Had surgery with Dr F in 2011. I thought my nursing career was over before I had surgery. Did take a sabbatical from practicing for 2 years to recover stamina but it's 2018 and I can work 40+ hours a week. God bless Dr Feigenbaum! .
I’ve been in pain almost 5 years! I was BEDRIDDEN! The pain was so bad I physically, mentally, and emotionally shut down. I had an mri done a few months ago and was told I had a cyst. I didn’t think it meant anything UNTIL I received a steroid shot in my tailbone area where the cyst was, now I’m suddenly ALIVE AGAIN!!! I’m crying right now because I thought I was DYING!!!
I was just getting a mri done and noticed they didn’t tell me about the Tarlov cyst. Mine is 1 cm. I went to a neurosurgeon and he told me they were nothing and not to let anyone cut on me. He told me my symptoms are “unexplainable” and I may just have to “live with the pain like many others have to” . I left his office in tears. I’ve been doing my own research and I am certain this is what’s causing my pressure and pain and burning in my buttocks and leg
Yes IT MOST DEFINITELY IS I HAVE TWO THAT WERE FOUND BY THEM GOING DOWN FAR ENOUGH ON MY MRI .I KNOW WITH ALL MY SYMPTOMS I PROBABLY HAVE 5 .TOTALED MY CAR AND LIFE IN A ACCIDENT CHURCH VAN HIT ME 70MPH WE WERE STARTING TO MOVE DUE TO ROAD CONSTRUCTION AT A RATE OF 15 MPH.SURGEON SAID THE SAME. MY INSURANCE COVERS ALL MY SUPPLIES IAM GOING TO PINE CREEK GOD BLESS YOU ALWAYS.GET PRESCRIPTION LIODICAINE PATCHES.HELPS
Try pain management first, they can block nerves that the cyst is rubbing. Needs to be a good pain management. Magnesium also helps with the pain. I to was not told about my cysts.. my chiropractor read my MRI and told me.
I can’t wait to fight for this treatment…the NHS is confused and mainly tell us it’s in our head or that TARLOV cysts do not cause problems….I’ve had an SAH since my diagnosis and I’m now a user of two powerchairs and my entire life has changed. TARLOV cyst disease patients deserve to be listened to….I live in the UK 🇬🇧 and the doctors are absolutely perplexed. I am so hopeful and can see that AIMIS know what they are doing. Can’t wait to fight for treatment to get to Cyprus 🇨🇾 ♥️ God bless Dr Feigenbaum and AIMIS
They don't listen in the US either...just had a doctor tell me today (at the MAYO Clinic, no less) that "here at the Mayo, we believe those are incidental findings and not symptomatic" (Direct quote from his visit notes). Yeah, tell that to my body that can't sit, stand, get up, get dressed, bend, etc... without pain. The mild disc bulge that is nowhere near a nerve is causing it all, but not that big ole' S2-3 cyst in my sacrum. :(
@@Sarah-vg8qd how powerful is the cyst ? Enough to turn Mayo into jackass's ? See they can't see them because they don't or aren't allowed to know the MRI technique to detect it. Consider yourself a miracle you do. Surgical option isn't the only or necessarily the best option either. True in my case.
@@Sarah-vg8qd kinda awesome they are unaware and indifferent. Tons of money made ignoring reality. At some point you gotta say screw that and be your own advocate. I'm personally against this often risky surgery. There's something better safer .
@@Sarah-vg8qd hey I believe you about it's largeness. However all the experts say size doesn't matter. Take mine truly tiny though ultra - super powerful.
Can tarlov cyst be misdiagnosed as MS? I care for a gentleman who was diagnosed with MS in 2010. He lives in a wheelchair. I was applying pain cream to his lower back and found several bubble like cysts near the surface of his skin in his lower spine area. They were all about 1cm in diameter. This is where his numbness begins. The ability to walk went away slowly just like MS, but the VA also said he has no lesions in his brain. Only in his spine. I would really like to get another MRI and possibly a better diagnosis. If this is Tarlov cysts then we want to come see you asap. Do you work with the VA's insurance?
I have a tarlovcyst in my thoracic area. I called his office and the receptionist told me they dont take medicaid and I have no other options. I frequently fall, it is extremely painful. No other options???
#1 not straight forward to get a diagnosis. It'll show in 1% of MRI studies which unfortunately isn't usually the case I feel. If you're not diagnosed? Send to Fiengenbaum your MRI CD he'll do a free assessment. Once you've got the size and location. Because my neurologist found my tiny right side S1 Tarlov cyst. Okay you're going to need a bilateral injectionist ( trigger point) . Just ask me for the details. My fibromyalgia is now pain free. Something like fibromyalgia Tarlov cyst so complicated. Actually in my case. Only need six office visits per year. There's hope out there in Houston at least probably anywhere. Famous medical center Houston had zero help for people like us. Unfortunately still doesn't . Except now. Really hope this message finds you . Peace be unto you.
I have a question: Could Tarlov cysts in T spine cause an increasing blood pressure suddenly? My mum suffers from this for several years and no combination of medications against hight blood pressure worked for her. Now she has to take morfium (in plasters) and only then her BP is OK. She has more Tarlov cysts in L and S spine, too. She suffers from the weakness and pain of her legs, sometimes she is not able to walk. Thanks for the answering me.
Dear Diana, We have had a vast number of success stories regarding the tarlov cyst surgery conducted at AIMIS. Please visit us at www.aimisspine.com and fill out a web form so we can contact you in order to discuss your condition. Regards, AIMIS team
Wow I love seeing more drs understanding these tarlov cysts. I call them little monsters! Wonder if you have ever heard of anyone having over 30 of these little monsters. I have Bilateral from my T-1 down to my S3 or S4. Did you ever hear of anyone with that many? thanks for being there!
Dear PAT91949 We are very sorry to hear about your Tarlov Cysts. Can you please complete the contact form on our website (you can find the link to this page in the information below the video) so our US based medical board can review your condition. We look forward to hearing from you soon. AIMIS Spine
PAT91949 I WAS REARENDED BY A CHURCH VAN AT 70MPH. WE WERE DOING 15MPH. HOW THE MAN DID NOT SEE THE ROAD CONSTRUCTION SIGNS .IS STILL PUZZLING ME.ABOUT A OR AND A HALF LATER MY SYSTEMS STARTED. EXTREME PAIN IN LOWER LUMBAR ALL ACROSS BACK.UPDATE TO NOW.THE CAR ACCIDENT 2012 NOW 2018 I SEE A SPINE PAIN SPECIALIST. BUT HE KNOWS OF THE CYSTS BUT ONLY TREATS MY PAIN. IVE GONE FROM WALKING TO NOW ONLY WALK WITH A WALKER. 29% OF QUALITY OF LIFE.I HAVE TO CATHERIZE
I have 18 from C1 to all though the thoracic spine so I imagine there are many more in the lumbar and sacral spine! I have headaches, numbness and tingling with decreased feeling in my right leg and arm. I have had leg pain for over 20 years.
@@AIMISHealthcareGroup i also have tarlove cysts in my s1 s2 also a cyst in t11 t12 fighting with this terrible pain ...but in asia i didn't find any dr who agree to operate me ..and i cant afford to come us ...
I Never Thought in my life Something as simple And pretty small .A fluid filled cysts. Could cause so much pain.And the saddest thing no Doctors But a few know of them.SoW Can All Pretty much forget the hopes of a cure for CANCER!!!Living with a rare decease due to a man crashing into me innocently driving.Now Lost Quality of life.
Shari Lara it isn't that they don't know about them, I've yet to come across one who isn't aware of them. The issue is until recently doctors where persistent in admitting they cause pain
I had a Nero surgeons PA tell me the cysts was not causing my pain.😮 magnesium helps with pain. There are other herbal pain remedies, how ever you can not take Rx meds with them. Check interactions!
I need help if anyone would be kind enough to answer my questions? I waited a year to get on insurance for individuals in my state I have Anthem blue cross gold pathways its a HMO does any know if doctor F in Dallas TX. Takes this insurance and if so how do I get to go from my state to his using my insurance plan for his help ? Thank you anyone who responds.
Dear MegaJen hello.. please be informed that we cannot provide a price without the doctor seeing your MRI to assess your case.. You can send us your contact details and MRI at spine@aimis.com and a member of our International Patient Management team will contact you for more information and a price plan for the treatment..
@@AIMISHealthcareGroup Thank you - I will do so. I have already an MRI and the doctor said I have several large Tarlov cysts that are the cause of my pains.
Andrea, not sure if you already answered your own question, but Dr. Feigenbaum is in Dallas, Tx. He travels to three different locations, including Cypress, to perform surgeries.
I was told by my neurologist that surgery is a scam and highly risky. That's why it's done in Cyprus where regulations are more lax. He said surgery costs around 70,000 dollars AUD and you could end up worse. Doctors don't publish their failures.
@@snowbear1877 I can not find any reviews on this doctor at all online. Only a limited amount (like 5) where are all the reviews after his thousands of successful operations?
Had surgery with Dr F in 2011. I thought my nursing career was over before I had surgery. Did take a sabbatical from practicing for 2 years to recover stamina but it's 2018 and I can work 40+ hours a week. God bless Dr Feigenbaum! .
Can you
I am in a lot of pain. But really skeptical about this
I’ve been in pain almost 5 years! I was BEDRIDDEN! The pain was so bad I physically, mentally, and emotionally shut down. I had an mri done a few months ago and was told I had a cyst. I didn’t think it meant anything UNTIL I received a steroid shot in my tailbone area where the cyst was, now I’m suddenly ALIVE AGAIN!!! I’m crying right now because I thought I was DYING!!!
Hey Sally , I hope your still doing well, how long do the steroids effect last? Thanks
@@viperkhan348 I had a caudal epidural injection and effect lasted 1 month
I was just getting a mri done and noticed they didn’t tell me about the Tarlov cyst. Mine is 1 cm. I went to a neurosurgeon and he told me they were nothing and not to let anyone cut on me. He told me my symptoms are “unexplainable” and I may just have to “live with the pain like many others have to” . I left his office in tears. I’ve been doing my own research and I am certain this is what’s causing my pressure and pain and burning in my buttocks and leg
Yes IT MOST DEFINITELY IS I HAVE TWO THAT WERE FOUND BY THEM GOING DOWN FAR ENOUGH ON MY MRI .I KNOW WITH ALL MY SYMPTOMS I PROBABLY HAVE 5 .TOTALED MY CAR AND LIFE IN A ACCIDENT CHURCH VAN HIT ME 70MPH WE WERE STARTING TO MOVE DUE TO ROAD CONSTRUCTION AT A RATE OF 15 MPH.SURGEON SAID THE SAME. MY INSURANCE COVERS ALL MY SUPPLIES IAM GOING TO PINE CREEK GOD BLESS YOU ALWAYS.GET PRESCRIPTION LIODICAINE PATCHES.HELPS
Try pain management first, they can block nerves that the cyst is rubbing. Needs to be a good pain management. Magnesium also helps with the pain. I to was not told about my cysts.. my chiropractor read my MRI and told me.
I can’t wait to fight for this treatment…the NHS is confused and mainly tell us it’s in our head or that TARLOV cysts do not cause problems….I’ve had an SAH since my diagnosis and I’m now a user of two powerchairs and my entire life has changed. TARLOV cyst disease patients deserve to be listened to….I live in the UK 🇬🇧 and the doctors are absolutely perplexed. I am so hopeful and can see that AIMIS know what they are doing. Can’t wait to fight for treatment to get to Cyprus 🇨🇾 ♥️ God bless Dr Feigenbaum and AIMIS
They don't listen in the US either...just had a doctor tell me today (at the MAYO Clinic, no less) that "here at the Mayo, we believe those are incidental findings and not symptomatic" (Direct quote from his visit notes). Yeah, tell that to my body that can't sit, stand, get up, get dressed, bend, etc... without pain. The mild disc bulge that is nowhere near a nerve is causing it all, but not that big ole' S2-3 cyst in my sacrum. :(
@@Sarah-vg8qd how powerful is the cyst ? Enough to turn Mayo into jackass's ? See they can't see them because they don't or aren't allowed to know the MRI technique to detect it. Consider yourself a miracle you do. Surgical option isn't the only or necessarily the best option either. True in my case.
@@Sarah-vg8qd kinda awesome they are unaware and indifferent. Tons of money made ignoring reality. At some point you gotta say screw that and be your own advocate. I'm personally against this often risky surgery. There's something better safer .
@@Sarah-vg8qd hey I believe you about it's largeness. However all the experts say size doesn't matter. Take mine truly tiny though ultra - super powerful.
Are you still doing surgery? Dr. Feigenbaum
When are you coming to cyprus?
Can tarlov cyst be misdiagnosed as MS? I care for a gentleman who was diagnosed with MS in 2010. He lives in a wheelchair. I was applying pain cream to his lower back and found several bubble like cysts near the surface of his skin in his lower spine area. They were all about 1cm in diameter. This is where his numbness begins. The ability to walk went away slowly just like MS, but the VA also said he has no lesions in his brain. Only in his spine. I would really like to get another MRI and possibly a better diagnosis. If this is Tarlov cysts then we want to come see you asap. Do you work with the VA's insurance?
I have a tarlovcyst in my thoracic area. I called his office and the receptionist told me they dont take medicaid and I have no other options. I frequently fall, it is extremely painful. No other options???
#1 not straight forward to get a diagnosis. It'll show in 1% of MRI studies which unfortunately isn't usually the case I feel. If you're not diagnosed? Send to Fiengenbaum your MRI CD he'll do a free assessment. Once you've got the size and location. Because my neurologist found my tiny right side S1 Tarlov cyst. Okay you're going to need a bilateral injectionist ( trigger point) . Just ask me for the details. My fibromyalgia is now pain free. Something like fibromyalgia Tarlov cyst so complicated. Actually in my case. Only need six office visits per year. There's hope out there in Houston at least probably anywhere. Famous medical center Houston had zero help for people like us. Unfortunately still doesn't . Except now. Really hope this message finds you . Peace be unto you.
Sorry about not noticing your are diagnosed. One of the injections procedure covers at least T1. Yes very painful however I'm thinking an easy fix.
Ty for the info.
Check with Dr. Chill Kim MD PhD youtube video Tarlov Cyst. CA
I have a question: Could Tarlov cysts in T spine cause an increasing blood pressure suddenly? My mum suffers from this for several years and no combination of medications against hight blood pressure worked for her. Now she has to take morfium (in plasters) and only then her BP is OK. She has more Tarlov cysts in L and S spine, too. She suffers from the weakness and pain of her legs, sometimes she is not able to walk. Thanks for the answering me.
Does this surgery really work ?
Dear Diana,
We have had a vast number of success stories regarding the tarlov cyst surgery conducted at AIMIS. Please visit us at www.aimisspine.com and fill out a web form so we can contact you in order to discuss your condition.
Regards,
AIMIS team
Wow I love seeing more drs understanding these tarlov cysts. I call them little monsters! Wonder if you have ever heard of anyone having over 30 of these little monsters. I have Bilateral from my T-1 down to my S3 or S4. Did you ever hear of anyone with that many? thanks for being there!
Dear PAT91949
We are very sorry to hear about your Tarlov Cysts. Can you please complete the contact form on our website (you can find the link to this page in the information below the video) so our US based medical board can review your condition. We look forward to hearing from you soon.
AIMIS Spine
PAT91949 I WAS REARENDED BY A CHURCH VAN AT 70MPH. WE WERE DOING 15MPH. HOW THE MAN DID NOT SEE THE ROAD CONSTRUCTION SIGNS .IS STILL PUZZLING ME.ABOUT A OR AND A HALF LATER MY SYSTEMS STARTED. EXTREME PAIN IN LOWER LUMBAR ALL ACROSS BACK.UPDATE TO NOW.THE CAR ACCIDENT 2012 NOW 2018 I SEE A SPINE PAIN SPECIALIST. BUT HE KNOWS OF THE CYSTS BUT ONLY TREATS MY PAIN. IVE GONE FROM WALKING TO NOW ONLY WALK WITH A WALKER. 29% OF QUALITY OF LIFE.I HAVE TO CATHERIZE
PAT91949 3DAILY AND NOW MY UTERUS PELVIS PAIN IS UNBEARABLE
I have 18 from C1 to all though the thoracic spine so I imagine there are many more in the lumbar and sacral spine! I have headaches, numbness and tingling with decreased feeling in my right leg and arm. I have had leg pain for over 20 years.
@@AIMISHealthcareGroup i also have tarlove cysts in my s1 s2 also a cyst in t11 t12 fighting with this terrible pain ...but in asia i didn't find any dr who agree to operate me ..and i cant afford to come us ...
I Never Thought in my life Something as simple And pretty small .A fluid filled cysts. Could cause so much pain.And the saddest thing no Doctors But a few know of them.SoW Can All Pretty much forget the hopes of a cure for CANCER!!!Living with a rare decease due to a man crashing into me innocently driving.Now Lost Quality of life.
Shari Lara it isn't that they don't know about them, I've yet to come across one who isn't aware of them. The issue is until recently doctors where persistent in admitting they cause pain
I had a Nero surgeons PA tell me the cysts was not causing my pain.😮 magnesium helps with pain. There are other herbal pain remedies, how ever you can not take Rx meds with them. Check interactions!
I need help if anyone would be kind enough to answer my questions? I waited a year to get on insurance for individuals in my state I have Anthem blue cross gold pathways its a HMO does any know if doctor F in Dallas TX. Takes this insurance and if so how do I get to go from my state to his using my insurance plan for his help ? Thank you anyone who responds.
What is the price of the surgery
Abaut 38000 €
What is the surgery price
How much do Tarlov cysts surgeries cost? Roughly.
Dear MegaJen hello.. please be informed that we cannot provide a price without the doctor seeing your MRI to assess your case.. You can send us your contact details and MRI at spine@aimis.com and a member of our International Patient Management team will contact you for more information and a price plan for the treatment..
@@AIMISHealthcareGroup Thank you - I will do so. I have already an MRI and the doctor said I have several large Tarlov cysts that are the cause of my pains.
Hi
Have u contact them?
I have the same problem and not sure how much would cost ?
Do you do surgery in the states?
Andrea, not sure if you already answered your own question, but Dr. Feigenbaum is in Dallas, Tx. He travels to three different locations, including Cypress, to perform surgeries.
What insurance do you accept
We have agreements with all major insurance companies, please visit www.aimisspine.com for more information.
Poderia se possível tradução para o português
El problema de esta enferma que no hay muchos especialista y uno sufre horrible por esta enferma que para que lo traten se tarda mucho.
I had my surgery done In israel first adult In israel
I'd really appreciate being able to ask you a question or 2! JonMy05@gmail.com
@@jonathanm.8646 sure what's your question ?
there is no cure you can't fix it, success rate I think wasn't good at all
I don’t think that’s true. There are groups on Facebook, and there are many people who have had surgery and are better.
That was the case maybe 25 or so years ago, but Dr. Feigenbaum developed the process for repair about, I think, 21-22 years ago.
I was told by my neurologist that surgery is a scam and highly risky. That's why it's done in Cyprus where regulations are more lax. He said surgery costs around 70,000 dollars AUD and you could end up worse.
Doctors don't publish their failures.
@@snowbear1877 I can not find any reviews on this doctor at all online. Only a limited amount (like 5) where are all the reviews after his thousands of successful operations?