Updates on Down Syndrome Regression Disorder: What You Need to Know

Down Syndrome Regression Disorder (DSRD) is an emerging condition where individuals rapidly lose language, communication abilities, and developmental skills over a period of weeks to months without a clear cause. This condition can be sudden and devastating for both families and individuals.
This webinar with Dr. Jonathan Santoro and the National Down Syndrome Society (NDSS) focuses on the signs and symptoms of DSRD, the recommended workup for the condition, and treatment options.
For more resources, please visit our website at ndss.org/ and the following links:
NDSS Links:
-NDSS Regression webpage ndss.org/resou...
-Down Syndrome Regression Disorder Checklist printable resource ndss.org/sites...
-NDSS newsletter sign-up ndss.org/ndss-...
Dr. Santoro’s Links:
-Children’s Hospital Los Angeles Neuroimmunology Program www.chla.org/n...
-Children’s Hospital Los Angeles Down Syndrome Program www.chla.org/n...
-IVIg in DSRD Paper www.ncbi.nlm.n...
-DSRD Criteria Paper www.ncbi.nlm.n...
-DSRD Neuroinflammation Paper www.ncbi.nlm.n...

[@Dan-nl4vb]

Thank you, found this video incredibly useful as I am laying next to my daughter in hospital in Australia coming to terms with her DSRD diagnosis.