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Missing Seven
США
Добавлен 31 окт 2018
See Disclaimer. Sharing my Journey with ME/CFS , POTS and colitis and Share how I navigate the complexities, of it all! While living the best Life possible!!!
Always seek the guidance of your doctor or other qualified professional with any questions you may have regarding your health or anything. Never disregard the advice of a professional, or delay in seeking it because of something you have seen/read /linked on this channel.
These Videos are for information purposes only. By providing the information contained herein (or Any Links) We are not diagnosing, treating, curing, mitigating, or preventing any type of disease or medical condition. Before beginning or Stopping any type of treatment regimen, it is advisable to seek the advice of a licensed healthcare professional Or any professional before you try anything new.
Always seek the guidance of your doctor or other qualified professional with any questions you may have regarding your health or anything. Never disregard the advice of a professional, or delay in seeking it because of something you have seen/read /linked on this channel.
These Videos are for information purposes only. By providing the information contained herein (or Any Links) We are not diagnosing, treating, curing, mitigating, or preventing any type of disease or medical condition. Before beginning or Stopping any type of treatment regimen, it is advisable to seek the advice of a licensed healthcare professional Or any professional before you try anything new.
Видео
Half Year ME:CFS Recovery update
Просмотров 84Год назад
Always seek the guidance of your doctor or other qualified health professional with any questions you may have regarding your health or a medical condition. Never disregard the advice of a medical professional, or delay in seeking it because of something you have read on this channel.
ME/CFS ENERGY MANEGEMENT 104
Просмотров 21Год назад
Always seek the guidance of your doctor or other qualified health professional with any questions you may have regarding your health or a medical condition. Never disregard the advice of a medical professional, or delay in seeking it because of something you have read on this channel.
ME/CFS Energy Management 103
Просмотров 26Год назад
Always seek the guidance of your doctor or other qualified health professional with any questions you may have regarding your health or a medical condition. Never disregard the advice of a medical professional, or delay in seeking it because of something you have read on this channel.
ME/CFS Energy Management Series 102
Просмотров 33Год назад
Always seek the guidance of your doctor or other qualified health professional with any questions you may have regarding your health or a medical condition. Never disregard the advice of a medical professional, or delay in seeking it because of something you have read on this channel.
non-epileptic seizures (NES) in CFS POTs Dysautonomia
Просмотров 91Год назад
Always seek the guidance of your doctor or other qualified health professional with any questions you may have regarding your health or a medical condition. Never disregard the advice of a medical professional, or delay in seeking it because of something you have read on this channel.
2023 CFS RECOVERY PLAN
Просмотров 29Год назад
Always seek the guidance of your doctor or other qualified health professional with any questions you may have regarding your health or a medical condition. Never disregard the advice of a medical professional, or delay in seeking it because of something you have read on this channel.
Apple Watch or expensive device for ME/CFS
Просмотров 125Год назад
Apple Watch or expensive device for ME/CFS
ME/CFS RECOVERY GIFT IDEAS | SEE THE END
Просмотров 24Год назад
ME/CFS RECOVERY GIFT IDEAS | SEE THE END
The elephant in the room ME/CFS RECOVERY
Просмотров 462 года назад
The elephant in the room ME/CFS RECOVERY
ME CFS NO MONEY RECOVERY PART 3 | BREAKFAST IDEAS
Просмотров 262 года назад
ME CFS NO MONEY RECOVERY PART 3 | BREAKFAST IDEAS
Can you demonstrate how loud it sounds inside the air and how it feels with the air pressure bouncing up and down? Thank you, great video.
Mrs. Rylee toll gate elementary school 2:04
God, there was no way I could bear the thought of vaccines
👍 Happy for you!
I’m going to get the ther03 by therasage to do my ear insufflation. Not sure if you found one for at home yet so I thought I’d share
Thank you for the info. I have been intrigued by inosine pranobex for years but leary bc i have lupus. The life extension product seems like a way better option. Will give it a try.
Sorry to hear, Lupus is so Rough, I wish you the best!!!
Check dr gerson protocol
Glad youre doing well! 😁
Thank you. How are you doing?
I have been in a huge crash since Christmas. I always get worse after the holidays from over-doing it but this year it is unrelenting and severe. I turned 50 this year and I'm thinking that the crazy hormones of perimenopause may be to blame for the severity of my crash. I've really been focusing on improving diet, pacing etc but nothing has helped so hormones is the only uncontrolled variable I can think of. Its always such a mystery what is going on in my body! Ha ha! I just am so happy to hear a fellow ME/CFS sufferer is doing well. Your remission continues to give me hope. 😁
@@amberb135 Sorry to hear! I know I have been breaking my brain trying to figure it out. I don’t like unsolved puzzles. 🧩 yes the winter is rough. I have to be careful not to let the vit D go low and just the cold in general is not my friend. I even got a cold!! But I won’t complain of having a working immune system now! Hang in there. I hope we get answers soon. Just do the right things and give your body what it needs.
Very helpful, thank you for sharing!
Can I ask you what was the most helpful thing for exercise/movement intolerance? Your ME/CFS subtype was exactly like mine, all the symptoms, intolerances and even comorbidities, like a cfs twin 😀. It's so good that you are doing great, can you name the most helpful things for the exercise intolerance and disautonomia? Thank you!
Sorry for the delayed responses, I was upgrading my cell and did not go smoothly! I definitely say HRV training and I started in a bike laying down. They do not recommend HRV monitoring if you are an anxious person that obsess over things ( I really don’t understand the reason or the reasoning, I do not agree w it). See my exercise folder I documented all there.
@@missingseven8004 Thank you
Great video🎉. Congratulations on your results 😁. Will you be making any more videos?? I hope so 🙏. I don't know if this might help you with sleep: two foods help me...eat a banana before you go to sleep. And/or take a tablespoon of black strap molasses....or both. The banana has potassium and the molasses has some magnesium.... combined together is a good sleep aid😴 Thank you for your help. I look forward to seeing more videos😊. Miss Monique 🙂🌷🙏💗
Hello! I have being trying to film for months by now; but I am so busy catching up on 15y of stuff!! but I know I am due for an update; will get to it this weekend the latest!
@@missingseven8004 Well God has blessed you with good health again....but don't run yourself into the ground again!!! As the Lord allows, He will give you the energy and the time to make more videos as you are able. Thank you and God Bless you and your family!! Miss Monique 🙂🌷🙏💗
Did you have a 2nd one in your knee? If so, did it help? I’m going to have it done on Friday, in my knee!!
Yes but I can’t remember if it was only 2. The last time I did really bad ( my OI starting acting up while the needle was in the knee). But my pain I used to have is gone to this day.
Thank you for sharing the information. I’ll say some prayers for you.
I can’t even move. I have cfs me. I’m definitely asking to be tested to b12. I need something to save me 😔 I have no life anymore. Everyday I’m in bed
Sorry to hear, hang in there. And I hope the find a solution for you soon!! I am in remission after 15y so there is hope!
Thank you for taking the time and energy in making this new series, I myself have been working hard at my recovery, the past year and have seen many improvements for my efforts. About a year ago when I first saw a video of your's and I believe it was about your experience with your remission, it was very inspiring, had lots of helpful information and your personal experience. Thank you again for the video's you make, it has helped me make a positive improvements in my life and my health. <3
I really appreciate it, thank you for the feed back, and best of luck on your journey, is so worth it to regain your life back!!
Ive been fascinated by Aphantasia for a few years since I first heard about it. How cool that you have it! I find it so hard to imagine NOT seeing pictures in my head. I'm also amazed that there are people without an internal monolog so they don't hear words in their heads when they think. I can't even imagine how thought is possible without my voice in my head! The brain is so complex and interesting!
Wait…..you hear yourself in your head??? Like literally?
@@missingseven8004 Yes, its like a conversation inside my head. For example, if I'm trying to decide what to eat, inside my head will be a monologs something like this...."hmm.....what do I feel like eating? I should eat a salad but really feel like eating a piece of cake. BUT salad would be the healthy choice. Ok.... I'll eat the salad." Its just like the ideal of SEEING an apple inside your head but with hearing words instead. Thats why they call it your inner voice. If this sounds crazy to you perhaps you are also without an inner monolgue. Fasscinating!
@@amberb135 I think I have it, I just don’t literally hear it as a sound. Just after the whole aphantasia debacle, I ask to make sure 🤣
@@missingseven8004 It sure does make you question alot of the things we all just assume that we all experience the same way. I "hear" words in my head, but not with my ears ,the same way I can "see" an apple in my head, but not with my eyes. 😃
@@amberb135 the more I bring this topic up, the more confused I get 😆
So good to see you back amigita
Take zinc and copper it will eliminate the missing link
I have to be careful w cooper, I have the mutation ( I forgot what is called ) but I don’t metabolize it.
thank you for the great information about cfs
Mam how many days use in cabage juice
7 days. I think my issue was milk, I am on remission now by changing my diet completely ( was not intended for colitis) just happened.
Is this sweet yuca ?
I didn’t know there is sweet, I put salt in it. So taste like a potato ( not close but best I can describe )
@@missingseven8004 there are two kinds bitter and sweet. I think this is the sweet version which has healing properties for prostrate
Vaginally & rectorally use the water in those areas.
Ozone kills H. Pylori
Just found your channel and I’m so glad I did!
I’m going to go binge your videos now!
Welcome!
If you are doing an hour of elliptical you are healed. Even in my gym days I didn't do that. Congrats!
Thank you so much! Yes I can’t measure what is “normal” per people’s definition, I didn’t know 1h is good. So I am learning! Thank you for your feedback
Hi Seven, heapsreal 👍
OMG hello!!! So good to hear from you!! How are you doing?????
I could be better. Maybe needing another round of valcyte I think. I was searching through utube and saw your videos. You look like you are doing well. I'm more of a watcher on phoenix rising than anything else. Good to put a face to the name. Cheers, heaps
@@dansmith9724 I am on remission for a year now I think. Sorry to hear you are not so well. I don’t get online much because I don’t have time. But please keep in touch!!!
@missingseven8004 I will send you my email on phoenix rising.
Interesting information! Thank you 🙏
քʀօʍօֆʍ 😏
Congratulations on all the positive changes you've seen this year! Your hard work really shows!
Thank you so much, it does add up!!!
It's good to hear and see a recovery video.... because it gives me hope to recover from MECFS. Knowing that you are doing more things is also an inspiration to me. Thank you for your videos...I especially liked hearing the band playing my favorite Christmas hymn: Angels We Have Heard on High. God bless you!!! Miss Monique 😁🙏🌷🙏💗🎶
I know of tones of people that have gotten on with CFS so hang in there, it is totally possible. Thank you for the support!
where would you get the shots??
For GCMaf? I don’t know, I never took them in shot.
Did the ozone therapy you did couple of years back actually helped with your CFS?
Yes a lot, I know another patient that is doing it religiously. I stopped because guy moved away and too expensive.
@@missingseven8004 appreciate the quick response. Planning to start mine tomorrow. I got for 180 dollars a treatment so crossing my fingers it helps. 5 months CFS like symptoms from long COVID
Sorry to hear!!! Best of luck in your journey!!! I really hope you find your answers. It does get better, pls hang in there
By the Way, is peptide you're taking prescription or the ones sold online? What kind do you take if you don't mind me asking?
Prescription, But I also do good with OTC BPC -157
Good to hear that you're feeling reasonably well. Hope the pain and discomfort improve soon so that you can get back to doing the stuff you love. Take care...😊
Thank you so much! Slowly we will get there, but surely! I hope you are feeling great as well!
Thank you so much!
Very good information
They don't check in the uk
That is not good, I wonder why they don’t?
@@missingseven8004 I wonder too.
What is homeostasis peptide?
Is a peptide I buy from a doctor. I did really well w peptides and CFS, 1 of the few things that helped.
@@missingseven8004 I tried googling homeostasis peptide and couldn’t find anything. Do you know any other names for it? Just curious. I’ve taken ta1, tb500, bpc-157 and ghk-cu myself
@@caitlin8349 Oxford peptide HS is what I Use.
Methylation + Chelation + Iodine + Raw Fat Diet (Aajonus Vonderplanitz) is literally almost a cure all
What brand do you use?
I used nature’s own
My Doctor prescribed this for me some time ago when I was having chronic diarrhea. That's actually gone now, but I still get brief stomach aches. Since I had a history of obstruction I get a panic attack at the simplest stomachache, even if it's just heartburn. I'm just starting to re-take it again and hope it gets rid of the spasms. The pain isn't that bad, but it's scary because of my history.
I bet! Sorry to hear that. I don’t imagine what is to live with panic attacks. do you know what is causing the spasm? Any food allergy?
Supplements can help but it's about having a holistic approach with ME/CFS. Remember what may help you at the beginning can become a block later on. And it's not a one size fits all approach. Sleep, nutrition and your baseline as well as restorative movement depending on where you're at with your level of ME/CFS.
Agreed. I am in remission now so I quit all supplements as I started getting better. And I think is a temporary patch while you do the work of recovery.
@@missingseven8004 congratulations on being in remission. I was diagnosed back in 2017. It's only been since last year I found recovery stories on line. I'm working towards getting to 15-20% of my life back X before going further X anything else would be a bonus X
Best of luck!!! Yes was hard for me to figure it out ( I think colitis complicated things because most healthy food has seeds, so made me more sick) but once I figure out how to use HRV for pacing the recovery was fast like 3 months or so!!!
@@missingseven8004 what's HRV?
@@Jade-bf5we Heart rate variability, I measure my "envelope" that way, I was using HR but I had too many variables. This became a fool proof to know what I could do or not.
Sending you strength and support. Do whatever you need to do to take care of yourself so you stay well. ❤
Thank you! that is sweet. Feeling much better these days
I often end up washing my hair by kneeling on the floor outside the tub and just putting my head under the tap. Its not perfect but its quick and I don't have to stand up in the hot shower. Its amazing how resourceful we can be when we have to. Hope you are feeling less Potsy soon.
Thank you! I can’t turn my head like that or pass out! Is amazing how we all have to accommodate and can do different things that will work!! is that time! Should go away in a few days 🤗
@@missingseven8004 I know what you mean. I get dizzy having my head like that but for me, it's when I try to stand up afterward that I pass out! Sometimes I just lay on the floor after! 😁
Got you! Sorry to hear. Be careful!!! I am in hopes with time, POTs will go away for me as I keep improving! My moms went away after menopause so there is that hope 🤗
@@missingseven8004 That would be wonderful wouldn't it?!? I get hormonal migraines very bad so I was already eagerly waiting for menopause. Now I have another reason to hope things will improve when that time comes!
@@amberb135 Agreed! Sorry had to go to do my meditation last night 😴
Hello again, Sorry that the coxsackie has flared up. You are the first person that I’ve known that has the rash/ itching. Mine also has skin blister/ ulcer. Are you still on Phoenix Rising, I could message with you there. Best wishes
Hello! I am there but have not log in maybe in a year+. I just have too much going on and afraid if I go in, will have too much to catch-up on, I will log in once my personal situation gets better and I have more time for myself.
Have you considered that you may have Ehlers-Danlos Syndrome in addition to ME/CFS and POTS? Loose joints, or bones going out of joint, and orthostatic intolerance is very common with EDS. Seeing as you love to learn all the time you may be interested in learning more about it. :)
I am diagnosed with hyper mob. Of unknown Origen I think something like that. I don’t get all the points for EDS and I think my DNA was ok there ( I know they don’t have the dna for hyper type) but it is ok. Another label that will not really buy me much, so I just leave the best I can w what is have :) thank you for the thought!
Did you use bpc 157 for gastritis and was it ok?
Yea, it was good for my tummy.
I'm taking it in capsules, but I'm having a lot of headache. Did you feel these headaches? Or did you have any unwanted reactions? I'm from Brazil
How long did you take the capsules to get cured of gastritis?
I didn’t know they came in capsule!! No, I didn’t get any that I remember. Best of luck in your journey!
Last question. How long did you take bpc to get your stomach healed?
I have neuralgia after my shingles so I’m hoping this will help me. I’ve ordered a bottle and fingers crossed. Can you post a link to the supplement you take?
I can’t recommend products but I use GNC alpha lipoid acid with ALA. They come together in one pill.
@@missingseven8004 thank you
Sorry meant GNC!!!
Hi, beloved How can I collect from Bangladesh
Thanks for this video. Can you advise when is best for me to take my heart rate in the morning? I basically sit up to say 20 degrees, take my medication Midodrine and Ivabradine and water/electrolytes then probably wait 10mins before I sit to 45 degrees. Wait a bit longer then I stand up. Do you suggest I take my heart rate when I first sit up to 20 degrees? As if I waited until after my medication/water when I stand up it may not show how bad my body is suffering that day if it makes sense? But then I often need to stand for the pots to really show. Often the minute I sit up the heart rate will quickly spike but then settle back down again. What did your doctor advise? I do have an Apple Watch and wear an Oura ring which gives me my HRV but I don’t wear the ring all day to truly show me what’s going on but I do wear my watch all day. TIA. x
Sorry to hear, I can’t advise since I am not a doctor, I did it as soon as I woke up and sometimes after. If I have moved around I waited 5 min for HR to settle back down. So was faster to me to do before I moved so I didn’t have to wait again for HR to settle down. At first I was more rigid. After you do it a lot you learn to read your numbers and know what you expect to see. So the least variables ones have to begin with the better, then as you learn is not as important, like I knew sitting I would have 5more bPM than when I laid down. Drs were never to answer me how the Hr worked once on meds ( all the guy say was not a linear relationship). So if in meds your HR goes down 10BPM does not mean you have 10BPM more of AT.
How have the ozone been going??
The clinic I used to go to moved away. So I stopped after a bit, It worked good but I am in remission now.