Rare Disease Day Official Video 2022

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  • Опубликовано: 26 окт 2024

Комментарии • 27

  • @emilypurdin138
    @emilypurdin138 2 года назад

    Emily from Portland Oregon. I have Cushing's Disease. Keep going everyone and enjoy the good days.

  • @carol59856
    @carol59856 2 года назад +3

    Hello from the UK! 😄💪🦓

  • @mariamaghinang1774
    @mariamaghinang1774 2 года назад +1

    Thank you.
    From Philippines.

  • @brianensor6408
    @brianensor6408 2 года назад +2

    Hello from the United States

  • @fabirox20
    @fabirox20 2 года назад

    Greetings from California, USA 🙏 Praying for all who have a rare disease like our son does. There is always hope :)

  • @EdwardForshaw
    @EdwardForshaw 2 года назад

    Hello from Surrey, United Kingdom. Last year I was diagnosed with spinocerebellar ataxia. I'm coping with it, but I want to join you all in shouting about our rare diseases! Awareness is key. Best wishes to you all 👍

  • @rashakaffas4786ce
    @rashakaffas4786ce 2 года назад +1

    Greetings from Egypt..so happy there is an Arabic language contribution In the video..best community ever

  • @alanmaladiesraresluxembour5880
    @alanmaladiesraresluxembour5880 2 года назад +3

    🙌 Greetings from Luxembourg! Together we are stronger !! 💪

  • @marcomarziali9417
    @marcomarziali9417 2 года назад +1

    Greetings from Rome, I was diagnosed with Beçhet Syndrome in July 2001. A big hug to everybody!

  • @tzhar8669
    @tzhar8669 2 года назад +3

    Greetings from Malaysia!!

  • @declandelaney6991
    @declandelaney6991 2 года назад +2

    Greetings from Merseyside, England, I was diagnosed with autoimmune hepatitis in September 2020. Doing fine. Best wishes to you wherever you are

  • @barryaanhuizen8766
    @barryaanhuizen8766 2 года назад +1

    dgreeatimg from CapE town , awesome to be part of tis inniative

  • @miriamokitembo4907
    @miriamokitembo4907 2 года назад +1

    Greetings from South Africa

  • @JeanHF
    @JeanHF 2 года назад

    Greetings from the UK. I have been diagnosed with Charcot Marie Tooth Disease. It took them 9 years to diagnose. There is no treatment or cure. I am hopeful for the future.

  • @mme.irenekilumanga643
    @mme.irenekilumanga643 2 года назад +1

    Greetings, I’m Tanzanian diagnosed with systemic lupus erythematosus & lupus nephritis since 2007… Together WE STAND & fight these rare, incurable and debilitating illnesses 🙏🏾💜

  • @katheufelistus4821
    @katheufelistus4821 2 года назад

    Hello..Am from kenya diagnosed with generalised Myasthenia Gravis from 2014

  • @ds654
    @ds654 2 года назад

    Is there an English version of this?

  • @nailyfadillah3904
    @nailyfadillah3904 2 года назад

    Prefer all the different colours presented to all those beatiful human with spesial conditions, than the people with any sexual interest. Best wishes and hopes for strong human.

  • @tudormiller887
    @tudormiller887 Год назад

    I'm an adult with Tyrosinemia Type 2 watching from London.

  • @catherinesargefield1732
    @catherinesargefield1732 2 года назад +1

    Hello from Canada. I have Turner Syndrome and my wife has Elhers Danlos Syndrome

  • @madhav118
    @madhav118 2 года назад

    Greetings from India , Diagnosed with Vitiligo , thank you for such a great support from Family and friends . Together we can overcome ❤️🤩

  • @lindakaempf8530
    @lindakaempf8530 2 года назад +1

    I was diagnosed with Behcets Syndrome.

  • @DangerousEdge
    @DangerousEdge 2 года назад

    Hello from Upstate New York (southern Adirondack / northern Capital District region). I live with double seronegative Myasthenia Gravis (via clearly abnormal SFEMG including blocked pairs) and Ehlers-Danlos Syndrome (unspecified, hypermobility)

  • @martapedroso1411
    @martapedroso1411 2 года назад

    Se precisar de uma fala Brasileira estou aqui,sou uma das pessoas com doenças raras no Brasil. Amei o vídeo. O espanhol deu pra entender. 👏 "juntos poderemos pintar a imagem de um mundo mais brilhante" e mais forte.

  • @agneseesposito2916
    @agneseesposito2916 2 года назад +1

    Ciao...Come si può avere tradotto in italiano?