Видео

Gracias por los consejos ❤❤❤❤, espero que actualmente te encuentres bien, te mando un abrazo, yo también tengo FND

Well done, gorgeous pony ❤

Hi I used to ride and drive. This is a lovely test well done. I have FND and MS ❤

You have a fat bum and it can hurt the horses back poor thing

Sad reality is there's little to no support for people with FND, it really does disgust me that these so called experts who are supposed to help people are just so quick to discard and diminsh people for not magically getting better overnight I'm from the UK and was diagnosed February 2022 after having worsening symptoms before and after and what i essentially got was here's a comorbid diagnosis of FND and CFS/ME, there's very little any of us can do for you, consider dropping out of university and have a nice life Over a year and a half post diagnosis I've had no physical therapy or anything remotely classed as treatment and i now no longer have any confidence of returning to a normal life

She horsing like crazy yooo

I am in my 50s now, but first started having balance problems as a teenager. (In the mid-80s) Would fall going downhill or running trying to play soccer. Didn’t use anything to help until 30s used a cane for many years, then forearm crutches, but couldn’t break fall very well. Now been in wheelchair for a decade. I wasn’t diagnosed with FMD until 2018 and also have progressive myoclonic epilepsy which affects walking. Nobody has told me no mobility aids. Quality and not injury is more important

I so agree with you, ive been struggling walking for 3 years and had other things found but the spine dr couldn't see why i can't walk. I went to A&E once and got asked who told you to get the rotator and i replied no one i cant walk i keep telling the dr but they don't listen. Even a month before FND was diagnosed was saying to my dad going to need a wheelchair to get to the shops and behind and was totally fed up of doing something small and then being unable to walk the rest of the day. i have a son now and tried mother and baby group last week and couldn't walk for the rest of the day. i have to use a crutch as standard due to a knee problem and elhers/ hyper mobile joints. Use the smart crutch and just one to push the pram with my other hand and last week was the first time someone said wow that must be tough. The standard crutch nearly split my hands in two. Seeing the neuropsychiatrist next week after seeing the Neurologist a couple of weeks ago and ruled out other nerve problems and MS which is nice after the NHS just said your fat and sugar slightly high so its your problem. i was 30kg lighter when i started saying i couldn't walk.

🎶 "Promosm"

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Nice review! I'm considering getting one of the non-parka versions. Right now, I'm using a motorscooter lap apron that works really well, but it's bulky enough that it's tedious to keep it tucked in while I'm actually out moving around a lot.

So glad to see you again..missed your videos.

Waking up at 5am is just BRUTAL in the winter, it's why I'm seriously considering buying this especially as it's on sale. Thank you for the great review ♥️

I have a movement disorder amongst other things. I've had it for 29 years. I can't really walk without my legs severely shaking, jerking and spasming after. I can't tell about it openly. I appreciate your channel.

Hey! Can I ask what to say if I'm told "It only plays into the narrative that you're sick"

I say this as I get myoclonic seizures in my leg arms and face and involuntary head movements/head nodding facial grimacing and I discovered wearing glasses helped calm them down i have mild hyperopia and astigmatism my.

Have your tried wearing glasses to control them , I suggest getting your eyes checked .

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Y’all… I need a group or something. I have FND seizures and am in an area where doctors are fine with saying I have “pseudoseizures”. I’m usually one to access my own resources and am sympathetic to people’s lack of education (you only know what you know), but I am so overwhelmed rn. If anyone here is in the greater Austin, Texas area, WE NEED TO HANG. I like nature, arts and crafts, and LOVE what I’m doing in college rn!

I enjoyed this video.😊 I totally agree with you about educating yourself, because how can you get better if you don’t know what to do? Or rather what not to do? I’ve been trying to find more current research articles, but it seems this has only been approached from a psychological perspective up until roughly 10 years ago. Do you have any articles to recommend for the newest research on possible physical causes?

Nuerologist advised me to look up neutosymptoms, it's a lonely 🤒 illness. I do my own research think I know all I need to about it, people don't understand it.

does the front display gives a lot of light at night or can it be set to very dark ?

Amazing! I’m going to order one of these too! Always good in the UK since we get plenty of rain :) x

I agree with you. I, m having a hard time finding FND hope in the USA . At age 70 and M2F etc. Where can I go in the eastern Atlantic area to get answers.? Thanks be well. Josie

Hi thanks for your ideas on quality of life.. having been diagnosed with FND in 2013 and instantly discharged from neurology at my local hospital I've been doing it alone for 8 years I have a selection of walking sticks crutches and a folding self propelled wheelchair and attempt to get some quality of Life using what I need to at the time. I'm also full time carer for my wife who has severe multiple sclerosis so the challenges are what they are. keep looking for that quality of Life and don't let the FND spoil your spirit..

I was just diagnosed with FND Monday. Been using a wheelchair for the past 3 months as I can't walk without my bottom of my feet or ankles hurting. I can't walk more then a few steps without needing to use my Inhaler or even if I'm doing things that take a lot of energy I'll need to use my inhaler. One of my biggest fears right now is that actually going to physical therapy is going to drain me of what little energy I do have.. Especially when they want to see me twice a week..

I don’t know what to do because my walking is so impaired. I was on the floor not long ago and just stuck. Some days I’m in so much pain from walking down the street and back and the next day, exhausted all because my neuropsychologist has deemed it a ‘safety crutch’ to use a mobility aid. I’ve been trying to do ‘doable daily’ tasks each day but my walking can just be so debilitating. I guess there’s no right or wrong answer of course but it’s like my world has gotten so small already at 21 and I’m so tired of the immense effort to be able to do the absolute basics. I wouldn’t want to go against a professional’s advice (I’ve waited over two years for it) but also, I have no life!

Very nice clothes

Thank you so much I have many of these symptoms & waiting on a neurologist referral. This came to mind again last night (even though it is always there in some form) when I had an episode which leaves me walking with both feet turned in & short arms much like a t rex:( I did think at first that it could be parkinsons due to my age but when other symptoms started i.e. the gait, it has made me wonder. Approximately, 3 years ago I experienced neck spasms about 33 times a day but my gp put it down to my arthritis...hmmm, now I am wondering if all the symptoms I have experienced were the start of neuro issues. I agree it is so frustrating when you lose the words. I was at hospital the other day for an appt for my heart & the receptionist told me 3 times where to go & she may as well have been speaking another language. I could hear the words but couldn't process them to put into the actions...got sent back to her 3 times from different depts until I finally understood:( Take care.x

This video is so helpful for me as someone who is doing their research on the disorder considering its likely that I have it

Thank you SO much again! I feel I can tell some people now and know what to say. You said it so perfectly and beautifully. I would have never been able to know how to say things without your help! ❤️ Also I'm having a rough and scary night with a seizure trying to come on and this came into my recommended videos. 🙏

THANK YOU! ❤️

Thank you for continuing to spread awareness! I am trying to reduce the stigma, spread awareness and open up as well: ruclips.net/video/UIggpB5WjBc/видео.html

Thank you for spreading the awareness! I also happen to have FND. Here is how I explained a bit about it: ruclips.net/video/OVJmcg4HL0g/видео.html

Thank you for sharing your tips! I too have FND and am trying to spread awareness: ruclips.net/video/OVJmcg4HL0g/видео.html

May I ask? Is your FND progressing quickly?

You always seem so incredibly happy, despite your disability. May I ask how do you do it? Your hobbies and horses clearly make you super happy.❤️

What's your cats name? Cute 😍 very interesting to find out how others get a diagnosis.

There's an app now very similar to neurosymptoms.org by the same people.

Oh goodie! A new video ❤️

Enjoyed your video.Very informative. Thanks for sharing your experience

I’m sat in hospital, just been given a diagnosis of FND trying to allow it all to sink in tbh. Thank you for sharing

im in a wheelchair and i looked at this for inspiration but it doesnt look as fun...

I’m so glad to hear someone else with FND talking about this. I’ve gone through the cycle of pt and relearning to walk twice in the past two years. And have had doctors tell me not to use mobility aids because it will harm me in the long term but mobility aids allow me to continue living my life, especially when we have no way to stop my symptoms from coming back.

I also have FND. Thank you for sharing your story! I started recording to upload some videos showing some of my symptoms for awareness as well.

Hi Seen you in the ATP virtual workout Came to check your channel out. I see you handcycle..what kind of handcycle is that?

My doctors told me the don't want me usei g mobility aids because they don't want me to think in disabled. I showed them the ADA definition of disabled and told them under the ADA I'm considered disabled. They didn't get me anything so I am doing my own research now

Hey! I am 19, i get tremors and i have muscle twitching. The thing about my tremors are that they developed gradually unlike in case of FND where you have sudden onset of symptoms. and the thing is my tremors are present all the time like 24x7. I don't have resting tremors neither i have movement tremors these are i would say postural tremors like when i take my hand to a particular position i get tremors but the amplitude of my tremors reduces when i am distracted also all of my MRIs, CT scans and all other test reports are normal. No doctor that i have ever shown my symptoms to was able to give me a proper diagnosis of what i have. Do you think this might be FND? I know you are not a doctor to diagnose me with a situation but just wanted to know that did you also had similar symptoms.

Really amazing video! I apologise I wasn’t fully aware until you popped this video up. You are so engaging and I think this channel will grow and grow! You are amazing!!😀😀😀😀😀

Oh....love this!!