Freya’s birth story Cornelia de Lange Syndrome

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  • Опубликовано: 15 окт 2024

Комментарии • 176

  • @micheledavis3735
    @micheledavis3735 10 месяцев назад +6

    The pictures of Freya's homecoming...meeting her siblings are the sweetest images I've seen in a long time! 🩵

    • @Freyasluckyarm
      @Freyasluckyarm  10 месяцев назад

      I love it so much. It was such a happy day after weeks of years of us being apart

  • @nancyterrywhittemore2015
    @nancyterrywhittemore2015 Год назад +4

    Freya was born into a loving family! God bless you!

  • @Hannah-y2z
    @Hannah-y2z Год назад +9

    I didn't search for this video but you are such a good story teller so I stayed 😅 you're a great mum!

  • @barbb-g7077
    @barbb-g7077 Год назад +36

    When hearing that the delivery room doctor said Freya was breathing fine, just stubborn, I smiled. Freya's name is so appropriate for such a wonderfully determined girl! Love her just the way she is! Liam, Fiona, and Jessie always have Freya's back, and clearly that began the moment she arrived home. Thanks for sharing! Looking forward to more stories! 🥰

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +12

      It just got more true as time went on 😂 all my kids have that stubborness

    • @barbb-g7077
      @barbb-g7077 Год назад +3

      @@Freyasluckyarm 🤣

    • @Unknown5925-
      @Unknown5925- 10 месяцев назад +1

      Stubbornness means fighters❤ and Freya is that! She's strong and healthy and loves to learn and play. I just love, love, love her smile, and when she laughs. Such a beautiful little girl that has so much to offer! 🩷🫶🩷

  • @barbhelle5481
    @barbhelle5481 Год назад +5

    I loved your story about Freya's birth ❤️
    She is still a beautiful little girl and was a beautiful baby.

  • @savinaking8637
    @savinaking8637 Год назад +8

    What an amazing journey your family has taken to bring this little treasure home. May all your challenges be small ones and your dreams for your children come true. xxxx

  • @renae9365
    @renae9365 Год назад +7

    I love it when a doctor says, hold it. There is no holding a baby coming!!!

  • @debrawake1023
    @debrawake1023 11 месяцев назад +3

    What a beautiful story and a beautiful momma! You are such a JOY and inspiration, thanks for taking us along for the journey ❤

  • @TrishaPoeta
    @TrishaPoeta 11 месяцев назад +3

    Freya was the cutest newborn! She is still a beautiful little girl. Your a great mom and a wonderful person. Much love from CT. Trisha 😸

  • @ossier2796
    @ossier2796 Месяц назад +1

    Awe. Thank you for your story and the photos of your family.

  • @kathryndomer2109
    @kathryndomer2109 Год назад +10

    The pictures of your children with Freya is beautiful. I enjoyed your beginning story so much. God bless you all. Hi from a rainy New Jersey.💋❤️🙋🏼💗💕

  • @nancybaldwin4893
    @nancybaldwin4893 Год назад +9

    Just came across this. She’s just precious.

  • @misantropique1488
    @misantropique1488 Год назад +3

    Congratulations on Freya and your whole family. You are such a strong and sensitive woman - really a role model! 🖤

  • @mariamckenna808
    @mariamckenna808 Год назад +3

    I'm so happy I found ur channel. Thanks for inviting me to follow ur journey. Freya is adorable. You seem like a very strong woman. I respect that. I look forward to follow you and Freya. I'm learning so much. God Bless

  • @melindashenker3075
    @melindashenker3075 5 месяцев назад +2

    She is such a beautiful miracle.

  • @teijaflink2226
    @teijaflink2226 Месяц назад +1

    Freya was such a cute newborn, like a doll.

  • @stephanieann622
    @stephanieann622 Год назад +11

    I just found you on RUclips and I Love your channel. Freya is seriously the cutest little girl ever. I am thankful you are taking us along in your journey! Best mama ever ❤

  • @AngieJames4172
    @AngieJames4172 Год назад +11

    Thank you so much for sharing (your) Freya's (pregnancy) birth story! I'm so happy you were all blessed with Freya being able to come home so much sooner than what you were previously told. I watched your pregnancy video yesterday.

  • @lindsaya7733
    @lindsaya7733 Год назад +5

    New subscriber to your channel (found you through Sebastian❤) and your family is just beautiful! Loved this video. I had a baby in the NICU years ago under vastly different circumstances, but when it comes to nicu moms, I feel like its an ‘if you know, you know!’ sort of situation. It’s so great to see how your family has thrived amidst the challenges in life. We all have different challenges, but I believe we can learn so much from others experiences and how they face their challenges. Can’t wait to watch your story continue to unfold in the future!

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +2

      Thank you so much and it is so true. If you know you know

    • @Unknown5925-
      @Unknown5925- 10 месяцев назад

      When you work in the hospital setting, you know! I totally agree with you both!

  • @jenniechurch5337
    @jenniechurch5337 Год назад +7

    I love your IG channel, but your RUclips is so much better! I can't explain it, you seem more relaxed and like you have more time to be yourself! ❤ Newborn Freya was just the cutest! 😍😍😍

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +1

      Thank you I do feel more relaxed. It is more my style like a long chat with a friend

  • @valerierobertson6334
    @valerierobertson6334 6 месяцев назад +2

    Man, you can tell a story. I think I haven’t breathed once between this and the first half of the story

  • @martivanravenswaay-waddell6810
    @martivanravenswaay-waddell6810 Год назад +7

    How precious that your other children were so interested in the baby they hung up on you! They will always have Freya's back! What a tiny little doll she was at birth! She's adorable now, too, but at birth -- ohmygoodness -- Stubborn aces everything!

  • @ruthsubash5618
    @ruthsubash5618 Год назад +11

    New born Freya was the cutest. So adorable
    Isn’t easy with a little one in special care. My youngest was there for only 24 hours but the first night on my own in post partom was so strange because I could hear other babies but not mine xx

  • @Rebeccasurkau
    @Rebeccasurkau Год назад +10

    Thank you so much for sharing your pregnancy and birth journey. Freya was (and still is) absolutely beautiful! you have a such beautiful home and family. ❤

  • @peytonbrand2019
    @peytonbrand2019 Год назад +5

    I love how clear your memory is! Xoxo thank you for sharing your story with us all!

  • @priscillavelazquezs
    @priscillavelazquezs Год назад +8

    So tiny and precious 🤍

  • @conniemaniaci3612
    @conniemaniaci3612 Год назад +1

    Thank you , thank you. Freya is so stinking cute.

  • @donnathomson4048
    @donnathomson4048 Год назад +1

    You are a strong person. Give you so much credit. Wonderful parents and family.

  • @bettydanico2959
    @bettydanico2959 3 месяца назад +1

    Great pictures Marci and your narrative was fabulous. You are a strong woman. Your kids are all small in age. I hope you had help. I too had a c-section. It was exhausting. First and only child who is now 42 yrs.❤️🌺❤️

  • @terryatckison9746
    @terryatckison9746 Год назад +4

    Freya is beautiful. Thank you for sharing💞

  • @christinegallagher2536
    @christinegallagher2536 Год назад +2

    Thank you for sharing, such a wonderful outcome, your kids are truly amazing and so loving and compassionate.

  • @willow_jayde
    @willow_jayde Год назад +5

    I found this video by chance, and I had to stop by and say : i think CDLS babies are the CUTEST babies, and the prettiest kiddos. I feel like some parts of them may be a disability, but the way their faces are built, beautiful hands down. And I got some cutie NTs and NDs over here too!

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +1

      I also think they are some of the most beautiful children

  • @kathybula6434
    @kathybula6434 10 месяцев назад +1

    An absolutely beautiful baby 🍼🍼

  • @tammyprice1692
    @tammyprice1692 Год назад +6

    Im loving listening to birth story, BUT what about that beautiful HAIR she has! My babies were bald. So when i see how much hair she had at birth & holds lil bows aww so adorable she is! Enjoying listening to ur most incredible birth vlog! She's beautifully perfect! "her hair" ...Keep um coming im listening lol. Your doing great!

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад

      She does have the most gorgeous head of hair!

  • @pabona15
    @pabona15 Год назад +8

    Enjoying so much your videos and learning about the journey ❤

  • @deanneboonstra3818
    @deanneboonstra3818 7 месяцев назад +1

    Thank you for sharing.What a beautiful blessing ❤️

  • @beckyrhodes8280
    @beckyrhodes8280 Год назад +3

    I enjoy watching your videos I'm definitely going to watch more of your videos your kids are ADORABLE 🥰💖🥰🙏🙏!!! HAVE A BLESS DAY TO YOU ALL ❤️🙏💕🙂!!!!!!

  • @denisecarpenter2981
    @denisecarpenter2981 Год назад +4

    So tiny and sweet. ❤

  • @marybodnar4749
    @marybodnar4749 Год назад +5

    Anesthesiologist’s are unsung heros. Mine did the same thing when they had to take my daughter off to NICU.

  • @nancyterrywhittemore2015
    @nancyterrywhittemore2015 Год назад +18

    I am new to your channel, but I did subscribe. Freya is adorable! I have been following Stephanie George's channel for sometime now. Her son Sebastian was born with CDLS. He is a sweet little boy, who has wonderful parents.. I know Freya is going to be blessed with wonderful parents, as well. God bless your family.

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +10

      We love Sebastian. He is the first person I found with cdls after Freya’s siagnoais

    • @luiza1682
      @luiza1682 Год назад +3

      Ja również jestem tu nowa, śledzę Stephanie i kocham Sebastiana! 🥰

    • @KrissiCreates
      @KrissiCreates Год назад +5

      Me too !!! I'd never heard of CDLS until Sebastians videos popped into my recommendations. I love watching them and now this channel!!

    • @patlarose3293
      @patlarose3293 Год назад +3

      I love Sebastian too❤

  • @geenastarr2745
    @geenastarr2745 4 месяца назад

    Beautiful Family , Love All Your Stories 🤗💜🩷❤️

  • @jennifer_duncan
    @jennifer_duncan Год назад +2

    Hi, Marci! (Hope I spelled that correctly?) I’m a new subscriber, thanks to Stephanie George. Thank you so much for sharing Freya’s journey and your own! You have such a beautiful family, and I’m looking forward to learning more about your lives. ❤

  • @joannmiller2730
    @joannmiller2730 Год назад +1

    Your children are absolutely beautiful ❤️❤️❤️

  • @ruthsubash5618
    @ruthsubash5618 Год назад +3

    Loved hearing this full birth story ❤

  • @mariannekennedy4548
    @mariannekennedy4548 Год назад +1

    Thank you for sharing. Bless you and your family in many ways and manyfold.

  • @donnahart823
    @donnahart823 Год назад +1

    What a beautiful love story❤️

  • @debrawake1023
    @debrawake1023 3 месяца назад +1

    What a great story and how to see how little the kids where when you came home with Freya!

  • @BrittanyStewart-ni4sc
    @BrittanyStewart-ni4sc 19 дней назад

    I'm so glad you got to the hospital in time. At 27 weeks and leaking fluid, your nurse shouldn't have even thought about sending you home. Especially for three days! Then she was acting like its an inconvenience for the delivery. I'm so happy it was a safe delivery.

    • @Freyasluckyarm
      @Freyasluckyarm  19 дней назад

      I was 35 weeks

    • @BrittanyStewart-ni4sc
      @BrittanyStewart-ni4sc 15 дней назад

      Which from a medical standpoint is even more of a reason to not send you home. I'm glad you were taken care of and had such a gorgeous jelly bean. Thanks for sharing.

  • @joytotheworld2100
    @joytotheworld2100 Год назад +1

    I'm a new subscriber. Just found you & your family and you are the sweetest bunch. Can't wait to binge watch.

  • @mhetrick81425
    @mhetrick81425 Год назад +1

    Thank you for shAring your story love the happy ending both if y'all getting to go home love the pictures of the other 3 kids loving on there new sister

  • @crystals7979
    @crystals7979 Год назад +1

    I’m new to your channel your little girl is so cute

  • @kathryndomer2109
    @kathryndomer2109 Год назад +1

    Hello from New Jersey. I just came across your channel. I follow Sebastian and his family, I’m sure I will follow yours too. God bless you all. 💋

  • @dollfactory
    @dollfactory Год назад +1

    What a beautiful story. Thank you for sharing. New Sub 😽😽😽

  • @sabrina19ization
    @sabrina19ization 4 месяца назад +2

    ❤❤❤❤❤❤beautiful and blessed by Jesus

  • @dorothywatson1303
    @dorothywatson1303 Год назад +3

    You are the best mom! I love watching Freya!
    Wondering if you had given Nizoral a try for Freya’s cradle cap?

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +2

      No we haven’t. We found a scalp mask with rosemary oil that works wonders

  • @juliebean2806
    @juliebean2806 Год назад +23

    I had twins in the NICU for 6 weeks...I wasn't given the option to stay. It was a lot of back and forth multiple times a day because I also had a 7 year old at home. That was a though time and I was pumping at home around the clock. I brought my twins home after 6 weeks, but my son unfortunately passed away three weeks later of SIDS. His sister is now 20 years old..tough times. My heart is with you 💕

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +4

      It’s so hard to be separated for your kids. Hugs.

    • @elizabethkoobs1060
      @elizabethkoobs1060 Год назад +4

      I'm so sorry for your loss of your baby boy.💔🧸

    • @juliebean2806
      @juliebean2806 Год назад +2

      @@elizabethkoobs1060 Thank you 💕

    • @irisb7205
      @irisb7205 Год назад

      What devastating pain you have to go through !

  • @yesseniasalazar297
    @yesseniasalazar297 Год назад +1

    Lovely videos 👍🏻💓
    Zuki 👌🏻❤️😍

  • @carolynholcomb8105
    @carolynholcomb8105 Год назад +2

    Bless you for sharing your story. Looking forward to hearing your story

  • @jessicak4913
    @jessicak4913 Год назад

    You have a beautiful family God has blessed you ❤

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад

      Thank you so much!

    • @jessicak4913
      @jessicak4913 Год назад

      @@Freyasluckyarm your beyond welcome I also want to say God never gives us more then we can handle at times that feels so unfair but I believe you are the most beautiful soul I've ever seen your gentle as a mother and that's such a beautiful gift

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +1

      Thank you. I believe god gives us more than we can handle all the time. Because if not then why would we need him. I have been through many things in my life that were way more than I could handle

  • @emmaholley1811
    @emmaholley1811 Год назад +2

    she’s beautiful I was on a feeding tube when I came home. My name is Emma and I’ve got a disability!!!

  • @heleenzuidhof8780
    @heleenzuidhof8780 Год назад +1

    I waited with this video, consciously, because when I saw Stepanie George's video I got very emotional because I felt very sorry for them. And I think it will be the same with you. Because I can't have children of my own. I can get them but because I have 22q11 there are certain risks involved. And I don't know if I can handle it mentally. Still, I wanted to see this video of yours too. When I was born I was deaf. They knew there was something there, but not what, we didn't find out until I was 15. Everything seemed "normal". While it wasn't. Actually, I always had to fight and fight to keep up with the rest. I think you and Stepanie are very brave women. I find the videos about CDLS very interesting.

  • @antjeneumann17
    @antjeneumann17 Год назад +3

    Freya is sooo cute...🩷

  • @dritadiaz1215
    @dritadiaz1215 Год назад +1

    First congratulations. Freya is a beautiful little girl. My granddaughter name is Freya Rose. Second what is the syndrome and how does it affect the infant and body

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +1

      It is called Cornelia de Lange syndrome. We have a whole video on what cdls is but it effects growth and development

  • @mariannekennedy4548
    @mariannekennedy4548 Год назад +1

    Many blessings to you and your precious family....

  • @bethhayden6725
    @bethhayden6725 Год назад +2

    Excellent news, so happy for you and the family 👪 😀 ❤️

  • @lisaockerman9940
    @lisaockerman9940 Год назад +3

    Congratulations! FYI all woman shake after giving birth, the drop in hormones causes it. Best of luck to you and your sweet daughter.

  • @maryanngardner9270
    @maryanngardner9270 Год назад +1

    Congratulations!💗

  • @anitadejong821
    @anitadejong821 Год назад +1

    Sterkte met het kleine meisje huder veel in je hart 💔 ❤😢

  • @doriswalsh3929
    @doriswalsh3929 Год назад +5

    Congratulations that's an interesting name 👏🎉 I'm a fraturnal twin with a sister I Doris I was 1.9 and helena 1.10

  • @theresamaleady7721
    @theresamaleady7721 Год назад +1

    Hi there just tuned into your channel hope you don't mind

  • @tetra3ne56scur3
    @tetra3ne56scur3 Год назад +2

    @Freya’s Lucky Arm I read up on the shaking after birth it’s because of hormones changing

  • @helenfitz3911
    @helenfitz3911 Год назад +1

    Thanks for sharing 👍 Your family is beautiful 😍 ❤

  • @ruthsubash5618
    @ruthsubash5618 Год назад +2

    We struggled with feeding. One nurse tube fed up buy another disagreed and cup fed him. But I could not bring him home while cup feeding so we had to bottle feed to get home and combine feed for weeks until he could breast feed. He was just too early and not enough energy to try and breast feed

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад

      I think Freya had the same problem. Not a throng enough suck.

  • @audreymaqks
    @audreymaqks Год назад +1

    Thanking for sharing
    Beautiful family

  • @irisb7205
    @irisb7205 Год назад +2

    I just read a bad statistic about USA having poor prenatal care, high mortality for Moms and neonates despite the highest cost of health care in the world.

  • @kathybula6434
    @kathybula6434 Год назад +1

    Loved this video 😂

  • @suegibson1960
    @suegibson1960 8 месяцев назад +1

    I’ve already viewed this but wanted to share it with a friend while we are relaxing. So we are sort of binging on Freya

  • @dariachiechi980
    @dariachiechi980 Год назад +1

    God bless your family

  • @marygrummer9189
    @marygrummer9189 Год назад +2

    That is the absolute cutest, most adorable new born I have ever seen, and that includes my own babies and grand babies. Oh my gosh! 🥰

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад

      Thank you so much! She was the cutest newborn

  • @slc1161
    @slc1161 Год назад +2

    Check out special books for special kids. There are children experiencing the same disorder.

  • @musicmomma39
    @musicmomma39 Год назад +1

    Coming to you from Sébastien.

  • @blazefairchild465
    @blazefairchild465 Год назад +2

    Lol ❤ at the phone call, when your kids asked you about their sister. I laughed when they hung up on you & called their dad ! You children loved , so much already ,awesome siblings !

  • @saul.t.2.969
    @saul.t.2.969 Год назад +1

    I shake when I have been given epinephrine during dental work.

  • @nancys2275
    @nancys2275 Год назад +2

    Epidurals cause the shaking. I’ve had 4, and shaking each time.

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +3

      I shook with my two deliveries that I didn’t have the epidural too.

  • @dianevelez4061
    @dianevelez4061 Год назад

    ❤❤❤❤❤🙏🙏🙏🙏

  • @juliefizpatrick513
    @juliefizpatrick513 Год назад +1

    😊💛⭐️🤍💎

  • @daleenehlers2385
    @daleenehlers2385 Год назад +4

    Don't know if anyone has told you this. But the shaking after birth is an effect of the spinal :)

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад

      Thank you

    • @wendyturnbull4650
      @wendyturnbull4650 Год назад +6

      It is normal hormonal/Adrenalin reaction. It is not spinal reaction. Happens with all deliveries vaginal as well as section. Congrats on delivery of a beautiful baby.

  • @judithhopes151
    @judithhopes151 Год назад +3

    How can anyone afford 4 children in usa?

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +5

      We are very careful with our money. We make it work

    • @piamiddione3695
      @piamiddione3695 Год назад

      That is truly a very rude question. Maybe they don’t wast money on things other People do. You are rude, and I think you need some Jesus in your live.

  • @cindywhite8612
    @cindywhite8612 Год назад +1

    PLEASE GET TO THE POINT.

    • @Freyasluckyarm
      @Freyasluckyarm  Год назад +2

      You know you can fast forward if you want right.

    • @piamiddione3695
      @piamiddione3695 Год назад +2

      You don’t have to watch it.

    • @amandavm
      @amandavm Год назад +3

      No need to be rude. Didn't your parents teach you that manners cost nothing. Be kind. If you can't be kind, don't comment.

    • @Rosa-kf6yy
      @Rosa-kf6yy Год назад +5

      It's a birth stoooory~What's your hurry?

  • @stephanieduhe1185
    @stephanieduhe1185 Год назад +4

    Just came across this, she's just precious.