Well that was a new experience! It was so fun to have my sister explaining one of her new medical treatments! Usually I’m the one explaining it to you guys- this time, I get to learn along side you :) Answer this question in the comments... are YOU a medical nerd like me??? Do you like learning about other people’s medical journeys?
The Frey Life yes I am totally a medical nerd! My doctor’s tell me I should write a book because I know so much. Before a feeding tube was a route for me I was fascinated by my friend’s and she would always show me how she checked her balloon and drained her stomach contents into her Ferrell bag... she was always so curious as to why I was so curious... I don’t know I’m weird! 😂
I am such a medical nerd even if its not for me. I love watching this channel just because it puts a smile on my face ever day . I just subscribed not to long ago and im almost done with all of 2017 wow.
The Frey Life yes Mary I like learning about other people‘s medical procedures that may be similar to mine. What really gets my curiosity is the difference in terms for example in Australia Waco subcutaneous sub-cut: for example I had a 14 day sub-cut infusion. For example, we call NPO, Nill by mouth. So just those little differences peek my medical nerdiness curiosity also, I have heard infusions it is regardless whether they were IV0 or sub cut, but I found over here we have some hospitals and help attaches to the syringe can simply run over 30 minutes, or 15 - they have different times for different time periods: I think they meant to be single yes - but I’m not convinced that they threw them out? Dodgy...
The Frey Life oh and a big round of applause for Rachel {i’ll just spell her name the same way as mine is that is my first name).for participating and allowing us to see one of her treatments and how it is done: not expected but very grateful - thank you.
The Frey Life sorry I’ll leave you guys alone now yes but after two weeks of sub-cut infusion does they would have to change the line every day is the skin underneath would grow into a ball type shape of rock hard area - if you were to leave it running in that same place it would not get absorbed by a body. So the needle was changed each day this Wednesday to have this treatment in hospital for five months straight - although those pumps do you, they take time - we were starting to rain out of places where we could put the sub-cut line (five months or six months episode was over 18 years ago and would not happen these days - thank goodness). Have a great day...
😂 “is a blood product” ... “oh this is Gracie” ... “wait we should show Ollie!” ... step step step step ... “oh he’s here! hi Ollie, we’re just filming a video :) it’s ok to chill out” ... step step step ... “so inter globulous” The total normality of this wee bit within the whole conversation has made me laugh so much, I can’t even remember what IG is!! It’s heartwarming to see how much Ollie (and Gracie) are a part of the family and individuals with their own rights and freedoms :) one of the reasons I love following you guys. Keep up the good work!!!
I watched a nurse doing a SCIg and it looked so complicated I was loathe to change from IVIg despite my veins hiding, rolling, and blowing every month. But despite Rachel being nervous your video made it look very manageable. And 15-30 mins a week at home is much more convenient than 4-5hrs at a clinic each month. Thank you.
Can you do a lung transplant Q&A with Rachel? I'm so interested in how lung transplant changes how you care for CF! I'm guessing you dont cough anymore post transplant, but does it feel weird because you're so used to coughing your whole life? Do you still get breathing problems or need to take breathing treatments post transplant? I have so many questions!
Yes, and I would love to hear her account of the transplant process. I know a while ago you linked to a blog your BIL did where he updated what she had to go through in the days after but I would love to hear her point of view as the one having to deal with all that.
I’m a complete medical nerd and I’m a nurse. Love learning and seeing new things. Good job Rachael. It’s really hard sticking needles in yourself. Not only am I a nurse but also on the receiving end too.
I’m a TOTAL medical nerd. Especially about CF because my best friend in college had CF. In those days you were in a hospital room with 3 others (I wonder how many types of lung infections were passed to/from others in those days). And lung transplants weren’t quite an option so the only treatment she had was manual airway clearance. There weren’t vests either. I think at the time I heard that for every year of CF research the life expectancy increased by a year. I have been pretty passionate about CF so I love your vlogs and the opportunity to pray for you. :)
I'm going to be starting my journey with SCIG in a few weeks...these videos are very comforting and fun to watch. Thank you both for sharing. BTW's you two are adorable together...you can really see how much you guys care about each other.
I love when you and your sister are together. The laughter is contagious! Thank you Racheal for allowing us to learn of another way to administer IG and supports what Mary and Peter have said, that every CF patients treatment is different. 😊
Thank you guys for making this video!! My 12 year old is starting the SQIG today after doing IVIG for years. He is a nervous wreck but I got on here and found another one of your videos. We sat down and watched it together and he's already less nervous.
I’m definitely a medical nerd. I love learning about different medical conditions & how different they can be for each person. I love to see a Q & A too because most people assume that if you have a transplant you are all healed.
Thank you so much for this video. My daughter just started the same thing last week. We were doing IVIG at the hospital for 4 months like you do at home. I re posted this for my family and friends to see. The only difference is my 12 year old Lucy needs 3 needles. She does not have CF. but we treat her like she does does all the same treatments like you. She has lung disease. We love your videos we watch them together. ❤️❤️
I love learning and just seeing the different things people have to go through every day dealing with different illnesses. Just seeing the differences between the same chronic illness and how different meds and such are handled is so interesting!
Yes, I am a medical nerd as well. My mother was a surgical nurse, and we grew up with medical and biology books around the house and I have always been fascinated with anything that involves the human body.
I'm so happy I found this video. I am getting IVIG on a monthly basis and I talk to the nurses about Sub-Q IG and they didn't even know what I was talking about. And now I know a whole lot more thanks to this wonderful video I knew opening up and sharing your life with us. The primary reason I wanted to learn about it was if I need to travel and wouldn't be available to go to the infusion site I could do it on my own.
My daughter is 16, shes been doing scig for 4 yrs. She has 4 needles and we uses to do them in her stomach but now she goes into her thighs. She loved watching you both
...Rachel is so sweet...your innocent giggling together & the look of trust between you both is unconditional sibling love. See you tomorrow ~ goodnight xxx
That was very interesting. Thanks for showing us! I do daily injections, my Mom does my every two weeks injections for me, and I do monthly port flushes. I also have to chemo treatments and other intravenous treatments throughout each month. Most all of these things for the rest of my life, but definitely all worth it to keep me alive.
The reason why bubbles don't matter as much with a SQ injection is because it is not going directly into the bloodstream and into the fatty layers of the skin. With an IV it matters because it is directly going into a vein/artery and in the bloodstream so you're running more of the risk for an air embolism. Also, So glad I found your videos! Thanks for being awesome!
Thanks Rachel for sharing this with us! I second the others saying it would be so interesting to hear about how CF has been different for Rachel both before and after her transplant.
Great job, you two!! I have learned so much more about CF since I started watching the Frey Life. It is one thing to read an online article about CF but quite another to follow someone's personal journey with CF in good times and in tough times. God bless ❤️
Thanks for showing us this. It was really interesting. It really helps you see that even ppl with the same condition(s) don’t always undergo the same treatment etc. Im definitely a medical nerd. Anything medical I love to watch documentaries or fictional medical shows. I really enjoy learning things about other ppls conditions. I also find it fascinating wen I talk to ppl who have the same medical conditions&disabillities as I do and see how they manage their care etc. Sending you all loads of hugs from England. 💜🇬🇧
I’m so glad Peter started his Instagram story today because we didn’t get to see him in this blog, LOL! My day is complete!, LOL! Thank you Rachel for sharing this with us I am one of these geeks who loves seeing all things medical related!
This was a very well done and educational video. I love watching different medical ...things. LOL Forgot what I wanted to say. *smh* This was a fun video. It is so interesting that you both have CF and have such different procedures to do. I mean yes she had a lung transplant. That keeps her alive. She still needs to do treatments and medication. So this was like another aspect of CF.
Ditto on the medical nerd. I love to watch and learn, thank you Rachel. You and your sister are very similar in looks, both beautiful young ladies. Take care.
I did sub q in past and was a wimp. I used numbing cream. I hated how the bumps were sore and sting for over 24 hours. I had 4 needles and it took me 1 hour due to the amount of fluid I had.
Hi Mary and Peter! I was wondering if at some point, can you maybe either make a video or carve out some time on a vlog and explain (from your sisters point of view I guess) what it is like for a CF patient after a lung transplant? If not, I understand. Thanks! Love your videos. =)
Love you Mary, hope you guys are still having a blast. I had my mastectomy in Baltimore and was only 19 so I have some good and bad memories of Maryland.
I would love a video not to stay seeing the differences now and over the past five or 10 years but throughout your journey of your two different experiences with the same condition. Along with how your mum and dad manage both your treatment plans which would have often been very different: especially when you are too young to be much help yourself. Also, everybody seems to think (Regardless of the fact that you have told them this Mary - that’s a long transplant does not get rid of CF): I think many people don’t seem to get it (Especially those with very little medical knowledge - which is no detriment to them of course you only need medical knowledge when you need it and at that point you learn what you need to learn). I think it would be great to show people from Rachel’s point of view. How long transplant has changed/improved her life and what she still deals with day today - it really depends if she’s up for it! Plus no pressure - you may not have time this visit, but it’s always something new to can think about. And where is that I think it would be good to show them firstly from riches perspective prior to headline transplant hell see if affected her life and what she had to do differently to what you have to do Mary. secondly the benefits of a long transplant for her (@ this point might be a good time to mention why you’re not looking at that at this point in time Mary). it reminds me of your spleen which people basically said why don’t you just get it taken up. People think that’s this really is an answer for every major medical problem these days and that people don’t have to live the way we do. Obviously we see the way you live to a certain degree - but as I don’t have a RUclips channel, people have no clue what I go through which is completely different to you guys… anyway, up to you and your family. Good to see you Rachel, I’m sure you’re eyou’re enjoying
Rachel Christensen Mary and Peter have said many times that her parents and Rachel are all pretty private and don’t enjoy being on the vlog very much. It’s been asked about them sharing and Mary has also said that it would be overly emotional for them.
Hi Amanda, to be honest I thought exactly what you said was the case is - and I respect their privacy and. In many remarks when it comes to Mary’s nephew (for example a little while ago she mentioned a beautiful afternoon with the family out in the backyard on the blanket - and that she didn’t VLOG)! she in fact included in the comments that her and Peter decided to vlog their lives : their families didn’t! Apart from the fact that I greatly respect that - I did mention in a comment to Mary that I hope she got some good pictures or videos for her and Peter especially of her nephew from that beautiful afternoon on the blanket for example. In other words just because she gets great pictures of its does not mean they need to be said if they are of people who pass of her family yes a big part of that family but not part of her VLOG! I actually think it’s great that she has almost a very clear line. I guess the line got a little bit fuzzy when Rachel offered to show her she does subcut IVIG; But it’s not like I was expecting or had any expectations of Rachel to do any more videos. That’s her choice and. I’m sure if they keep going over the next few years we will see see her pop in and out of the background if not in the main frame. That’s fine. Sorry, I didn’t mean to get carried away and my medical geekeness kind of to hold! if I’m going to be truly honest, I thought it was just something I was throwing out there and that no one would actually get a chance to read. No offence to Pete Marry, but they get so many comments each day, there is no only had if if you Couplin hundred comments before I make mine... so Amanda I think you in responding to my comment! You’ve gotta love Pete Mary and especially their love for each other” only don’t you. I just love it when Pete and Mary break up into a loving dance in some random place does to me that equals true love...
All I can say is wow an that's a great wow I have t2d I come across your you tube while looks up the needless cgm an I will be following you from now on
I want those patches too now! I always use boring normal ones ... I recently changed my medications and I'm doing sub-q too now, every 2 weeks, the medicine hurts like hell but the one I used before was way worse, I was vomiting for 30 minutes/1 hour after the injection and it was to be done daily
It looks very similar to how my insulin pump works- I rememer being super nervous the first time I had to insert it, but it's no big deal anymore. Really interesting to see!
I do subcutaneous immunoglobulin too following my heart transplant.Much prefer it to IVIG as it is much more flexible! Well done Rachael, you're doing a fab job! Xxxx
First of all.... hi, I'm a medical nerd! Also, this sounds a lot like my insulin pump. When I start a bolus it stings sometimes, and holding it helps, and the infusion set needles feel the same as you explained! I relate to this completely. Other than, obviously, it stays on my body all the time lol!
my son is going to try the sub q next and see if it works better if not then back to regular ivig but get the port we were trying not to get the port cause he is so easy getting infections left n right , thanks for this video im nervous putting those needles in him
I'm a total medical nerd also! It's partly of what my brothers went through and I'm fascinated by medical things e.t.c. That was very interesting. I just heard of someone else might start to get ig that way last night and I was kinda curious how that worked. Now I have a better picture.
I used to do that. I switched to IVIG because it hurt so bad. I used a smaller blue pump though. My mother uses that pump and she says it is terrible because you cannot regulate the speed or something. I refused to use it because it looked so old and I liked my pump. That stuff hurts through subque! I swear when I started off when I was 6, it did not hurt then it slowly got worse and worse and worse to the point where I just stopped doing it even though obviously that was extremely dangerous. I will say though beware. If you are small and/or boney then after a while you might have to switch due to scare tissue build up. I had two experiances where my skin would no longer hold the medication so I started leaking IGG out. Mind you I alternated and that in itself was hard because 4'11" and boney I ran out quickly. IV any time over subque. I know people have different experiances but your sister might want to watch out. I took it for 6 years via subque until I my body and me would no longer allow. Keeping in mind I take about as much as you do so more than her although I do have a high pain tolerance. I know this sounds selfish but I prefer being at St. Judes with nurses checking me every 15 minutes, food, you know. I used to go for three hours. I did not go that slow but you know, medication amount. My medication would throb though so. And it leaked after.
How does having a sister with CF affect you? I’m just curious because I know when your videos you talk about that the big thing is with CF patients they can infect each other. I’ve heard that once somebody has a lung transplant the respiratory side of CF isn’t an issue as much and so I guess the risk of infection isn’t as high. Growing up did you guys have to do anything different because of you both having CF?
Yea like Chloe said they carry pretty much the same bacteria since they grew up together and now that her sister has had the transplant I don’t think it’s as much of a concern
Joy Platt since they grew together they were exposed to each others bacteria and both have the same strain so they don’t effect eachother. Now if Mary were to meet another CF patient in a hospital they’d have to keep x amount of space between them and protective barriers (mask or other) to prevent exposure.
![Felix "Unfair" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/Oswujxm2Ag0/mqdefault.jpg)
Well that was a new experience! It was so fun to have my sister explaining one of her new medical treatments! Usually I’m the one explaining it to you guys- this time, I get to learn along side you :) Answer this question in the comments... are YOU a medical nerd like me??? Do you like learning about other people’s medical journeys?
The Frey Life yes I am totally a medical nerd! My doctor’s tell me I should write a book because I know so much. Before a feeding tube was a route for me I was fascinated by my friend’s and she would always show me how she checked her balloon and drained her stomach contents into her Ferrell bag... she was always so curious as to why I was so curious... I don’t know I’m weird! 😂
I am such a medical nerd even if its not for me. I love watching this channel just because it puts a smile on my face ever day . I just subscribed not to long ago and im almost done with all of 2017 wow.
The Frey Life yes Mary I like learning about other people‘s medical procedures that may be similar to mine. What really gets my curiosity is the difference in terms for example in Australia Waco subcutaneous sub-cut: for example I had a 14 day sub-cut infusion. For example, we call NPO, Nill by mouth. So just those little differences peek my medical nerdiness curiosity also, I have heard infusions it is regardless whether they were IV0 or sub cut, but I found over here we have some hospitals and help attaches to the syringe can simply run over 30 minutes, or 15 - they have different times for different time periods: I think they meant to be single yes - but I’m not convinced that they threw them out? Dodgy...
The Frey Life oh and a big round of applause for Rachel {i’ll just spell her name the same way as mine is that is my first name).for participating and allowing us to see one of her treatments and how it is done: not expected but very grateful - thank you.
The Frey Life sorry I’ll leave you guys alone now yes but after two weeks of sub-cut infusion does they would have to change the line every day is the skin underneath would grow into a ball type shape of rock hard area - if you were to leave it running in that same place it would not get absorbed by a body. So the needle was changed each day this Wednesday to have this treatment in hospital for five months straight - although those pumps do you, they take time - we were starting to rain out of places where we could put the sub-cut line (five months or six months episode was over 18 years ago and would not happen these days - thank goodness). Have a great day...
😂 “is a blood product” ... “oh this is Gracie” ... “wait we should show Ollie!” ... step step step step ... “oh he’s here! hi Ollie, we’re just filming a video :) it’s ok to chill out” ... step step step ... “so inter globulous”
The total normality of this wee bit within the whole conversation has made me laugh so much, I can’t even remember what IG is!! It’s heartwarming to see how much Ollie (and Gracie) are a part of the family and individuals with their own rights and freedoms :) one of the reasons I love following you guys.
Keep up the good work!!!
I said the same thing the other day when Mary was explaining something and Peter in the background held up a mug "Is this microwave safe?" "Yes."
I watched a nurse doing a SCIg and it looked so complicated I was loathe to change from IVIg despite my veins hiding, rolling, and blowing every month. But despite Rachel being nervous your video made it look very manageable. And 15-30 mins a week at home is much more convenient than 4-5hrs at a clinic each month. Thank you.
Can you do a lung transplant Q&A with Rachel? I'm so interested in how lung transplant changes how you care for CF! I'm guessing you dont cough anymore post transplant, but does it feel weird because you're so used to coughing your whole life? Do you still get breathing problems or need to take breathing treatments post transplant? I have so many questions!
モリーMolly those are really interesting questions, I would like to know that too.
I'd like to know too 😁
Yes, and I would love to hear her account of the transplant process. I know a while ago you linked to a blog your BIL did where he updated what she had to go through in the days after but I would love to hear her point of view as the one having to deal with all that.
Yes I want an updated one! She has an old one but that has been a couple of years
モリーMolly I’m guessing this probably won’t happen. They have said many times that Rachel is very private and doesn’t really like being on the vlog.
I’m a complete medical nerd and I’m a nurse. Love learning and seeing new things. Good job Rachael. It’s really hard sticking needles in yourself. Not only am I a nurse but also on the receiving end too.
I’m a TOTAL medical nerd. Especially about CF because my best friend in college had CF. In those days you were in a hospital room with 3 others (I wonder how many types of lung infections were passed to/from others in those days). And lung transplants weren’t quite an option so the only treatment she had was manual airway clearance. There weren’t vests either. I think at the time I heard that for every year of CF research the life expectancy increased by a year. I have been pretty passionate about CF so I love your vlogs and the opportunity to pray for you. :)
I'm going to be starting my journey with SCIG in a few weeks...these videos are very comforting and fun to watch. Thank you both for sharing. BTW's you two are adorable together...you can really see how much you guys care about each other.
Thumbs up to your Mom. She is so thoughtful. Always doing things to make you feel good. Rachel looks and sounds just like her.
Your sister is such a calm presence. I'm glad we got to meet her.
I love when you and your sister are together. The laughter is contagious! Thank you Racheal for allowing us to learn of another way to administer IG and supports what Mary and Peter have said, that every CF patients treatment is different. 😊
Thank you guys for making this video!! My 12 year old is starting the SQIG today after doing IVIG for years. He is a nervous wreck but I got on here and found another one of your videos. We sat down and watched it together and he's already less nervous.
whats in it, its it antibiotics?
Yeh, so glad to see Rachel doing well and thriving!!
I’m definitely a medical nerd. I love learning about different medical conditions & how different they can be for each person.
I love to see a Q & A too because most people assume that if you have a transplant you are all healed.
Mystery Girl me too. It is fascinating the different types of diseases and treatments
Thank you so much for this video. My daughter just started the same thing last week. We were doing IVIG at the hospital for 4 months like you do at home. I re posted this for my family and friends to see. The only difference is my 12 year old Lucy needs 3 needles. She does not have CF. but we treat her like she does does all the same treatments like you. She has lung disease. We love your videos we watch them together. ❤️❤️
yup, medical nerd here. I understand the hesitancy of anticipation. That was very interesting.
I love learning and just seeing the different things people have to go through every day dealing with different illnesses. Just seeing the differences between the same chronic illness and how different meds and such are handled is so interesting!
I love seeing you both with each of your families. It really makes my heart warm!
Yes, I am a medical nerd as well. My mother was a surgical nurse, and we grew up with medical and biology books around the house and I have always been fascinated with anything that involves the human body.
I think it is great because you both can support each other. You have always known the ups and downs that each are going thru.
I'm so happy I found this video. I am getting IVIG on a monthly basis and I talk to the nurses about Sub-Q IG and they didn't even know what I was talking about. And now I know a whole lot more thanks to this wonderful video I knew opening up and sharing your life with us. The primary reason I wanted to learn about it was if I need to travel and wouldn't be available to go to the infusion site I could do it on my own.
Thank you for being so uplifting and positive about your experience.
My daughter is 16, shes been doing scig for 4 yrs. She has 4 needles and we uses to do them in her stomach but now she goes into her thighs. She loved watching you both
You are the most happy and nice person I have ever met well not met but seen even with all the struggles you still are so positive and nice 💗💗
After 14 years on IVIg I am swapping to SCIg and this video was super helpful!! Thank you for sharing xx
Thank you so much to Rachel for showings all how SCIG works xxxxxxx
Thanks for filming this! Super interesting to watch!
Im a nurse so I just find all of this self medical care super interesting. You guys do such a great job. I wish all my clients were so on top of it.
Rachel looks like your mom. I hope you guys are doing well and enjoying your vacation
Awesome grate to Finley meeting your sister have your family on more!👍
Thanks Rachel for letting observe and further our medical knowledge!!
I’m 15 and a very big medical nerd. I love watching these kinds of videos
We love Rachel! So much fun when you are together.
Rachel sounds just like your mom! Same voice. Amazing. Good job Rachel.
...Rachel is so sweet...your innocent giggling together & the look of trust between you both is unconditional sibling love.
See you tomorrow ~ goodnight xxx
That was very interesting. Thanks for showing us! I do daily injections, my Mom does my every two weeks injections for me, and I do monthly port flushes. I also have to chemo treatments and other intravenous treatments throughout each month. Most all of these things for the rest of my life, but definitely all worth it to keep me alive.
Rachael's You Are My Sunshine banner goes with your "Good Morning Sunshine" mugs. :)
The word is craft..she is perfecting her craft
I am going to be starting sud Q soon. Your video has helped not to be apprehensive. Thank you both.
Congrats on your transplant. My granddaughter is almost 1 year transplant. Nice to see a new take on CF.
The reason why bubbles don't matter as much with a SQ injection is because it is not going directly into the bloodstream and into the fatty layers of the skin. With an IV it matters because it is directly going into a vein/artery and in the bloodstream so you're running more of the risk for an air embolism. Also, So glad I found your videos! Thanks for being awesome!
Thanks Rachel for sharing this with us! I second the others saying it would be so interesting to hear about how CF has been different for Rachel both before and after her transplant.
Rachael, you're a good sport! Me and the cameraman gave you a big thumbs up!!
Great job, you two!! I have learned so much more about CF since I started watching the Frey Life. It is one thing to read an online article about CF but quite another to follow someone's personal journey with CF in good times and in tough times. God bless ❤️
I love how excited Mary gets about medical stuff!
It's nice to see more of your family!
I would love to have had a sister . Thank you Rachael ☺️ . Recently discovered your store, thank you for all the support you give to great causes.
Thanks for showing us this. It was really interesting. It really helps you see that even ppl with the same condition(s) don’t always undergo the same treatment etc. Im definitely a medical nerd. Anything medical I love to watch documentaries or fictional medical shows. I really enjoy learning things about other ppls conditions. I also find it fascinating wen I talk to ppl who have the same medical conditions&disabillities as I do and see how they manage their care etc. Sending you all loads of hugs from England. 💜🇬🇧
I’m so glad Peter started his Instagram story today because we didn’t get to see him in this blog, LOL! My day is complete!, LOL! Thank you Rachel for sharing this with us I am one of these geeks who loves seeing all things medical related!
She's so cute....love watching you two together!!
This was a very well done and educational video. I love watching different medical ...things. LOL Forgot what I wanted to say. *smh* This was a fun video. It is so interesting that you both have CF and have such different procedures to do. I mean yes she had a lung transplant. That keeps her alive. She still needs to do treatments and medication. So this was like another aspect of CF.
Ditto on the medical nerd. I love to watch and learn, thank you Rachel. You and your sister are very similar in looks, both beautiful young ladies. Take care.
That was interesting to me even as nurse since I don't see this treatment. Especially since it's diy home treatment. Pretty awesone!
Thank you Rachel for your help in another teachable moment!
What a great experience! Thank you, Rachel!
I did sub q in past and was a wimp. I used numbing cream. I hated how the bumps were sore and sting for over 24 hours. I had 4 needles and it took me 1 hour due to the amount of fluid I had.
Yes, I think I am a medical nerd... never really thought of it but now that you mention it, yeah I am!
I love Rachel. Hope she is doing great and having fun with her baby.
God bless both of you
Enjoyed seeing your beautiful sister, Mary!
HUGE medical nurd over here. You guys are amazing
Hi Mary and Peter! I was wondering if at some point, can you maybe either make a video or carve out some time on a vlog and explain (from your sisters point of view I guess) what it is like for a CF patient after a lung transplant? If not, I understand. Thanks! Love your videos. =)
Truly Kristan they have said before that Rachel is very private and doesn’t really like being on the vlog.
Thank you Rachel for sharing with us! Great job!
I read a book about this it was a comic and then you guys pop up so I started to watch you guys
Your laugh makes me so happy!
Medical nerd alert over here!!! Thanks for sharing Rachel!!! You guys are so awesome in showing all of your medical accoutrements ♥️😘🤟🏻
Both of yall are amazing thanks for sharing your lives with us
Love you Mary, hope you guys are still having a blast. I had my mastectomy in Baltimore and was only 19 so I have some good and bad memories of Maryland.
I love medical stuff. Learning as much as i can! Im such a medical nerd too!!!!!! I love the family fur babies!!!!
that was so cool to get to see! thank you Rachel!
my little sister has cf aswell this is gonna help me c how cystic fiberosis medication works love ur vids
Thank you for sharing! You two are so sweet together!
I love you guys so much!!! ❤️❤️❤️ Such an inspiration to watch your life every day! Thanks so much for sharing your journey!! ❤️❤️❤️
I would love a video not to stay seeing the differences now and over the past five or 10 years but throughout your journey of your two different experiences with the same condition. Along with how your mum and dad manage both your treatment plans which would have often been very different: especially when you are too young to be much help yourself. Also, everybody seems to think (Regardless of the fact that you have told them this Mary - that’s a long transplant does not get rid of CF): I think many people don’t seem to get it (Especially those with very little medical knowledge - which is no detriment to them of course you only need medical knowledge when you need it and at that point you learn what you need to learn). I think it would be great to show people from Rachel’s point of view. How long transplant has changed/improved her life and what she still deals with day today - it really depends if she’s up for it! Plus no pressure - you may not have time this visit, but it’s always something new to can think about. And where is that I think it would be good to show them firstly from riches perspective prior to headline transplant hell see if affected her life and what she had to do differently to what you have to do Mary. secondly the benefits of a long transplant for her (@ this point might be a good time to mention why you’re not looking at that at this point in time Mary). it reminds me of your spleen which people basically said why don’t you just get it taken up. People think that’s this really is an answer for every major medical problem these days and that people don’t have to live the way we do. Obviously we see the way you live to a certain degree - but as I don’t have a RUclips channel, people have no clue what I go through which is completely different to you guys… anyway, up to you and your family. Good to see you Rachel, I’m sure you’re eyou’re enjoying
Rachel Christensen Mary and Peter have said many times that her parents and Rachel are all pretty private and don’t enjoy being on the vlog very much. It’s been asked about them sharing and Mary has also said that it would be overly emotional for them.
Hi Amanda, to be honest I thought exactly what you said was the case is - and I respect their privacy and. In many remarks when it comes to Mary’s nephew (for example a little while ago she mentioned a beautiful afternoon with the family out in the backyard on the blanket - and that she didn’t VLOG)! she in fact included in the comments that her and Peter decided to vlog their lives : their families didn’t! Apart from the fact that I greatly respect that - I did mention in a comment to Mary that I hope she got some good pictures or videos for her and Peter especially of her nephew from that beautiful afternoon on the blanket for example. In other words just because she gets great pictures of its does not mean they need to be said if they are of people who pass of her family yes a big part of that family but not part of her VLOG! I actually think it’s great that she has almost a very clear line. I guess the line got a little bit fuzzy when Rachel offered to show her she does subcut IVIG; But it’s not like I was expecting or had any expectations of Rachel to do any more videos. That’s her choice and. I’m sure if they keep going over the next few years we will see see her pop in and out of the background if not in the main frame. That’s fine. Sorry, I didn’t mean to get carried away and my medical geekeness kind of to hold! if I’m going to be truly honest, I thought it was just something I was throwing out there and that no one would actually get a chance to read. No offence to Pete Marry, but they get so many comments each day, there is no only had if if you Couplin hundred comments before I make mine... so Amanda I think you in responding to my comment! You’ve gotta love Pete Mary and especially their love for each other” only don’t you. I just love it when Pete and Mary break up into a loving dance in some random place does to me that equals true love...
All I can say is wow an that's a great wow I have t2d I come across your you tube while looks up the needless cgm an I will be following you from now on
This was so interesting! Fellow medical nerd here haha. Your sister is such a wonderful success story!
I want those patches too now! I always use boring normal ones ... I recently changed my medications and I'm doing sub-q too now, every 2 weeks, the medicine hurts like hell but the one I used before was way worse, I was vomiting for 30 minutes/1 hour after the injection and it was to be done daily
I loved this! You should do more videos with your sister if she is ok with it
Thank you Rachel for sharing with us. We are always interested in learning all medical procedures that you do for CF. 👍🏽😉
It looks very similar to how my insulin pump works- I rememer being super nervous the first time I had to insert it, but it's no big deal anymore. Really interesting to see!
I do subcutaneous immunoglobulin too following my heart transplant.Much prefer it to IVIG as it is much more flexible! Well done Rachael, you're doing a fab job! Xxxx
I heard about CF from a Lurlene McDaniel novel and I jumped at this vlog. Medical nerds fo life!
First of all.... hi, I'm a medical nerd! Also, this sounds a lot like my insulin pump. When I start a bolus it stings sometimes, and holding it helps, and the infusion set needles feel the same as you explained! I relate to this completely. Other than, obviously, it stays on my body all the time lol!
my son is going to try the sub q next and see if it works better if not then back to regular ivig but get the port we were trying not to get the port cause he is so easy getting infections left n right , thanks for this video im nervous putting those needles in him
Hi guys,I also do SCIG too! I have a bone marrow disease that wiped out my immun system.
I do SUBQ too!!! I love this video!! Go girl!! Mine takes 2-3 hours once a week!
This makes me miss my sissy! It’s so strange having her not live at home anymore
Your sister is really pretty. Thanks for sharing.
I'm a total medical nerd also! It's partly of what my brothers went through and I'm fascinated by medical things e.t.c. That was very interesting. I just heard of someone else might start to get ig that way last night and I was kinda curious how that worked. Now I have a better picture.
hey have you guys done a video on Rachel's adoption story on her son? if you havent can you.
Thanks for sharing that, Rachel! :D x
Your sister should be a RUclipsr I would totally subscribe
Proud medical nerd! Thanks, Rachel!
I'm wondering how Rachel is doing since her lung transplant? Is she still doing ok?
I used to do that. I switched to IVIG because it hurt so bad. I used a smaller blue pump though. My mother uses that pump and she says it is terrible because you cannot regulate the speed or something. I refused to use it because it looked so old and I liked my pump. That stuff hurts through subque! I swear when I started off when I was 6, it did not hurt then it slowly got worse and worse and worse to the point where I just stopped doing it even though obviously that was extremely dangerous. I will say though beware. If you are small and/or boney then after a while you might have to switch due to scare tissue build up. I had two experiances where my skin would no longer hold the medication so I started leaking IGG out. Mind you I alternated and that in itself was hard because 4'11" and boney I ran out quickly. IV any time over subque. I know people have different experiances but your sister might want to watch out. I took it for 6 years via subque until I my body and me would no longer allow. Keeping in mind I take about as much as you do so more than her although I do have a high pain tolerance. I know this sounds selfish but I prefer being at St. Judes with nurses checking me every 15 minutes, food, you know. I used to go for three hours. I did not go that slow but you know, medication amount. My medication would throb though so. And it leaked after.
I love learning about other people’s medical journeys. When can we see Wesley?
rae1957tn if you look at her sisters instagram there’s pictures of him on there
Hi I know your sister wen I was little she was my ballet teacher tell her I miss her
This is so cool!!
But why is the tubing that long? I mean that only elongates the process of getting the IG in right?
How does having a sister with CF affect you?
I’m just curious because I know when your videos you talk about that the big thing is with CF patients they can infect each other.
I’ve heard that once somebody has a lung transplant the respiratory side of CF isn’t an issue as much and so I guess the risk of infection isn’t as high.
Growing up did you guys have to do anything different because of you both having CF?
Joy Platt living together they would have the majority of the same bacteria so wouldn't affect each other.
Yea like Chloe said they carry pretty much the same bacteria since they grew up together and now that her sister has had the transplant I don’t think it’s as much of a concern
alaynamiranda but wouldn't it be different now as they live and get treated in very different surroundings?
Aveska A her sister has had a lung transplant so it's not that bad anyway
Joy Platt since they grew together they were exposed to each others bacteria and both have the same strain so they don’t effect eachother.
Now if Mary were to meet another CF patient in a hospital they’d have to keep x amount of space between them and protective barriers (mask or other) to prevent exposure.
my Infusion nurse actually told me NOT to fan the site after cleaning because of the germs in the air, let it dry on its own.
Did anyone notice Gracie watching the Rachel after the 15minutes was up?! So so cute :)
Rachel looks so nervous