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I would check your BP in the morning and report those readings to your PD nurse. higher or lower BP can exhibit that type of symptoms. It’s possible to have high BP if you are still retaining fluids. It’s possible to have low BP if you are taking too much out during treatment leaving you a bit dehydrated. your PD nurse can help adjust your treatment prescription if necessary

@@KidneyJourneys great advice. Much appreciation

My apologies in the delay in this response. This is a discussion you should have with your nephrologist or PD nurse on the reason they prescribed it as part of your treatment. Some patients may not want longer dwell times at night or may not have sufficient residual kidney function and need additional dialysis where typically the icodextrin / extraneal solution may be prescribed. Some also are prescribed this solution for PD if it may help they manage their blood glucose levels since it's a starch based solution and not dextrose based.

Been busy living life safter transplant and working unfortunately so not a lot of time with RUclips content development. Will try to develop more content as time allows from work. Thank you for watching the videos and hopefully they have been helpful in your person #KidneyJourneys :)

I would say that looking "cute" and dealing with body dysmorphia which may come along with chronic illness are not always an easy balance. I tend to advocate on the safety and minizine infection risks as priority personally.

Glad to hear the videos have been helpful in your learnings. Exacting my mission when I first started to develop content when there were not as much out there. Thanks for watching and commenting.

That is great to hear you have been able to stay working and willing to share your experiences. Thank you for watching the videos and commenting.

Happy to hear. Hope that you do get to head back to Europe soon. I love it out there as well.

Thank you for sharing your experiences and watching the videos. Do be safe out there and keep taking good care of yourself.

Sorry for the delay in responding, somehow missed your comment 3 weeks ago. Can you clarify what about Hollywood studios. On PD, just be aware of extreme rides with safe waist handles that may impact your catheter. Other than that, folks may do their PD treatments in the hotel at night or bring manual solutions and plan to visit the medical center to do their manual exchanges while they are within the parks.

Agree with your dialysis nurse that you are one of the model patients. Great to hear that you were able to receive a transplant and still doing well

@@KidneyJourneysjust curious do you ever got a transplant ?

@@Mrwinecontreras Yes, my first deceased donor transplant was back in December, 2019 and that has since failed and in the process to be re-listed to be a new recipient candidate for another donor. In the meantime, I'm currently back on dialysis.

Yes. I would say to still use some ExSept on the exit site afterward though.

Yes. But make sure you clean the tub well and soak the shower head and faucet in bleach for 5 minutes every week. Currently: Can also do private chlorine pool and salt water pool. Public pools are not suggested due to the amount of bacteria from other people. You can swim in the ocean or a saltwater pool. Generally private pools is preferred. You can use a little bag like an colostomy bag as they have an adhesive that makes it water proof.

I guess it depends on the person. With PD you have to do treatment everyday (most people) for the rest of their life or until they get a transplant. Transplant will require taking 3 or 4 anti-rejection meds, everyday, for the rest of the patients life. Missing the meds, even once, could make the new kidney be rejected. Transplant offers more freedom of movement. You can go anywhere in the world without having to take a dialysis machine and solution bags. I for example want to take a cruise but the country where the cruise leaves from doesn't allow imports during January - March, which is when the cruise starts, so I can't have my solution imported by Baxter and it would be too much for me to put it on a plane and handle it myself.

Usually in Asian countries many have to self pay for their PD supplies and they often do not use cyclers. But supplies still tend to require a prescription to purchase beyond the government allowances. These timeframes would be too long for regular travel orders and expensive to ship. U.S. clinics also need to collect monthly labs and quarterly clearance labs to ensure your treatments are keeping you health enough with medical documented data.

@@KyleChangEvents hey thanks for your reply and info.. I have zero support here in Oregon and could do better in every way with my old lifestyle in Asia the issue is getting set up and simply getting a hold of the basic supplies to do manual p.d Years ago I was in the beginning of the kidney disease and I had a nephrologist

Thanks for sharing and watching the vlog !!! Were your doctors able to attribute the initial failure to any other health issues as reversals tend to be normally for folks in more acute kidney failure due to other health ailments. How long were you on PD / Dialysis in total???

@@KidneyJourneys The following is a direct copy from my medical file. kidney biopsy on 09/14/2017 that showed according to Nephrology note: malignant nephrosclerosis with extensive/severe fibrosis, atrophic tubules, and global glomerulosclerosis from severe hypertension. Renal US also showed increased echogenicity that suggest CKD in addition to Complex right renal cyst. Nephrology assessed his kidneys injury as “irreversible”. Oct 4th take off dialysis Nov 4th confirmed no longer needed dialysis. Nov 7th, got a call they were testing a potential match. Spent 4 years on PD.

Nocturnal in center hemodialysis run at a slower BFR and less taxing on your body, but typically not available as a treatment modality for most patients in the U.S. and we finally on path to offer and speak about different modalities options as option here again,

@@KidneyJourneys Right now I’m okay with my schedule! My husband does my needles in center! My goal is to eventually do NxStage and travel! And I forgot that my kidneys originally failed in November 1979! My diagnosis was Glomerulonephritis of Unknown Origin! I had gone into Congestive Heart Failure at age 7!

Not necessarily, completely for all PD patients. When in ocean water and diving suit, there are ways to help minimize risks with protective coverings if exit site has been deemed to have healed long enough by your own PD nurse and / or nephrologist 😜

I just started pd as well. I'm still sick every morning but it's getting better for me. God bless you on your journey

Hope you are staying healthy and doing well still 🥰🥰

Thank you I’m doing what I can, trying to live, without living in fear 😊

Sorry to hear. If only fatigued after dialysis, it may be due to the machine running too fast or removing too much fluids too quickly. Is this in center hemo or home hemo? What is your BFR (blood flow rate) set to?? Other fatigue for dialysis patients may be due to other health issues, nutrition, anemia, low protein as possibility to look into with your care team and nephrologist

My daughter likes PD so much better than hemo. More freedom, don't feel as crappy

I'm 41 and have been on PD for a little more than four month. Doing demo would really suck for me because of the needles. I've been told you get use to it but still. PD really is better. Yes, you have to do it everyday (most people) but it gentler on the body and can be done overnight.

Thank you for you comment. However, folks should be advised to check with their own nephrologist or care team as excess electrolytes or fluids may also harm some dialysis patients more than help when on dialysis and kidney failure. It is better recommended to work with their own care team to ensure the right balance of removal is achieved through their own treatments prescriptions to minimize (or avoid) fatigue after each dialysis treatment.

What drinks are the source of electrolytes?

Thanks for watching and your comments. My travel bag was obtained from a local TJ Max retail store

Hey may I ask what you know that will keep it down

@@feliciamorton4151 although everyone is different it's all in your diet and always taking your blockers. Educate yourself on what foods are high in phosphorus. It's in dam near everything. Dairy, nuts, cola, chocolate, make up the most dangerous.

Sorry that you are having to perform dialysis at an early age. I would recommend you consult with your nephrologist. (kidney doctor) regarding your concerns with your blood pressure. It's often treated with medication and fluid management. There may be other health concerns that causes your blood pressure issues as well. For them to help you look into. . Thank you for reaching out and watching my videos.

How r u now dear?