Why COVID is causing POTS (fainting, dizziness, fast heart rate)
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- Опубликовано: 13 сен 2024
- POTS and Long-Haul COVID...Following a COVID-19 infection, some people have experienced dizziness, fainting, fast heart rate, breathlessness, and brain fog. These symptoms are can debilitating and might be due to POTS, or Postural Orthostatic Tachycardia Syndrome. Let's talk about the proposed reasons for this as well as what POTS really is! All sources linked below.
COVID-19 Position Statements from Health Charities
▶ Dysautonomia International: www.dysautonom...
▶ The Ehlers-Danlos Society: www.ehlers-dan...
▶ The Mastocytosis Society: tmsforacure.or...
Sources
- Fedorowski, 2018: onlinelibrary....
- Miglis et al., 2020 www.ncbi.nlm.n...
- Case report: www.ncbi.nlm.n...
- Are people with postural orthostatic tachycardia syndrome (POTS) at an increased risk of severe complications from COVID-19? www.dysautonom...
- Potential pathophysiological mechanisms of post-COVID POTS www.ncbi.nlm.n...
- POTS prognosis: dysautonomiaint...
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The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-dan...
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org...
❤️ cle.clinic/2p1...
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
FTC Disclaimer: This is not a sponsored video.
As an Amazon Associate, I earn from qualifying purchases.
#POTS #COVID #longhaulcovid
It's so nice knowing someone else who understands what you're going through, even if it's not exactly the same.
I got my smell and taste back and I’m experience tachycardia and fatigue
Yeah I've ever heard of POTS but it's everything I'm going through after covid 19! Should I go get tested or what do I do here? I was thinking of another covod test to check if I've caught this new variant?
@@EMTBonsai I wouldn’t take a covid test. I’d go to your doctor and have your labs done first and ask for a referral to see someone who specializes in Dysautonomia or a post covid clinic.
There seems to be a correlation between POTS & B12 deficiency. Taking magnesium & vitamin D has improved my heat flashes & nausea, but it’s going to be a long journey.
@@EMTBonsai
Do you still have POTS?
@@AbeGlTV
Any improvement of your condition?
Thank you for this! I was diagnosed with pots after getting covid. So many awful doctors told me I just had anxiety and go talk a walk and relax :(
I am so sorry you went through that. Some doctors can really suck, but there are some good ones out there. If you want any tips and tricks I would be happy to lend some suggestions. I have had POTS for a while(from EDS).
I'm so sorry hun! Good luck to you! I hope you find a great doctor and care team!
Don’t you just love it when they blame depression and anxiety on ALL of your physical symptoms??? 🤮
Yes every doctor I went to was like do you feel anxious
does it make ur oxygen levels go low too? and heart low sometime because i have covid and i’ve been feeling like dizzy a lot and like in about to croak feelings pls help
WOW! This is my next video I have lined up! So crazy! It's very sad but it's also Bringing more awareness and research to POTS!!
I didn't know about this. Thank you for covering it! I also hope those who get POTS from COVID-19 specifically will have hope of recovery. Like you, I'm concerned COVID-19 would make my POTS (from hEDS) far worse.
my physical therapist were talking about this the other day! It’s unfortunate that more people are getting pots, but hopefully it can spread so awareness about it!
I believe I had my first experience with this on Day 8 of covid. I stayed up all night because my hear was racing, my feet felt cold, and my thought got tight.
I'm here in the ER now and of course all my vitals are good, so all have chalked it up to nothing being wrong but WE know what we're feeling.
@@cu806
How are you today?
@@christiandeluxer2926 GREAT!
@@cu806
How did you resolve the problem with POTS?
Riti Hingu do you still have POTS?
So funny-ish story, I got super dizzy every time I stood up and would pass out in the shower when I was 16/17. I also have an autoimmune thyroid disorder. Being the teen I was, I googled my symptoms and I was quickly CONVINCED I had a mild form of POTS (I was on the running team and my bpm has always been lower). I ended up having chronic anemia and severe reactive hypoglycemia and dehydration 😂😂 I'm thankful I can treat my condition easily and that I was able to learn so much about something that affects other folks, but I always have an eye out for anyone who might have symptoms because syncope and dizziness SUCKS ♡ all my love to everyone reading this comment!
(I didn't get diagnosed with it until late 2019 though)
The good news is if your POTS is caused by a virus you have a good chance of recovering, whereas with EDS, POTS is usually permanent.
Oh thank God, I didn’t have this before and I am seriously hating it. In a way it’s good there’s more awareness so it’s not completely bad.
my doctor also said that but it will take a long time for recovery
It took my Hr to start calming down about 15 months after infection.
@@neverseenblue11
How high is your heart beat now?
And are you vaccinsted?
Jessica wow I hope so I feel like im dying
2 days after getting the Pfizer Vaccine I started experiencing almost every symptom of POTS. After going to the ER, Psychiatrists, almost being forced into a Inpatient Psychiatrist Hospital, I finally learned about POTS through online research.
Then after a tilt test, I was diagnosed with POTS.
This has to be related to the IMMUNE SYSTEM in some way.
A cause of POTS -->
" Antibodies against the Alpha 1 adrenergic receptor and muscarinic acetylcholine M4 receptor "
I cannot be the only one that this has happened to.
Hi Dave, I've been diagnosed too after my second Pfizer. You're not alone.
How are you now?
Me too sweetheart 😢I have hEDS and after my 2nd Pfizer shot I was diagnosed with Dysautonomia, small fiber neuropathy and MCAS. 21 months and no improvements. I hope you have improved ❤
Thank you so much for this. I was diagnosed with neuropathic dysautonomia post covid. The brain fog and fatigue is unreal.
I can report the viral-induced-POTS doesn't always clear within a short time period, if ever. I'm 35 years since first POTS symptoms, & still waiting for it to clear! Naturally MD's told me it was in my head for the first 25 years, so I finally took matters into my own hands, took dozens of medical courses, fully educated myself, and figured it out for myself. In the past few years, MD's finally admitted it was POTS all along. It all kicked off with chronic EBV at age 17...and hasn't let up since. I also have hyper-mobile EDS, so EDS & POTS became an unholy union that have made my entire adulthood a painful living nightmare.
a friend has had dysautonomia for years, developed covid early on, her dysautonomia symptoms consequently got much worse and are maybe 1/2 back to her normal dysautonomia after almost a whole year, and she says “wear a mask!”
Mask cause even more stress to the system
Yep, this is exactly what happened to me! Gosh I would have given anything to see this video in May. Thank you so much for making it. This will help SO MANY people. (I found and subscribed to your channel when I was desperately searching for answers. You’ve been a great help to me.)
I'm sorry to hear that you've been going through this, Heather. I'm glad that my videos have been helpful to you
Thank you for doing this! You could have been describing me... I’m a 34yo long hauler (first fever February 21, 2020) now diagnosed with POTS and several neurological/nervous system syndromes. Your videos have been a lifesaver on this journey - thank you!
If any other long haulers are reading this, there’s a LH neuro research study at NIH that includes research on PASC autonomic dysfunction. I participated in February and I believe they’re still recruiting! Please look into research studies - at NIH or elsewhere. 🙏
Hi Izzy!
I was recently (finally) diagnosed with PoTS after years of dealing with severe symptoms that seemed to sort of "come and go". We think that it could potentially have been initially brought on by a virus (but we are now looking into EDS as well, I have some signs of EDS and actually brought it up to my PCP thanks to your videos!). I became VERY ill last January (we think I may have had COVID before it became known in the US), then ended up contracted the type B flu about two weeks later. My symptoms came on about a month or so after that. I am definitely far more symptomatic around my cycle, but I have been prescribed Midodrine and take it as needed (only when I have symptoms). I deal with a lot of stomach pain with the Midodrine, so I try to refrain if I can! I just wanted to say that I am SO glad I found your channel. I have felt so much less alone throughout this process. My entire life was flipped upside down and I truly feel like I've had to change the way I live drastically. Knowing I'm not alone and that I can get legitimate information from your videos has given me a sense of peace
How are you today?
Omg I'm going through this also I noticed every month that I was having an episode of fainting I just realized that it was happening around my cycle wow I had covid end of October and a month later December I started experiencing the fainting spells wow so I'm not crazy there is someone who is experiencing the same thing I been explaining
@@Adrian_425 how are you now please respond
How are you now mine also appears around cycle please please respond
I have hEDS and POTS. Pots has come and gone throughout my life. It started in high school and they said that I should just let myself wake up slower in the morning 😆🤷🏻♀️. They didn’t diagnosis me with pots but called it vertical hypotension. Looking back it makes sense but I wasn’t officially diagnosed until this past August for EDS and September for POTS and MCAS.
Thanks for another great video! ☺️
As someone who has dysautonomia, I had covid and it changed my POTS. I have an entire video about this on my channel, but essentially, my hyperadrenergic POTS basically switched around to normal minor POTS. Covid moves through the ACE 2 receptors in your body, and can move through your nervous system. It’s a shame that millions of people will likely develop some form of dysautonomia from Covid, but hopefully that’ll result in more studies and better treatments.
Very interesting to know this. I became suddenly breathless, palpitations, chest pain, extreme fatigue and dizziness causing me to be too scared to get up and go outside incase I fainted. This was back in September and my doctor thinks I had a viral infection whether that’s covid or something else maybe and then she diagnosed me with pots after doing the tilt table test. I was devastated but 3 months later I felt so much better so I am really hoping it’s gone now. I really feel for anyone with pots- it’s so awful :(
Thank you so much for this, I am terrified beyond anything after realizing that I have POTS. Everything you said above is exactly what started happening to me 3 weeks ago. Check my post above about WHY I got POTS too, this needs to get out, people NEED to be WARNED !!
Wht is tilt table test
Donna are you better
@@undave242 Dave how are you now please update
@@carmella88 absolutely :) I still get week before periods where my pots symptoms
flare but other than that I’m working full time and plodding on ok. Thank you
A little over a year ago I had covid and right after I began having pots symptoms, out of no where I began feeling out of breath and suddenly I couldn’t walk because I felt I was going to pass out. It was really scary not knowing what was going on, a couple of doctors kept saying there was nothing wrong with me and that it was anxiety. Finally after a long time I was diagnosed with hyper pots, no meds have worked on me yet and I’m still in a wheelchair. I’m really glad to at least know what going on and that there’s hope to one day have a somewhat normal life once I find the right meds, I just really hope this thing goes away eventually. Thanks for your videos, they have been really helpful!
Sorry to heart that Dany, man. Gotta stay optimistic that WE CAN HEAL & RECOVER! 🌻
We don't deserve CoVid🖕🏽 @all...we got this!💪🏾🫀
3½years for me, I still haven't gotten an accurate diagnosis!
Hopefully, you've been able to manage your POTS without a wheelchair🛐
If anyone wants another person talking about getting pots after covid go too believe it's called Tyler ragge where his girlfriend talks about getting disabled from pots after covid in march
Welcome to my whole life.
I'm sorry so many people are going through this, but I'm glad about the awareness that it at least exists.
YOU SPEAK SO WELL!
I literally was thinking the same thing very well delivered!
she does
I had minimal POTS symptoms when I was younger but when I got Covid it triggered all my symptoms and I got a lot worse and that’s when I got diagnosed
I'm sorry to hear it has gotten so much worse since getting COVID. I know it's a hard thing to be dealing with
As somebody with hEDS and POTS, when I had COVID-19, it hit me really hard -- and I'm a 17-year-old otherwise healthy person. Not sure if my hEDS and POTS made COVID-19 worse, but all I can say is that I didn't expect COVID-19 to hit me as hard as it did. Be safe everybody!
I'm sorry it hit you so hard. How are you doing now?
@@IzzyKDNA I'm doing much better now, thank you for asking, but I still do have lingering effects and I had it about two months ago.
Finally someone my age that I can relate to
@@thatweirdscienceguy9880 im 17 as well and I’m having lingering symptoms it’s also been two weeks
@@Andrew-om1pw
Did you have Vaccine?
And how are you today?
My best friend had COVID and she has started experiencing POTS symptoms.
I developed POTS temporarily due to a spinal csf leak. Once my leak was repaired, the POTS slowly went away. My major concern with getting COVID is getting POTS again, super scary.
How r u now?
Iv been feeling off the last 6 mnths..unexplained tachychardia.
Fatigue...feeling off all the time
I doubt I had covid without knowing
Thank you for sharing yet another informative & fab video with us Izzy! You’re the best for spreading awareness about our condition 💓
Thank you so much!!
You need to see a PT that specializes in EDS and Dysautonomia.
I developed pots, m.e and autoimmune disorders after getting mono in 2017 - I really hope that the increase in awareness of long covid will help get more support for other post viral chronic illness patients 🤞🏻
I hope so too!
My twins have pots, eds, mcas . Its a nightmare . Thanks for the video Izzy
every nice forever !greatings from brazil ! never give up! above any problem, pain.... we already did it ! life is beautiful ! love!
I have POTS, EDS, SFN, and UCTD. Looking back I started having mild POTS symptoms in middle school, but it didn't get bad until my SFN pain really reared its ugly head in college. Around this time I developed gastroparesis as well, so we think the dysautonomia and SFN are very connected in my case. The SFN could be because of the EDS itself or UCTD, as I have a lot of nonspecific autoimmune symptoms and strong positive ANA tests. I also have a mild right to left atrial shunt and microvascular dysfunction, which causes many symptoms similar to POTS. It is all so murky and intermingled that it is very hard to tell what is causing what.
My POTS is very inconsistent. Some days I am have lots of tachycardia, some days I struggle with bradycardia and low blood pressure, and some days I am mostly fine. I can go from needing a wheelchair or crutch one day, to being able to hike unassisted the next day. It can change so quickly even throughout the day. If I get the tilt table test on a good day then it looks like I don't have POTs, but if I get it on a bad day it is obvious that I do.
I think the unpredictability of it makes it really hard to diagnose and treat. Especially since the same meds that help on some days make it worse on others. And some meds not related to the heart can sometimes effect my POTS. Too much bedrest does make it worse, but pushing too hard does as well. If I don't drink enough liquid my POTS will get worse, but if I drink too much my digestion flares up and then the POTS still gets worse. It is a difficult balancing act.
I read a study that some COVID patients who have undiagnosed mild atrial septal defects develop right to left shunts, resulting in hypoxemia. ASD is fairly common, most with it would never know as the hole is so tiny it never causes problems. But apparently COVID can increase pressure in the right chamber, causing the hole to open more and a shunt to develop. I would be curious about how instances such as this and other cardiac issues relate to those who experience POTS symptoms post COVID.
Me after covid-19 infection..
How are you know?
it feels really good knowing that I’m not alone in this I’m 17 years old I’ve never been ill like this I’ve been having heart palpitations or when I lay down ready to go to bed my pulse gets pretty high and scares the crap outta me also fatigue shortness of breath etc ugh lol. gone to the urgent care several times this month they keep telling me it’s anxiety but Ive felt like this for 4 weeks almost. Wishing I could’ve just stayed home and not got covid at all lmao. Will be seeing a doctor soon to see if I have any type of pots illness or something but I feel so much better watching your video and reading these comments haha
Hello I’m 40 years old and I have same problem after Covid. When I’m on bed and lay down I hear my heart palpitations. It disturbs. When I get up in the morning I have headache because of heart beats. My eyes are sometimes red. Did you recover?
The timing of this video is perfect. I’ve been experiencing these symptoms for months, but they have become much worse within the past two weeks. I’ve had a cold or something. Not sure what kind of virus, but definitely a virus. Now I know what to say to my doctor. Thanks so much for this!!!!
Jen this is exactly me. Canyou please give an update i feel like im going to die
I just got over covid on the 28th of January and I noticed when I first got it my heart rate was 127, after I was over itthough, it dropped a little but still when I stand, it will go up to over 105 at times.. It is scary to say the least, but some days it is normal.. I asked my cardiologist about it and he said the same thing you did, when you have a viral infection, you get really deconditioned and it takes a long time to get back in shape, especially if you had a fever for a long time with it, and I had my fever for the whole time I was sick, for 12 days, it fonally left on the last day, so my heart was having a work out every day.. Still is at times... It will go back to normal, and thank God I don't have POTS... Have a beautiful day 🙂
I’m in my 30s and when I was 21 I was always so healthy bubbly I was a hairdresser. I don’t know why but I ended up in icu on deaths door with blood poisoning and then I got sepsis again later that year then after that I developed pots systems then went to get a tilt table test so I can definitely understand it happening to people from a virus 🙏🙏🙏💖💖💖💖💖💖💖💖💖
You explained this so well..my symptoms appeared after a viral attack of the heart..not sure if it’s in my brain stem or what but tested negative for COVID but had tons of long hauler symptoms..thank you for sharing this message. I appreciate it very much! Trying to heal..
How are you now
I have had POTS symptoms for almost 4 years now. They started after I had lung surgery. Got worse in the past two years. All my symptoms fit dizziness, lightheaded ness, fatigue, numberless and tingling in my arms and legs, brain fog, night sweats. My heart rate would just to the 150s for no reason, palpation’s and really low BP. I’ve had two tilt table tests and they said I have neurally mediated syncope but I don’t believe that’s the correct diagnosis, I still believe I have pots I’m on heart rate meds and BP meds and still have symptoms. Kind of losing hope to figure out what’s actually wrong with me
I had COVID back in December '21 and after that I had severe fatigue and my eyes and head felt disoriented along with tension headaches for weeks straight every now and then and it never went away until October of last year my fatigue went away and the headaches subsided greatly but my head and eyes were still doing funky things that prevented me from living my normal life again. I've always been anxiety ridden so my doctors and I have tried to say its anxiety but I know better. Upon doing some research I'm starting to think it's a form of POTS. I don't have health insurance anymore but I would love to go and find out if this could be my issue. It's been a year now and I hope it's temporary and I'll see the light at the end of the tunnel soon. Thank you for this very informative video
I was diagnosed with CoVid back in Mid-2020.
(mild-pneumonia)
Recently, the shortness of breath is probably more scary than the tachycardia. I might have POTS idk yet.
Gotta wait til Cardiology appointment on 30th. 🥲
So sorry Samm. We got this!🫀🌻
Allowed me to play basketball 1½momths ago...guess I over worked my self since i'm mainly bed bound most of the day💔
My wife suffered these symptoms following her first astra zenica jab and a lesser repeat of the same after her second injection, several weeks later, while she has improved she remains unwell, family doctor supports the diagnosis. Wishing you well Izzy.
Me too Roger - whilst it is possible I had asymptomatic covid it looks more likely that I developed POTS like symptoms a month after my Pfizer jab - still have symptoms which are not resolving - how is your wife now?
@@patriciabryant8892 my wife remains unwell but improved, - wish you well
@@RogerBaileyOnCars Pleased to hear that Roger
I just finally got diagnosed with POTS in March of 2021 which I developed 3 months after having covid last February. I am doing a lot better there was a time I had to take a leave of absence from work for a couple months because standing was not an option even tho I never fainted I was getting close to it but now with help of propranolol snd fludrocortisone also salt tablets even tho standing my heart rate can get to 120 still and usually averages around 100 standing for long periods of time it has gotten a lot better. I still get really dizzy when I’m standing or walking to long but I’m back to work and finishing school snd still in very high hopes of making a full recovery because staying positive is the only thing getting me through this. Your videos have helped a lot.
Did u take vaccine before covid 19 hits you?
Your videos are great and so informative! I had covid back in March, but had weird undiagnosed health problems for a very long time beforehand. They are just way worst now..hopefully temporarily! I feel lucky to finally have explanations- I have rheumatoid arthritis, EDS, and POTS. I have a long history of fainting but was told so many times that it was normal 🙄 and I have seen so many physical therapist and doctors for dislocation related injustices but no one ever checked me for EDS until now.
It sucks it took having covid to finally have doctors listen to my symptoms and not just chalk it up to anxiety.
I have distinct memories of an brown leather wingback chair in our living room when I was a kid, specifically between the ages of 8-12. Because that chair is where I would try to make it to before passing out. Usually I would end up either on my knees with my face down on the seat, or I would plop down on my butt and put my arms over my head. I don’t know if my mom just never noticed or if I never told her, thinking maybe I just stood up too fast (again) 🤷🏻♀️
It happened...a lot.
Fast forward to my teenage years and the multiple spontaneous knee dislocations. I don’t know how I was never taken to a doctor for these, but I wasn’t. We didn’t have a lot of money, and there were times when there was no health insurance. I remember the second time my knee dislocated at a church youth event, my Dad gave me an ace wrap and his old crutches....I survived.
Later teens and early twenties I was a bit of a partier. I passed out or nearly passed out on multiple occasions, and probably attributed this to drinking too much or being dehydrated.
In 2007 I had mono/ Epstein-Barr and was given an antibiotic due to a misdiagnoses of sinus infection , which resulted in a rare autoimmune attack that had me sick for a year.
A couple of years later, I was exposed to black mold for over a year and developed fungal pneumonia 😣
I didn’t find out what POTS was until I was pregnant with my 3rd child at age 35. I had shortness of breath and discovered that my heart rate was spiking to 155-165 upon standing...was diagnosed with “pregnancy induced POTS”.
Looking back, I often had near syncope with my first two pregnancies in 2002 and 2009.
Still , nobody told me about things like dysautonomia, Ehlers-Danlos syndrome, or anything of the sort.
Had my 4th and last baby at age 38. POTS returned full force. I seemed to be able to manage it with plenty of fluids and pounding electrolytes. But my heart rate would still spike upon standing even if I didn’t always get dizzy.
Pre-eclampsia, postpartum preeclampsia, bladder prolapse would be my next challenges to face. While it PT for the prolapse, my therapist suggested that I research EDS.
And suddenly everything made sense. Like, my entire life. All those weird things that I could to...twisting my arm almost 180 degrees around, wrapping my fingers around each other, bending my thumbs backwards, popping my patellas and hips out, flipping my eyelids back, touching my nose with my tongue....I just thought I was weird 🤷🏻♀️
I just thought I was kinda weird.
I just thought it was normal to be in pain every time I had to stand for a long time, or exercise, or dress up in snug clothing and high heels, these things are painful for everyone, right? Turns out they are not.
I’m now 40 years old and have a partial diagnosis from a rheumatologist that didn’t know as much about EDS as I do from 2 years of research. I’m seeing a geneticist on the 26th and praying for more answers.
I suspect my mother and brother have it too, as they are both hypermobile and have scoliosis and anxiety.
I recently found out a 3rd cousin on my Dad’s side has arthrochalasia type EDS.
So, that’s interesting.
As of now, my diagnosis are hEDS, fybromyalgia, CFS, osteoarthritis, and I have about 14 bulging discs in my cervical, thoracic and lumbar spine.
I often wonder if EDS related cervical-cranial instability may have something to do with POTS. Bc I can have so many really good days, and then my neck flares up and it’s like everything else gets really bad too.
Ok, I’m rambling. That’s my POTS and EDS story in a nutshell lol.
I got diagnosed with pots but I never really had an episode until I got covid lol
ugh I'm sorry that COVID made your pots worse and brought on a episode
I was checked for POTS in the hospital standing sitting etc blood pressure however my heart rate spikes daily to 130-145 daily.. It’s very uncomfortable and makes me panic.
When I was about 12 I started having issues with my face turning white, becoming lightheaded, and sometimes passing out. My face would often be white even when I wasn't lightheaded and was probably due to fatigue which had also developed. Everytime I stood up and sometimes just raising my arms would cause me to get lightheaded. When I was in my mid 20s, my legs started getting a purplish lacy pattern and my knees would turn purple. I also had easy bruising and joint pain since childhood and had been diagnosed with fibromyalgia. They thought I had Lupus or a combination of lupus and rheumatoid arthritis. The tests were always negative though.
By my late 20s, I had surgery on my esophagus due to loss of mobility in it and I would also occasionally have mild numbness in areas. They suspected me of having MS. A short time later, I had my joint capsule in my shoulder tightened due to it dislocating all the time from such minor things as picking up a full cup. I was always popping it back in place. The orthopedic doctor told me all my joints were very loose and sublux, but I didnt think anything about it.
By my mid 30s, I was unable to stand very long without feeling very sick and my entire legs had started turning purple.
At 47, my lightheadedness when standing had changed and instead of heartrate increasing, bloodpressure dropping, and lightheadedness, I started having blood pressure spikes, increased heartrate, increased breathing rate, and sometimes a small decrease in O2 levels, and instead of getting lightheaded, I started having this weird dizzyish sensation when it would happen. Its hard to explain...basically its like when someone sneaks up behind you and scares the crap out of you, but it happens every time I stand up or when I stand too long. I am 48 now so this has been within the past year. It even happens while I'm asleep sometimes and thats usually when i have bigger O2 drops, but thanks to covid19 becoming so bad where I live I cant get all the testing done that I need due to fear of catching covid. I am taking neurontin (gabapentin) and it helps some.
Praying you feel better and get proper help
I had mono at 14. I am now 58. I got pots after the mono. I have been told that I have anxiety. Nope. I can walk across a room and my pulse jumps to 125. If I cross my legs while standing it drops to 80. Resting is 65. I got used to it. But it never went away. Oddly while walking it will drop to 85 but if I stop at a crosswalk it jumps to 135. As soon as I walk it it drops to 85. And after going to a cardiologist he said I have exercise hypertension. 106 over 75 at rest. Go figure. No meds to regulate.
Same here
I have POTS (have for years, they think mine is related to my Chiari Malformation so I guess I would fall under the hyperadrenergic POTS) and recently had what I believed was asymptomatic COVID. I am tested regularly because I work in healthcare, so I only found out I was infected incidentally and never really developed symptoms. However, watching your video makes me wonder if perhaps I could have had mild COVID symptoms, but they were just masked by the rest of my body's hot-mess-express-ness. Either way it doesn't really make a difference, I'm just glad I was able to know I was infected. That way I wasn't able to accidentally share it with the vulnerable people in my life. Like the information you found, anecdotally I haven't seen any increase in my POTS symptoms since recovery. It's encouraging to know I'm not an anomally. I'm glad to hear there aren't more of the population needing to be added into the high risk COVID group.
I have POTS and had Chiari as well before having the surgery 11 years ago. Hate that you have it but glad to see someone that understands!
@@ked2492 We're part of the cool kids club!
My gf is a long hauler does it ever go away? Its been almost a full year now.
My POTS is likely the neuropathic type which results from an unknown connective tissue disorder caused by a rare genetic mutation of COL1A1 (I do not have cEDS, OI, or arthrochalasia EDS). I take Midodrine 3 times daily and of all the treatment if been on in my lifetime (I have had chronic pain for 18 years) Midodrine is by far the most helpful treatment that I’ve used for any of my conditions.
Thank you for this. I got covid and that triggered the heart issues. I'm getting scared. How dangerous is this ? I'm 50... They can't find anything wrong with me...
How are you now?
Thank you for openly sharing. I developed Pots at 39 years old after contracting Covid-19 for a second time.
Me too, how are you feeling?
I'm 20 and I have EDS/POTS and contracted Covid symptoms back in April. Since then my heart symptoms have intensified to a very high degree as well as also deepening my gastric problems and general pain/fatigue. Due to all this I've had to go on to new heart meds and a huge diet change (no gluten, dairy, soy, caffeine, alcohol, onions or garlic). Do not recommend! Stay safe out there y'all.
I'm so sorry to hear this. I hope that these worsening symptoms let up and you start to feel better. Hang in there!
I'm so sorry that COVID made these symptoms a lot worse for you
@@whitney8931 many thanks, I'm sure it'll be alright in the end, I've adapted well this far and have support from some amazing people. Your encouragement is appreciated!
@@IzzyKDNA I won't lie it's frustrating (especially since I had been shielding) but your sentiment is appreciated and I'm sure I'll be ok in the end given my track record with medical troubles!
@@zapptuff5186 I'm so glad you have support and a positive attitude!
Hey I have a question kind of unrelated. I’m being tested for suspected dysautonomia. I got a 24hour holter monitor and it came back normal (it was a low symptom day but not sure if that would change anything). But now i dont know what to do, neither does my doctor really. Have you ever had a holter monitor and did it show anything weird? I’m still so convinced i have POTS
I got Covid early March. During the acute infection, my heart beat really fast, and very strongly. So much that my GP sent me to the ER. After that, it just felt horrible when I was standing (+ terrible I N S O M N I A). A 10 min walk to the cardiologist (who told me I had nothing) felt like I was going to have a heart attack. At that time I couldn't do much and felt like I was doomed to be homebound. That's pretty much when I found your channel and took the advice you gave in some videos. Thank you for that. Now, I'm not sure I have POTS, most of the other symptoms are gone, but I do have an increased HR (+30-50)when standing.. Anyway, by now I feel much better even if it feels like I'm running when I'm simply walking. What I'm wondering now: my hands and feet go numb/fall alseep frequently for no reason, and I'm wondering if it could be related? Does anyone have this?
Hi! Yes I’m 1.5 months post covid and curious about pots. Did you get any answers? I also experience numbness in my feet/finger tips as well
@@crystilina Hi! No I didn't get answers, I have no idea why that happens, HOWEVER I'm happy to report that it doesn't happen as often these days. There's no guarantee it won't come back later but it hasn't bothered me recently. :)
@@mnntrrr Have your POTS symptoms gone now Mason? The numbness could be lack of blood supply - this happens in POTS as the blood is needed in the brain rather than hands and feet.
You are so awesome, literally your words “I am so sorry you are going through this, I know how scary it can be” was songs to my heart. I needed that. I developed POTS after COVID but wonder if I had it prior undiagnosed and just managed as well as I could...the salt and water balance has been something I struggled with for a very long time & at age of 13 passed out after a hot bath...so may be some vulnerability all along.
Do you still have POTS?
@@christiandeluxer2926 Yes, unfortunately…but the continued lesson immense grace with “being a human” and accepting all that is associated with “living this human experience.”
Would love to collaborate on a future video!
@@sunshinelife2859
Do you have sleep disorders and how did you work..
@@christiandeluxer2926 no sleep issues. I sleep like a rock as long as I’m not hungry. I used good nutrition, exercise, very very very challenging it mental health strategies to return to work after ~ 1 month off to get my dx.
Every day was a challenge but I used my tools and pushed through each fear every day. I continue to push through with faith and breath work. Some days ate smooth & others a rollercoaster. But my strategies work. Knowing it all balances helps, knowing the feelings balance and pass helps. I do my part s d let my body “oddly do it’s part.” The trust and faith “= peaceful transitions & getting through easier each time!”
Hope that helps
I might have had COVID back in March, never tested, my lungs were on fire, now I use my inhaler every single day, twice a day, lungs were ravaged, but... POTS symptoms- as far as blacking out- not necessarily worse, I had the symptoms of POTS my whole life and the worst times were when I was trying to cut down on salt- not when I was sick, with I think COVID.
Are your lungs and POTS now ok?
I mean the lungs are ok?
And POTS gone?
I have joint laxity and have had pots for 10 years now. I don’t know how it started but around the same time I had my 1st episode I was diagnosed with diabetes and everything went down hill from there I have Rsd/crps now and a lots of chronic illnesses. But I’ve been ill my whole life I just always taught it was normal I didn’t realize it wasn’t until I was older.
I had mild symptoms and EDS most of my life, got worse around age 20, I was told i had anxiety the whole time. I got sick Feb 2020 right when Covid was being reported in the news while i was on vacation in Hawaii. My doctors believe it was Covid. I ended up with pneumonia n lung issues for months. Then... I had days where my heart rate was completely out of control out of nowhere, and my blood pressure was nuts. It took me multiple doctors, but my 4th cardiologist diagnosed me with pots.
This is how I got diagnosed because of Covid however I have Fibromyalgia before that
I’m in a POTS flare right now. I’ve been sitting on the couch for well over half an hour and my heart rates at 120 (I’m medicated which usually keeps it around 90-100) and if I stand up it goes to 150-160. Yay me! 🙄
How r u now?
@@alphasanthosh2545 um.. my heart rates not too bad but I’m still recovering from flaring and deconditioning. But I’m doing ok
@@maryly2688
Are you Feeling better now?
And Do you still have POTS?
@@christiandeluxer2926 I still have pots but it’s not flaring right now so it’s not this bad currently.
@@maryly2688
Are you taking medicine?
I'm EDS and autoimmune. I've now developed POTS after my second dose of Pfizer. So I'm here hoping to learn more.
I’m really freaked out and I think I have POTS. I didn’t know what it was, but all these symptoms are what I have.
I often can’t sneeze for days. Which suggests Hyperadrenergic Pots. I appreciate this video and will take this info to my nurse.
How are you now please respond
It’s also causing MCAS symptoms (which I have-not from Covid, but it’s just very odd)).
I hate how many people say covid has literally no side effects....even for healthy people there are! let alone people with pre existing conditions
I was healthy before I got Covid infection but after that I've been suffering from tachycardia and hypotension .. dizziness and numbness I can't really understand whats going on & why my symptoms lasted for months now
Hi is your dizziness. Better or same
@Olive Garden r u ok now?
@@sijikuriakos2347 dizziness has gone away allahmadule allah but my hypotension still a problem , it causes me to feel nauseous and lightheaded quite a time
@@alphasanthosh2545 allhamdule allah 🙏🏻♥️ lot better than months .. am on meds ( cardex for my fast heart rate and effortil for hypotension )
@@Gaposhi happy to hear u r better now. Wish u a full recovery soon😇
This video was the perfect length for sorting my meds for the week. Lol
Hi interesting facts on your channel. I found out 10 yrs ago I had pots. No idea what triggerred it. The doctors knew very little about it. Unfortunately I never got cured. In fact I also developed me/cfs, insomnia, and allergies. The only medication I take are amlodipine to lower bloodpressure an sleeping tablets. Hope indeed as you mentioned that pots is getting more attention now long-covid seem to give lots of people the same problems. Thanks for your content. 😀👍
I have POTS and H-EDS and I was diagnosed in March of 2020 with "pneumonia caused by an unidentified infectious organism" I did not qualify for a test at the time because I had no fever( I never get fevers because of my dysautonomia. I was once admitted to the hospital with peritonitis for 5 days of IV antibiotics and never had a fever). Having what we now assume was COVID definitely made my POTS symptoms worse. I couldn't sleep laying down because I couldn't breathe, I was on the couch for about a month before I really started to feel better. A lot of my chronic illness symptoms gog worse after that. They ended up testing me for lupus which all came back negative except for a positive ANA. But my skin and body have been much more sensitive since then.
A friend started sharing her POTS experience, and reading up on the symptoms made me realize I needed to finally get a GP and start figuring out why I randomly get dizzy so often and have had a few near fainting episodes while showering. I do have some hypermobility (not EDS) and according to the doctor I saw last week, I probably have orthostatic hypotension, but because I'm a younger woman with OH symptoms, he doesn't want to completely rule out POTS yet. In my case, I started noticing symptoms a few years ago when I began attending regular yoga classes.
This is exactly what’s happened to me. I’m 44. I’m healthy and get fast heart rate and get winded walking 10 feet at moments. Sometimes I can go 50 ft.
Did you get diagnosed?? I feel this way as well.
Can POTS cause problems with donating plasma?
I had mono 3 times in one year as a teenager. It caused a lot of problems. hEDS
I am being tested for pots - I feel dizziness more in the front of my head is this typical?
How is your dizziness
I got diagnosed with pots at the age 7 i know so young right now I am 11 years old so at the age 8-9 I got diagnosed with HEDS and I didn’t really understand what was happening because I was so young I thought I was like the rest of the kids normal as I got older I started to be aware of what is happening to me. I used to have thoughts why did God put me here if I’m just a mess up because I started get a lot more diagnoses and everything was just getting worse and worse it slowly started to get better I was taking consuming 10-15 pills a day and I started getting better and got off of meds but certain meds I could not go a day with out. Sadly this year my sister turned 13 and started developing pots and almost all of the same stuff as me. I certainly fight with my sister 24/4/7 and can’t really talk to her about it and Vice versa. My sister’s pots and everything is really bad right now where she has to go home almost every day from school at the nurse. That’s my story please comment your story I would love to hear it.
I've got EDS and have been affected by my POTS in the past but not significantly. I did have Covid earlier this year and my POTS symptoms really upped their game afterwards. I only recently discovered that I had EDS and POTS; a lot of my past experiences are now explained by it, but I'm still in the early stages of learning how to properly treat either of them. I believe I also have MCAS, so I have bad reactions to most medications. I'm about to see an allergist and neurologist. so hopefully that can be confirmed and treated, so I'll have better luck treating these other things.
I've been really scared of getting covid since I already got POTS after a different viral infection three years back.
I get heart heart eposiodes do these eposiodes would come once in a while we could figured out what it was so they started me on the Cardizem lowest dose 30 MG for the first two years then my recent one. My heart rate was 180 my blood pressure drops I can't breathe. So they finally put me on high dose of Cardizem. All 3 heart eposiodes were scary but now they tell me it's pots syndrome symptoms I get abnormal tachycardia and finally just found a heart murmur. Scariest thing ever it'd only happened 3 times the 3rd time they couldn't do anything g I felt like I was running a marathon with my heart racing but because I took my medicine but it was lower dose at the time then. Knock on wood I follow my rules and berm pretty good now.. I wear a fit bit just to keep eye on my heart rate so I don't faint. Scary that it make me faint. I always just sit down my work knows.. with the fit bit now it's not as scary because if I sit down my heart rate doesn't go down. So for about. Since 2012 thar was first fast heart rate..I have a really good dr where when she left my one cardiologist place I followed her to the new places.. I also have celiac disease so we think this all started after I got the auto immune disease because it's stops me from getting nutrients and stuff.
💔🌻❤️🔥
I have POTS(loosely diagnosed from old primary physician) my resting hr was 115 so his main concern was to get it down. I also take propranolol for it. Presumably mine is from generalized joint hypermobility syndrome(recently diagnosed, needs further evaluation for possible eds).
Husband also has POTS which we believe was a result of mono but all his docs in the past were saying his symptoms were psychosomatic (in his head). I had better care with my civilian docs than he did with military docs he had to see.
I plan to show my husband this video since there is quite a bit of info.
I documented everything from videos to pictures. I also had to get my pacemaker removed because somehow there was an infection inside of my blood they believe that it was COVID-19 I was going septic somethings not right about COVID-19 I wish I knew how to get all of my footage together you’re talking about everything I already have this is great to see this video thank you
i tachycardia and high blood pressure and breathing problems from covid. my health went to a total decline from covid. im going to mention this to my dr. great information
I hope your doctor can test you for POTS. If it ends up being pots there are a ton of medications that might be able to help like midodrine and beta blockers, among others!
A few weeks after covid I had dizziness and racing heart rate when standing. It finally calmed down. Now I have low heart rate and heart palpitations thanks to covid. My blood pressure drops when I stand. So now complete opposite lol.
@Artic Penguins How long have you had the POTs?
@danieli alda How are you now Danieli? Are you improving?
@Artic Penguins I had covid back in late April. I had rapid heart rate like 120 to 125 when I was just laying down in bed crocheting. Thats when it all started. It made me have tingly face st times, and arms and legs tingly. I felt heat in my face and felt dizzy a bit, then had a heavy chest and could not breath in all the way. Well went to hospital multiple times and every test was normal and by the time I got there my heart rate was back to 80s and 90s which was normal. I do have SVT which is at un opportune times my heart can get up to 200 beats per minute, and then I go to hospital to have them shock my heart back into rythym. But that was not what this was. This was completely different, I felt awful. Well I finally had a night after 3 weeks that I had a fever, and I went to hospital and tested positive for covid and influenza. Well I wasn't really sick just rapid heart rate. Well all the drugs they kept giving me made me feel worse on top of being told I was crazy and had anxiety. Well I got off all the meds but, I take Metropolol 25mg 2 xs a day. I am now almost 4 months from covid and I am alot better. I can still feel my heart get a little fast in the middle of night, but its only 87 or 90, and I go back to sleep. When I stand up from bed my heart goes a little fast but goes right back to normal.
So I want you to know it will get better. I feel so much better and don't have the fatigue anymore, just a bit. You have to take your time, rest when your body feels it needs it. And don't over do it. I take all my meds, and vitamins. I take vitamin d3 20,000 iu and vitamin C , and I eat really good! Be kind to yourself. You will get better. I know how you feel I thought this would never end. But by the grace of God and much prayer he is healing me. You will get better and that racing heart will go away. I think its the last thing to go away along with taste! Mine is still not that good. Oh and to the other person who asked about stomach issues, I had those also and bloating! I think some of that is because of all the meds we had to take. But I think the covid just causes the inflammation thru out your body and the nerves are just all in panic, so until it calms down we will have these little bursts. God bless you and feel better soon!🙋♀️♥️🙏
I’m just now seeing the comments. I am 8 months post covid , almost 9 months and the racing heart has came back. My palpitations are still going on also. I don’t really get dizzy anymore, just shortness of breath. I check my oxygen and it’s 99-100 but my heart rate will be 165-195
My cardiologist said pots is overly diagnosed and said I had sinus arrhythmia despite my heart rate fluctuating 64-167. I also have neuro issues post covid. I am finally referred to see a neurologist and see them in a few weeks and I hope they help.
@@user-fd1qb7ml2j Thanks for your post - that’s reassuring- how are you now?
I got diagnosed with inappropriate sinus tachycardia multiple sclerosis related cardiologist said but my neurologist said it's not multiple sclerosis related..unbelievable
Joint hypermobility related pots. Pretty sure that's the version I have. Just a few seconds in cold weather and my joints become unusable. But the cold air really helps my lungs. Warm weather helps my joints, but I can't breathe well to the point of pre syncope. So fall and spring are my favorite seasons now. To bad both only last two days in the south😅. My pots is secondary to an unknown auto immune disease that attacked my heart one day at work. Thought I had a flu. Went home for a few days came back to work and started to have a pain in my chest. Doctors thought I had a heart attack. After months of study they realised my heart was healthy. A year later they said I was ANA positive, but couldn't give me a name until a specific marker presented itself( hasn't yet 8 years later). I started to slow down big time at work. I was a preventive maintenance engineer. Eventually I was laid off, they didn't say why but I knew the reason. A few weeks after being laid off I felt intense pain from head to toe and blacked out. When I came to couldn't walk or breathe. Took everything in me to get in bed where I concentrated on breathing. When my lungs stopped I'd use asthma inhalers to jumpstart my lungs. A year later I was diagnosed with pots as secondary to my primary illness. You may say I was fortunate to be diagnosed so soon after becoming ill, but the truth is I had to force the doctors into looking in the right direction. They didn't believe that I would become faint or had problems with my breathing. So when my physician left for a second opinion, I held my breathe for about a minute. This immediately made me tachycardia. This small trick led them to use a tilt table which gave me the answers I needed. Your channel has also been very helpful. Keep up the good work👍!
my pots is already so bad... I'll just add this to the endless list of reasons why I'm scared of getting covid
Ugh im sorry. I'm so scared too
I was just discussing this .
I have got it this year after getting Covid in March and am just in shock.
Did you take the vaccine before u got covid?
@@user-iz1lh6ji6z did you take the vaccine before u got covid?
@@user-iz1lh6ji6z man... I'm Sorry for you. I know this sounds unbelievable but it is the vac that has caused this mess. In fact the Vax doesn't work at all. It's a way for more government control. If you don't believe I can show you some evidence. I want people to wake up and know the truth about this mass corruption. That's why there were incentives. Mandates. And propaganda.
Same here, sorry Neera! 🌻
CoVid positive in August 2020. Tachycardia/POTS not sure yet but I hate this. 😔
Omg, ! Was searching and found this video because I have been experiencing POTS after recovering from CoViD19, so my experience was like my pulse or heartbeat was beating fast(tachycardia) while just seating, then followed by shaking and almost going to faint. Was soo anxious before and still now, will hope this will go away.
How r u now??
I think I have POTS. I got lupus and sjogrens last year, I've had celiac for many years. A few months ago I started getting more symptoms, and I thought it was all lupus at first, but now I think it is POTS, as the symptoms all fit. I tried the poor mans tilt table test here at home and had an over 50 beats per minute increase and had presyncopy. The first test. I've tried it again 4 or 5 times, and it's never happened again. One time I had a 27 beat increase. Yes, I really do not like to stand up. My legs feel weak, I get tremors, and I can get a lot of presyncopy sometimes, but don't most of the time. I get stomach pain, memory issues, rare palpitations, sleep issues, extreme fatigue, sometimes see stars, I can't do anything - I get out of breath, lots worse tremors if I try to accomplish any chores. I'm just wondering if the tilt table test should be positive every single time, or just every once in a while still means I have POTS. I did completely pass out a few months ago. I had extreme stomach pain, my face got hot and sweaty, lots of presyncopy, then I blacked out and fell.
Thank you very much. This is very enlightening. My long covid symptoms are most definitely pots. It has been such a relief to know the diagnosis and get some advice. Your video is clear and hopeful.
Interestingly my daughters all suffered from post glandular fever. Mainly fatigue. I also suffered for a few years after glandular fever. In those days I was told it was all in the mind.
I seem to be getting better. It is a matter of management. My ability to look forward to things is coming back and the mind fog is slowly improving.
Are your symptoms continuing to improve Wendy? When did you have covid? It’s all so scary isn’t it?
@@patriciabryant8892 the symptoms are improving but I am pacing myself very carefully. I had Covid in the first wave, last March, which makes it over a year. My initial infection was very mild other than terrible abdominal pain.
@@wendyhay1302 Thanks Wendy that's encouraging!
Wendy hope it's OK to ask but are the POTS symptoms resolving just with time or have u done anythi g or taken anything that's helped?
@@wendyhay1302 Thanks Wendy - what helped with the POTs or was it time?
I believe this is what I'm dealing with. high levels of stress from work for years plus adrenal fatigue, and now emergency room visits to staying at home trying to heal and seeing a cardiologist. I did get covid about 2 years ago, so maybe covid had something to do with it but I figure that was long enough ago to be ruled out.
I think I have this, they do think it’s anxiety. I just had covid and the residual effects have been horrible. I never heard of this, but my heart rate is always high as soon as I get up from resting and try to move around as normal and it’s so crippling. I just decided to research why this is happening and so happy I found this video 🙏🏽. I was avoiding the medicine because of side effects, but they gave me 10mg propranolol. How much do you take?
Any natural ways to make the heart rate low while in motion?
Did propranolol help you?
@@user-iz1lh6ji6z yeah I don’t even pay attention anymore I was caught up in anxiety but now I live a healthier life with meditation and other methods. Thank you!
Is the medicine helping you ?
A couple of weeks ago I was going to the hardware store to change my bicycle tyre hose. I bent down to look at the engravings in the tyre to figure out what size I had to buy. When I rose up again I was hit with EXTREME dizziness. It eventually passed but I had serious difficulties peddling home again. Shortness of breath and a feeling that I might just pass out and fall off the bike. I have had the same experience on two or three separate occations now but it isn't an every day thing at all. Although I have a strange feeling in my chest most of the time. It feels strained and not very flexible if that makes any sense.. I almost passed out during a work interview last week also.. This is so unlike me. I'm fit and healthy otherwise.
The weirdest thing is that I haven't had ANY cold or flu symptoms for almost two years. Can you still get this corona-POTS-thing or do you have to develop some kind of pneumonea/cough first? I have bought one of those pulse-oximeters and it says that my oxygen saturation levels are good (99%) and my pulse is normal (about 70bpm). I have had a heart checkup (EKG) and also measured my blood pressure just a year ago. Everything normal then. Thank you for this video. This might be why I'm feeling weird.
Does this thing pass by itself? Or is this a chronic illness? How dangerous is it?
oh my god is this whats happening to me
Yup! I got it after mono and Grave's disease. It really sucks! I had mono at 17, Grave's at 23 and got POTS at 24
I am going thru testing right now to have my diagnosis of POTS confirmed. I am pretty sure I’ve had it most of life and it was misdiagnosed as other things (supraventricular tachycardia, and as part of my anxiety and depression). However, I got COVID in March and my POTS symptoms (if it is confirmed, which my doctor is pretty sure it will be) have gotten worse since then. I have had the symptoms for a long time, but before COVID, usually they would come and go more than they do now. It has gotten more debilitating for me since getting COVID.
I’m sorry to hear this! I hope they are able to figure out if it’s pots and find the right management plan ❤️❤️
@@IzzyKDNA Thank you! 💜 In a few weeks I should have an answer hopefully. 🙏🏻
I have covid now struggling my heart rate is 100 to 130 but also have a fever and the pharmacist she said its normal to increase. Fever is 101.1 so far dropped to 99 the back to 100 later in the day what scares me is I was born with a heart defect small hole and I have anxietybdisorder now the defect I was told has nothing to do with covid issues or anxiety where my heart races panic attacks...
I hope I don't get this too 😕 the heart rate increases its freaks me out. Haven't been sick in years just dealing with my bad anxiety so now I have covid on top of anxiety feels like its going to kill me...
I am on metoprolol and (zanax when needed) when I first tested positive this morning I had a panic attack...so I had to take on.
I'm hoping breathing exercises can help slow down my heart rate...hard to eat and drink. Feel better
Has anyone else had extreme symptoms because of going nil-by-mouth before surgery? I assumed it was because of my Diabetes Insipidus (once I got that diagnosis), but now I'm thinking it was maybe my POTS also? I made them give me a saline drip & instantly felt better. I had no idea at the time that I had either condition, so it was quite scary.
This is exactly what happened to me after Covid but I had an asymptotic case of Covid. I also was just diagnosed with EDS as well!
Are you any better Hayley?
@@patriciabryant8892 Patricia what about you ?
Very informative! I recently got over a bad case of Covid, and am still experiencing a high heart rate and occasional dizziness upon standing. My heart rate is also higher when I stand up. I really hope I don't/haven't developed anything permanent, like POTS. It's definitely affecting my day-to-day life, as I find I have to sit down throughout the day and wait until my heart rate comes back down. (And even then it's on the high side compared to my pre-Covid norms)
Did this go away after awhile ?
@@jamesabar207 Mostly, yes, thankfully. My HR is still higher than pre-covid on average and it's very easy to get it around 115 just with very light activity (like walking up a single flight of stairs or doing light housework) So, it's not perfect, but improving. But it's been a little more than a year.
@@kristinadavis1569 oh wow. I’m exactly where you are right now .. not the same as I was pre Covid but far more manageable. Hopefully overtime we can make a full recovery. I do worry about getting it again though..
@@kristinadavis1569 how are you now
@@hi-vj2uz I actually just recently went to a cardiologist. I had an EKG, and a stress test, and am currently wearing a Holter monitor. I don't have any results back yet, but hopefully they'll be able to figure out what's going on and can do something about it. 😕