After dealing with several (in my opinion - inept) gp doctors for 2 months I finally told one of the dismissive doctors. I know that I have Lupus. The obvious butterfly rash should have warranted tests for this 2 months ago alone. Now can you give me a blood test for ANA, an ENA panel, and anti-dsdna already because I’m sick of this. I’m sorry, I know it’s not my place to tell doctors what I have but I’ve known this for at least a month and continuously explained my symptoms that aligned with this many times hoping you guys would look into it without prompting. But nobody has. I was an arrogant dick and lucky not to just be thrown out by a relatively awkward mild mannered young Asian doctor, but to my delight he agreed. Today came back ANA positive and anti-dsdna positive. Sorry for the story wanted to vent. If you know something is wrong with you, don’t give up when doctors tell you basically not to worry about all your symptoms and you’ll get better
My Ana is speckled 1:160 end My hair is dry Rosacea like skin Cold hands and feet Fatigue sleep issues Dry everywhere inside and out Mouth only dry when waking Told nothing wrong and I’m really getting depressed
Read my comment from today. It could definitely be lupus. I’ve definitely had it for years. Joint pain only just recently started. Frequent infections. Another basic blood test they did showed high red blood cells (it can also show low for lupus but that’s irrelevant). I finally demanded an ANA test and a ENA panel and a anti-Dsdna test (as the ENA test doesn’t do this alone). Doctor came to his senses and agreed and today I was finally diagnosed with lupus, positive Ana and anti-dsdna. Now checking kidney function with a urine test as one of my symptoms is on and off frequent urination at night (like 5-10 times waking from sleep) and occasional frothy urine
Sorry, overlooked the fact you’re already Ana positive. Have an anti-dsdna test if you haven’t already. It’s likely they did a ENA panel, but most of these tests are unlikely to show up if you have lupus, like one or two that only 30% of people with lupus have. You may still be negative for anti-dsdna and have lupus as it’s only in 30-75% of cases.... but still. The fact you’re ANA positive and have these symptoms is strongly indicative alone you likely have an auto-immune disease. My obvious butterfly rash was wrongly attributed to roseacea which I’ve never had, and only came on with a huge flare up. Doctors now agree it’s a butterfly rash and not roseacea... even though it’s not the most common looking butterfly rash rash - still closer to that than roseacea
Male Ana 1:640 homogeneous, slightly elevated antilipid all other blood work perfect. Sm and dsdna neg. But I have malar rash, rashes on body with sun exposure, night sweats and fever for years, tested positive as a child for too much protein in urine, joint pains, neurological symptoms, chest pain, kidney pain, mouth ulcers, etc and still no diagnosis and dr says it’s nothing you are perfectly healthy. Wth!!
I have a rare bridging...mitotic intercellular bridge My ANA is 1:160 Can anyone explain why my bridging is considered abnormal? Is it indicative of disease?
I had 2 different staining patterns first one at 1to 1:160 titer/pattern Homogeneous and a second pattern also at 1:160 was speckled testing was ANA by IFA, HEp, 2000 substrate, with polyarthritis equal on both sides of body, no joint erosions typically seen with rheumatoid disease and with possible kidney disease stage 2/3 and with albumin now being detected is possible inflammatory disease of the kidneys does this look more like late onset lupus than rheumatoid disease, malar rash isn't commonly seen as much in late onset lupus than in early onset lupus any replies would be appreciated thanks.
Could you rule out the vaccines as a major factor contributing to Autoimmunity ?? Can vaccines over activate immune system to the point of confused reaction against body's organs ??
i have this. can i take the covid 19 vaccination? will it mess up my immune system worse then it is now? which vaccine should i take - Pifzer or Sinovac?
Hai, i have ANA 2+mildly positive with titer 1:320 , ANA REFELX ENA positive, were as ds dna , neculesome, histone ,SM , nRNP/sm , RO-52,SS-A,SS-B,SP-100,PML,SCL 70, PMSCL -75 100, RP 11, RP 155,CENP A B ,KU, Mi -2 alpha beta ,Gp 210, PCNA , DFS70 - all test are negative , apla -neg, LA - NEG , ACLA iga,m,g - negative ,ESR- normal wbc normal platelets normal Beta2 igm, iga , igg - negative .
Im studying to become a Medical Laboratory Scientist and am very grateful for this video!
MLT
@@lydiacordero5245 I'm a fetus and I'm studying to be a lab assistant. Thanks!
Thank you for this informative video.
Dismissive/Arrogant, empathy-deficient doctors and other medical staff need to see this video.
After dealing with several (in my opinion - inept) gp doctors for 2 months I finally told one of the dismissive doctors. I know that I have Lupus. The obvious butterfly rash should have warranted tests for this 2 months ago alone. Now can you give me a blood test for ANA, an ENA panel, and anti-dsdna already because I’m sick of this. I’m sorry, I know it’s not my place to tell doctors what I have but I’ve known this for at least a month and continuously explained my symptoms that aligned with this many times hoping you guys would look into it without prompting. But nobody has.
I was an arrogant dick and lucky not to just be thrown out by a relatively awkward mild mannered young Asian doctor, but to my delight he agreed.
Today came back ANA positive and anti-dsdna positive. Sorry for the story wanted to vent.
If you know something is wrong with you, don’t give up when doctors tell you basically not to worry about all your symptoms and you’ll get better
Mixed patterns can be also observed in.. what we can do for diagnosis in this case?
Thanks for these presentations, perfect 👍
My Ana is speckled 1:160 end
My hair is dry
Rosacea like skin
Cold hands and feet
Fatigue sleep issues
Dry everywhere inside and out
Mouth only dry when waking
Told nothing wrong and I’m really getting depressed
Sounds like sjorgens
Read my comment from today.
It could definitely be lupus. I’ve definitely had it for years. Joint pain only just recently started. Frequent infections. Another basic blood test they did showed high red blood cells (it can also show low for lupus but that’s irrelevant).
I finally demanded an ANA test and a ENA panel and a anti-Dsdna test (as the ENA test doesn’t do this alone). Doctor came to his senses and agreed and today I was finally diagnosed with lupus, positive Ana and anti-dsdna.
Now checking kidney function with a urine test as one of my symptoms is on and off frequent urination at night (like 5-10 times waking from sleep) and occasional frothy urine
Sorry, overlooked the fact you’re already Ana positive. Have an anti-dsdna test if you haven’t already. It’s likely they did a ENA panel, but most of these tests are unlikely to show up if you have lupus, like one or two that only 30% of people with lupus have.
You may still be negative for anti-dsdna and have lupus as it’s only in 30-75% of cases.... but still.
The fact you’re ANA positive and have these symptoms is strongly indicative alone you likely have an auto-immune disease.
My obvious butterfly rash was wrongly attributed to roseacea which I’ve never had, and only came on with a huge flare up. Doctors now agree it’s a butterfly rash and not roseacea... even though it’s not the most common looking butterfly rash rash - still closer to that than roseacea
Wish you health & peace my friend!
Male Ana 1:640 homogeneous, slightly elevated antilipid all other blood work perfect. Sm and dsdna neg. But I have malar rash, rashes on body with sun exposure, night sweats and fever for years, tested positive as a child for too much protein in urine, joint pains, neurological symptoms, chest pain, kidney pain, mouth ulcers, etc and still no diagnosis and dr says it’s nothing you are perfectly healthy. Wth!!
FInally found a clear explanation for ANA staining IFA patterns. Thank you!
I have a rare bridging...mitotic intercellular bridge
My ANA is 1:160
Can anyone explain why my bridging is considered abnormal?
Is it indicative of disease?
I had 2 different staining patterns first one at 1to 1:160 titer/pattern Homogeneous and a second pattern also at 1:160 was speckled testing was ANA by IFA, HEp, 2000 substrate, with polyarthritis equal on both sides of body, no joint erosions typically seen with rheumatoid disease and with possible kidney disease stage 2/3 and with albumin now being detected is possible inflammatory disease of the kidneys does this look more like late onset lupus than rheumatoid disease, malar rash isn't commonly seen as much in late onset lupus than in early onset lupus any replies would be appreciated thanks.
Speckled pattern. Is that possible lupus can be misdiagnosed ?
Could you rule out the vaccines as a major factor contributing to Autoimmunity ??
Can vaccines over activate immune system to the point of confused reaction against body's organs ??
Thats a subject no one wants to touch. It is designed to directly illicit an immune response, so that possibility should be considered.
Very informative...
It's so usefull thank you very much indeed👍♥️
dsDNA what illnesses?
SLE
i have this. can i take the covid 19 vaccination? will it mess up my immune system worse then it is now? which vaccine should i take - Pifzer or Sinovac?
None. People with autoimmune diseases cannot take them.
@@RM-qq5rj already taken Sinovac
@@chuaailing99 I hope and pray for the best outcome for you!
None!
Thanks
Did the narrator actually say "nucular?" I know she unbelievably said Mye - oh Clinic! 😳
great
good
Hai, i have ANA 2+mildly positive with titer 1:320 , ANA REFELX ENA positive, were as ds dna , neculesome, histone ,SM , nRNP/sm , RO-52,SS-A,SS-B,SP-100,PML,SCL 70, PMSCL -75 100, RP 11, RP 155,CENP A B ,KU, Mi -2 alpha beta ,Gp 210, PCNA , DFS70 -
all test are negative ,
apla -neg,
LA - NEG ,
ACLA iga,m,g - negative ,ESR- normal
wbc normal
platelets normal
Beta2 igm, iga , igg - negative .
She said "nucular"........