Cures for Rett on the Horizon: RSRT Webinar | August 22, 2024

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  • Опубликовано: 15 сен 2024
  • We're so excited at the amazing turnout for the webinar. Thanks for taking the time to join us and for asking such wonderful questions.
    We updated the Rett community about the genetic medicine programs we are advancing, discussed which programs are relevant for which mutations plus our expectations for clinical trial timelines, and we explained our perspective on the concept of a "CURE" and what it means for our loved ones.
    We have the technologies. The scientists are in place. We have biopharma’s attention. The biggest obstacle is funding. The good news is that we can ALL step up on behalf of our children.
    Don’t wait for others to take action. Be the action!
    Contact Tim Freeman today to get started: tim@rsrt.org
    Rett Global Registry: reverserett.or...
    Roadmap to Cures 2.0: reverserett.or...
    RettGive: rettgive.org/

Комментарии • 9

  • @ellenhowell5852
    @ellenhowell5852 13 дней назад

    Grateful to all of you.

  • @elmich1238
    @elmich1238 17 дней назад +1

    I am deeply grateful for all the work you do in researching a cure for our children. A big Thank you goes especially to Mrs. Coenraads, who is an incredible role model for me and has made all of this possible. We pray every day for a cure and have strong faith that it will come. Warm greetings from Germany.

  • @QuentinDESMAREST
    @QuentinDESMAREST 18 дней назад +1

    Many thanks from France, you are doing an incredible job !

  • @MattyHxC
    @MattyHxC 18 дней назад

    Thank You very much!

  • @erum.malik08
    @erum.malik08 14 дней назад

    Thanks from Pakistan 🇵🇰

  • @fidesciblak513
    @fidesciblak513 14 дней назад

    ❤🙏🏻🔥

  • @yuliagomolska6187
    @yuliagomolska6187 21 день назад +3

    Thank you from the bottom of my heart to Monica and all the people who work tirelessly to make this incredible progress happen!❤❤❤

  • @polambrossi
    @polambrossi 22 дня назад +2

    Thanks so much for uploading this video. ❤

  • @LightYearAway-861
    @LightYearAway-861 20 дней назад +1

    Thank you so much for all the hard work you all are doing. Praying for a cure for all our little angels, hopefully soon. 🙏