i have lupus for 3 years 🙂, i am trying live a normal life, but sometimes i have severe pain in my legs, i can't go to sunlight , i lost my hair, i am 22 now. This comment section is giving me inspiration 🙂❤
It took me 3 years to get diagnosed with lupus. Any number above 90 on the ANA test is considered positive and mine was at 360 around the time I finally got diagnosed. I tend to experience fatigue, weakness, rashes, fevers, nausea, loss of appetite, gastrointestinal issues, dizziness, loss of feeling in my body, brain fog, memory problems, sensitivity to lights and sounds(my pupils do not shrink properly in response to light but instead expand and constrict rapidly over and over), hair loss, muscle and abdominal pain, muscular atrophy, trouble regulating temperature, and tremors. I have had trouble breathing, and had several months in which the inflammation in my brain got really bad and I was having difficulty understanding words and communicating. I'm super curious to know if anyone has experienced similar symptoms, particularly any neurological symptoms or muscle tremors.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I literally have every single symptoms you described in your comment! I've had 4 separate doctors/specialists unofficially Dx me me Lupus, yet I haven't been "officially" Dx. It has been the most traumatizing 4 1/2-5 years of my life to say the least!!
i have all of those symptoms too but they haven’t diagnosed me but at the same time i’m still in my early 20’s my friends mom didn’t get diagnosed until after she had her first kid
Wow! I have almost all of them. I just figured they were from fibromyalgia until my pain doctor mentioned lupus. I also have sleep apnea, obstructive, central, and complex. It takes almost a full page on my after visit summaries to list all my diseases and problems. Makes life painful, but kind of interesting. I am beginning to understand medical terminology now!
I was diagnosed with Lupus SLE in 2015. After years or going in and out of the hospital, one day I just passed out in the shower. I woke up in the hospital. My son who was 3yo called 911. I spent 8 weeks in the hospital with an unbreaking fever between 102°-108°. I had actual loss the motor functions in my legs and my right arm. After my hospitalization, I spent 6 more weeks in a Convalescent Center getting physical therapy...I was 34 at the time. It has been a rough, emotional road. I decided to become vegan, use Ayurvedic and holistic medicines. Which has helped a lot. The hardest part was nobody believing I was sick. When there is clearly a war going on inside me. Many Blessings 🦋💜✋🏽
That's so smart and cool that you're vegan! Me too. My doctor told me to check out Dr. Brooke Goldner's autoimmune vegan detox, called Goodbye Lupus, and I reversed my autoimmune conditions.
I kept having a deep pain on my left side. I was weak and my joints hurt. I went to the ER and they took some blood. I had an extremely low platelet count and Doctors could not figure what was causing that. They did a bone marrow biopsy. They told me I had Lupus and that my Spleen was causing my platelets to be destroyed. The Doctors took out my spleen and my platelet count went up to normal within one day! I have had Lupus since I was 18. I am 52 and now have Lupus, Sjrogrens, Osteoarthritis, Hypothyroidism, and more. Just know you are not alone!
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕
Hi, is there any test to know since when we have autoimmune disease? I am being sick since i finished covid quarantine. Being told it was long covid. After 3 years, i have been diagnosed with autoimmune disease.
@@izreenfarah8689There are are several tests your doctor can order. Also check out Dr Brooke Goldner Goodbye Lupus on RUclips. My doctor recommended I try her free detox program and I reversed my autoimmune conditions.
I was diagnosed in 2011 with Lupus through a blood test. My physician was awesome with explaining the disease to me. I was under his care until 2016. He retired, and I moved 250 miles away. My new physician had me take more tests and decided I didst have Lupus. I do have other autoimmune diseases such as Hashimotos Thyroidis and CKD, stage 3b; Osteoarthritis, Osteoporosis, COPD, SLEEP APNEA (CENTRAL & OBSTRUCTIVE), DDD, DJD. I take water pillsto keep it from gethering around my heart and lungs. I just manage the best I can. I'm almost 69, and I manage to get through each day, blessed to have great faith in my lord and savior, and I am still able to serve him faithfully.
close to 8 years of being ignored. I was recently diagnosed with Lupus and that was it. Doctor said “looks like lupus, we will keep an eye on it” that was all. I’m not left with more questions then answers
I have been on his journey since 2017. At first they misdiagnosed me with CNS vasculitis. Then I moved out to Texas and the new neurologist that I found did some blood test in the beginning because they were trying to get my blood work from my prior rheumatologist out in California, and, of course, were unable to. My primary position saw that my ANA was very high, and a few other things. She put together a few of my symptoms, and did a preliminary diagnosis of lupus. She sent me to a rheumatologist, who I met with on Wednesday. He looked at my blood work, heard the list of symptoms that I had, and even noted that I had a butterfly rash on my face. he basically brushed off the fact that I’ve been a lot of pain, and very tired. He told me that exercising will wake me up. I find that it knocks me right back down. He refers me to dermatology, to get some rash scars looked at, and to a sleep study because he thinks I might have a sleep apnea because I’m so tired all the time. He also did some blood work, which I saw the results of. everything that you have mentioned that they look for except for the protein in the urine, is sky high. I got a message from him today saying that it doesn’t look like there’s anything wrong with me and continue following up with my primary doctor. He’s the only rheumatologist in my area that takes my insurance.
Continue searching for the right doctor like a teaching hospital. I was brushed off from the first Rheumatologist after being told mandatory testing for all family after my mom passed from undiagnosed sle ms and other serious autoimmune issues. My gran apparently had it and passed as well from it. I don't know how people get passed off like that 😢
Hello im diagnosed lupus now 2023,i cannot imagine that i have a desease like this ,many people told me lupus is the sickness of rich people,im laughter because im not rich but i have lupus,that why when i hospilized i need to need peple to help me my financial problem,
I had been extremely fatigued, a different of fatigue. I took this to my primary who is typically very good. She told me “we don’t just test for lupus without some kind of presentation. Finally, had a skin lesion on my back & then biopsyed. Came back positive for discoid. I knew long before, that I was right. Keep fighting for your own health. Be your own advocate. You know more about your body than you know.
Great advice! It is so important to advocate for ourselves, most of the time we are headed in the right direction. I’m glad you were finally able to get the diagnosis.
Wait they can do a biopsy on skin....wow my doctor really was the worse. He never did that. Just touched my face an looked at me an said "nah it ezkama" despite it legit being in butterfly shape and only there an very prominent and flares an is really bad an itchy if go in sun 😂😂😂 I really am glad for seeing others stories cause makes me realize how trash my doctors were. I never even thought of a biopsy for skin. I thought was sonly for tumors an stuff inside you.
@@sarhahillsburg5142 if you indeed had a butterfly rash, a really good doctor should have taken it further. Do you have a rheumatologist? They are the ones that test/diagnose for lupus. Start there & transfer those records to your primary if you need. In your case, I would, simply to prove you were correct. I had a round, suspicious lesion on my back. I demanded another appt and my doctor (the primary) never seems to doubt me anymore Doctors these days feel so disconnected . Keep fighting!!
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I was diagnosed in 2019, started with alot of nerve pain, afterwards started to get joint pain literally in every joint 🤦🏽♀️ visited a neurologist, who completed a ANA that was positive I was then referred to a rheumatologist, ended up visiting 4 more before I received the lupus diagnosis, I’m glad to have answers but I feel like I don’t deal with some of the more common issues like rashes, sun irritation, etc… so confusing
I've been symptomatic for almost 10 years. I've had anti-dsdna show up for years. A positive ANA with homogeneous pattern just appeared in September. My follow-up is next Wednesday. I'm expecting a Lupus diagnosis. I have figured it was this and not RA since 2018, but now there's proof.
Hey Samantha, I was DX with MS 18 years ago and now facing lupus as well. This last episode I had I kept tracked because when I had this FLARE I call it.. I had cluster of symptoms that all had to deal with inflammation,but I just worked outside and it shut me down for 10 days..symptoms- bilateral small joint pain in hands and feet, bouts of nausea, urinary issues, include large blood in urine in toilet showed on urinalysis but also got a UTI which I never get, fatigue, severe swelling, pain in elbows and all over, I count eat for the last 4 days of it. This was new for me all at once, I have every symptom of Lupus including the blood work. But because the doctors are so hung up on a positive ANA I’ve had to just got to a specialist that would listen. I have had 2 positive ANA and 10 negative. I will say this. Keep all records of blood work and testing. You can get your medical records free… just have to be persistent is the key..with Lupus it’s not a clear thing and ANA is so non specific. Research showed 30% people positive ANA are normal. So just asking the question, why are you so hung up on one non specific blood test when you have multiple check points. On the flip side.. doctors have trouble because so many autoimmune diseases cross over symptoms..and there are a lot. So yes I have had a positive ANA and negative. My negative even showed up recently when I was in a flare..so no it can show negative even if in the middle of a flare to also include even a normal ESR levels…which made no sense because I was swollen and all my body was inflammation. Keep persistent Lupus family..❤
I had a positive Ana back in 2019 but the rheumatologist said it was my thyroid antibodies (I have hashimotos). My cheeks get pick especially after being outside when hot or cold. Also, I have chronic hip pain. My knees, shoulders, wrists etc like to join in sometimes too. I already have 3 autoimmune including thyroid, kidney, and celiac so I know I have a higher risk and at least 2 of my relatives have lupus and/or RA. I swear I wanna go in and say test everything let’s rule it all out lol. Thank you for this info.
I wonder if you have heat-induced and cold-induced rosacea. Rosacea can be a symptom of SIBO (small intestinal bowel overgrowth). I say this because you also mention celiac. There is a test for SIBO, in case you've never been tested you might think about getting tested.
I'm in the in between stage: on one side all of my blood has been drawn and I can see my test results (some results are positive others are either negative or out of range) on the other side I'm waiting for my appointment so that my rheumatologist can explain everything to me. I'm really anxious right now, I want to know what form of lupus I have and what I can to help my body, but outside of surfing the net for answers and solutions, I have to wait for my appointment next month which is nerve wrecking and my doctor did say that they wanted to start me on Plaquenil, Wishing Everyone with Lupus the best, stay strong, you got this!
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I had Lupus in 1988 which effected my joints. Sometime later it went into remission after treatment. In January 2021, I contacted COVID and it effected my legs the most because I could hardly get out of bed. I am still having problems with my joints after that episode, and I am concerned that Lupus has returned. Years later after my initial diagnosis, I discovered that two of my great-grandmothers also had Lupus.
Ive always had symptoms, lived with the minor pains and issues like sun sensitivity etc, but since having covid its gotten really bad, and have only been diagnosed this week. 2 positive ANA a year apart. But covid I think was the trigger, and being self employed and no social welfare here, stress has just snowballed the flare, the inflamation has caused iron overload on me, and started damage to liver, so over the last 2 years had blood letting to reduce iron. I hope no Im diagnosed Ill get correct meds, but I already know I have to go out of country to get meds cos meds are not available locally as they have not been registered. One challenge after the other, but its a road Ill have to walk, and its one foot in front of the other.
I got diagnosed with lupus/sle in 2006 when I was 40. Several years earlier I presented with Raynaud’s phenomenon but no positive ana until 2006 when I presented with joint pain and fatigue. Mine is well controlled now with hydroxychloroquine and xeljanz. I still suffer with it tho and have terrible gut issues every day and even skin rashes rt now in my scalp, but previously on my legs. I’m so sorry you have it at such a young age. I was fortunate enough to have my two kids before being diagnosed.
I was originally diagnosed with SLE (lupus) in 1985. My ANA panel was positive then. Since then I've had 5 additional ANA panels -- 3 were positive and 2 were negative. And each of those ANA panels was ordered by a different doctor (I moved around quite a bit). The worst part is that the last time an ANA panel was run, the rheumatologist I was seeing accused me of lying about having been diagnosed with lupus. That was in 2011. This was one of the most humiliating experiences I've ever had. The man actually yelled at me! Because of that -- and because there is SOOO much confusion with these false positive/false negative ANA panels, I stopped going to the doctor since the majority of the attitude was that I was a hypochondriac and/or a malingerer. What was the point? But recently I started having some major symptoms again this year, so I went to the doctor again in March and had a full physical work-up. The ANA panel came back positive. Again. So, 4 out of 6 times I've taken this test it's been positive, and each time I've presented with a majority of the visible symptoms, including the butterfly rash across the face and the inability to be in the sun for any length of time without reacting. Seems to me -- in spite of the tendency for the ANA panels to run false positive/negative -- that I, at least, have lupus.
I'm going threw this very same thing right now I feel a lot better just knowing I am not alone because I've been very down over the way I've been treated by some of these doctors 😮😮😮😢😢
@@fayejohnson8470me too. It’s so frustrating to hear “You have fribro & there isn’t much we can do”. Freaking FIBRO!!! When I see any new dr or go to the er, I never tell them I have been diagnosed with it because I feel they look at me differently. Like I’m some hypochondriac or something. I also try to educate myself on symptoms I have and I feel that sometimes doctors look at this as BS & write me off. There has to be a better way to diagnose it!
Hi so sorry to hear what you had to go through. Nothing worse than someone saying your faking an illness,disgusting. Go with how you feel you know your own body. Take care and stay strong
This drives me crazy! Doctors who say you need a new ANA. Once it's a positive its always positive. It shows low or negative when you are not in a flare.
@@398Vampire It's driven me crazy too. What doctors need to understand -- not only about SLE, but about other diseases/disorders as well -- is that YOU (the doctor) don't know everything. You may think you KNOW lupus or any other disease/disorder, but there's typically someone who knows from a little bit more to someone who knows a WHOLE lot more about some of these issues with which people present. In fact, in 2011 there was still a lot that was NOT known about lupus. Apparently it never occurred to the doc I saw in 2011, that he might be wrong. And the fact that his actions caused a patient to stop seeking assistance, and thus to progressively become worse with the very issue that that doctor was accusing the patient of lying about -- it's actions like this for which these specific health care providers should be penalized, even to the point of having their medical license taken should they not attempt remediation.
I was experiencing a ton of symptoms. My ANA was negative at first, 2 months later it was 1:320. It has fluctuated. My pattern was homogenous, now it is speckled and homogenous.
A few months after mild case of C-19 I started losing tons of weight while eating normally, body pain mainly in hips and shoulders now my thumbs. Palms of my hands swell near thumb base, severe limb numbness, ankle swelling, swelling of blood vessels, puffy eyes, then came blood & protein in urine. My urine looked like red wine for 3 months, determined my left kidney was hemorrhagic with no clear reason. During the past 2 years had 2 negative ANA. Finally had a positive ANA 1:80 then a second test done on same report said 1:160 cytoplasmic. I have no idea if it’s Lupus or another autoimmune disease but I pray for answers and healing because I’ve lost 50 lbs eating a ton and am so fatigued and in pain it’s hard to work and care for my 3 small children.
Forgot about Raynauds and can’t hold my bladder. Also ringing of ears, blurry vision with white stars, light sensitivity even in overcast I need sunglasses, & more. I’m sure I’m forgetting more but I’ve suspected Lupus then was scared of cancer because I’ve gotten so skinny. Hopefully I’ll have a definitive diagnosis in the next few days now I have positive ANA after years of negative.
Always thought I have lupus. I once had a positive speckled ANA but it never showed up again. I worry I have been misdiagnosed with rosacea, CFS, irritable airways and anaemia separately - I had rhemuatoid arthritis as an adolescence (in remission) but still get flair ups, and my ankles still get stuck
I have celiac disease that I was finally diagnosed with it last year. I started having some symptoms in the past year that may mean Sjögren’s syndrome. My tear glands became so dry and inflamed that I needed a lipiflow because the standard thermal treatment did nothing. After a month post lipiflow my oil numbers have improved. My salivary glands are also dry and sore and I am a lot thirstier, but my mouth is only slightly dry. My eye sight also worsened because I needed a stronger prescription last spring. I also have joint pain in my wrists and ankles and raynauds. I have half of the specific autoantibodies for Sjögren’s but the rest of my diagnostic labs are clear. My rheumatologist is still keeping an eye on whether it does mean Sjögren’s and he just ordered some follow up labs since it has been almost six months.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I am curious Leslie about your case and the others I read on the comment sections - I am 52 I have no medical maladies or whatever. I have no maintenance med as well. i only received mandatory childhood vaccines 3 of them only, I refused the global clotshots, even lost my job because of my refusal. Of course i dont smoke, drink and I watch what I eat. i maintain my weight since I was 25 years old. My question is - how many vaccines did you receive from birth up to today?
How does one heal from lupus? I’m in the process of being dx. My pulmonologist took blood, and my Titer score was 1400. He said that’s off the charts and he’s sending me to a rheumatologist. I see him 7/6. I am overwhelmed. And tired. Thanks for the info.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I was diagnosed with Lupus at the age of 35; this was 15 years after the first signs of Lupus. I had my first seizure at 20; had Raynaud's; had the butterfly rash; you name it. I finally experienced my third full-on "flare" at 35, which prompted testing - ANA, sed rate, you name it. I finally was sent to a rheumatologist who pieced all of my random symptoms together and did extensive testing, including testing for the presence of Anti-Smith antibodies and the Anti-dsDNA Antibody. I was quickly put on prednisone, which I would take for three years. One year after my diagnosis, I had life-threatening blood clots in both legs and abdomen. ALL OF THIS TO SAY: I'm 50, and the craziness of Lupus is finally under control. Yes, I take seizure medication; yes, I take blood thinner; and I am on Benlysta, which is helping as well.
My platelets dropped to 7, I started getting Petechiae all over my legs, I couldn’t walk or move my hands and I started bleeding from my mouth 😅 took about 4 months and a emergency visit to the hospital to finally get diagnosed
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
Great video! I got diagnosed extremely quickly. My symptoms first popped up in 2018 but didn't start in full force until late 2020. Saw the RA for the first time in July 2021 and it took until January this year to get diagnosed. I had photosensitivity, malar rash, fatigue, positive ana, and what finally got me diagnosed was low wbc and a positive anti ds dna. I started plaquenil 2 weeks ago and was nervous but so far so good, just minor side effects.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
Yes, Miss Samantha, a positive ANA is the first stepping stone to diagnosing someone with Lupus. If not positive, it's not Lupus. If positive it could also be something else like, Rheumatoid Arthritis or Fibromyalgia for example. So yes.... Lupus is difficult to diagnose from the get go. God bless you for what you do. You're adorable and I'm sure you're helping so many people! Keep up the good work! ML and Blessings! 💜 🙏😇
I am going to a rheumatologist in June. I went for blood work last month with a positive Ana with homogeneous pattern. I am exhausted every day of my life. So much joint pain we thought it was arthritis but it seems there’s more happening
Hi Sam, thank you for this great video. I was diagnosed a year ago, I have been suffering from joint pain, oral ulceration and photosensitivity for 4 years now, so my ANA became positive after 4 years of symptoms. I am very glad that I found your channel, you give me a lot of positive energy, thank you ☺️
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
SLE diagnosed earlier this week ANA+ my iron is high though..and have the regular SLE tiredness and aches etc. (Probably over 30 years not diagnosed, and only recently suoer bad symptoms 2 years since having c19) The pain and aches have taken a toll on me mentally. Really down at the moment, and hope can start getting things under control. I dont think anyone that doesnt suffer can fathom how mentally draining the constant pain and aches are, and some of the comments people make sometimes hurt worse than the physical pain. I just hope to get it under control. Had some liver issues but have recovered from that...after having numerous venesections to lower ferratin but its elivated again and the aches are super bad again. But I understand the emotions you have behind your words when speaking about the symptoms...the words dont quite fully explain what we as sufferers have, and many non suferers just cant fathom how bad it makes us feel, and the mental weight we have to carry. All I know is anyone that lives with it and smiles daily is stronger than I. Ive got to a point of screw it people can know Im not happy, people can know I hurt. What that means is that a I have a really small group of people around me, and its for the better. I think the mental drain is harder to deal with...I have turned to pharma as I couldnt deal with the depression the pain brought on.
Hi, I’m sorry to hear you are having such a tough time with pain. Maybe you should have a word with your doctor. Are you on medication for the lupus? I was recently having pains in my knees and someone told me about Irish Sea moss. It seems to be helping as the pain is much less. It also helps with energy. It might be worth a try. I got the liposomal liquid as it’s easier to take. It is hard coping with other people. Just look after yourself and don’t worry what they think. If you’re not working read good books or do something that relaxes and inspires you. Sending love ❤
@@justagirl5593 on cortison and some happy pills, once the cortison finishes I start Methotrexate. Nothing been helping for pain, just dulls it a little, and the constant pain, my head was not right, so got happy pills, not that they are doing much either...seems just to take thr depression down a notch and thats about all, but going on them in increments so hopefully itll improve my mental state. The pain messes with ur head.
Thanks for the informative video. I have bad inflammation and severe pain in knee, back, neck, shoulders, wrists for no reason. I am on Tramadol, so my new family doctor sent me to a specialist, and they think there is something going on with inflammation, and they said it could be Lupus. MRIs and blood work ordered...
Hey All! 27 M, Here’s my story, last year I started to get randomly lightheaded and severe fatigue. I can’t do anything or I start to get super tired and just burnt out compared to how I used to be on a day to day basis . The lightheaded I noticed will come in with light sensitivity, airports, crowded places and when that happens my vision feels weird, like not blurry but not normal(hard to explain), I also noticed that this will cause me to get severe anxious because I still don’t know what is causing this. I also have severe brain fog along with the lightheadedness and light sensitivity. My mom also has lupus. My doc is really resistant with following up with lupus since my ANA test at the beginning of this year was negative:/ so I’m not sure if she thinks I’m making this up but I feel so debilitated on a day to day basis. I’ve also had a butterfly rash on my cheeks and nose ever since a little kid. Lastly, for the past two weeks I have been waking up with tight hamstrings. I did get some vitamin B-12, vitamin D and omega -3 last week and it has helped a tad. Someone please give me valid advice as what to do. Thank you all and take care!
I happened to mention to my pain doctor that I sometimes get a red face that gets hot and it can last a few minutes or a couple days, and I figured it was from fibromyalgia. He referred me to the rheumatologist but didn't have the right tests, so they said I needed them. He decided to let my PCP do that. In the meantime I researched and most of the rashes were lumpy and no mention of heat or burning. So I decided I would wait before getting an appointment. Then my rash came on and I looked at it closely and except for being smooth, it looked like the rashes I had seen in shape. Then later I finally saw the smooth rash in a picture and now you mention it and the burn. I guess I will check with my PCP when she has an opening.
This video was so helpful and informative. I’ve been dealing with difficult symptoms for a year and a half and I am currently undiagnosed. My had a positive Ana and I’m doing further testing to get some answers. I have extreme fatigue, muscle weakness, joint paint in thumbs, knees, hips, swelling in back of knees, eye brow hair loss, extreme bloating after eating, numbness and tingling in hands and feet, and so much more. Praying for some answers soon.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
Was sent to rheumatologist due to positive ANA. One blood test showed positive Lupus but Dr said because other tests didn't line up then Lupus positive and ANA were probably false. Yet everyone I talk to with Lupus and every nurse I've spoke with said I need a new dr because I have Lupus. I'm looking for a new dr.
I'm 77 yrs. I had 5 children it was tuff. I didn't know why I would hate to be in the sun. Tired alot. When I was 32 pregnant with my 5th kid. The Dr said my blood test showed something off with my t cells. But othing else came from i I delivered a 10 lb 2 Oz baby boy who I believe has lupu he is 41 yrs now. I am getting sick lately. Flare ups of arthritis in my hands, wrist. Very painful thumb. Pains in my heart off and on . Cough at times. Stress brings different symptoms. My son was killed by a hit and run driver 1 1/2 yrs ago. Kicked off alot of problems. Also 2 covid shots made me very sick, Virginia scherer, Reno, NV..
Hi, I’m been in this process since 3 year but any doctor can help me, i had one time positive ANA but the doctor said it’s just one time so we can not say that you really has lupus :( so I’m continue with this process, but thanks for your vídeo was so nice :) have a good day
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I always heard, correct me if I am wrong, once your ANA/ANF is positive twice in a row, it likely will be so the rest of your life. Mine is always somewhere around 640 (been 320 once and 1200+ once but every other time it is tested was 640). Just like my complements (specially C3 and C4) are always too low... I was diagnosed 13 years ago, my Systemic Lupus has been stable and comes and goes (mainly my skin is affected, in every kind...) but the diagnosis took a really long time, had symptoms (pains, affected joints, severe tiredness, allergic to (sun)light etc etc for over 16 years. But here in Holland there are few doctors who know of the disease and since I did not have any specific anti's for SLE the diagnosis was always SLE-like. Until a skin biopsy was done that did confirm it was SLE, cost me my income as well (such a long time for it to be confirmed). Now after such a long time I have developed 4 more auto-immune diseases, some do love to come together, like Hashimoto and Colitis...
Went to rheumatologist without a referral because I was just 😮. It was bad. Negative Ana. Fast forward 2 years. Routine bloodwork by a new family medicine doctor and she immediately said oh no She repeated. Positive Ana Speckled on both. Now going back to rheumatologist. 😑
I’m 2 years into potential diagnosis. Tests have been negative but over the past several years I have had locked up knee and ankle, a crp of 110, fevers of 103 for 2 months straight, butterfly rash, kidney failure, omentitis… it gets so annoying having so many issues with no actual help.
So i got diagnosed with lupus after getting alot lab work done. Now i have protein total random ur 4 L june 2024 and now my 4 L is same as of 4,16,2024. . My absolute Eosinophils 634. C- reactive protein 11.2 . My dr nurse call and said everything fine . But i don't feel great. Plus last year i didn’t have these other problems.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I’m currently undiagnosed for lupus, but extremely symptomatic and also have other auto-immune diseases such as Hashimotos as well, which can also be indicative at times for lupus. My ANA currently is apparently stating negative result, but my symptoms have been excruciating for years.. extreme fatigue and trouble staying awake at times, massive heat patches on my back and arms and trouble regulating my temperature, shooting pains and aches down my legs and arms and wrists, aching lower back, nausea, brain fog and memory loss, severe beaches and migraines, I also have been forgetting some of my words for things that are easy to remember but my brain just cannot think of the word sometimes, I feel sick and ache all over, my brain hurts, my kidney levels have at times shown “stage 2 kidney failure”, my liver reading is often high, vitamin D is always borderline low, going in to the sun feels terrifying as my body becomes so painful and I can barely stand the heat and my eyes hurt, I get mouth ulcers, tingles in my arms and hands when I wake up, trouble getting out of bed some days and so much difficulty concentrating, memory loss, difficulty performing everyday tasks, loss of energy, insomnia, lower back pain, stiffness, I pee a lot, I just got diagnosed with insulin resistance too.. Just to name a few. I’m in pain. I need help. But my dr has said well your ANA is negative so it’s not lupus, but I have felt like it is lupus and fibromyalgia for a while now, and so does my mum. What tests do I need to ask for? I need answers. I feel so sick. 😢😭❤️🩹🙏🏽
Hey, ask for the AVISE test. I'm on my 4th rheumatologist and she ordered the test for me during our first meeting, my first time ever hearing about it. It's supposed to be one of the most sensitive and accurate for rheumatic diseases overall; I hope this helps!
ok, ask for a repeat ANA test. My doctor took 18 months to diagnose me. ANA test was done once every 6 months and ALL 3 test came back ANA + I was 49 at that time. Butterfly rash, I felt like my face was absorbing all the heat/sunlight in the atmosphere! and a burning sensation on my face. I had low energy.
I’m always exhausted and never feel well. 2 weeks ago I started getting the lupus rash on my face. Losing a lot of my hair and my energy is so low that my doctor is checking my b levels and thyroid. The first time she tested my thyroid it came back normal. I have to tell her what to check for me. Where do I go from here? Somethings not right and I’m trying to get to the bottom of it.
I tested positive on my ANA but they said because it was low that i dont have Lupus ☹️. Mean while i have ALL the symptoms, like my hair falling out in patches, rash or sores in my scalp, arthritis really bad in all my joints. Protein in my urine, asthma really bad. I feel exhausted all the time, temperature goes up and down. Sometimes i can barely walk. Fibromyalgia, Etc 🥴
I’ve had two ANA tests both positive. First one low so auto immune disease dismissed, it was :80 speckled result and the next one was :320 speckled result. The reason I did not get a diagnoses was due to only a 40% reduction in my joint pain symptoms, but at that time I did not know that a spinal fusion is had in 2015 had failed and the screws were sticking into my intercostal ligaments causing bright hot spot inflammation in my thoracic spine (found a year or so later) as well as due to the failure, I have hyperkyphosis and instead of the curvature being around 40 degrees at most mine is 90 degrees, so I have a hunch back which places extra pressure on muscles, joints, tissue, plus 4 herniated discs from the failure. I got the screws out thank god, but obviously there was reason for other types of pain at the time I went to rheumatology .so I do not have a diagnoses even though I have so many of the diagnostic criteria symptoms as well as the positive Ana x 2. However what worries me is there has been a big shift with new symptoms , anaemia diagnosed 6 months ago, heart pain and arrhythmias have started, problems with breathing (could be related to hyoerkyphosis however) , but three weeks ago I went into the sun, sure I got some colour, but the first time in 53 years I started to have a hives type rash start! I’ve been a sun worshiper my whole life, I live for sunny days and try to get out in the sun as much as possible, but it was like itchy horrible, uncomfortable rash just came from nowhere, it was there a week didn’t go away then bam, my whole body apart from legs broke into one big patch work of very itchy y and uncomfortable almost sore hives type rash. My face, (forehead chin sides of face into hair line ( I have had a butterfly rash before a when I was in hospital for three days after one side of my face just blew up and filled with fluid, I looked like a chipmunk on one side of my face. and down my neck, my chest, arms, sides, tummy, back ears is a mess. It’s been 4 days and it’s nit getting better, this was preceded with three days of fevers, sweating so badly my sheets and clothing was wet, fatigue so bad I slept for three days, sore in my mouth- little bumps and I get sores up My nose. Dry eyes which have lead to three hospitalisation for corneal ulcers needing 1/2 hourly eye treatments and regular eye pressure checks and checks by Dr to ensure the ulcers was not getting worse, I know have scaring in both eyes and suffer from double vision when looking at a distance! Especially driving. Anyway interesting subject! Not a nice disease to have I am Sure. Maybe I have not got Lupus but living with similar symptoms isn’t fun
I have the majority of these symptoms you have talked about. I have seizures also especially when I get in the sun too much. I have seizures that I am completely aware and awake for. They are scary and can happen at any time and are caused by stress and high blood pressure. I have major anxiety. I itch all the time and then a rash will pop up. I have the butterfly on my nose. I have been starting g to have kidney problems. Non stop UTIs. I have one now that I'm trying to get rid of. I am constantly thirsty because I am dehydrated all the time. I have been tested for diabetes and it's always negative. My ANA is always negative. So they never put all of this together. It's always diagnosed everything separate and different. I am so tired of this. I have been doing g these tests for 3 years every since I fell and broke my neck. I was 1/4 of an inch of being paralyzed from the neck down. I hhad a major seizure while I was alone fell between the bed and wall. I woke up the next day with a back hurting. So I told my ex husband to take me to the chiropractor. That guy did an exam and said your neck is majority broken. The ambulance will come get you so they can strap you down so you can't move and make it worse. I don't remember anything for a whole 4 days. I woke up in the hospital. After all of that my health declined quickly. I have had so many problems since . I am majorly anemic. I got every other week to get blood infusions. But nobody ever puts it all together. I'm getting worse . I never have a good day. It's just bad and really bad. I spend alot of my time in bed and at dr appointment. My life is gone I'm just too sick. My eye sight has even gotten worse. My Rumatologist does blood work and all kinds of tests and never finds anything he says that I'm just anemic and have Fibromyalgia but never says anything about an automobile disease. I don't know where else to go or who else to see. My general Doctor will refer me, but I'm just trying to figure out what doctors. I need to see to try and get this diagnosed. Even if it's not lupus, it's got to be some kind of autoimmune disorder. There's a few kinds of lupus So hopefully. I will get something figured out soon. Because this is just taken my whole life away.
So I came out positive on my blood work for the ANA test and they are in the process of doing further testing 😢 I'm feeling so many mixed emotions and need some advice on how to cope or just deal with it. I do have a lot of Lupus symptoms and that's what makes me start freaking out and I just break-down...I'm also doing more research on it to have a better understanding... Should I be worried 😟? Does the symptoms get worse? My arthritis on my knees have gotten worse and it's causing my legs to hurt and stiffen up and it really hurts when I go for walks and the pain is worse when I lay down..I toss and turn at night due to the constant pain.. any suggestions/advice on how I can get better sleep at night without being in pain?!
I just saw the rheumatologist for the first time 2 weeks ago after my regular doctor did some blood work. Long story short, My shoulder started hurting in March and became excruciating. Work made me go to the doctor.. in April some of my blood work came back concerning main one being a positive ANA but my titer was 1:2560. I saw the rheumatologist 2 weeks ago then he had me come back the next day for ultrasound on my hands. And I see him again next week. Locally it takes a long time to get in or appointments are spread out so it had me a bit nervous.. I had 4 tests of blood work (10 viles) ordered I went on 8-04-22 and got that done I am still waiting on results. I've never experienced such a long wait after. My primary thinks I have lupus the rheumatologist blood work was for analyzer ana ifa with reflex titer/pattern systemic autoimmune panel 1, histone antibodies, thyroglobulin antibodies, and early sjogren's syndrome profile. Do these test usually take this long?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
Did you ever find out what was going on? I’m going through the same thing. I’m having severe shoulder pain and I’m supposed to seeing the doctor soon. My blood test show lots of inflammation but my ANA was Negative
I'm sorry you have to deal with this. I had a reaction to diet coke once and got a rash. I have some symptoms, but they are mostly ticks. My days are not filled with death fights, or being dragged out of my apartment, so I'm not as stressed out. Last time they checked my red blood cells, they weren't sufficient in oxygen, but I was on the cusp. My kidney has had minor issues, but they said it was because I was dehydrated. I'm tired all of the time because I'm fat on top of it. I've always had weird neurological issues, but they said it was schizophrenia. I'm not a doctor and don't know.
Hi i was loosing hair alot n weight.i dont see no rash on my face i feel tierd at times no real pain. I have arthritus n feel tingling at times in my hands and right foot..i had low vit D And iron my vit D is ok now I have anxitey which is no help.😢also i took ANA was 640
My ANA was 640. I had an anti-dsDNA drawn and it was Neg. I still have tons of symptoms of SLE, but have no diagnosis. That was back in 2018. Not sure what is going with me.
Does anyone have a rash on their upper chest at the declotage area? I've had what looks like the mylar rash for years on my face. I've had lupus symptoms but no ANA titers. However I do have Sjogren's and now Parkinson's. Someday the pieces will be sorted out 👍😊
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I am curious about this. So far I have not have a positive ana. I was told I have fibro because my ana is clear. The butterfly rash drives me nuts as does the joint pain that varies on the day.
Also, cerebral hemorrhages especially at a young age, usually due to anti phospholipid antibodies making blood highly coagulable. An INR test is necessary to monitor this.
Hi Sam!! great video.. my blood work are not bad.. but I'm just sick, when I tell my rheumatologist about my feeling, she is like take your meds and exercise.. that's still don't help.. some days I feel like I can't go on😭😭 .. so I tried a next rheumatologist he order me to do a thyroid test and prescribed antidepressant, I haven't started it as yet, a little scared.. yes I do have the arthritis swelling in my fingers , I have protein in my urine but it dont look alarming.. I cant do nothing I feel like a grumpy old lady , I'm only 43🙄
Hi Cass. I'm sorry you're dealing with this currently. It is definitely a roller coaster and I don't always feel my best even with the medications. There are so many factors that contribute to disease activity so it can be hard to pinpoint exactly what is going on. The lower the stress in my life and the more I focus on healthy eating I have found the better I feel. I hope you're able to find relief soon!
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I have celiac disease which is an autoimmune disease like lupus is. My question is, why don't doctors today really stress to their patients to stay away from certain inflammatory foods??? What we eat affects our disease. My doctor told me to just avoid gluten. NOT the case!!! It took me 3 years to narrow it down to nightshades and LECTINS. (Gluten is just one type of lectin). Once I avoided nightshades and lectins, everything changed. Yes, I still have celiac disease (no cure for these autoimmune diseases.) At least though, I am not dealing with horrible blisters and rash, painful joints and muscles, migraines, anemia and having my internal organs on fire. I had to figure this out myself. Do the doctors really care out there??? I have to wonder.
My butterfly rash usually gets triggered instantly during when the weather gets nice and hot, it also gets triggered if I’m standing under a indoor lighting my cheeks become very hot and they turn red
I have become increasingly frustrated with my rheumatologist. My ANA was barely positive the first time it was tested, but she considered it negative. Subsequent ANAs have all been negative. After dismissing me for a year and telling me it's not autoimmune , and me begging for more tests, she ordered an ENA test where I really high RO60 antibodies. She told me I HAD to have ANA positive for Lupus, so she diagnosed me with Sjogrens, because she said I didn't have ANA positive for that. But I have none of the Sjogrens dry eyes or dry mouth. I have ALL the Lupus symptoms. Achy joints and muscles, severe fatigue, brain fog, rashes, malar rash, photosensitivity, and nonstop headaches. My CRP and Sed rate have been high for over a year (since I started checking). All the other blood work I've done that can be high because of inflammation is high (copper, protein electrophoresis, alpha globulins). Luckily, after the ENA and high RO60, she started me on hydroxychloroquine a couple weeks ago. But I'm worried about my rheumatologist dismissing lupus altogether solely on the reason of negative ANA. Risk of blood clots, and other risks that she won't even consider since she says it's not lupus.
I've got almost all of these symptoms. Renal idk, they told me copd with lungs but I don't fit those symptoms. Have same arthritis as u. Been enemic, and a lot of tiredness. And salivary glands blocked. They have never tested for liposuction but my doc I have to fight him just to get my refills. How or who do I go to to get checked?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I believe that one gave my mom an infection, it was yeast or I think? (she had it like all in her mouth &down her throat it) it was kinda bad tho but the doctor suspected that it was just something with the coating and she just stopped taking them (thankfully)
I have a positive ANA test follow by a negative ANA within a month, I was concerned but the dr told me ANA is not that accurate so I should watch out for other symptoms to diagnose.
She/He is correct ! Now get a printout of your ANA positive test from them and hopefully nothing else happens to you. But if it does you will need to have that ANA + test along with other signs and symptoms to meet the other criteria to be diagnosed with SLE .
I would love to connect and tell you my story . I’m so frustrated bc I feel like I’m getting gaslit by so many doctors. I have most of the symptoms you are describing along with a positive Ana and have been tested for that so many times but still I haven’t found a doctor who is willing to diagnose me. If you know of any doctors or clinics I can reach out to I would greatly appreciate it. I’ve gone to Cleveland Clinic, Northwestern Medicine in Chicago, Northshore, and Lutheran Advocate. My symptoms started a little over 3 years ago and still no answers.
You have yours the same way I did no positive ana then years later a positive ana . In credible fatigue that never quits my Drs think it's just a depression thing there are not enough Drs that even believe lupus is real not enough lupus Drs that know how to treat this and not make their patients feel like they are crazy
I believe I have lupus. I have just about all the symptoms. I was tested for leukemia, also have had a partial hysterectomy, my joints hurt knees, joints fatigue all the time, my feet and legs have started swelling. I'm worried
Find a good "Internist" or "Rheumatologist" who will do a thorough checkup on you. Try John's Hopkins Hospital, Baltimore, MD, Thomas Jefferson Hospital, Philadelphia, PA, or the Mayo Clinic, Rochester, MN.
I have a positive ANA, positive anti dna antibodies..as well as + RF. I have arthritis in my knees and hip… I have such intense fatigue and my rheumatologist wouldn’t diagnose me with anything. :( it is such a struggle
I have skin rashes and joint pain. Also sores in my nose and that butterfly redness, but only for minutes at a time. My fingers are kind of losing strength as they are achy but there is no swelling, redness or disfiguring in them....I am just tired of going to doctors. Try to control my diet as much as I can and take a lot of vitamins that regulate immune functions.
Hi! Would like to ask what is mean I had ENA blood test pozitive. And also I have bone joint problems start at 12 years now I’m 33. But 2and half years ago I start getting fever non stop 37-38.5 Celsius.Feeling very tired losing my hair night abnormal sweat headache increased blood pressure stomach problems. It’s can be lupus? Thanks
I have a lot of autoimmune diseases. Three heart attacks, chronic pancreatitis, Hoshimoto’s thyroid disease, and stage four kidney failure. They check me every 6 months for lupus painful joints especially in my hips and lower back. Can you die from Lupus?
You can die from it because it can cause heart or kidney failure or bring on a heart attack or blood clots that can cause Stroke or PE. So yes, in that sense, you could die....
I’m on 40mg of prednisone now and it’s been a month since i was told by my doctor that my kidney were infected but she didn’t forbid me of any food and i can still eat what i want and im actually confused on why she does not forbid me with foods that can affect my kidney which is weird for me she only forbid me to drink coffee because i told her i don’t really get enough of sleep i always woke up before the sun rises. Btw im taking azathioprine for my kidney. Anyways just want to share it here, and more glad if someone can answer why my doctor is like this like totally different from any doctor for listing you foods to avoid and etc. 😅
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I have lupus and costroconditis what a interestingly. Will you try stem cells ? I am all time feel liked tired. Last year i had a covid and now i am deal with long covid nausea and tinnitus. Have you ever sick covid ?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I get the oral ulcers in my mouth and my rash itches me the light doesn't bother me, I'm just extremely tired all the time no matter what time I go to sleep in going threw a lot with in experience doctor saying I don't have lupus because of my ANA is Negative but I know that my ANA has been positive, twice before, and now my eyes especially my right eye is bothering me a lot of pain but I have the onset of Osteoporosis in my knee because of the Lupus 😢😢
How can I get a free download for Lupus symptom tracker? I submitted my email to your RUclips sight but it would not let me download when I pushed the download button
My friend Isabel was just diagnosed with lupus about a week ago. Also has Epstein-Barr over 600 so the poor model is exhausted. Her mom keeps sending her information to go over but she's young at 19 so she's told her mom that she is overstimulated and overwhelmed right now so she'll look it over over the weekend. Unfortunately, she doesn't have the stamina to do the runway fashion show she was scheduled to do tonight but wants to go watch. In talking to her mom, she has said Isabel has been down, sad, and depressed when she's been awake, it's hard to take. Is this normal?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
i have lupus for 3 years 🙂, i am trying live a normal life, but sometimes i have severe pain in my legs, i can't go to sunlight , i lost my hair, i am 22 now. This comment section is giving me inspiration 🙂❤
It took me 3 years to get diagnosed with lupus. Any number above 90 on the ANA test is considered positive and mine was at 360 around the time I finally got diagnosed. I tend to experience fatigue, weakness, rashes, fevers, nausea, loss of appetite, gastrointestinal issues, dizziness, loss of feeling in my body, brain fog, memory problems, sensitivity to lights and sounds(my pupils do not shrink properly in response to light but instead expand and constrict rapidly over and over), hair loss, muscle and abdominal pain, muscular atrophy, trouble regulating temperature, and tremors. I have had trouble breathing, and had several months in which the inflammation in my brain got really bad and I was having difficulty understanding words and communicating. I'm super curious to know if anyone has experienced similar symptoms, particularly any neurological symptoms or muscle tremors.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I literally have every single symptoms you described in your comment! I've had 4 separate doctors/specialists unofficially Dx me me Lupus, yet I haven't been "officially" Dx. It has been the most traumatizing 4 1/2-5 years of my life to say the least!!
i have all of those symptoms too but they haven’t diagnosed me but at the same time i’m still in my early 20’s my friends mom didn’t get diagnosed until after she had her first kid
Wow! I have almost all of them. I just figured they were from fibromyalgia until my pain doctor mentioned lupus. I also have sleep apnea, obstructive, central, and complex. It takes almost a full page on my after visit summaries to list all my diseases and problems. Makes life painful, but kind of interesting. I am beginning to understand medical terminology now!
I have all of these symptoms too! Thank you for sharing I feel so much relief that I’m not losing my mind. That these symptoms are real.
I was diagnosed with Lupus SLE in 2015. After years or going in and out of the hospital, one day I just passed out in the shower. I woke up in the hospital. My son who was 3yo called 911. I spent 8 weeks in the hospital with an unbreaking fever between 102°-108°. I had actual loss the motor functions in my legs and my right arm. After my hospitalization, I spent 6 more weeks in a Convalescent Center getting physical therapy...I was 34 at the time.
It has been a rough, emotional road. I decided to become vegan, use Ayurvedic and holistic medicines. Which has helped a lot.
The hardest part was nobody believing I was sick. When there is clearly a war going on inside me.
Many Blessings 🦋💜✋🏽
That's so smart and cool that you're vegan! Me too. My doctor told me to check out Dr. Brooke Goldner's autoimmune vegan detox, called Goodbye Lupus, and I reversed my autoimmune conditions.
There needs to be better testing for this by now
I kept having a deep pain on my left side. I was weak and my joints hurt. I went to the ER and they took some blood. I had an extremely low platelet count and Doctors could not figure what was causing that. They did a bone marrow biopsy. They told me I had Lupus and that my Spleen was causing my platelets to be destroyed. The Doctors took out my spleen and my platelet count went up to normal within one day! I have had Lupus since I was 18. I am 52 and now have Lupus, Sjrogrens, Osteoarthritis, Hypothyroidism, and more. Just know you are not alone!
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕
Might have been caused by your childhood vaccines Sissy.
My doctor told me to check out Dr. Brooke Goldner's autoimmune vegan detox, called Goodbye Lupus, and I reversed my autoimmune conditions.
Hi, is there any test to know since when we have autoimmune disease? I am being sick since i finished covid quarantine. Being told it was long covid. After 3 years, i have been diagnosed with autoimmune disease.
@@izreenfarah8689There are are several tests your doctor can order. Also check out Dr Brooke Goldner Goodbye Lupus on RUclips. My doctor recommended I try her free detox program and I reversed my autoimmune conditions.
I was diagnosed in 2011 with Lupus through a blood test. My physician was awesome with explaining the disease to me. I was under his care until 2016. He retired, and I moved 250 miles away. My new physician had me take more tests and decided I didst have Lupus. I do have other autoimmune diseases such as Hashimotos Thyroidis and CKD, stage 3b; Osteoarthritis, Osteoporosis, COPD, SLEEP APNEA (CENTRAL & OBSTRUCTIVE), DDD, DJD. I take water pillsto keep it from gethering around my heart and lungs. I just manage the best I can. I'm almost 69, and I manage to get through each day, blessed to have great faith in my lord and savior, and I am still able to serve him faithfully.
what blood test ? They say Lupus is very hard to diagnose and the ANA blood test is very general ?
I'm glad you have the Lord Jesus. He knows all our weaknesses and infirmities. He comforts and heals
A prayer for you , I hope you are doing ok.
close to 8 years of being ignored. I was recently diagnosed with Lupus and that was it. Doctor said “looks like lupus, we will keep an eye on it” that was all. I’m not left with more questions then answers
Go to another Dr
If you haven’t seen a rheumatologist you probably should.
I have been on his journey since 2017. At first they misdiagnosed me with CNS vasculitis. Then I moved out to Texas and the new neurologist that I found did some blood test in the beginning because they were trying to get my blood work from my prior rheumatologist out in California, and, of course, were unable to. My primary position saw that my ANA was very high, and a few other things. She put together a few of my symptoms, and did a preliminary diagnosis of lupus. She sent me to a rheumatologist, who I met with on Wednesday. He looked at my blood work, heard the list of symptoms that I had, and even noted that I had a butterfly rash on my face. he basically brushed off the fact that I’ve been a lot of pain, and very tired. He told me that exercising will wake me up. I find that it knocks me right back down. He refers me to dermatology, to get some rash scars looked at, and to a sleep study because he thinks I might have a sleep apnea because I’m so tired all the time. He also did some blood work, which I saw the results of. everything that you have mentioned that they look for except for the protein in the urine, is sky high. I got a message from him today saying that it doesn’t look like there’s anything wrong with me and continue following up with my primary doctor. He’s the only rheumatologist in my area that takes my insurance.
Continue searching for the right doctor like a teaching hospital. I was brushed off from the first Rheumatologist after being told mandatory testing for all family after my mom passed from undiagnosed sle ms and other serious autoimmune issues. My gran apparently had it and passed as well from it. I don't know how people get passed off like that 😢
Hello im diagnosed lupus now 2023,i cannot imagine that i have a desease like this ,many people told me lupus is the sickness of rich people,im laughter because im not rich but i have lupus,that why when i hospilized i need to need peple to help me my financial problem,
I had been extremely fatigued, a different of fatigue. I took this to my primary who is typically very good. She told me “we don’t just test for lupus without some kind of presentation.
Finally, had a skin lesion on my back & then biopsyed. Came back positive for discoid. I knew long before, that I was right.
Keep fighting for your own health. Be your own advocate. You know more about your body than you know.
Great advice! It is so important to advocate for ourselves, most of the time we are headed in the right direction. I’m glad you were finally able to get the diagnosis.
@@HealWithSamantha thank you! Excellent video by the way❤️
Wait they can do a biopsy on skin....wow my doctor really was the worse. He never did that. Just touched my face an looked at me an said "nah it ezkama" despite it legit being in butterfly shape and only there an very prominent and flares an is really bad an itchy if go in sun
😂😂😂 I really am glad for seeing others stories cause makes me realize how trash my doctors were. I never even thought of a biopsy for skin. I thought was sonly for tumors an stuff inside you.
@@sarhahillsburg5142 if you indeed had a butterfly rash, a really good doctor should have taken it further. Do you have a rheumatologist? They are the ones that test/diagnose for lupus. Start there & transfer those records to your primary if you need. In your case, I would, simply to prove you were correct.
I had a round, suspicious lesion on my back. I demanded another appt and my doctor (the primary) never seems to doubt me anymore
Doctors these days feel so disconnected . Keep fighting!!
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I had an awful skin” infection “and mouth ulcers. I had a biopsy on the skin which proved I had lupus.
I was diagnosed in 2019, started with alot of nerve pain, afterwards started to get joint pain literally in every joint 🤦🏽♀️ visited a neurologist, who completed a ANA that was positive I was then referred to a rheumatologist, ended up visiting 4 more before I received the lupus diagnosis, I’m glad to have answers but I feel like I don’t deal with some of the more common issues like rashes, sun irritation, etc… so confusing
Glad you finally got a diagnosis! Wishing you the best of health❤
I've been symptomatic for almost 10 years. I've had anti-dsdna show up for years. A positive ANA with homogeneous pattern just appeared in September. My follow-up is next Wednesday. I'm expecting a Lupus diagnosis. I have figured it was this and not RA since 2018, but now there's proof.
Hey Samantha, I was DX with MS 18 years ago and now facing lupus as well. This last episode I had I kept tracked because when I had this FLARE I call it.. I had cluster of symptoms that all had to deal with inflammation,but I just worked outside and it shut me down for 10 days..symptoms- bilateral small joint pain in hands and feet, bouts of nausea, urinary issues, include large blood in urine in toilet showed on urinalysis but also got a UTI which I never get, fatigue, severe swelling, pain in elbows and all over, I count eat for the last 4 days of it. This was new for me all at once, I have every symptom of Lupus including the blood work. But because the doctors are so hung up on a positive ANA I’ve had to just got to a specialist that would listen. I have had 2 positive ANA and 10 negative. I will say this. Keep all records of blood work and testing. You can get your medical records free… just have to be persistent is the key..with Lupus it’s not a clear thing and ANA is so non specific. Research showed 30% people positive ANA are normal. So just asking the question, why are you so hung up on one non specific blood test when you have multiple check points. On the flip side.. doctors have trouble because so many autoimmune diseases cross over symptoms..and there are a lot. So yes I have had a positive ANA and negative. My negative even showed up recently when I was in a flare..so no it can show negative even if in the middle of a flare to also include even a normal ESR levels…which made no sense because I was swollen and all my body was inflammation. Keep persistent Lupus family..❤
I had a positive Ana back in 2019 but the rheumatologist said it was my thyroid antibodies (I have hashimotos). My cheeks get pick especially after being outside when hot or cold. Also, I have chronic hip pain. My knees, shoulders, wrists etc like to join in sometimes too. I already have 3 autoimmune including thyroid, kidney, and celiac so I know I have a higher risk and at least 2 of my relatives have lupus and/or RA. I swear I wanna go in and say test everything let’s rule it all out lol. Thank you for this info.
I wonder if you have heat-induced and cold-induced rosacea. Rosacea can be a symptom of SIBO (small intestinal bowel overgrowth). I say this because you also mention celiac. There is a test for SIBO, in case you've never been tested you might think about getting tested.
I'm in the in between stage: on one side all of my blood has been drawn and I can see my test results (some results are positive others are either negative or out of range) on the other side I'm waiting for my appointment so that my rheumatologist can explain everything to me. I'm really anxious right now, I want to know what form of lupus I have and what I can to help my body, but outside of surfing the net for answers and solutions, I have to wait for my appointment next month which is nerve wrecking and my doctor did say that they wanted to start me on Plaquenil, Wishing Everyone with Lupus the best, stay strong, you got this!
Thank you so much for this video and all you do @Heal With Samantha
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I had Lupus in 1988 which effected my joints. Sometime later it went into remission after treatment. In January 2021, I contacted COVID and it effected my legs the most because I could hardly get out of bed. I am still having problems with my joints after that episode, and I am concerned that Lupus has returned. Years later after my initial diagnosis, I discovered that two of my great-grandmothers also had Lupus.
*affected* not effected
😢
Ive always had symptoms, lived with the minor pains and issues like sun sensitivity etc, but since having covid its gotten really bad, and have only been diagnosed this week. 2 positive ANA a year apart. But covid I think was the trigger, and being self employed and no social welfare here, stress has just snowballed the flare, the inflamation has caused iron overload on me, and started damage to liver, so over the last 2 years had blood letting to reduce iron. I hope no Im diagnosed Ill get correct meds, but I already know I have to go out of country to get meds cos meds are not available locally as they have not been registered.
One challenge after the other, but its a road Ill have to walk, and its one foot in front of the other.
I got diagnosed with lupus/sle in 2006 when I was 40. Several years earlier I presented with Raynaud’s phenomenon but no positive ana until 2006 when I presented with joint pain and fatigue. Mine is well controlled now with hydroxychloroquine and xeljanz. I still suffer with it tho and have terrible gut issues every day and even skin rashes rt now in my scalp, but previously on my legs. I’m so sorry you have it at such a young age. I was fortunate enough to have my two kids before being diagnosed.
I was originally diagnosed with SLE (lupus) in 1985. My ANA panel was positive then. Since then I've had 5 additional ANA panels -- 3 were positive and 2 were negative. And each of those ANA panels was ordered by a different doctor (I moved around quite a bit). The worst part is that the last time an ANA panel was run, the rheumatologist I was seeing accused me of lying about having been diagnosed with lupus. That was in 2011. This was one of the most humiliating experiences I've ever had. The man actually yelled at me! Because of that -- and because there is SOOO much confusion with these false positive/false negative ANA panels, I stopped going to the doctor since the majority of the attitude was that I was a hypochondriac and/or a malingerer. What was the point? But recently I started having some major symptoms again this year, so I went to the doctor again in March and had a full physical work-up. The ANA panel came back positive. Again. So, 4 out of 6 times I've taken this test it's been positive, and each time I've presented with a majority of the visible symptoms, including the butterfly rash across the face and the inability to be in the sun for any length of time without reacting. Seems to me -- in spite of the tendency for the ANA panels to run false positive/negative -- that I, at least, have lupus.
I'm going threw this very same thing right now I feel a lot better just knowing I am not alone because I've been very down over the way I've been treated by some of these doctors 😮😮😮😢😢
@@fayejohnson8470me too. It’s so frustrating to hear “You have fribro & there isn’t much we can do”. Freaking FIBRO!!! When I see any new dr or go to the er, I never tell them I have been diagnosed with it because I feel they look at me differently. Like I’m some hypochondriac or something. I also try to educate myself on symptoms I have and I feel that sometimes doctors look at this as BS & write me off. There has to be a better way to diagnose it!
Hi so sorry to hear what you had to go through. Nothing worse than someone saying your faking an illness,disgusting. Go with how you feel you know your own body. Take care and stay strong
This drives me crazy! Doctors who say you need a new ANA. Once it's a positive its always positive. It shows low or negative when you are not in a flare.
@@398Vampire It's driven me crazy too. What doctors need to understand -- not only about SLE, but about other diseases/disorders as well -- is that YOU (the doctor) don't know everything. You may think you KNOW lupus or any other disease/disorder, but there's typically someone who knows from a little bit more to someone who knows a WHOLE lot more about some of these issues with which people present. In fact, in 2011 there was still a lot that was NOT known about lupus. Apparently it never occurred to the doc I saw in 2011, that he might be wrong. And the fact that his actions caused a patient to stop seeking assistance, and thus to progressively become worse with the very issue that that doctor was accusing the patient of lying about -- it's actions like this for which these specific health care providers should be penalized, even to the point of having their medical license taken should they not attempt remediation.
Took a few years. 3 positive ANA tests. Several blood tests that consistently showed inflammation. Various pains and I got neuropathy from it.
I was experiencing a ton of symptoms. My ANA was negative at first, 2 months later it was 1:320. It has fluctuated. My pattern was homogenous, now it is speckled and homogenous.
A few months after mild case of C-19 I started losing tons of weight while eating normally, body pain mainly in hips and shoulders now my thumbs. Palms of my hands swell near thumb base, severe limb numbness, ankle swelling, swelling of blood vessels, puffy eyes, then came blood & protein in urine. My urine looked like red wine for 3 months, determined my left kidney was hemorrhagic with no clear reason. During the past 2 years had 2 negative ANA. Finally had a positive ANA 1:80 then a second test done on same report said 1:160 cytoplasmic. I have no idea if it’s Lupus or another autoimmune disease but I pray for answers and healing because I’ve lost 50 lbs eating a ton and am so fatigued and in pain it’s hard to work and care for my 3 small children.
Forgot about Raynauds and can’t hold my bladder. Also ringing of ears, blurry vision with white stars, light sensitivity even in overcast I need sunglasses, & more. I’m sure I’m forgetting more but I’ve suspected Lupus then was scared of cancer because I’ve gotten so skinny. Hopefully I’ll have a definitive diagnosis in the next few days now I have positive ANA after years of negative.
I just started the testing process and the ANA was positive and high. I call the doc Monday to set an apt to proceed with further testing.
Always thought I have lupus. I once had a positive speckled ANA but it never showed up again. I worry I have been misdiagnosed with rosacea, CFS, irritable airways and anaemia separately - I had rhemuatoid arthritis as an adolescence (in remission) but still get flair ups, and my ankles still get stuck
I have celiac disease that I was finally diagnosed with it last year. I started having some symptoms in the past year that may mean Sjögren’s syndrome. My tear glands became so dry and inflamed that I needed a lipiflow because the standard thermal treatment did nothing. After a month post lipiflow my oil numbers have improved. My salivary glands are also dry and sore and I am a lot thirstier, but my mouth is only slightly dry. My eye sight also worsened because I needed a stronger prescription last spring. I also have joint pain in my wrists and ankles and raynauds. I have half of the specific autoantibodies for Sjögren’s but the rest of my diagnostic labs are clear. My rheumatologist is still keeping an eye on whether it does mean Sjögren’s and he just ordered some follow up labs since it has been almost six months.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I am curious Leslie about your case and the others I read on the comment sections - I am 52 I have no medical maladies or whatever. I have no maintenance med as well. i only received mandatory childhood vaccines 3 of them only, I refused the global clotshots, even lost my job because of my refusal. Of course i dont smoke, drink and I watch what I eat. i maintain my weight since I was 25 years old. My question is - how many vaccines did you receive from birth up to today?
How does one heal from lupus? I’m in the process of being dx. My pulmonologist took blood, and my Titer score was 1400. He said that’s off the charts and he’s sending me to a rheumatologist. I see him 7/6. I am overwhelmed. And tired. Thanks for the info.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I was diagnosed with Lupus at the age of 35; this was 15 years after the first signs of Lupus. I had my first seizure at 20; had Raynaud's; had the butterfly rash; you name it. I finally experienced my third full-on "flare" at 35, which prompted testing - ANA, sed rate, you name it. I finally was sent to a rheumatologist who pieced all of my random symptoms together and did extensive testing, including testing for the presence of Anti-Smith antibodies and the Anti-dsDNA Antibody. I was quickly put on prednisone, which I would take for three years. One year after my diagnosis, I had life-threatening blood clots in both legs and abdomen. ALL OF THIS TO SAY: I'm 50, and the craziness of Lupus is finally under control. Yes, I take seizure medication; yes, I take blood thinner; and I am on Benlysta, which is helping as well.
What was your sed rate?
Glad you are "better" did you make any changes to your diet?
My platelets dropped to 7, I started getting Petechiae all over my legs, I couldn’t walk or move my hands and I started bleeding from my mouth 😅 took about 4 months and a emergency visit to the hospital to finally get diagnosed
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
Great video! I got diagnosed extremely quickly. My symptoms first popped up in 2018 but didn't start in full force until late 2020. Saw the RA for the first time in July 2021 and it took until January this year to get diagnosed. I had photosensitivity, malar rash, fatigue, positive ana, and what finally got me diagnosed was low wbc and a positive anti ds dna. I started plaquenil 2 weeks ago and was nervous but so far so good, just minor side effects.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I know this is personal so sorry to ask if it’s to personal I understand but what was your double strand dna level at
Took me 6 years. Seronegative lupas. Butterfly rash Rash, oral ulcers and thrush, arthritis bad, scalp sores/hair loss, low grade fevers, dry eye, dry mouth.
Yes, Miss Samantha, a positive ANA is the first stepping stone to diagnosing someone with Lupus. If not positive, it's not Lupus. If positive it could also be something else like, Rheumatoid Arthritis or Fibromyalgia for example. So yes.... Lupus is difficult to diagnose from the get go.
God bless you for what you do. You're adorable and I'm sure you're helping so many people! Keep up the good work! ML and Blessings! 💜 🙏😇
I am going to a rheumatologist in June. I went for blood work last month with a positive Ana with homogeneous pattern. I am exhausted every day of my life. So much joint pain we thought it was arthritis but it seems there’s more happening
Hi Sam, thank you for this great video. I was diagnosed a year ago, I have been suffering from joint pain, oral ulceration and photosensitivity for 4 years now, so my ANA became positive after 4 years of symptoms. I am very glad that I found your channel, you give me a lot of positive energy, thank you ☺️
4 years, wow, I'm on 4½ myself. Good to know that I'm not the only one. I'm glad you finally got your answers.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
SLE diagnosed earlier this week ANA+ my iron is high though..and have the regular SLE tiredness and aches etc. (Probably over 30 years not diagnosed, and only recently suoer bad symptoms 2 years since having c19) The pain and aches have taken a toll on me mentally. Really down at the moment, and hope can start getting things under control. I dont think anyone that doesnt suffer can fathom how mentally draining the constant pain and aches are, and some of the comments people make sometimes hurt worse than the physical pain. I just hope to get it under control. Had some liver issues but have recovered from that...after having numerous venesections to lower ferratin but its elivated again and the aches are super bad again.
But I understand the emotions you have behind your words when speaking about the symptoms...the words dont quite fully explain what we as sufferers have, and many non suferers just cant fathom how bad it makes us feel, and the mental weight we have to carry.
All I know is anyone that lives with it and smiles daily is stronger than I. Ive got to a point of screw it people can know Im not happy, people can know I hurt.
What that means is that a I have a really small group of people around me, and its for the better.
I think the mental drain is harder to deal with...I have turned to pharma as I couldnt deal with the depression the pain brought on.
Hi, I’m sorry to hear you are having such a tough time with pain. Maybe you should have a word with your doctor. Are you on medication for the lupus?
I was recently having pains in my knees and someone told me about Irish Sea moss. It seems to be helping as the pain is much less. It also helps with energy. It might be worth a try. I got the liposomal liquid as it’s easier to take.
It is hard coping with other people. Just look after yourself and don’t worry what they think.
If you’re not working read good books or do something that relaxes and inspires you. Sending love ❤
@@justagirl5593 on cortison and some happy pills, once the cortison finishes I start Methotrexate. Nothing been helping for pain, just dulls it a little, and the constant pain, my head was not right, so got happy pills, not that they are doing much either...seems just to take thr depression down a notch and thats about all, but going on them in increments so hopefully itll improve my mental state.
The pain messes with ur head.
Thanks for the informative video. I have bad inflammation and severe pain in knee, back, neck, shoulders, wrists for no reason. I am on Tramadol, so my new family doctor sent me to a specialist, and they think there is something going on with inflammation, and they said it could be Lupus. MRIs and blood work ordered...
My doctor told me to check out Dr. Brooke Goldner's autoimmune vegan detox, called Goodbye Lupus, and I reversed my autoimmune conditions.
I always had a positive ANA
I have lupus and the
Brain fog or having hard time to focus at work and school
Hey All! 27 M, Here’s my story, last year I started to get randomly lightheaded and severe fatigue. I can’t do anything or I start to get super tired and just burnt out compared to how I used to be on a day to day basis . The lightheaded I noticed will come in with light sensitivity, airports, crowded places and when that happens my vision feels weird, like not blurry but not normal(hard to explain), I also noticed that this will cause me to get severe anxious because I still don’t know what is causing this. I also have severe brain fog along with the lightheadedness and light sensitivity. My mom also has lupus. My doc is really resistant with following up with lupus since my ANA test at the beginning of this year was negative:/ so I’m not sure if she thinks I’m making this up but I feel so debilitated on a day to day basis. I’ve also had a butterfly rash on my cheeks and nose ever since a little kid. Lastly, for the past two weeks I have been waking up with tight hamstrings. I did get some vitamin B-12, vitamin D and omega -3 last week and it has helped a tad. Someone please give me valid advice as what to do. Thank you all and take care!
I happened to mention to my pain doctor that I sometimes get a red face that gets hot and it can last a few minutes or a couple days, and I figured it was from fibromyalgia. He referred me to the rheumatologist but didn't have the right tests, so they said I needed them. He decided to let my PCP do that. In the meantime I researched and most of the rashes were lumpy and no mention of heat or burning. So I decided I would wait before getting an appointment. Then my rash came on and I looked at it closely and except for being smooth, it looked like the rashes I had seen in shape. Then later I finally saw the smooth rash in a picture and now you mention it and the burn. I guess I will check with my PCP when she has an opening.
This video was so helpful and informative. I’ve been dealing with difficult symptoms for a year and a half and I am currently undiagnosed. My had a positive Ana and I’m doing further testing to get some answers. I have extreme fatigue, muscle weakness, joint paint in thumbs, knees, hips, swelling in back of knees, eye brow hair loss, extreme bloating after eating, numbness and tingling in hands and feet, and so much more. Praying for some answers soon.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
Was sent to rheumatologist due to positive ANA. One blood test showed positive Lupus but Dr said because other tests didn't line up then Lupus positive and ANA were probably false. Yet everyone I talk to with Lupus and every nurse I've spoke with said I need a new dr because I have Lupus. I'm looking for a new dr.
I had a positive ana many years ago and recently, 2 years ago I had a negative ana...frustrating!
I'm 77 yrs. I had 5 children it was tuff. I didn't know why I would hate to be in the sun. Tired alot. When I was 32 pregnant with my 5th kid. The Dr said my blood test showed something off with my t cells. But othing else came from i I delivered a 10 lb 2 Oz baby boy who I believe has lupu he is 41 yrs now. I am getting sick lately. Flare ups of arthritis in my hands, wrist. Very painful thumb. Pains in my heart off and on . Cough at times. Stress brings different symptoms. My son was killed by a hit and run driver 1 1/2 yrs ago. Kicked off alot of problems. Also 2 covid shots made me very sick, Virginia scherer, Reno, NV..
Hi, I’m been in this process since 3 year but any doctor can help me, i had one time positive ANA but the doctor said it’s just one time so we can not say that you really has lupus :( so I’m continue with this process, but thanks for your vídeo was so nice :) have a good day
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I just got tested my ana was 1280. Never had a system. I broke my thumb and never healed. They did a blood test and showed.
Have you heard of that Anaise test? They say say its about 80% accurate on diagnosing lupus.
I always heard, correct me if I am wrong, once your ANA/ANF is positive twice in a row, it likely will be so the rest of your life. Mine is always somewhere around 640 (been 320 once and 1200+ once but every other time it is tested was 640). Just like my complements (specially C3 and C4) are always too low...
I was diagnosed 13 years ago, my Systemic Lupus has been stable and comes and goes (mainly my skin is affected, in every kind...) but the diagnosis took a really long time, had symptoms (pains, affected joints, severe tiredness, allergic to (sun)light etc etc for over 16 years. But here in Holland there are few doctors who know of the disease and since I did not have any specific anti's for SLE the diagnosis was always SLE-like. Until a skin biopsy was done that did confirm it was SLE, cost me my income as well (such a long time for it to be confirmed). Now after such a long time I have developed 4 more auto-immune diseases, some do love to come together, like Hashimoto and Colitis...
Went to rheumatologist without a referral because I was just 😮. It was bad. Negative Ana. Fast forward 2 years. Routine bloodwork by a new family medicine doctor and she immediately said oh no She repeated. Positive Ana Speckled on both. Now going back to rheumatologist. 😑
I’m 2 years into potential diagnosis. Tests have been negative but over the past several years I have had locked up knee and ankle, a crp of 110, fevers of 103 for 2 months straight, butterfly rash, kidney failure, omentitis… it gets so annoying having so many issues with no actual help.
Are you ok now? How is your fever?
So i got diagnosed with lupus after getting alot lab work done. Now i have protein total random ur 4 L june 2024 and now my 4 L is same as of 4,16,2024. . My absolute Eosinophils 634.
C- reactive protein 11.2 . My dr nurse call and said everything fine . But i don't feel great. Plus last year i didn’t have these other problems.
Last year I had surgery it made my lupus go nuts extreme swelling blood pressure out of control same thing my Mother did with hers
my ANA was negative Jan 2022, June 2022 now positive. rheumatology appt in 3 wks
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
It took me 8year to get diagnosed with lupus
I was ANA positive and DSdna positive. I was negative and 2 months later came back positive.
I’m currently undiagnosed for lupus, but extremely symptomatic and also have other auto-immune diseases such as Hashimotos as well, which can also be indicative at times for lupus. My ANA currently is apparently stating negative result, but my symptoms have been excruciating for years.. extreme fatigue and trouble staying awake at times, massive heat patches on my back and arms and trouble regulating my temperature, shooting pains and aches down my legs and arms and wrists, aching lower back, nausea, brain fog and memory loss, severe beaches and migraines, I also have been forgetting some of my words for things that are easy to remember but my brain just cannot think of the word sometimes, I feel sick and ache all over, my brain hurts, my kidney levels have at times shown “stage 2 kidney failure”, my liver reading is often high, vitamin D is always borderline low, going in to the sun feels terrifying as my body becomes so painful and I can barely stand the heat and my eyes hurt, I get mouth ulcers, tingles in my arms and hands when I wake up, trouble getting out of bed some days and so much difficulty concentrating, memory loss, difficulty performing everyday tasks, loss of energy, insomnia, lower back pain, stiffness, I pee a lot, I just got diagnosed with insulin resistance too.. Just to name a few. I’m in pain. I need help. But my dr has said well your ANA is negative so it’s not lupus, but I have felt like it is lupus and fibromyalgia for a while now, and so does my mum. What tests do I need to ask for? I need answers. I feel so sick. 😢😭❤️🩹🙏🏽
Hey, ask for the AVISE test. I'm on my 4th rheumatologist and she ordered the test for me during our first meeting, my first time ever hearing about it. It's supposed to be one of the most sensitive and accurate for rheumatic diseases overall; I hope this helps!
ok, ask for a repeat ANA test. My doctor took 18 months to diagnose me. ANA test was done once every 6 months and ALL 3 test came back ANA + I was 49 at that time. Butterfly rash, I felt like my face was absorbing all the heat/sunlight in the atmosphere! and a burning sensation on my face. I had low energy.
I’m always exhausted and never feel well. 2 weeks ago I started getting the lupus rash on my face. Losing a lot of my hair and my energy is so low that my doctor is checking my b levels and thyroid. The first time she tested my thyroid it came back normal. I have to tell her what to check for me. Where do I go from here? Somethings not right and I’m trying to get to the bottom of it.
Also, does the butterfly lupus rash feel warm on your face? Mine feels warm almost like I got a slight sunburn.
It took me four years to get diagnosed the rhumy that diagnosed me really cared about her patients took her time before she diagnosed
I tested positive on my ANA but they said because it was low that i dont have Lupus ☹️. Mean while i have ALL the symptoms, like my hair falling out in patches, rash or sores in my scalp, arthritis really bad in all my joints. Protein in my urine, asthma really bad. I feel exhausted all the time, temperature goes up and down. Sometimes i can barely walk. Fibromyalgia, Etc 🥴
I’ve had two ANA tests both positive. First one low so auto immune disease dismissed, it was :80 speckled result and the next one was :320 speckled result. The reason I did not get a diagnoses was due to only a 40% reduction in my joint pain symptoms, but at that time I did not know that a spinal fusion is had in 2015 had failed and the screws were sticking into my intercostal ligaments causing bright hot spot inflammation in my thoracic spine (found a year or so later) as well as due to the failure, I have hyperkyphosis and instead of the curvature being around 40 degrees at most mine is 90 degrees, so I have a hunch back which places extra pressure on muscles, joints, tissue, plus 4 herniated discs from the failure. I got the screws out thank god, but obviously there was reason for other types of pain at the time I went to rheumatology .so
I do not have a diagnoses even though I have so many of the diagnostic criteria symptoms as well as the positive Ana x 2. However what worries me is there has been a big shift with new symptoms , anaemia diagnosed 6 months ago, heart pain and arrhythmias have started, problems with breathing (could be related to hyoerkyphosis however) , but three weeks ago I went into the sun, sure I got some colour, but the first time in 53 years I started to have a hives type rash start! I’ve been a sun worshiper my whole life, I live for sunny days and try to get out in the sun as much as possible, but it was like itchy horrible, uncomfortable rash just came from nowhere, it was there a week didn’t go away then bam, my whole body apart from legs broke into one big patch work of very itchy y and uncomfortable almost sore hives type rash. My face, (forehead chin sides of face into hair line ( I have had a butterfly rash before a when I was in hospital for three days after one side of my face just blew up and filled with fluid, I looked like a chipmunk on one side of my face. and down my neck, my chest, arms, sides, tummy, back ears is a mess. It’s been 4 days and it’s nit getting better, this was preceded with three days of fevers, sweating so badly my sheets and clothing was wet, fatigue so bad I slept for three days, sore in my mouth- little bumps and I get sores up
My nose. Dry eyes which have lead to three hospitalisation for corneal ulcers needing 1/2 hourly eye treatments and regular eye pressure checks and checks by Dr to ensure the ulcers was not getting worse, I know have scaring in both eyes and suffer from double vision when looking at a distance! Especially driving. Anyway interesting subject! Not a nice disease to have I am
Sure. Maybe I have not got Lupus but living with similar symptoms isn’t fun
I have the majority of these symptoms you have talked about. I have seizures also especially when I get in the sun too much. I have seizures that I am completely aware and awake for. They are scary and can happen at any time and are caused by stress and high blood pressure. I have major anxiety. I itch all the time and then a rash will pop up. I have the butterfly on my nose. I have been starting g to have kidney problems. Non stop UTIs. I have one now that I'm trying to get rid of. I am constantly thirsty because I am dehydrated all the time. I have been tested for diabetes and it's always negative. My ANA is always negative. So they never put all of this together. It's always diagnosed everything separate and different. I am so tired of this. I have been doing g these tests for 3 years every since I fell and broke my neck. I was 1/4 of an inch of being paralyzed from the neck down. I hhad a major seizure while I was alone fell between the bed and wall. I woke up the next day with a back hurting. So I told my ex husband to take me to the chiropractor. That guy did an exam and said your neck is majority broken. The ambulance will come get you so they can strap you down so you can't move and make it worse. I don't remember anything for a whole 4 days. I woke up in the hospital. After all of that my health declined quickly. I have had so many problems since . I am majorly anemic. I got every other week to get blood infusions. But nobody ever puts it all together. I'm getting worse . I never have a good day. It's just bad and really bad. I spend alot of my time in bed and at dr appointment. My life is gone I'm just too sick. My eye sight has even gotten worse. My Rumatologist does blood work and all kinds of tests and never finds anything he says that I'm just anemic and have Fibromyalgia but never says anything about an automobile disease. I don't know where else to go or who else to see. My general Doctor will refer me, but I'm just trying to figure out what doctors. I need to see to try and get this diagnosed. Even if it's not lupus, it's got to be some kind of autoimmune disorder. There's a few kinds of lupus So hopefully.
I will get something figured out soon. Because this is just taken my whole life away.
So I came out positive on my blood work for the ANA test and they are in the process of doing further testing 😢 I'm feeling so many mixed emotions and need some advice on how to cope or just deal with it. I do have a lot of Lupus symptoms and that's what makes me start freaking out and I just break-down...I'm also doing more research on it to have a better understanding... Should I be worried 😟? Does the symptoms get worse? My arthritis on my knees have gotten worse and it's causing my legs to hurt and stiffen up and it really hurts when I go for walks and the pain is worse when I lay down..I toss and turn at night due to the constant pain.. any suggestions/advice on how I can get better sleep at night without being in pain?!
I just saw the rheumatologist for the first time 2 weeks ago after my regular doctor did some blood work. Long story short, My shoulder started hurting in March and became excruciating. Work made me go to the doctor.. in April some of my blood work came back concerning main one being a positive ANA but my titer was 1:2560. I saw the rheumatologist 2 weeks ago then he had me come back the next day for ultrasound on my hands. And I see him again next week. Locally it takes a long time to get in or appointments are spread out so it had me a bit nervous.. I had 4 tests of blood work (10 viles) ordered I went on 8-04-22 and got that done I am still waiting on results. I've never experienced such a long wait after. My primary thinks I have lupus the rheumatologist blood work was for analyzer ana ifa with reflex titer/pattern systemic autoimmune panel 1, histone antibodies, thyroglobulin antibodies, and early sjogren's syndrome profile. Do these test usually take this long?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
Did you ever find out what was going on?
I’m going through the same thing. I’m having severe shoulder pain and I’m supposed to seeing the doctor soon. My blood test show lots of inflammation but my ANA was Negative
I'm sorry you have to deal with this. I had a reaction to diet coke once and got a rash. I have some symptoms, but they are mostly ticks. My days are not filled with death fights, or being dragged out of my apartment, so I'm not as stressed out. Last time they checked my red blood cells, they weren't sufficient in oxygen, but I was on the cusp. My kidney has had minor issues, but they said it was because I was dehydrated. I'm tired all of the time because I'm fat on top of it. I've always had weird neurological issues, but they said it was schizophrenia. I'm not a doctor and don't know.
Yes I had a negative test...I won't give up
Hi i was loosing hair alot n weight.i dont see no rash on my face i feel tierd at times no real pain. I have arthritus n feel tingling at times in my hands and right foot..i had low vit D And iron my vit D is ok now
I have anxitey which is no help.😢also i took ANA was 640
My ANA was 640. I had an anti-dsDNA drawn and it was Neg. I still have tons of symptoms of SLE, but have no diagnosis. That was back in 2018. Not sure what is going with me.
Did you do repeat ANAs after?
Great video, very informative, thank you!
Does anyone have a rash on their upper chest at the declotage area? I've had what looks like the mylar rash for years on my face. I've had lupus symptoms but no ANA
titers. However I do have Sjogren's and now Parkinson's. Someday the pieces will be sorted out 👍😊
Yes, I have lupus and I get rashes on my upper chest
@@carolineschmidhauser8466 Thank you Caroline for the information 👍🙂
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
Thanks for the info my lupie sister💜🦋
I had a negative ANA 4 years ago, mine is currently positive but my Dr said only mildly elevated
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I am curious about this. So far I have not have a positive ana. I was told I have fibro because my ana is clear. The butterfly rash drives me nuts as does the joint pain that varies on the day.
Also, cerebral hemorrhages especially at a young age, usually due to anti phospholipid antibodies making blood highly coagulable. An INR test is necessary to monitor this.
Excellent video. Been avoiding blood tests and doctors for 1 year.
Thank you! Oh no, are you already diagnosed with a condition?
Joe Smith, why did you avoid doctors and testing? Bluntly put, do you have a death wish?
@@HealWithSamantha lupus
Hi Sam!! great video.. my blood work are not bad.. but I'm just sick, when I tell my rheumatologist about my feeling, she is like take your meds and exercise.. that's still don't help.. some days I feel like I can't go on😭😭 .. so I tried a next rheumatologist he order me to do a thyroid test and prescribed antidepressant, I haven't started it as yet, a little scared.. yes I do have the arthritis swelling in my fingers , I have protein in my urine but it dont look alarming.. I cant do nothing I feel like a grumpy old lady , I'm only 43🙄
Hi Cass. I'm sorry you're dealing with this currently. It is definitely a roller coaster and I don't always feel my best even with the medications. There are so many factors that contribute to disease activity so it can be hard to pinpoint exactly what is going on. The lower the stress in my life and the more I focus on healthy eating I have found the better I feel. I hope you're able to find relief soon!
@@HealWithSamantha ok thank for your response, really appreciate it.. 💜❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕💕
I have celiac disease which is an autoimmune disease like lupus is. My question is, why don't doctors today really stress to their patients to stay away from certain inflammatory foods??? What we eat affects our disease. My doctor told me to just avoid gluten. NOT the case!!! It took me 3 years to narrow it down to nightshades and LECTINS. (Gluten is just one type of lectin). Once I avoided nightshades and lectins, everything changed. Yes, I still have celiac disease (no cure for these autoimmune diseases.) At least though, I am not dealing with horrible blisters and rash, painful joints and muscles, migraines, anemia and having my internal organs on fire. I had to figure this out myself.
Do the doctors really care out there??? I have to wonder.
What's nightshade's?
My butterfly rash usually gets triggered instantly during when the weather gets nice and hot, it also gets triggered if I’m standing under a indoor lighting my cheeks become very hot and they turn red
I have become increasingly frustrated with my rheumatologist. My ANA was barely positive the first time it was tested, but she considered it negative. Subsequent ANAs have all been negative. After dismissing me for a year and telling me it's not autoimmune , and me begging for more tests, she ordered an ENA test where I really high RO60 antibodies. She told me I HAD to have ANA positive for Lupus, so she diagnosed me with Sjogrens, because she said I didn't have ANA positive for that. But I have none of the Sjogrens dry eyes or dry mouth. I have ALL the Lupus symptoms. Achy joints and muscles, severe fatigue, brain fog, rashes, malar rash, photosensitivity, and nonstop headaches. My CRP and Sed rate have been high for over a year (since I started checking). All the other blood work I've done that can be high because of inflammation is high (copper, protein electrophoresis, alpha globulins). Luckily, after the ENA and high RO60, she started me on hydroxychloroquine a couple weeks ago. But I'm worried about my rheumatologist dismissing lupus altogether solely on the reason of negative ANA. Risk of blood clots, and other risks that she won't even consider since she says it's not lupus.
I've got almost all of these symptoms. Renal idk, they told me copd with lungs but I don't fit those symptoms. Have same arthritis as u. Been enemic, and a lot of tiredness. And salivary glands blocked. They have never tested for liposuction but my doc I have to fight him just to get my refills. How or who do I go to to get checked?
Lupus not liposuction.. dang phone.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I wonder if anyone else is allergic to sulfa antibiotics? I tool them when I was a kid for strep and got a butterfly rash and a swollen face.
I believe that one gave my mom an infection, it was yeast or I think? (she had it like all in her mouth &down her throat it) it was kinda bad tho but the doctor suspected that it was just something with the coating and she just stopped taking them (thankfully)
I have a positive ANA test follow by a negative ANA within a month, I was concerned but the dr told me ANA is not that accurate so I should watch out for other symptoms to diagnose.
She/He is correct ! Now get a printout of your ANA positive test from them and hopefully nothing else happens to you. But if it does you will need to have that ANA + test along with other signs and symptoms to meet the other criteria to be diagnosed with SLE .
I would love to connect and tell you my story . I’m so frustrated bc I feel like I’m getting gaslit by so many doctors. I have most of the symptoms you are describing along with a positive Ana and have been tested for that so many times but still I haven’t found a doctor who is willing to diagnose me. If you know of any doctors or clinics I can reach out to I would greatly appreciate it. I’ve gone to Cleveland Clinic, Northwestern Medicine in Chicago, Northshore, and Lutheran Advocate. My symptoms started a little over 3 years ago and still no answers.
You have yours the same way I did no positive ana then years later a positive ana . In credible fatigue that never quits my Drs think it's just a depression thing there are not enough Drs that even believe lupus is real not enough lupus Drs that know how to treat this and not make their patients feel like they are crazy
I believe I have lupus. I have just about all the symptoms. I was tested for leukemia, also have had a partial hysterectomy, my joints hurt knees, joints fatigue all the time, my feet and legs have started swelling. I'm worried
Find a good "Internist" or "Rheumatologist" who will do a thorough checkup on you.
Try John's Hopkins Hospital, Baltimore, MD, Thomas Jefferson Hospital, Philadelphia, PA, or the
Mayo Clinic, Rochester, MN.
I have a positive ANA, positive anti dna antibodies..as well as + RF. I have arthritis in my knees and hip… I have such intense fatigue and my rheumatologist wouldn’t diagnose me with anything. :( it is such a struggle
I have skin rashes and joint pain. Also sores in my nose and that butterfly redness, but only for minutes at a time. My fingers are kind of losing strength as they are achy but there is no swelling, redness or disfiguring in them....I am just tired of going to doctors. Try to control my diet as much as I can and take a lot of vitamins that regulate immune functions.
Hi!
Would like to ask what is mean I had ENA blood test pozitive. And also I have bone joint problems start at 12 years now I’m 33.
But 2and half years ago I start getting fever non stop 37-38.5 Celsius.Feeling very tired losing my hair night abnormal sweat headache increased blood pressure stomach problems. It’s can be lupus?
Thanks
I have a lot of autoimmune diseases. Three heart attacks, chronic pancreatitis, Hoshimoto’s thyroid disease, and stage four kidney failure. They check me every 6 months for lupus painful joints especially in my hips and lower back. Can you die from Lupus?
You can die from it because it can cause heart or kidney failure or bring on a heart attack or blood clots that can cause Stroke or PE. So yes, in that sense, you could die....
I’m on 40mg of prednisone now and it’s been a month since i was told by my doctor that my kidney were infected but she didn’t forbid me of any food and i can still eat what i want and im actually confused on why she does not forbid me with foods that can affect my kidney which is weird for me she only forbid me to drink coffee because i told her i don’t really get enough of sleep i always woke up before the sun rises. Btw im taking azathioprine for my kidney. Anyways just want to share it here, and more glad if someone can answer why my doctor is like this like totally different from any doctor for listing you foods to avoid and etc. 😅
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I have lupus and costroconditis what a interestingly. Will you try stem cells ? I am all time feel liked tired. Last year i had a covid and now i am deal with long covid nausea and tinnitus. Have you ever sick covid ?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I just had a positive ANA test. It was 1:320 whatever that means. 😩
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
I get the oral ulcers in my mouth and my rash itches me the light doesn't bother me, I'm just extremely tired all the time no matter what time I go to sleep in going threw a lot with in experience doctor saying I don't have lupus because of my ANA is Negative but I know that my ANA has been positive, twice before, and now my eyes especially my right eye is bothering me a lot of pain but I have the onset of Osteoporosis in my knee because of the Lupus 😢😢
How can I get a free download for Lupus symptom tracker? I submitted my email to your RUclips sight but it would not let me download when I pushed the download button
Question, any of you guys with lupus have had your appendix removed?
I had a negative ANA test but my doctor didn’t ask me any of these questions . She just did labs and that was it . 🤦🏽♀️🤷🏽♀️
Keep fighting bc that’s how they do and will keep doing until you start telling them that ain’t enough
Great eyes
Did you get weakness and shaky legs unsteady gait
My friend Isabel was just diagnosed with lupus about a week ago. Also has Epstein-Barr over 600 so the poor model is exhausted. Her mom keeps sending her information to go over but she's young at 19 so she's told her mom that she is overstimulated and overwhelmed right now so she'll look it over over the weekend. Unfortunately, she doesn't have the stamina to do the runway fashion show she was scheduled to do tonight but wants to go watch. In talking to her mom, she has said Isabel has been down, sad, and depressed when she's been awake, it's hard to take. Is this normal?
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on RUclips i come and cross Dr.Auchi on RUclips channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend Dr.Auchi herbal medicine for Lupus disease cure...💕💕
Does everyone with lupus get the rash?
I don't think so I have most of the other symptoms but have not gotten no rash. I think it just varies on the person maybe.
Symptom tracker can’t download…?
Hey! Thanks for mentioning. I just updated the link.
What is ANA?
ANA shows the immune system is attacking & basically fighting itself
Are you still hpv free?