also encourages researching everything on my own and is available to discuss it anytime I want. I really lucked out with her. I will ask her for her thoughts on the steroid use, if I need it and what she thinks about the hazards of prolonged use. Thank you for your response, I didn’t even think about the steroid risk.

Good luck. I have hope for you..I have a special announcement coming up soon, probably post in the next two weeks.

Did they perform at brain, cervical, and lumbar MRI on you? My guess is yes based on your info but any noticable lesions or gray matter problems?

@@NeuroNerdyX yes I have what they called “white matter” on the brain.They did lumbar puncture which shown bands. So they now think I have ms. Just hoping I get diagnosed in September so I can get on medication.