Watched these one at a time over a week or so. Still terrific to hear your updates - feel I am kept in the know from a distance. Thanks heaps for your work! 😊
Thanks for these updates :) 2-3 weeks after a Covid infection I had a massive relapse. Sadly this was also my first indication I had MS - I had severe optic neuritis that has left me blind in one eye permanently. Prior to this I didn't have any indication of MS whatsoever - it really came out of the blue. Are there any merits to the article from the WHO which indicated covid may actually cause MS in some people? I know that long covid also has neurlogical causes + I know a friend who had guillain barre syndrome post covid... seems quite clear now that C19 impacts the nervous system / brain in some way considering a stagering 5 -15% get long covid post infection...
Thanks for your comment and questions. Firstly, let me say that I'm sorry to hear about your diagnosis subsequent to your COVID infection. I think that this data is really important, as it shows that the MS community needs to stay very mindful of the ongoing pandemic, even as lots of people start to relax. In terms of the WHO article that you mention, I believe that this was based on a video by Dr John Campbell. This was not an official WHO publication, far from it, and many of the comments and claims made in that video were either exaggerated, misleading or completely false. There is no significant data yet to suggest that COVID-19 (or the vaccines) can cause MS. Thanks - Brett
@@MStranslate1 Hi MS translate :) thank you very much for your response! It does indeed seem like C19 has an outsized risk factor for those with MS. At least anecdotally I am almost 100% certain my first relapse was triggered by the infection, the timing was far too coincidental. Thanks for the clarification - it was indeed the video by Dr John C. After review there does seem to only be anecdotally evidence there indeed. It is unfortunate though that this doesn't seem to be on the radar for new MS patients though in order to see if there is a correlation.
Watched these one at a time over a week or so. Still terrific to hear your updates - feel I am kept in the know from a distance. Thanks heaps for your work! 😊
thanks for keeping us up to date with ectrims, Jo and Brett.
Thanks for the videos of ECTRMS 2023.
Thanks for these updates :) 2-3 weeks after a Covid infection I had a massive relapse. Sadly this was also my first indication I had MS - I had severe optic neuritis that has left me blind in one eye permanently. Prior to this I didn't have any indication of MS whatsoever - it really came out of the blue. Are there any merits to the article from the WHO which indicated covid may actually cause MS in some people? I know that long covid also has neurlogical causes + I know a friend who had guillain barre syndrome post covid... seems quite clear now that C19 impacts the nervous system / brain in some way considering a stagering 5 -15% get long covid post infection...
Thanks for your comment and questions. Firstly, let me say that I'm sorry to hear about your diagnosis subsequent to your COVID infection. I think that this data is really important, as it shows that the MS community needs to stay very mindful of the ongoing pandemic, even as lots of people start to relax. In terms of the WHO article that you mention, I believe that this was based on a video by Dr John Campbell. This was not an official WHO publication, far from it, and many of the comments and claims made in that video were either exaggerated, misleading or completely false. There is no significant data yet to suggest that COVID-19 (or the vaccines) can cause MS. Thanks - Brett
@@MStranslate1 Hi MS translate :) thank you very much for your response! It does indeed seem like C19 has an outsized risk factor for those with MS. At least anecdotally I am almost 100% certain my first relapse was triggered by the infection, the timing was far too coincidental. Thanks for the clarification - it was indeed the video by Dr John C. After review there does seem to only be anecdotally evidence there indeed. It is unfortunate though that this doesn't seem to be on the radar for new MS patients though in order to see if there is a correlation.
How about vaccine effects on MS patients. Spike protein and MRNA