“My Skin Rips With Every Movement” | Listen Up | ABC Science
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- Опубликовано: 23 окт 2023
- Dean Clifford was told his rare skin condition would kill him by age five. Now decades later, he’s stronger than ever - intent on beating the odds. Subscribe to ABC Science RUclips 👉 ab.co/2YFO4Go
BIG THANKS to Dean @MrDeanClifford for sharing his story.
Epidermolysis bullosa, or EB, is the name for a group of rare inherited skin disorders that cause the skin to become very fragile. Any trauma or friction to the skin can cause painful blisters. EB is usually diagnosed at an early age, as the symptoms can be obvious from birth. But some milder types of EB may not be diagnosed until adulthood. For more information, visit: www.debra.org.au/what-is-eb/ and www.dermcoll.edu.au/atoz/epid...
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"My life expectancy was 2-5 years but i break the rules" has got to be the hardest line ever
When you suddenly realize how easy your life has been
Bro said "pain, I don't have time for that."
The willpower on this man is absolutely incredible
Him doing the Deadpool outfit, legend. xD
My son is only 1 of 100 people worldwide with his rare genetics. He wasn't expected to survive his birth and he's now 12! Everyday can be a battle but you, Sir, are an OUTSTANDING Individual!! ❤
I'm so proud of his strength and so very proud of yours as his parent ❤ he is going to keep showing you daily God exists and is loving and protecting your family ❤
Bless his heart 🙏
I'm sorry 😢
@lialousier3970
I truly hope this video of Dean fills your son with dreams and mental strength, so he too can achieve the unthinkable, rise above others judgment and cruel comments and to become the very best of who your son can be. Blessings to your entire family upon your unimaginable journey. ❤
God bless this man & his family nothing is bigger then God he loves us unconditional
Not just lifting heavy weights but also lifting people up, he truly is the world's strongest man.
❤
i like how his dog loves him so much. they obviously dont care about it, they are just balls of compassion
this man is an absolute unit.
not only is he able to lift 150kg, but also lift others up.
I went to school with you for a short time back in 1991 to 92.. you have always been an inspiration to me. I'm so proud of all you have achieved. Every time I think of you over these years, it makes me smile. Thank you for been you 😘
Awesome idk yall but i love yall stay strong keep inspiring folks
*being
@@stephaniebaker2526 really?
@@stephaniebaker2526your correction is wrong.
@@stephaniebaker2526,🙄
What the hell man, leave some strength and perseverance for the rest of us!!! Man I feel so sorry for myself until I hear about people like you. You’re a hero to me
Me too.. feel sad for people that get bad luck like this in life.
I see how bad they had it and see how my depression isnt too bad compared, my depression is just from narcissists
@@dark7angel456dont look at others and dont judge yourself for feeling depressed...
@@34pers It's totally fine to do that and I think it's just as unhealthy to say you should ignore everyone and everything else and just only do what suits you. We ARE social creatures. Seeing someone else in a much tougher spot or down on their luck then your own situation, yes, it can make you appreciate what you have and your position in life. It gives you more gratitude. You can ALWAYS seek to want more. That's not hard. You can always be discontent. But what you sometimes actually need is just a gentle reminder to appreciate some of the more basic things of life. It doesn't mean it invalidates all of your feelings. But it can give you that strength and motivation to carry on and appreciate what you do have. There is nothing wrong with that and i would even argue it is healthy. Whenever I'm down or in a rut, it always helps me to remember that no matter how bad I have it, someone else has it worse and they're chugging along. That gives me the extra strength to carry on myself sometimes. It can be a powerful tool. One that shouldn't just be disregarded entirely.
bump
In islam, prophet Mohammed said when you feel not satisfied, look at the people who are in worse condition than you. like you have for example 200$ in bank, look at people in Africa who work for a full day just to get a cup of water and so on, this man is another example why we say Thank god
This guy isn't just doing well for his condition; he's downright superhuman. Most people could only wish to have even a fraction of the strength of body and will that he does. His life is an example everyone should follow.
The baby pictures got me... Bless this man. Glad to see him alive and well. He's a mountain a joy for a man in his situation.
NOT ONLY THAT, BUT MY GUY IS A BRUTE!!! Stay strong King.
Dudes a legend. To be so strong mentally and physically through all the pain is incredible. A real superhero.
My husband has EB, he's 34 now. He was expected to live until 12 i think with his.
His brother and sister and dad have it and my nephew. Somehow my daughter and other neices and neohews didn't develop it.
He only has it on his joints thank God.
But even then its severe pain and injuries every day.
I'm absoljtley amazed by this story, we've never met anyone as old as the man in the video with EB. And its really heartwarming to see.
Can I ask why you would have kids knowing there is such a high chance they would have this painful illness? It sounds like you got lucky but what a chance to take. You could have had a child that lived in nothing but agony
@@Plutonium.2 i agree, but We didn't plan to have her. And I had already had 2 kids when we met so it was perfect, he adopted them. And despite taking birth control etc. I still got pregnant.
I always would go back and forth on thinking his parents were selfish for having kids, because it could have been worse than EBS, and they had a hard upbringing with bullies and the pain, and they also moved a lot and had other problems as well. And I didn't get why they would choose to put their kids through that.
But I can also understand falling in love with someone and wanting to have a family, being young as they both were and not fully understanding the consequences that could occur. A lot if people esp. Back in the day see having a family as the ultimate goal of being in love and married.
So I can understand why people with EB have children and I also can logically understand that bringing a kid into the world who would live with pain, or die etc. Is messed up.
I struggled with if I did the right thing choosing to keep her which we were lucky she didn't have it, and I am so glad I have her now becUse thats my baby.
We did what we could to detect it before birth. Which was limited back then. We did genetic tests and everything and they came back fine but there was still a chance of her having it when she was born.
The only peace of mind or some form of hope came from my neice and nephew never showing symptoms and they were about 11 when I had my daughter.
But I totally understand where you're coming from because that was my way of thinking until I got pregnant and I had to make a difficult decision and I was lucky it worked out.
@@daashazireael6613 thanks for taking it as intended and not a horrible attack. It must have been an anxious time during pregnancy. I totally understand the falling in love and wanting to create life with that person. What a terrible choice you had to make
@@Plutonium.2thank you for being understanding I appreciate it
What a lovely conversation and response in the replies! I’ve definitely gained some insight from you. Thank you!
"My life expectancy was 2-5 years but i break the rules" sounds so damn badass. Dean you're an absolute legend, your determination to keep on living despite this condition is so inspiring to every single person who is going through their own hardships, be it medical or emotional
"its the only time i can recall walking completely pain-free"
so powerful
He has the most genuine smile.
he truly does 😭🤎
The mental strength it takes for this much compartmentalization is nothing but aw inspiring!
I think you are beautiful!
thank you@@keemajames2551
“Too disabled to be independent, too independent to be disabled” gotta love services Australia doing everything they can not to give people the services they need
Had a tough day at work today and then I stumbled across this video, things instantly in perspective. What a guy.
Absolute badass person . To be in constant pain your entire life , but still keep living and smiling too
Dean, you are NOT scary looking. You are a hero and an amazing person ❤
Ahh yeah he is, stop denying reality. He knows it and doesn’t deny it. That doesn’t mean he isn’t an amazing person
He IS scary looking, but that does not mean he is not a hero and an amazing person.
@feelincrispy7053 you may find him scary looking but I don't
He is but he's still cool
@@KatieDeGoIt's normal to find something you've never seen before strange or scary. Once you've seen him, or met him, or heard him talk like we have in this video, it stops being scary. Because it's not unknown anymore.
Everyone in this world needs a friend like Dean. We can learn a lot from him.
I love when people who were dealt a crappy hand like this are still capable of smiling and being happy.
I really related to him when he said, "I became too independent to be classified as disabled, and then I was too disabled to be independent." I'm still fighting to get a proper diagnosis which means my employer doesn't have to respect reasonable accommodations, and chronic pain is invisible, so.. they kind of just assume I'm lying about the debilitating pain and I get fired or my hours cut within 6-8 months. I can't really provide for myself, but I can technically work, so obviously I MUST be able-bodied. 🙄
I respect Dean so much and I hope, like him, that I'm one day able to find something that fulfills me and gives me purpose :) I'm kinda running myself into the ground, but I'm doing by best with what I've got.
The treatment the Australian government and Australian companies give disabled people of all stripes is horrendous. From situations as serious as yours and Dean's to situations as negligible as mine, facing the possibility being rejected a learner's permit for my autism, the institutions in Australia seem to want to find any reason to keep us down.
But we'll keep going. We have to.
Hey there under any equality law youd
Don't need a diagnosis. If you have had a condition for 12 months or longer which affects your ability to work ,you are classed as disabled. That's in the UK. Unsure where you are? Employers should make reasonable adjustments. If they don't it's possible discrimination. Good luck
I'm hoping this was already thought of for what you're dealing with, but could it be fibromyalgia?
I can relate maybe not exactly with your condition. But I understand the frustrations of trying to prove the pain actually exists, and running yourself into the ground to act functional despite the very real problems you face, of which are ignored/brushed over.
Keep yourself well fella.
sounds familiar.....
i played varsity soccer when i was 15, super good shape
then i got surgery to fix a leg problem i had, never been the same since, messed up my whole body, but yea, since i "graduated college" im not eligible for disability. and i dont really want it either, until those nights hit me like tonight where i have that boredom/despair feeling
What an absolutely phenomenal person. that kind of personal strength and determination is truly humbling.
He is scary too look at. But sincerily i feel like an asshole for not bieng more compassionate. You are a survivor mate. Everything you have done has been more than difficult to overcome, yet you're still here. Keep fighting on mate! you inspire me to be better. Reality is not kind, but take pride you are free from superficiality and kind hearted. WE NEED more people like you.
Live well
This guy is a effing warrior. So inspirational man. Like seriously the things this guys has overcome
Been sick for a year with lots of self pity. Then I see Dean. What a hero! ❤
I think his story is one of the best examples of human resilience. Looking at the photos from his childhood I can't image how much pain he must have suffered. To overcome that, to learn to walk, live independently and thrive as a power lifter is beyond impressive. Truly inspiring.
It's hard to not leave a comment. This guy is a Hero. All my problems in life are absolutely nothing compared to what he is going through, while sincerely smiling at the pain. Thank you, sir!
man..and then there is me, and maybe you too reading this, sometimes thinking we have it hard. Dean is an embodiment of strenght and resiliance, one of the true real few we can encounter during our life, examples that always humble us and make you strive to become just a little more like them.
It's interesting that his skin seemed more durable at age 43, like the toughness of adult skin keeps it together more and he can endure the pain with less risk of bleeding? I don't know. He's awesome anyway
I guess it's the scarring
It's scarring from 43 years of cuts every minute.
If you suffer damage in a certain area for a certain time, the body will start to adapt and ignore the pain.
It’s probably just all scar tissue buildup at this point. Each time your skin rips or breaks, it becomes thicker and less fragile.
It's all scar tissue now by the looks of it.
he’s defying the medical odds & living a fulfilling life. you rock Dean.
This man is incredible, i cant fathom how much pain he is in yet can soldier on. A true inspiration.
Jesus, I can't stop crying... I have psoriasis since 2009 and can't imagine how hard and difficult life must have been for Dean. Thank you very much for your strenght, your way of seeing life and for charing your amazing and powerful story. You are such an inspiration. Now I want to be better. For myself and for everyone around me. May life bless you every single day, beautiful boy!! Thank you, thank you, thank you...
This might be the strongest person I have ever seen alive.
Dean, you have made me realize that even though I am coping with many serious health problems that i can make it, stop feeling sorry for myself, and to just be glad im here. GOD BLESS YOU AND I PRAY FOR ALL THE BEST BLESSINGS IN LIFE COME TO YOU AND YOUR FAMILY. I PRAY FOR YOUR PAIN TO CEASE. YOU ARE A HERO❤
God blessed him already as you can see, no need to ask him again
What an amazing person, going through all that pain but still loving life! I hope all the best for him!
Dude is a real life hero.
Im glad to see this man is still fighting and seemingly enjoying his life.
Dean you’re one of the bravest, most fearless people, I’ve ever seen. Wish you all the best
This guy's strength is unimaginable!! Precious stone!!
Bloody hell saying it would be best if you passed sooner as it would just get worse is a pretty horrific situation to live through. What an absolute legend.
I love how, in 1 second I got shocked about the video thumb, but as soon as I seen his smile and he talking so confident, I almost completely forgot his condition. You are a very strong man!
He's filled with determination! Keep going man.
People like this have gone trough so much, you know they are wise, kind and empathetic
wiping your but must be a night mare :( praying for you big guy! I wish I had a sturdy mind like you.
Nothing but respect for this man that didn't give up
It's always so interesting to learn about people living with these conditions that are so debilitating, and yet you see people persevere, and as an able bodied person I can't help but think "Wow, I could NEVER do what he's accomplished." It kinda puts things in perspective to see people living in what must just be constant physical pain, and the added mental anguish of the world around you treating you poorly if you have such a visible condition. I really appreciate folks like Dean coming onto these public platforms and sharing their experiences with us, inspiring and educating people, and maybe making the world a kinder, more accepting place to those who are "different." I think it's a good thing for people with conditions like this to be visible. I used to watch a lot of this kind of content, about people with conditions that change their appearance in unusual ways, and I honestly think it's helped me be more... I dunno, I guess "prepared" to encounter people who live with these conditions and be more normal about it. I think if you're more aware of what these conditions are and what they do, it helps you move past the initial negative reaction you might have when you encounter someone with a "scary" appearance. I think it's normal to be initially taken back, it's probably an instinctual evolutionary response because you're looking at something unusual and the unknown can harbor danger, but that's why this kind of visibility helps so much - it makes it not so unknown and thus not so scary. I bet most people pretty much got used to his appearance by the end of the video.
everything you said is very, very, true. i agree 100% on regards to what you mentioned about someone having an instinctual reaction to a person's appearance that isn't that of what were so used to, and conditioned to seeing. everything in your comment was very well worded and relatable! 🙌🏼 ❤
What a legend, what a will to not only stay alive, but to LIVE! Dean, you are spectacular! ❤
What a great Person! You are a real hero! The World needs people like you! All the best for you!
This is one of those rare moments when I realize I've never had a bad day, but spend way to much time whining about how bad I've got it.
Thanks, Dean, for giving me perspective!
Dean you’re an absolute champion, thank you for sharing your story. I’m so happy you’ve had such a full life, you deserve all the opportunities you’ve had! I hope you continue to see success in everything you seek in life ❤ you’re an incredible role model!
What a gentle kind soul this man is. I literally cried tears while watching his face transform as a kid bc it looked so painful. This man's an inspiration and is truly beautiful ❤️
Poor guy I would be his friend in a heartbeat seems like a cool guy that’s just dealing with health issues
He gotta have the strongest plot armor on the planet for not giving up.
Thanks ABC, you put a smile on my dial with the story about Dean.
As a nurse and a human being I just wish they could figure out a way to make you pain free ❤
Its people like this that push me forward. Thank you for being so strong and showing the world you can overcome even the most hard situations and turn them into beauty.
Huge respect to be this man. I can't imagine the pain he endured and the amount of courage he has
One of the most genuine people I have ever seen. We need more Deans in the world.
Dean, you are NOT scary looking. You may not be society’s preconceived idea of beautiful, but as someone who also lives with a genetic disease, I never see people the same way others might.
You, sir, are freaking gorgeous and your laughter is infectious - I LOVE that you carried the torch. I remember watching your walk on tv, smiling from ear to ear as I watched you carrying that torch with pride.
My parents were told when they adopted me that I was showing signs of something being wrong but they couldn’t figure out what exactly. They didn’t know what caused my issues at the time and it took many many years for them to diagnose my particular issue. What they DID know back then (late 1960’s) that babies born like me often didn’t survive much past toddler age.
I’m in my late 50’s, and although I have had to use a walker or wheelchair a few times through the years, and have many of what I’m sure some might label “serious issues”, to me they’re just part of life and i believe (much like yourself) that you can’t allow yourself to be stifled by whatever boxes the medical community tries to put you in.
So glad to have seen this vid - appreciate you! 🫶🇨🇦
Whoever oversees this channel deserves thanks for putting out such positive and empowering content. Dean is an amazing and inspiring individual! Thanks for sharing his story!
I’m so sorry you were born with that. You seem like such a wonderful person and no one deserves that. Good on you for being strong all these years ❤
My favorite type of people are those that spite others by doing the right thing.
Few years to live? Now a healthy full grown adult.
Can’t manage to take the torch in six months? Does it anyway.
I'm beyond grateful to hear your story. My granddaughter has EB. She is now 8yrs old. It's been very difficult for my son and his wife, but they've done an amazing job with her. Take care to this community as a whole! ❤
Jeez seeing this makes my problems seem absolutely insignificant. Really gives you some perspective. Kudos to this guy being so positive. What a champion
You are not only an inspiration but literally a strong human being I can’t even begin to imagine the pain you must go thru every second! God bless you!
wow what a hero you are Dean 🤩
oh i've seen this dude before. he's such a chad. i really look up to him and wish i was more like him. im such a weak lazy bastard. this guy is a hero to me
I'm awed by your courage and determination, Mr. Clifford.
Congratulations on your big life Dean! Living to the fullest and helping others is what gets me out of bed in the morning. Good on you for turning your struggle into a way to help others.
🙏🙏🙏🙏
An absolute inspiration. When you think life’s tough….. BE LIKE DEAN! Strong, resilient, proud, confident and loving! ❤️
i was hooked from the start seeing the infectious smile you have in every photo. but that 330 bench....i cant even imagine the amount of time and second guessing GETTING THERE. blown away. this was a big motivation for myself. LETS GO DEAN!
Absolutely love this guy. Everyone deserves a friend and a purpose in life 👏
What a beacon of resiliency!!! To push boundaries year after year after year is a testament to mind over matter. What a wonderful human being.
Unparalleled... strong, brave, and barely know a thing about him.. He has some of the best characteristics humanity has to offer.
The strength that some people develop is absolutely mind-boggling and truly inspiring. Thanks for sharing your outstanding story.
It breaks my heart that people ever found you scary. You seem like such a lovely person and I know I’d definitely find you inspiring and wonderful to be around. I wish you all the best for your future, you’re such a strong person 💞
Keep fighting man! KEEP FIGHTING!
think about the level of strength and will to continue to live through constant and daily pain. i can't imagine that. i don't think i could ever be anywhere near as strong as this guy. shows that some people truly are the strongest people on earth.
Your courage in the face of incredible adversity is inspirational. Thank you for sharing your story and for inspiring hope. Showing people that it wasn’t easy, that you had to fight for every step, but never stoped. Wish you all the very best.
He’s got a great smile. Big heart. Definitely one of a kind. Thanks for sharing. Netflix should make a documentary on Dean.
your story put tears in my eyes. im disabled too w/very aggressive rheumatoid arthritis its painful i needed to see your story. you are incredible. today i realized how many able bodied ppl sit and do nothing and only care about themselves. its a long story, but you moving out of the country twice the whole deal i loved it
What an absolute inspiration... I have so much respect for people like this. And it comes as a realisation that my chronic sciatic pain was a really a papercut in comparison to this guy... Well done for weightlifting hope you have all the happiness you deserve!!!!
I’m sorry you have had the pain of living with such a misfortunate disease, Dean. However you are a real trooper, and survivor! Little to no one can relate to your day to day struggles! Hang in there my friend. You are one of the strongest & you’re a gift to earth!
NO WAY! this man is amazing. I had to watch the vid twice, you give us all hope brother!
GO DEAN!!! I had heard about you several times before. Glad to see you're still with us!
What an awesome guy. He has so much to live for and has accomplished more than most.
A lot of people don’t know the difference between having a disability and being disabled. You, sir, can most definitely teach them. 🏆
Takes phenomenal strength and courage to live with EB. Inspiring.
Wow I really needed to hear this story today. I was hit by a car a year ago and I broke both knees, back, hip twice and my femur. I spent most this year in the hospital in a wheelchair. There has been times where I've thought about giving up and just staying home and being broken but this man truly shows the power of the human spirit. I feel very fortunate to have heard this story today.
This man is truly a hero
Thanks Dean and ABC,
I read the further information links, being gentle is the first treatment and yet you push 150kg. Just awesome man.
I have fibromyalgia and I struggle everyday and suffer a few months out of the year. I just keep on pushing from lack of healthier options for treatment, but this year I lost my drive in life because of the constant, minute by minute, struggle my body goes through with simple tasks, like showering or simply cooking, so the mental toll it takes on me is substantial enough that I become jaded and coast through life with dead eyes and an empty mind, but this individual just gave me the inspiration through a different perspective and experience that I needed to help me ignite this flame that went out in me.
Tearfully, thank you for this.
I hope to hold on to this spark and re-ignite these embers.
150kg for chest, damn... That's a lot
What an inspiration, his perseverance and tenacity to keep moving forward motviates me!
The will and endurance that some people have is quite impressive. I pray that you accomplish what you want in your life.
Those pictures of you as a kid made me cry. You are a proper hero and an inspiration.
You Sir are an example of courage, and will power to us all. This is best example I have ever seen of an unbreakable human spirit. ❤