Видео

Hello... I am also suffering from this disease and I also hope for the treatment I have also two other patients in my home one of my brother and sister also suffer from this disease we are waiting for the treatment please help me

sir namaskar this video is very very nice When will be commercial treatment for Retinitis Pigmentosa ? wait for informations

Please i'm new in this i just found out that i have RP and it been 4 or 5 years since i notice that my view is weird, but please we need help in cure keep doing the research

I am facing low vison and colour vision due to CSR god damage of Macula please bring treatment sir

No eye doctors dont Talk to each other.

It’s hard, and maybe a cure will never come, but we just got to keep our heads up guys ❤

I have RP

Rip

This video is four years old....nothing yet? Im up for abtrial if any... Im losing mine fast now

Welp, I have RP, and everything they said on this video is true. When I was like 6-7 yo, doctors told my mother exactly the same crap, "he's going blind, go home". Now I'm 37yo and I'm not blind, but living side-by-side with the RP is slowly getting worse. Luckly I traveled to Japan in 2020, but I want to go there again in the near future. How many more years do we have to wait to see a definitive cure? Is there any hope?

I am suffering with wet AMD and have just been diagnosed with GA in my only good eye. Left eye can still see Right eye has lost central vision. Is there any way that one can get into an experimental program testing the stem cell therapy. I have a fairly aggressive case and am only 67 years old. I have been receiving the injections every 4 to 5 weeks 🎉since the age of 54 and feel like I am running out of time. Where can we go to find these types of programs?

Seeing a black shadow outside the amsler grid paper??

If anyone is still monitoring these comments…..great, positive video, but….would benefit from more information about the food….please 😊

I have rp to and its not fun. I got tought to cook and cross streets blind folder with a cane. I also know braille?

I have RP and congenital nystagmus (everything i see shakes), and its a pain in the butt. I think a trearment, maybe a cure, even, will be coming soon. Hang in there everybody!

Why do people say "Kind of very"?

I have advanced retinitis pigmentosa

It’s not difficult being blind. It’s difficult going blind.

1. Music too loud 2. No nutritional information

Do we have any idea at all of a timeline when this may actually be available to all AMD patients ?

I have Retinitis pigmentosa usher syndrome 3 And doctors tell me i will end up blind and deaf at age of 60 or 70 ... I can't afford the genetic testing 😔 i live in east Africa Ethiopia am 24 years old And am happy to participate in any research or treatment testing

Great video.

I have this disease and I turned my nightmares and fears into music: ruclips.net/video/pXxml4b19MQ/видео.html

I have an xlinked xlinked juvenile retinoschisis 31 right now and im losing hope coz here in the Philippines ut cost alot for the treaent i feel really disappointed i hope you van find a cure for us.. thank you

Hey. Thanks you for this VDO. I m from Thailand I hope you get well soon. My doctor. said I have this disease. I don’t know about this I don’t know about prognosis. But. I m happy. Around the world take care and support patient. Thanks you very much ❤

There is a study going on using NAC n-acetyl cysteine with good results for RP. Try to be informed about it.

💪 þrðmð§m

I have RP

I am RP patient and i stay in Cameroon please help me

My mother has optic nerve damage due to ethambutal and doctor negligence please do some more research in this direction

Any treatment for stargadts 1

Hi I have AMD the dry type and would love to know if any progress has been made lately I’m willing to try any experimental treatment

You game a hope :)

Iam RP parient Please help us

Any advancement treatment of rp

I m Retinitis Pigmentosa Look my eyes and my chanel all peaople

Why is it that when people are talking they have high pitch music playing? I have hearing aids and it becomes very difficult too hear what they are saying. This problem goes on elsewhere

Nice video, how about a link to the recipe.

Thanks for this video 🙏🏻❣️

Hi. I am seeking help... I have diagnosed with a rare eye condition called choroideremia. Because of this life changing disease, I am completely blind in my right eye and what sight I have remaining in my left eye is like looking through a straw. I'm told that the only hope for me is stem cell therapy and that trials for that will not begin for at least 5 to 10 years from now. By then it'll be too late for me. Can you or anyone please help me to find any kind of help... please.....

Genetic testing is important but too expensive

Can cure rp

Plz rp can cover properly

I would love to know more as i have wet.

Plz reply

Any treatment of rp

Any treatment of rp

Any treatment of rp

Sir can I please get your contact details:you can send it to my email abdulhameedbe03@gmail.com but please share your contact details sir please

Sir am from India Am 30 years old Am suffering macular degeneration Pliz help me...?