POTS Must Haves | My Favorites for Dysautonomia
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- Опубликовано: 24 ноя 2024
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Hello Friends! It's Aimee Esther here! I am a stay at home mama to a sweet baby girl, and wife to an amazing husband. I also have several chronic illnesses (see below). I am passionate about sharing my story to help those suffering like I do. I have a degree in health education and I am certified in nutrition, chronic disease, and health promotion.
Today I’d like to share you with you my POTS must haves. These are the products that I use every day. **This video contains affiliate links, which means that if you click on one of the products links, I’ll receive a small commission.**
Here are my favorite POTS products:
Water Bottle: amzn.to/2OnouWm
Electrolytes: amzn.to/2LNt7XQ
Vitamin C: amzn.to/2Oqf3ph \
Neck Cold Pack: amzn.to/30YYMsA
COMPRESSION SOCKS:
Open Toes: amzn.to/2SYuzYd OR www.jobststock...
Exercise: amzn.to/2SN9ZK5
Full Body: amzn.to/2STA4an
The Dysautonomia Project: amzn.to/2SVkrPS
Dysautonomia International: www.dysautonomi...
Fan: amzn.to/2LN0JVF
Planner: amzn.to/2SPqXrb
Sunglasses: amzn.to/30X6Daa
Shower Chair: amzn.to/2YvpLuq
Fitbit: amzn.to/2MqmrhR
Dry Shampoo: amzn.to/314W3OC
Wedge Pillow: amzn.to/32U8H4J
Body Pillow: amzn.to/3178V6z
Weighted Blanket: amzn.to/32YgQVH
For more info on my chronic illnesses check out the links below!
POTS (Postural Orthostatic Tachycardia Syndrome)/ Dysautonomia www.dysautonomi...
Fibromyalgia www.mayoclinic...
CFS (Chronic Fatigue Syndrome) medlineplus.go...
SIBO (Small Intestine Bacteria Overgrowth) www.ncbi.nlm.n...
IBS (Irritable Bowel Syndrome) www.mayoclinic...
Leaky Gut Syndrome www.health.har...
Chronic Migraines www.migrainetr...
PCOS (Polycystic Ovarian Syndrome) www.mayoclinic...
Endometriosis www.mayoclinic...
Follow along on Instagram / aimee_esther
SHOP my activewear line: www.etsy.com/s...
BUSINESS INQUIRIES: aimeeestherblog@gmail.com
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So I'm being tested for pots right now, and for most of my life I've had EXTREME sensitivity to light. Like i had to wear sunglasses indoors. This blew my mind to hear this!
My service dog! RSD is my hardest condition, POTS second the others less so. For the winter months I pass out multiple times a day no matter what I do, but at least it’s not pain like RSD, so I whine, but deal with it. But that’s a lot, so I found an answer in a service dog! Baron can smell it coming and warn me, if I go down he lays down after lifting my head up and licks/boops me to wake up. He helps me steady as I stand and helps pull and guide the grocery cart since I have to walk with assistance. Service dogs can be life changing in a very good way! I wouldn’t want to live alone without one, I hope I never have to. Highly recommend!🐾
I can’t thank you enough for all the suggestions on how to cope with POTS. I was recently diagnosed with this but my cardiologist only suggested compression socks and stay hydrated. I do have an extreme sensitivity to light and must wear sunglasses in the house. I have fainted into the poor Dominos delivery guy’s arms not once but three times now! When I get up to answer the door and it’s sunny outside, I drop like a rock! I also have lost at least 2/3 of my hair in the last six months. I find this is a debilitating disease and don’t want to chance falling outside.
Good! So do glad this helps!!! Doctors arent very helpful with POTS in my opinion! Hope some of these ideas helps!!! I also just got an adjustable bed so i can put my head and feet up when i sleep. LIFE CHANGING!!!
Is hair loss related to POTS?
@@avocadotoast0113 Although I haven't heard of a direct connection between POTS and hair loss, beta blockers (a common first-line treatment for POTS) is known to cause hair loss as a side effect. There could be underlying health issues which can cause both POTS and hair loss, so it's possible there could be a connection there.
I hate the sun too! 🦇
Pupils and POTS! My naturopath thought I had adrenal exhaustion 20 years ago. She put me on rhodiola. Thank you! Showers have been exhausting me for years. Sweating every time I do my hair. I am new to POTS. Thank you
My mom got me a weighted blanket because I get more anxious at night. And now I’m addicted to it, I can’t fall asleep without it! And it’s great because I keep my room really cold and then have my weighted blanket which keeps really warm so it’s very easy to adjust temperature
wait pots can make your pupils dilate?? that’s explains so much for me!!!
Omg hii! I’m an army also with pots! I’ve never met an army online who deals with this illness before. I hope you are well!
@@zozybb I also have pots so hello there :)
@@elisei.c.4079 Ahh hello! Are you an army too?😋🙋♀️
I didn't know either
Yes, the autonomic nervous system controls when your pupils react to light. With dysautonomia, your pupils have trouble reacting right, with them staying big when they should be small and visa versa depending on how it effects you. Mine stay big and let in too much light, especially in low light leading to my retinas getting the images burned into them, the same as when a normal person looks at the sun. Using 'Dark mode' on devices is bad as the bright white text against black seems to make the images burn into my eyes more.
Finally someone who understands🎉I spend life passing out either on couch or bed!
binge watching your videos every night is the current highlight of my chronic illness life, I swear
So glad you like them!
If you want more I do live calls 2-3 times a week. Come join my online community! Here's a free trial : aimeeesther.podia.com/community/114514/monthly/buy
Just had my first POTS flare. I knew EDS and POTS are often seen together so I wasn't surprised, but your videos have been super informative. Even as a medical provider myself, so much of the literature doesn't think about the day to day ways to help keep symptoms in check. Thank you so so much!!
Sorry you have that. POTS was the first sign that I had EDS. Hoping that you don't have a lot of the other things that can pop up with EDS.
Thanks Aimee. I have Pots. I had the tilt table test and it was inconclusive but the symptoms show I have Pots. I carry water and salt. I used to pass out or feel faint when I was a teacher which happened to you. However, I don’t have all the other conditions that you have except Fibromyalgia. I have learned so much from you which will help me. I will swim and do my elliptical even if it raises my heart rate. I only do 28 minutes 5 times a week. I do abs and weights. I will get the socks. I will talk to my doctor. She is awesome. Oh, I even learned from you something to help my sister who may have Sibo. God bless you. You are in my prayers.
Chilipad for your bed. Or the 8 Sleep thingie. It’s amazing how much it helps. I also got a separate window ac unit for my bedroom. So I can chill my bedroom down w/o having to run the whole house central unit. (I haven’t been diagnosed w/ POTS, just fibro along w/ a-few other things But POTS fits me almost to a T)
I was diagnosed with post covid pots in 2021 this will be my fourth year with pots and I think I’ve gotten a handle on things. I used to freak out when I felt lightheaded and made it worse, now I know what to do: drink salt and water! My cardiologist prescribed Metoprolol to control my heart rate and blood pressure and it helps a lot in the winter. During the summer I get the opposite where I need to decrease my dosage and increase my salt and water. Something simple as iced water will help a lot it will bring your blood pressure back up. I just saw a few of your videos and it helped me a lot now I can prepare for this years summer heat! Thank you!! I hope you do well 🙏
Temperature intolerance, not just heat. I suffer from cold mostly.
Also, salt is depending on the type of PoTs you have. Too many PoTs youtubers keep giving this salt advice, & it can be really dangerous for some PoTs sufferers
Yeah, I have hyperadrenergic POTS related to my Ehlers Danlos syndrome, so the best thing for me are medications like Clonidine or Guanfacine that dial that back by reducing the amount of norepinephrine in circulation. A bit of salt is mildly helpful, but increasing my blood pressure too high is super dangerous for me - EDS carries more risk for aneurysms, aortic root dissection, and other cardiovascular issues.
i found a nice shower stool at target its a spa stool and looks like its just a little stool. has no resemblance to the old people chairs that we associate some older folks with , it works well just if bigger you may want a different one because it is a bit on the mini smaller side but good if dont want to take up alot of room in bathroom
Love it!
Really important for me is to get enough sleep, therefore the room has to be as dark as possible to make sure my hormone system is producing melatonine.
I enjoy re-lyte electrolytes and Rejuva compression socks. They are stylish! I didn't know POTS can make your pupils dilate either! Same thing happens to me - my husband goes outside without sunglasses and I, on the other hand, react like a vampire. lol!
I'm super curious who else has digestion issues (beyond the normal) with their POTS? I have mild POTS compared to most, but I also have a doctor diagnosed Schatzki's ring, hiatal hernia, GERD, and IBS. I also *think* I may have SIBO and/or leaky gut. I'm looking into it. I also have lots of non-food allergies.
I have digestive motility issues with my POTS, due to having hypermobile type Ehlers Danlos syndrome. Thankfully, Mestinon can treat both POTS and digestive motility issues, due to its stimulation of the vagus nerve. Do you happen to have hyperflexible joints, or joints that even pop out of joint easily? EDS can also cause GERD, hernias, and can come with odd allergies due to Mast Cell Activation Syndrome (MCAS).
@@Dulcimerist Nope- i dont have those joint issues. I'm currently doing a low FODMAP diet and it's helping somewhat. As a result, I'm questioning even more now if i have SIBO.
I've been struggling with the same thing myself!!! The Gi issues, I scored a 7 for eds(according to my ortho back doctor..) fainting, the brain fog is unreal, digestive motility issues, and major stress and anxiety. I have hyperflexible joints in my arms, wrists, knees, and ankles. My old primary care doctor in Arizona was awful, and just left me with miralax!! My gi doctor did the same. Now im 18 and moving on to find a new doctor @@Dulcimerist
@@Ilyaugusta Hopefully you can see a doctor who knows what EDS is. There are 13 different types of Ehlers Danlos, so it's confusing for most doctors.
Perhaps one of your doctors can try you on a low nightly dose of Guanfacine to see if it helps with the stress and anxiety. It can also treat the type of fainting that's often associated with EDS by reducing the spike in heart rate that causes it. Guanfacine (and its sister drug, Clonidine) are the type of drug that calms the body's "fight or flight" response by signaling the body not to dump so much adrenaline and norepinephrine into circulation. I take nightly Clonidine, since that one can also address sleep issues and has some analgesic properties for pain.
These two are also in the same class as the muscle relaxant Tizanidine, but Clonidine and Guanfacine are primarily for managing blood pressure issues and ADHD. They've gained popularity in treating anxiety disorders, specifically because of how they work directly on the "fight or flight" panic response, and due to carrying less risk than typical anxiety medications.
As far as showers, getting a shower/bath chair super helpful. Insurance will usually cover it. Makes a HUGE difference. You can relax and wash your hair thoroughly and give yourself warm or cool hydrotherapy if you get a detachable shower sprayer. These things make washing your hair and feet etc. safer and easy.
Shower chairs can go in the bathtub and are great. You just have to get it over the negative idea of them. They are worth it.
I have increased my salt intake. Cardiologist suggest Q10. It has helped a lot.
Just ordered some compression socks! Hoping to start feeling better from a nasty flare, always feel worse when it’s the time of the month :( Thank you for your POTS videos❤️
You got this! Let me know how the socks work :)
I loveeeee this video ! It’s nice to see a small channel with useful content, especially with this upcoming school year for me haha ! I do have a question though, recently my POTS has been 10x worse. I did originally think it was because of some sudden anxiety, but it definitely wasn’t since I was having it during calm periods. I’m to nervous to go back to my cardiologist, since I KNOW she will try to prescribe more meds, even though I have tried so many and they do not help at all. Quick example, Flurodine ( I think that’s how it’s spelled), midodrine, and I even have tried electrolyte supplements, but they only help temporarily. Do you have any tips or advice ? I am at a loss currently, and relapsing always makes me depressed. Thank you, you earned a subscriber 💓
Thank you! You just made my day! Thanks for joining my little community! :)
If I were you I would try everything you can on your own before going to a doctor. I agree, they just throw medications on you. I stopped going because it was just so expensive and not helpful for me. I just treat mine myself. OBVIOUSLY, if your home treatments aren't working see a doctor, but no harm in trying it yourself first!
Where do you live?? Because my POTS flares in the summer when it is too hot. If it is hot right now where you are then I would suggest doing your best to stay out of the heat. I bet the anxiety could have triggered it too. For me it's almost like a sunburn, something (anxiety, heat, etc.) triggers a flare up. It doesn't just go away when I get out of the sun, the pain lasts longer. Now I am treating a sunburn instead of just trying to prevent the burn. Does that make sense? Basically your anxiety could have triggered a flare up and now your body is still trying to recover. I have had questions about flare ups a lot lately. This THURSDAY I will post a video about all my tips for overcoming a POTS flare up with more tips. :)
Aimee Esther Thank you ! I live in Maryland, so it’s hot here, and I can’t stand it. It’s humid too, so that makes it 100x worse lol. But yes, I’m definitely going to have to talk to my doctor abt this, hopefully she can start me up on saline for a little while again to keep myself healthy during this heat. I’ll be looking for the video !💓
this next school year (2021-2022) will be my first school year in person with pots does anyone have any suggestions and ideas to help me mines not super bad but still a lot i faint and get dizzy just from sitting up from laying and sometimes even from rolling over in bed anyways anything would help if you have suggestions. thanks xo 😊
@@ellasmith8086 I would definitely see if you can get a 504 plan (if you live in the US). If you don’t live in the US, look up what your rights are as a student with a disability who needs accommodations to be made to help you be successful. Asking your school nurse would be a great idea to see how you could get accommodations made. Other tips; if you have myofascial pain, i really suggest keeping lidocaine patches in ur backpack. And a good, comfy back pack is LIFESAVING when u have books. Keeping a little med pouch is also rly useful. Keep salty snacks, emergency meds, pain creams and patches, electrolyte powders, and stuff like that can help u when u want to stay in class and not have to go to the nurse. And ofc make sure u have a waterbottle and are eating haha. Hope this helps :)
@@valkyrieqt5785 thank you i already have a 504 plan because I have JIA so my mom called the school and we’re gonna have another meeting and thank you for the other advice too.
i love ice packs and various types of comfy blankets and pillows. in general, i make sure items i buy are formally certified both cruelty free and vegan if at all possible.
Great suggestions! My doctor suspects I have pots but we can’t do the testing right now because of COVID-19. I am trying to educate myself as much as possible so I can manage my symptoms and take back control of my life! So glad I found your channel :)
Just treat yourself as if you have pots! Thats what i did while i waited for a diagnosis. The treatment is all natural
They can test you by just checking your blood pressure in the office. Its so simple. Its good your doctor is aware of it. I however have been struggling my whole life and mostly in the past year and my doctor after many trips for each symptom, I ended up writing a letter to convey my health to him, he then referred me to a neurologist. But as I am waiting to see this doctor my symptoms scare me to the ER, they found nothing, so they referred me to a cardiologist who took a simple blood pressure test in 3 postions and boom I have POTS. I cried because it explains a few things I struggle with. Now I have a few more heart tests, my neurologist appointment, and my yearly physical is coming up and I feel I can now have a productive conversation of treating my whole body and not individuals symptoms. I have already called my primary doctor to inform him so he can research it before my physical. Then I scratch my head, why did my Doctor just not think to do this simple test. It was like a freak show of knowing something is wrong, but noone figuring it out. If your doctor wont do it just do it yourself. Its so easy.
They check your pulse and your blood pressure. But the pulse is very important.
Must haves ... all those plus: white/brown noise machine for sleeping. Eye shades & ear plugs for sleeping. Provigal. Iron. Plexus. Going to try my new "Spoonk" ... acupressure mat. Wish me luck!
Thanks for the tips!
I've heard that fit bits elevate your heart rate... have you noticed?
That dry shampoo sounds awesome! Great tips I could use them too! 🌷
I havent noticed that... never heard of it. Ill do some research.
@@Aimee_Esther I heard from a guy who checked heart rates and blood pressure when people would come into the ER and he would have them take their fit bit watches off before getting heart rate and blood pressure.
I had to get a walker with a seat on it for shopping trips. When my heart rate shoots up I have to sit down quickly or I’ll pass out. If I’m going to be doing a lot of shopping I used a motorized chair because if I stand for more than 15 minutes my heart rate will get too high
Thank you for sharing you're amazing!! With such a heavy diagnosis it is great to watch your videos and you have such positive energy. I am a new subscriber and you seriously have so many helpful suggestions. The only thing is I've never heard anyone with POTS who has had it all of their life like I have.
I have a dear friend who has! 🤍
Thank you for your helpful videos. I appreciate you understand what I'm going through! ❤
Such a wealth of information. Thank you. It is so beneficial!
I can’t believe you described everything what happens to me ! 😭😖 I meant to have tilt table test for my faintings last Monday but I also have asthma and lymph oedema and there’s no way I will last 5 minutes in face mask not talking about 1 hour ! It’s so unfortunate because I really wanted this test 😭
I would just treat yourself as if you have POTS. I have a video on my natural treatment plan. Just try it out and see if it helps! ruclips.net/video/TS2P449FKyc/видео.html
Ah, sad to hear about your lymphedema, hope you are treating it with everything you've got!
A tilt table test isn't absolutely necessary. I did have one done back in 1996, which diagnosed me. In recent years, I've mentioned the tilt table results to new dysautonomia specialists, and they mention how cruel and unnecessary tilt table tests are. That said, my tilt table test took less than a half hour, and the doctor and nurse and I all kept having conversations as the test went on, until I fainted. They probably wouldn't make you wear a face mask during the test. If you did get a tilt table test done, I'm curious to hear how it went.
If you find compression socks/stockings hard to put on you should try using gardening gloves with the silicone/rubber layer on the palm. It makes gripping the sock easier
Thanks for the advice!
@@Aimee_Esther no problem! I'm really impressed with the amount of non medically prescribed solutions you've come up with
Totally! Im not on any meds! I hate meds. If there is a side effect i get it haha. I need to do a full video about pots treatment!
@@Aimee_Esther I'm the same way! I'll even get the less common side effects. I'd love to see a video on all sorts of pots treatments!
@@Aimee_Esther I just stopped the florinef because side effects it was destroying my stomach. It’s salt and water and gaterade compression socks for me.
Thermotabs! My POTS specialist recommended taking these so I have a known amount of salt going into my body. You can order on Amazon. He told me to take 6-10 a day!
Went to the kitchen to clean a cup, now I’m looking up videos trying to ease the fact I feel like I’m DYING
I just found your channel while searching about this topic and I immediately subscribed .You're gorgeous ,beautiful and your videos are perfect . They are detailed and helped me alot. Thank you so much for sharing ❤
Awe. Thanks so much! Glad my videos help you ❤❤
I have have ibs, brain fog and migraines so bad I can barely talk I just cry all the time. I can't believe you feel as bad as me.
Thank you for sharing!
I'm so glad I found your ch. I havnt been diagnosed with pots but really think it's something I have. When I was pregnant with my third son I started getting really sick in the second trimester my heart would just race, I would be so out of breath and dizzy, it just felt different then how I felt with my other pregnancies. Well the doctors said it was hormones etc etc nothing to worry about. But once I had him I had extreme brain fog on top of other symptoms I never had after having my other kids. They said it was just ppd/ppa so I did so many things to try and work on that but then I started feeling worse and worse. Everytime I would get up I would feel this weird pressure in my legs I don't even know how to describe it which would make my hr jump up and my heart would pound and race it just didn't feel normal. I've always had stomach problems as a kid but noticed those got much worse. I've become very sensitive to heat and light. But these last couple of months the symptoms have gotten so bad especially this week. I feel so sick when I stand like I'm going to pass out, I stand and feel this pain pressure in my legs and chest and then my heart just races like crazy for no reason. I feel out of breath so easily. I used to work out so much before but after having my third son almost 2 years ago I feel like my body is just falling apart. No one ever mentioned pots syndrome they just say it's all in my head so I tried just thinking okay maybe it's just really all in my head and doing so many things to work through it thinking it was just anxiety or panic attacks like they said. But I won't even feel anxious. What makes me have anxiety is when I have the weird attack as I like to call it where I stand up and there is just so much pressure and pain and I feel light-headed and my heart just races. Sorry I know that was an extremely long message. Just hoping I can get a diagnosis at least that way I can try and work through it instead of wondering what is going on with my body I felt so different and healthy until a couple years ago ☹️
I do have other of the symptoms besides the leg pressure/pain and feeling light headed plus racing heart. I checked a pots website and have almost every symptom except for fainting I have not fainted yet but feel like I'm going to faint
Yes! This sounds exactly like me! My story is so similar, except it started before I got pregnant. However, I have heard from lots of people that pregnancy can trigger POTS! I felt the exact same though.... "it's just depression" ... "You're just lactose intolerance, youre just not strict enough on cutting out dairy...." Dumb things like that were said by all my doctors. It was so hard feeling like a crazy person! I thought it was all in my head. NOPE! It's POTS. Pots is so hard to diagnose because blood work comes back negative. My advice is just treat yourself as if you have pots. I just posted a natural POTS treatment. I don't use any drugs, everything I do is natural and you can try it!
I also don't faint very often, just feel like it. You don't need to faint in order to have POTS.
ruclips.net/video/TS2P449FKyc/видео.html
Aimee Esther thank you so much for taking the time to read my message and reply back. And yes omg that’s how they made me feel like I was crazy and all the awful symptoms I feel are just in my head. It’s like no these symptoms are awful and very painful and scary. I just felt like something was not right while I was pregnant with him and it has only gotten much worse but they just blow me off saying it’s just anxiety and panic disorder or it’s depression when I don’t even feel depressed. I’m not saying I’ve never had anxiety because I have when we went through multiple pregnancy losses before having our oldest son and then before having our second son we had a few more losses which definitely caused anxiety. But this feels so much different it just doesn’t feel right, I feel like I can barely do anything because any little thing makes my heart pound so hard and race and I just feel sick and light headed and just not right at all.
It didn't know pots could affect your pupils dilating. Now I'm wondering if I'm mistaken in my light sensitivity being from migraines. Or maybe my pots is triggering migraines?
I love chicken broth for pots. Its salty, delicious and I have issues with temperature regulation both ways so it helps me warm up when I'm freezing for no reason. I also use CBD about 2mg in the morning and again at night (sometimes more) I find it helps with my chronic pain and migraines as well as sleep, but it also has greatly reduced my nausea and seems to stabilize my heart rate. I'm still experimenting to confirm, but the few days I went without I was so sick and dizzy I struggled to function, but felt better after taking it again.
My pots triggers my migraines but I also have chronic migraines in their own. Light sensitivity could be from both but if it’s the migraines you should only have it when you are having an active migraine
Girl, clearly they are not "old people" shower chairs!
this next school year (2021-2022) will be my first school year in person with pots does anyone have any suggestions and ideas to help me mines not super bad but still a lot i faint and get dizzy just from sitting up from laying and sometimes even from rolling over in bed anyways anything would help if you have suggestions. thanks xo 😊
I am a weather anomaly because my fibro and peripheral neuropathy hate the cold but my pots hates the hot ://
I am so sensitive to temp changes!!!
I'm gonna be soooo late, but I tend to like a combo. Body = warm, with a blanket or like. A heated blanket if it's bad. But I also use a fan 100% of the year, even on snowy days. And usually my feet are out, but I alternate idk.
It seems like a waste of power especially if you're rocking a heated blanket with the fan, but it is a source of comfort in an otherwise painful or uncomfortable experience.
God bless 😊
I have an old people shower chair…lol
My is a cheap hair salon. I get my hair washed at a salon for 5$ and then only have to take body showers.
I hope you are taking B1
Does the weighted blanket help keep you warm? I'm worried about staying warm this winter... after doing more research all night and all day, I'm 95% sure I also have POTS.
Yes! Too warm actually haha. I have a big fan next to me and i put my feet out of thr blanket becuase it gets too warm for me. I like to sleep cooler.
If you do have pots, we need to collab!! Although, i hope you dont cause it suckssss. But we can be potsie friends ❤❤
Check your heart rate laying down then standing
Also check out dysautonomia internationals website!
@@Aimee_Esther I like to have the room cooler but get cozy in my blankets!
@@Aimee_Esther I messaged you on IG that I did this and it jumped 32 bpm after laying down for an hour!
Hey sorry how do I get to your channel? I’m interested to know more about pots!! Because when my specialist diagnosed me with Pots he said that I look it up... so not helpful... love your videos 👍💯🤗 and I would be interested to get some stuff too!
Here's my channel: ruclips.net/user/aimeeesther
I’m Mormon and a potsie too!!!
My sister just got diagnosed with POTS and was wondering what does your go out like essentials bag look like for when you go out shopping
I should do a video on that! I like to have salt pills (vitassium is what i take), wheelchair (if a long trip), water bottle, always wear layers so I can put on/take off if I get hot or cold.
That's what I can think of on the top of my head but I'll do a video on this soon!
Ahhh sunglasses 🕶 I have to put mine on in the gym sometimes! My gym has a real big window, lovely for the national light but not so good for seeing 😆
My Fitbit is one of my must haves for all the reasons you said and helping to see how I slept is handy!
I take something similar to the Vitamin C drink but I’m very forgetful about taking it 😩
I tried having a chat with my pills and stuff to tick off and an alarm on my phone and in my diary but somehow still forgot until I know I needed it!
You might have talked about this is another video that I have not yet seen, with having Fibromyalgia and Pots and migraines how do you work the needing cold for some and needing heat for the Fibromyalgia pain? If you do, some don’t have the pain random parts of the body from fibro...
I find something in sitting with an ice pack on my head and a head pack on my leg and a fan or heater on depending on summer or winter it’s like 4 seasons on my body and in the room I’m in haha
Girl. Sunglasses are a must!!! I thought my husband just had super eyes and never needed sunglasses, turns out it was my eyes haha!!
Oh yes! Sleep tracking with fitbit is also so nice, I forgot to add that, Thank you!
I usually take it when I am feeling dehydrated, but this summer I wake up every day feeling that way so I have got in the habit of drinking it more regularly. Are there any other supplements you take?? I am not huge into supplements just because I feel like usually it's just people trying to scam me and make money off me haha. However, I just today added vitamin D since I avoid the sun so much.
Balancing heat and cold is so tricky. I will try out your tips!! Also, I will work on making a video about it, since it might not make as much sense in a text.... but I just usually go off of what symptom(s) is/are the most sever at the time. So this summer is mostly cold because my POTS flares so bad in the heat. If my fibro pain is acting up I will sit in a hot shower before bed. That way I will be laying down right after to the heat, but I can still put some heat on my muscles and joints too.
Aimee Esther
Vitamin D is a great one to take especially in winter! If your avoiding the sun all year round is good. I just try and get a high dose high quality one but I think they all help so whatever you have access to or can afford!
I feel the same about supplements a bit, super frustrating that one dr or nutritionist will want you on hundreds of dollars worth (just to get the first months lot) and it will help? So far haven’t seen that magic help from vitamins... not to say isn’t doesn’t work for some I have friends with ME/CFS or Fibro or Pots that live by them!
But for me it’s mostly vitamin C vitamin D & Magnesium (you can get a dissolvable one and add to drinks easy and they tast pretty good) of pull or powder with not much taste.
Now that I think about it my Pots is at its worst in summer too and not that bad in winter like my Fibromyalgia & CFS is... (migraines are all year round tho 🙄🙄)
Im about 8 years into knowing what I have and I’m still trying to find what’s best for me and what might work... it’s very frustrating.
Your a lovely beacon of hope having had your beautiful baby and having a pretty good idea of everything despite the illness’s being misunderstood!
Omg when you said about your neck being a problem I was so happy! Well that sounds wrong because it’s awful and horrible but because I know exactly what you mean!!! I thought I just had a random crappy neck on top of everything, but it’s not just me!
Yeah sounds like we are very similar! This is wht i started this RUclips channel. To connect with others like me and hopefully one day help and support others. Im still learning and figuring this all out but i am miles ahead of where i was a few years ago, so i want to share as i learn and grow!
Thanks for your support!!
I was recently diagnosed with POTS and with my heat intolerance my blood pressure and oxygen levels drop to dangerous numbers. Is this something you experience?
Hi! I just did a Q+A so I added your question to the list. :) The video will be up on my channel in 15 minutes.
How you fell in heat are you feel breathless?
Yes
@@the.mikataylor your body temperature in heat or not and are you shiver in bath with normal water or when you wet in rain?
I find pots flares up when driving, why would sitting upwards make it worse..
Less oxygen to the brain than when you are lying down.
How did you get diagnosed? You're in Utah too?
A lot of your symptoms seem similar to mine but mine is anemia. 😖
Girl! Youre a utahn too!! Heyyyy.
I was anemic too. But just iron didnt make my symptoms go away.
@@Aimee_Esther this is me now! I've been eating better and supplementing for over 6 weeks and this week I have felt awful! I just spent a day in the sun and went through a chemical pregnancy so much worse period and this week I haven't been able to eat as good as I would like.... but even when my period was done I was like why am I feeling so sick still? I feel like I have the flu! Then literally the next day I saw your videos! 🙏🏼
P.s. Cache county here! 🌷
Do you have hyper or hypo pots?
THANKS FOR THE NICE IMFO...WAS 👍 GREAT.BUT IM STILL NOT SURE WHAT THE SYMPTOMS ARE OF POTS...I DO LOVE A FAN ON ME ALL 🌙 NIGHT YES. IM HOT ALOT. BUT NOT SURE IF I HAVE ANY OTHER THINGS POTS HAS. SHOWERS ARE VERY TIRING YES. I ALSO LIKE THE DRY SHAMPOO GREAT STUFF. BUT IM NOT SURE WHAT ALL THE SIGNS OF POTS THERE IS.COULD YOU EXPLAIN MORE OF THE SYSTOMS HOW IT MAKES A PERSON FEEL THANKS GOD BLESS.IVE GOT FIBRO...AND. JSOGRENS SYNDROME REYNAULDS DISEASE.POLYARTHRITIS ALL MAKE ME VERY TIRED RUN DOWN AND SICK .BUT NOT SURE YET IF I HAVE PITS.I MAY HAVE LUPUS AS WILL. GOING TO GET BLOOD WORK FOR THAT ONE.TAKE CARE FRIEND THANKS FOR YOUR HELP🌴🌸🌻🌹🐺🐾🐾🐱🐾🐾💕❤🍒🦋👣👣
Can Hyperbaric oxygen chamber help with POTS?
What weight is your blanket?
The one I have is linked. It is 15 lbs
did you notice any weight gain when you upped your salt intake?? i have been put on a medicine to help retain salt in my body to deal with my POTS but i’m scared it will make me gain weight 😫
I didn't notice a lot of weight gain... But if you do it's all water weight so nothing to be scared of :)