A day in the life of a patient with Retinitis Pigmentosa (RP)

Rebecca Hicks has Retinitis Pigmentosa (RP), an inherited eye disease characterized by gradual vision loss of peripheral and night vision. This is her story.

[@jessegardner366]

It’s not difficult being blind. It’s difficult going blind.

[@petraachteresch7151]

Ich DANKE DIR...so ist es..ein Lenen in höchster Form von Wahrnehmung..seit dem 20Lebj. -RP- heute bin ich 64J....herzliche Grüsse ♡♡♡

[@bookwriter4438]

I have RP and congenital nystagmus (everything i see shakes), and its a pain in the butt. I think a trearment, maybe a cure, even, will be coming soon. Hang in there everybody!

[@systdfughu]

I am from India and I have RP problem by birth

[@gregd3227]

I also have RP and nystagmus. Not fun. I also have cataracts, but I'm terrified of getting cataract surgery because of both my RP, and the shaking of my eyes. I only really use my right eye, so if they screw up that eye I have no idea what will happen.

[@systdfughu]

@@gregd3227 so sad

[@Archiejoeawesome]

It’s hard, and maybe a cure will never come, but we just got to keep our heads up guys ❤

[@birratrueno8882]

Welp, I have RP, and everything they said on this video is true. When I was like 6-7 yo, doctors told my mother exactly the same crap, "he's going blind, go home". Now I'm 37yo and I'm not blind, but living side-by-side with the RP is slowly getting worse. Luckly I traveled to Japan in 2020, but I want to go there again in the near future.
How many more years do we have to wait to see a definitive cure? Is there any hope?

[@systdfughu]

O

[@bronzekiller2300]

You game a hope :)

[@eduardodipiero2653]

There is a study going on using NAC n-acetyl cysteine with good results for RP. Try to be informed about it.

[@ABMSTUDY]

My mother has optic nerve damage due to ethambutal and doctor negligence please do some more research in this direction

[@selena3486]

Please i'm new in this i just found out that i have RP and it been 4 or 5 years since i notice that my view is weird, but please we need help in cure keep doing the research

[@jackieferreira5284]

This video is four years old....nothing yet? Im up for abtrial if any... Im losing mine fast now

[@jessegardner366]

I have advanced retinitis pigmentosa

[@lalusharma1629]

Iam RP parient
Please help us

[@systdfughu]

Yes

[@eshamims1800]

I have RP

[@skylartwohy1008]

I have rp to and its not fun. I got tought to cook and cross streets blind folder with a cane. I also know braille?

[@skylartwohy1008]

Oops no “??”

[@alongamoemmanuel9169]

I am RP patient and i stay in Cameroon please help me

[@eshamims1800]

I have it too

[@heizdavy]

I also have it

[@kamatamjaideep8166]

Hi

[@kamatamjaideep8166]

@@heizdavy hi

[@heizdavy]

@@kamatamjaideep8166 hi

[@user-pi9gd1jd8k]

I have RP