Overcoming the stigma surrounding tardive dyskinesia
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- Опубликовано: 6 окт 2019
- The relatively rare condition known as "TD" impacts around 500,000 Americans. The disorder is most often the result of using medicines to treat conditions like schizophrenia or bipolar disorder. Internal medicine specialist Dr. Neeta Ogden joined CBSN to discuss some of the stigmas surrounding tardive dyskinesia.
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These are happening with more than antipsychotics.
I have TD and I'm tired of being asked "are you ok?" It's even more uncomfortable seeing that I work full-time in restaurant/hospitality industry.
@Justin Wharton I'm on the exactly same situation, and I'm on clonazepam and citalopran have u try any medication for it ?
I’m sorry you have to deal with that. people are so socially unaware 🤦♀️🤦♀️
It started happening to me with abilify. I’m so glad I stopped it before it became permanent. It was scary how my mouth would contract into a frown when I wasn’t doing it consciously. It’s an indescribable feeling.
Same with me. One of those magic 2nd generation antipsychotics with only a 2% risk allegedly. I was prescribed it simply for depression. Sadly there are children who are being given these drugs as a substitute for parenting, and they have to live with the lifetime consequences.
The same exact thing happens to me! I too was on abilify but its been 3 months and my mouth still goes into that frown like mode. How did you make it stop and did it happen when you were talking only?
What dose abilify were you on?
Same here, abilify triggered mine.
Same with me, abilify. I had to tell my dr about it bc I was doing any kind of research why my mouth would make these insane movements/spasms until I came across a wiki for TD, I said is this what it is??? It is absolutely an indescribable feeling, and you could. Not. Stop. It. Every time you would notice it happening and specifically forced your mouth to stop it would almost immediately begin to spasm again. And again. And again. It’s exhausting and maddening. My dr found out about Ingrezza and so far, I would say it’s improved my quality of life as a sufferer of TD- BUT I also ditched abilify asap, so I’m positive stopping it has helped as well. I’m glad you were able to recover 💗
"Only five hundred thousand people in the country are affected with it. " Vaping and marijuana have harmed far fewer people, yet both are the subjects of surgeon general public health campaigns, while TD has no commensurate public health awareness campaign. And the advice given by the guest psych is misleading, given how almost no mental health practioners have been trained in managed prescription withdrawal or tapering, and most people are being prescribed psychotropic drugs by GPs, practioners without ANY specific mental health training or education. For a tardive dyskinesia awareness segment, this lacks any meaningful understanding of the disorder, avoiding potential risks, or the crisis in mental healthcare that it symbolizes.
They are monsters
How is 500k rare? Monsters
Well when the population is about 350000000 about 500k. Is incredibly low.
Start using a little critical thinking then just throwing out a stupid comment .
You are the one not using critical thinking. The half a million people a year is the US. Less than 5 million are prescribed these meds. It is not rare.
500k people doesnt seem very rare to me. How many people are on these meds? 5 million? That's not rare, that's common
It’s stuff like this they don’t tell you before putting you on a script
Omg thats wild, i have a family member that has this, im only learning now what it really is. Im really glad that i educated myself and im ashamed to say it made me uncomfortable seeing his face contort but now i know its something he has no control over and most likely makes him more uncomfortable than anyone else
Imaging feeling like your arm is going to tear itself apart at the elbow because you cannot control it. Your jaw dislocated because you tried to chew your food. It can get worse than that.
mine is getting worse
1 in 20 isn't very rare which is the amount of folks that actually develop TD on antipsychotics.
It's not as rare as they say. There are nearly 2,000 drugs that can cause TD. Given the amount of people taking these drugs, it's become an epidemic.
Dyskinesia, dystonia, and akathisia are horrible conditions. I feel this segment didn't quite show what a horrible condition it is. It would be nice if doctors like herself and politicians would get it.
She is not a doctor. Psychiatrists are merely mule boys for the drug companies. They are far closer to drug dealers than doctors. She is an "internal medicine specialist" yet she doesn't warn against using these drugs. People trust them because they think they are doctors, and it leads to lots of people taking dangerous drugs like anti-psychotics. Even toddlers can be prescribed these drugs, which these "doctors" call medicine.
Dysneksia and akathisia are probably the worst of the adverse effects, but there are far more. They shut down the brain's reward system by blocking essential neurotransmitters like dopamine and seratonin, which leads to anhedonia, sexual dysfunction and at least 50 other serious conditions.
@@basemfeddah2136 please, is there any way to fix the brains reward system once it is damaged? Effexor xr withdrawal have ruined my brain. It is so bad I tried to see if I could get buzzed on beer. 6 beers no buzz, no good feeling, nothing. Something is terribly wrong.
@@JohnRambo1947-July-6th i was on risperidone 4mg for a month, I think it’s best if you stay off alcohol at least a year or so until you feel better, that’s what I’m doing
@@basemfeddah2136 Internal medicine is an entirely different residency than psychiatry. She is not a psychiatrist.
It is such a slap in the face that Doctors don't make you aware of this illness before putting you on the poison that are SSRI's
Exactly🙌
You're just jealous of the drugs is all and your dog isn't even a labrador what's the point if it's not cute
What if you already suffer from severely bad Tardive dyskensia already? What can you do? No doctors seem to be doing anything and it is very much negatively effecting my quality of life. I get made fun of constantly, I get banned from stores, cars pull over to yell at me quite frequently, I get laughed and called a monster among other things. My mental health has never been all that great but its at an all time low. I keep going to different doctors and no one does anything. I try to be a good, kind person to everyone, but no one cares or treats me any better. I have like one friend in the town I live in. I can't even be around family if I'm having a bad day, because they seem to think that I must be making it up or did something bad to cause this because I wasn't born like this. I absolutely hate being alive anymore, life is so cruel. I'm tired of suffering, why did god do this to me?
hey man how are you?
God bless you. Remind yourself, that God did not do this, the pills, the doctors who don't push for better medication or help patients better. You hang in there God can comfort you if you let Him
Hey brother just checking in
hey bro same experience where are you from? im from Philippines let us talk bro i really need someone who had similar experience as I am alone I feel isolated and lonely pleased someone if you are struggling like me with TD and discrimination please talk with me
Hope you're still here. Digital hugs and well wishes
There was a drug called ingreza or ingrezia.
It was so expensive for me that I had to do DBS.
Also, there was an ultra sound treatment for essential tremor in England. I called the hospital, and they said it is not yet prescribed for TD
Hi, I was taking wellbutrin for a while but using it improperly (under and over dosing myself and taking it inconsistently when you’re specifically supposed to take it consistently). I did this due to adhd and I thought it was a good method for me. I now think I am experiencing symptoms of tardive and that really freaks me out and I don’t know what I should do because the wellbutrin really DOES help my mental health, I’m so much more depressed without it and if I had to stop taking it forever that would be heartbreaking :/ I’ve started taking it more regularly now that I’ve learned my lesson about proper use but still have tardive symptoms :( my friends say I should stop fully, but I want to be able to get back on it in the near future since it helps my depression SO much. What should I do? And if I stop fully will I be able to get back on it in the future without “reigniting” the tardive?
no one can tell you what to do. I have TD and I'd cut off my arm to make it stop (not a joke) . Having TD has made me much more depressed because of the way peopk
@@kevinmaddalena3911finish the commmet
i am taking seroquil and prozac both high doses and my arm jerks and when i talk i feel my mouth Spasm it rlly sucks
i have bipolar disorder type 1. i was on many medications for many years. im off of them now but TD is permanent with me. it’s very debilitating
Actually it's not that rare a simple Google search will show you that 1 in 5 people who take antipsychotics end up developing TD. It is a horrible movement disorder that destroys lives. Many people (including myself) can't work at all anymore because of it and even simple tasks such as doing the dishes, writing or even feeding yourself can become very hard to do due to the constant involuntary movements all day long, everyday. For most people the movements stop only when you're sleeping.
How is this diagnosed?
I got td from saphris worst part is I never have heard voices seen things thought homicidal or suicidal it was for “anxiety “ which may be linked to paranoia “ bc I had anxiety and fear of public spaces new doctor gives me Xanax and the td went away the same night I got the symptoms couldn’t stopp walking er gave me ativan stopped the medicine
I believe my Mother is dealing w this... getting n contact w her neurologist
So are these meds stimulant like?? Is this why they do this?
Ms Liz no, they are the literal opposite of stimulants. Simplistically, the way antipsychotics work by blocking or reducing dopamine is thought to cause this. Dopamine is involved with many functions, including motor function (muscle movement). Interestingly, a lot of antipsychotic side effects resemble Parkinson’s disease which is a disease of neuron death that results in less and less dopamine over time. Medications that treat Parkinson’s to increase dopamine have the potential side effect of psychosis. The brain is so complex and it’s nearly impossible to manipulative neurotransmitters without direct, inherent consequences
I wonder if some of these people just have the movement disorders as just part of the same pathophysiologoy of the diseases that the neuroleptics were intended to treat. Especially with the people who do not have it go away after switching or far worse, stopping.
TD only started presenting after the discovery of Thorazine, and other antipsychotics. The disorders these medications were designed to treat, naturally, existed long before that.
Keep in mind that you can also get TD from some antiemetics, ESPECIALLY metoclopramide.
I took Abilify in high school before anyone ever heard of it. After a few weeks it gave me what I describe as a sever anxiety disorder which was accompanied by twitching and sweating. Especially if I had to publicly speak I would twitch and it would even effect my breathing. I always thought it was just major anxiety but I’ve recently discovered other people describing these involuntary movements. I’ve been eating organic and used psychedelics and it seems to help majorly.
Diazepam (Valium) can Help mid To very well
It was forced on me in a hospital against my will and all it was, was one shot and that’s all it took and I’m bleeding internally and testing cartilage from td
J&J 2 billion lawsuit for off label scribing haldol, resperidol, seroquel and ability etc
The news lady says it is a rare disorder, yet she has it. I see it everywhere.
There are many different types of movement disorders, what you’re seeing might be another disorder
@@lenaaa3902 nice try
@@TokyoShemp what
@@lenaaa3902 It sounds like you have a dog in the hunt. The news lady's eyebrows and lower forehead show clear signs of tardive dyskinesia.
Manganese
Also drug addiction is a reason of this too…. Not just these meds.
My doctor wants me to take this. Hard pass
J have all these symptoms, but I don't take any form of these type of medikation. Doktors don't believe me.
Could you describe your symptoms in detail?
🙃
It sounds like Tourettes Syndrome.
Just (it seems) no verbal ticks.
You have no idea what a horrible condition it can be. Imagine your joints dislocating and nerves damaged because you cannot control your body movements. Your arm snapping so hard you feel it's going to rip itself apart at the elbow. That's how bad it can get.
It's awful, it's also accompanied by anxiety and dispair
@@fmango I know my mental health is way worse because people treat me like im a monster or laugh at me in my face because of my TD
Do you want to chat? That’s least what I can do. (You can send private message.)
If you have psychosis, Vraylar is probably the least likely to cause TD.
vraylar did it to me
My daughter Cathy was on Vraylar and it didn’t work at the time. Maybe we can try it again.
Wtf is going on in this world!!!! Stop taking drugs!!!!!!!!!!!
They are antipsychotic drugs for treating mental health. They are prescribed by the doctor. They are not inherantly bad.
@@nsjhdhdhdbhsudgvdydb7751 you sure about that?
@@nobodysfaultbutmyown492 ????? Ive had great results using them.
As much as it sucks, alot of us can't stop taking our medication. I hate my TD but I hated be psychotic more. If I didn't take my meds I'd start hallucinating and have paranoid delusions. It's why this is such a problem, the medications are harming us but we have no other options.