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Watching this video after meniera attack after Watching this video i realize im not alone😢 this disease makes life miserable

I just had my first drop attack last week. It just came out of nowhere. I was walking away from a table where I had been sitting, and the next thing I knew I was falling and just thought, I guess I will just have to go with this. Face planted, embarrassingly, slightly grazed but able to get up and walk away. A few months ago I had the worst attack of vertigo ever. Totally different to the drop attack, but now I’m wondering if my vertigo and the drop attack are connected? And am I likely to get another drop attack?

Same my also right ear is effected

Keeping an ear tube in the affected ear has *SAVED* my life! Thank you for this video.

I thought I was just being a big baby about Amovig hurting so bad. I always stomped my other foot while it was going in. It stings so bad 😂 Starting Ajovy today. Looking forward to it not stinging like the Amovig. Thank you for the video.

I have a question. I was diagnosed with Menieres over 13 years ago. I have been getting worse and worse vertigo attacks , ear fullness, tinnitus, and the fun part getting nauseated during the whole thing. My doctor just recommended me to have the Endolymphatic sac decompression. I just found your page and I wanted to know how it has helped you? what was the surgery like?

Thank you so much for posting this video. I’m switching from the auto-injector to the pre-filled syringe today, and this gave me the confidence I need to do my injection!

just found this channel - hope you are doing better now. may i ask what symptoms did you have initially? did you have the classic sypmtoms of ear fullness, tinnitus, followed by an attack? thank you.

I know this video is from four years ago so I just wanted to check in to see if you’ve gotten better. This video gives me hope I found out I’m severely B12 deficient. I’m terrified to get a B12 injection because I have anxiety and I’m scared that it’s going to trigger my anxiety. Hope you’re doing well.

I just had my first shot today! After 25 years of migraine...

Sorry to hear about your migraines. I know the pain. I have them daily due to TMJ, I am completely disabled because of it

i diagnose meniere's disease to 2 years ago :(

Thank you I have been using the autoinjector for a few months and kept getting medication spill out on to my leg at the end but I didn't realize you should count to 10 so I guess I was pulling it up too fast. I'm not a big fan of this autoinjector so thank you for your help with this.

A great accomplishment for share. I don't like backing up either

You did it! 🎉

SO VERY HAPPY FOR YOU. CONTINUED PRAYERS 🙏🤗🩷

This was so exciting. I’m so happy for you today and hoping you have many, many more days like this!

You’ filmed this 2 days before your first brain surgery anniversary! Now today is (1/19/25) and you’re 126 days away from your 2nd surgery anniversary!! I’m so proud of you how you’ve basically built your life back up from the ground floor !!

Yah for another driving day !! So happy for you every time you get to drive !!!

So happy for you!!

Why is she walking on the treadmill

I am due to take my first ajovy today and this has really calmed my nerves about it!😅

So great to see you triumph again over adversity and show that smile and well done. I had Botox treatment for vestibular migraines today and I started wondering how you were for some unknown reason. I had to check if I missed one of your videos. I am still trying to get through an autistic burnout and having some weird memory lapses but it will get better. Hope everyone had a great Christmas and New Year’s. Continued thoughts and prayers for you all. 🇦🇺🙏🙏

Hey i have also same symptoms in my right ear ringing buzzing whoosing sound sensitivity and then vertigo for several hours after that everything will be normal also i have headache in that side its been more then 1 year but hearing test are normal is it vestibular migraine or meniere disease

I seem to get them but only for an hour or so. They always follow after few days of the feeling of,swelling in my ear and lots of ringing. It’s like 2 days of that and then I wake up and wowzers I’m walking like a drunk 🙄🙄. I find laying down and turning off the lights so it’s real dark in my bedroom. I then try to focus on something or if it’s real,bad I put an eye mask on and block out the world for an hour. I find I’m super tired after it occurs and usually sleep for half a day.

Had chronic intractable migraine 55 years . Nothing has helped. Unable to engage with life . Totally disabling . Cluster migraines also. Restricted to bed and dark room and accident and emergency. Cannot function . This is totally disabling . Cannot work at all .

People just don't understand it's absolutely debilitating, you're so strong for surviving this, thank you for sharing with us and giving the Migraine disease sufferer's hope

So Awesome you can drive on your own! You are so incredible! Love your 4:20 strength and determination! Continued prayers. for you.

Does this work for pressure migraines?

I truly sympathize for you. It’s heartbreaking to see how you’ve suffered for such a long time.

Oh hey,, thank you for sharing. I am looking forward owner raising and training an SDiT prospect later this year, thank you for sharing your honest experience and feelings and fear. I found it very relatable, and helpful, I am not so confident in public anyway, I am a school dropout out and also have ASD, an emotional stress disorder and chronic pain and health stuff, and am kinda clumsy in general. So seeing somebody, who is honest to share any stress behind Public Access Test is relieving.

This video... Good LORD ! First, I commend your authenticity and bravery. I also have a Cptsd, anxiety, depression diagnosis and its been an uphill battle for years. My first step was acknowledging the trauma, seeking therapy and regular dr visits which have helped. BUT Ive noticed that when in the midst of a "crisis" so to speak, I dont know WHAT I need to help feel better and ive considered a service dog for a number of weeks. Seeing this video DEF helped me commit to moving forward getting one. Again, I THANK you and Bene for being such inspirations.

This is a lab dog ....that's why they take there dogs outside to run or u run with them y'all are rediculiouse

I have bilateral Ménière but I also have been having what I called a "collapsing feeling" several times a day and they can last for weeks to months. I feel like my body is going to stop functioning and I have to hurry up and sit down. I've been having to sit a lot. Also both of my ears have fluid in them. What you are describing in this video sounds exactly like what I've been feeling since 2017, they were rare for me but now they are sometimes off and on all day. I've been having issues with these attacks since the Covid lockdown.

Thank you ❤

انا سعيدة جدا من اجلك واتمنى ان اشفى واتذوق طعم الحياة مجددا شكرا على كل فيديوهاتك

I am a junior in high school and have had a headache for 3 months. All I want to know if anyone else who has had a headache for a longer period of time has similar symptoms to me. First, I believe I had a sinus infection with nasal congestion and nasal drainage through the mouth. I used antibiotics and Sudafed for a long period of time to clear this. I also randomly watched a video about sleep talking about how the body uses sleep to repair itself. So the body forces itself to sleep longer if it is trying to fight something. Till this day when this sinus infection and headache first started, I needed about 10 - 12 hours of sleep a day to function which includes naps in school. So I am praying that my body is fighting whatever it's fighting. School makes my life miserable especially if I need to read a book for homework. Other triggers the makes it worse is includes flashing lights (action movies), lowering my head (tying shoe while standing up), exercise/weightlifting, outside cold wind, and hard laughing. Headache get better after I sleep, hot showers, and relaxing. Working out was the only thing keeping my soul together, that is what I'm known for by my friends and family. All my hobbies are impossible, and my new hobbies is walking around the house listening to music and watching movies. I have never been so jealous of people enjoying their lives. I have my entire future planned out of become a dentist like my brother. I'm surprised I haven't done anything to myself yet.

I am scared of what would happen if I accidentally leave some air inside the syringe. Would that be so dangerous? I guess if I take a bit of the liquid out as you did , its not possible for it to happen. Thank you so much for such great demonstration and explanation❤

Have you been vegetarian or vegan?

I’m going in for my first vyepti infusion Jan 7… I’m so nervous but excited, hopefully it works well. My migraines are becoming debilitating and nothing else has worked…. 🥺😢🙏

Does this stuff work?? I am about to get prescribed this!! Thx

Have been using Ajovy for almost a year now and just had a wild moment of panic about maybe I broke the injector this time??? It was super helpful to be able to watch this video and compare to my own, to see that everything was good.

Got my first symptoms at age 5 diagnosed at 15 currently 16 with a cochlear implant and sensory neural hearing loss, bearable honestly

Thank you for sharing.

Woo hoo you’re driving again! Now I miss our good talks.

Aww, I am so sorry to see you suffering like this. I have Meniere's too and I fear how it will develop but I guess there is no way but to live with it.

Your service dog is so cute

En español x favor

Even I have been suffering from daily headaches for the last 6 years, I have depression and anxiety problems, and I am on medication for that but this headache is with me all day for past 7 years, feels relieved only when I sleep....as soon as I get up my head starts to hurt ...... don't know what to do.... meditation, exercise, painkillers are temporary solution, is there any permanent solution for the headache??.....I can't even perform well in my day to day activities....and I feel sleepy and my neck muscles also feel stressed.......my life kind of sucks TBH😢😢..... please someone help me....if anyone knows any therapy for it, let me know😢

i am a BSC nursing student i suffering from meniers disease vartigo attack since 1 year doctor advised me a 7 week gentamycin injection for each week one injection is any problem 7 time gentamycin injection done?? please helps me a lot of problems facing me 😑definitely gone meniers after with all 7 injection done?? I already took 3 injection but slightly have dizziness, tinnitus and head will not move on back,forth then side each other i am feared about going college, hostel 😐 please reply as soon as possible mam