ok i'm 3 min. through this and feel like i'm finally understanding lyme. this guy makes it so simple. which that is what experts can do, make things look easy.
I've been bitten by ticks a couple of times and one time had a slight rash. Doctor never seemed concerned of course. After years of chronic pain, I have recently been diagnosed with rheumatoid arthritis. I still wonder though, if I have lyme. I've been tested via regular blood lab testing 2 or 3 times now... each time a negative result. My recent testing was based on Igg and Igm. I mentioned to my doctor about hearing that the "Igenix" test possibly being more conclusive. She said everyone who gets an Igenix test seems to get a positive result, and she thinks it's just a scam to convince people it's a more thorough test. I too have wondered this, as there are a lot of quackery practices these days. I'd love to hear an argument as to why many doctors claim that a negative is a negative with lyme testing, and that further testing is only needed when a positive reading is found. It does seem that these Igenix tests often result in "positive" lyme results. Is this superior testing or just another way to waste hundreds of dollars? Any proof to back up "more accurate testing" claims. And please spare me the "non holistic doctors are brainwashed" speech, as I'm already aware. I've experience ignorance from western medicine for many years, but I've also experienced the quackery snake oil sales techniques used by the other side as well (biofeedback, nutritional muscle testing, subluxation fear mongering, unnecessary vitamin sales, etc). Thanks.
See if you can look up the study results of the regular tests. I've come across a few different numbers, one study suggested up to 50% false negative results. According to another the false negative results are even higher for women. The false negatives are also more likely if the patient has had Lyme for more than a couple of months because the immune system may not be reacting to the Lyme during the time of the test. Some people have had the standard tests done up to a dozen times before it comes back positive.
@@LoriLymeCoach Thanks for your reply. So you’re aware, I have been tested for Lyme multiple times (both for regular Lyme & some other type… maybe southern tick if I remember correctly). Do you know if these standard blood tests are conclusive, or not? It was roughly 10 years ago when I got bit & experienced the bullseye rash. I’ve read & have been told by physicians that the only real treatment option involves extensive & long term use of strong antibiotics, though they’re very disruptive on the body & can lead to other serious issues. Those in the ‘lyme literate’ circles seem to have a difference of opinion than general care practitioners; with each basically discounting the other as incompetent when it comes to Lyme. My doctors claim they’ve witnessed patients who’ve gone through with the Lyme Literate treatments & ended up sicker than before, & tens of thousands of $ further in debt. I don’t expect you to comment on everything I’ve just mentioned, but I just wanted to elaborate a bit further on my situation, testings, & confusion based on the conflicting information I’ve received over the years. Also, due to my no longer being able to work, I don’t have the funds to afford pricey treatments. Even though my wife & I’s health insurance costs us $8k a year, I’m guessing it wouldn’t cover Lyme related treatments, since I’ve shown to be negative when tested. If you know of any tests that I could take which might offer a more accurate result than the standard Lyme tests that are used, please do share. Thank you.
@@LoriLymeCoach I’m broke (no longer able to work), so if this isn’t covered by insurance, it’s simply not something I can afford. My health continues to worsen (extreme fatigue & all over chronic pain). My days are spent largely in bed, with no social life. All because my moron doctor discounted my mention of experiencing a bullseye rash following a tick bite.
Help I need to get tested for lyme I live in Austin tx but I am willing to travel. Any suggestions of doctor's welcomed and very much appreciated. I'm not buying the "fibromyalgia " diagnosis...
+JLH62382 You can order the test from IgeneX, but need a doctor or a PA to sign off on the labs. Get the blood drawn at a local lab then mail the test kit back to IgeneX, Pal Alto, CA Then good luck in finding a LLMD - Look up your Texas Lyme Association for referrals.
It appears Igenix uses Igg and Igm results as part of their lyme testing. If that's the case, then why not just get those tests done through insurance and at much less cost than the $1,500 Igenix seems to be charging?
@@LoriLymeCoach I just noticed your more recent comment, so if you’re wondering why I replied to your comment from 7 years ago, it’s because that’s what my RUclips app initially showed me. With that said, can you suggest a more accurate test for checking for Lyme infection? Thanks.
I heard the same from a friend who has babesiosis. This is part of her email to another friend that has babs duncani; no idea if this is accurate so talk to a doctor in hematology. "Make sure that when they draw blood they use a LARGE Bore needle and DO NOT USE A BUTTERFLY. Traditional labs from local hospital were negative.
I wanted to get tested by IGenX 12 years ago but they were charging between $600-$900 (which I don't have) for a proper Lyme disease test and it wasn't covered by my insurance. Is that still true? I need to be able to get good testing on Medicare and Medicaid. Does anyone know whether there are labs accepting assignment or some sort of sponsorship program for people who don't have that kind of money?
+Faye Vice OMG! I don't know anybody who has that kind of money! Which tests did your daughter have? Was she tested for all the co-infections or just for Lyme?
Please get the basic lyme panel for $275 thats what bob personally recommend to me when called me! Just got my results in today and im positive on igg meaning chronic infection. Igm means recent infection. Also took the $140 bartonella test and that too is igg positive. Next is test i will take is Babesia and Ehrlichiosis and herbal protocols of cats claw, chlorella, Japanese knotweed and a healthy gluten free low sugar low yeast diet to bring and prepare my immune system for the necessary evil world of antibiotics.
the IGeneX is still in that price range. We just paid $1500 for a first-time doc visit and the test. We went to a LLMD and she ordered more blood work at Lab Corp. Just saw the bill for that lab work - after a $7K adjustment our part to pay out of pocket was over $800. It's way more than we can afford so I may be looking at spending my life savings and my daughter the sick one, may have to take ban kruptcy on the medical bills. Not fair. She has insurance, I only have my SS and some retirement savings which will quickly go down the drain for medical.
I doubt seriously that Medicare or Medicaid would cover any of it. Won't hurt to ask though. The only way to get around some of the exp is if your doctor will "call" your sickness something besides "lyme", like Chronic Fatigue, or fibromyalgia.
Lyme Disease is not a clinical diagnosis, it is a disease caused by infection. Lyme Disease can be clinically diagnosed using certain specific symptoms, but many symptoms are not specific which can't be used to diagnose clinically definatively.
It IS a clinical diagnosis because mainstream testing (Patetened by the CDC) sucks balls....Labs results from Igenex or other specialty labs are much better, but they cost out of poscket, except if a patient has Medicare Part B (and not an Advantage Plan...they also suck). So learn something new today....yes doctors are allowed to diagnose clinically. I know a Lyme patient the minute I see one.
@@LoriLymeCoach Yeah, well I'd say all that testing is bad information anyway. I think people are more dealing with intestinal dysbiosis and fungal dysbiosis. That is causing the immune dysregulation and countless conditions. Most of that is iatrogenicly caused from young age and cumulatively.
ok i'm 3 min. through this and feel like i'm finally understanding lyme. this guy makes it so simple. which that is what experts can do, make things look easy.
i'd like to know what they have to say about Morgellons d. now were having fun! can you say 'itching and fibers'?
I've been bitten by ticks a couple of times and one time had a slight rash. Doctor never seemed concerned of course. After years of chronic pain, I have recently been diagnosed with rheumatoid arthritis. I still wonder though, if I have lyme. I've been tested via regular blood lab testing 2 or 3 times now... each time a negative result. My recent testing was based on Igg and Igm.
I mentioned to my doctor about hearing that the "Igenix" test possibly being more conclusive. She said everyone who gets an Igenix test seems to get a positive result, and she thinks it's just a scam to convince people it's a more thorough test. I too have wondered this, as there are a lot of quackery practices these days.
I'd love to hear an argument as to why many doctors claim that a negative is a negative with lyme testing, and that further testing is only needed when a positive reading is found. It does seem that these Igenix tests often result in "positive" lyme results. Is this superior testing or just another way to waste hundreds of dollars? Any proof to back up "more accurate testing" claims.
And please spare me the "non holistic doctors are brainwashed" speech, as I'm already aware. I've experience ignorance from western medicine for many years, but I've also experienced the quackery snake oil sales techniques used by the other side as well (biofeedback, nutritional muscle testing, subluxation fear mongering, unnecessary vitamin sales, etc). Thanks.
See if you can look up the study results of the regular tests. I've come across a few different numbers, one study suggested up to 50% false negative results. According to another the false negative results are even higher for women. The false negatives are also more likely if the patient has had Lyme for more than a couple of months because the immune system may not be reacting to the Lyme during the time of the test. Some people have had the standard tests done up to a dozen times before it comes back positive.
Yes, you have Lyme. I can test you if you need help
@@LoriLymeCoach Thanks for your reply. So you’re aware, I have been tested for Lyme multiple times (both for regular Lyme & some other type… maybe southern tick if I remember correctly). Do you know if these standard blood tests are conclusive, or not? It was roughly 10 years ago when I got bit & experienced the bullseye rash.
I’ve read & have been told by physicians that the only real treatment option involves extensive & long term use of strong antibiotics, though they’re very disruptive on the body & can lead to other serious issues. Those in the ‘lyme literate’ circles seem to have a difference of opinion than general care practitioners; with each basically discounting the other as incompetent when it comes to Lyme.
My doctors claim they’ve witnessed patients who’ve gone through with the Lyme Literate treatments & ended up sicker than before, & tens of thousands of $ further in debt.
I don’t expect you to comment on everything I’ve just mentioned, but I just wanted to elaborate a bit further on my situation, testings, & confusion based on the conflicting information I’ve received over the years. Also, due to my no longer being able to work, I don’t have the funds to afford pricey treatments. Even though my wife & I’s health insurance costs us $8k a year, I’m guessing it wouldn’t cover Lyme related treatments, since I’ve shown to be negative when tested.
If you know of any tests that I could take which might offer a more accurate result than the standard Lyme tests that are used, please do share. Thank you.
@@LoriLymeCoach I’m broke (no longer able to work), so if this isn’t covered by insurance, it’s simply not something I can afford.
My health continues to worsen (extreme fatigue & all over chronic pain). My days are spent largely in bed, with no social life. All because my moron doctor discounted my mention of experiencing a bullseye rash following a tick bite.
Help I need to get tested for lyme I live in Austin tx but I am willing to travel. Any suggestions of doctor's welcomed and very much appreciated. I'm not buying the "fibromyalgia " diagnosis...
www.lyme-disease-testing.com/lyme_diagnosis.html
+JLH62382 You can order the test from IgeneX, but need a doctor or a PA to sign off on the labs. Get the blood drawn at a local lab then mail the test kit back to IgeneX, Pal Alto, CA Then good luck in finding a LLMD - Look up your Texas Lyme Association for referrals.
Go to Ilads for doctor or lab referrals. www.ilads.org
Not a happy camper right now, where can i properly get tested for lyme disease with the right type of test. Please any one
It appears Igenix uses Igg and Igm results as part of their lyme testing. If that's the case, then why not just get those tests done through insurance and at much less cost than the $1,500 Igenix seems to be charging?
Becaus ethe testing though Labcorp and Quest suck...they miss up to 70% of cases...that's why.
@@LoriLymeCoach I just noticed your more recent comment, so if you’re wondering why I replied to your comment from 7 years ago, it’s because that’s what my RUclips app initially showed me. With that said, can you suggest a more accurate test for checking for Lyme infection? Thanks.
I heard the same from a friend who has babesiosis. This is part of her email to another friend that has babs duncani; no idea if this is accurate so talk to a doctor in hematology.
"Make sure that when they draw blood they use a LARGE Bore needle and DO NOT USE A BUTTERFLY. Traditional labs from local hospital were negative.
I wanted to get tested by IGenX 12 years ago but they were charging between $600-$900 (which I don't have) for a proper Lyme disease test and it wasn't covered by my insurance. Is that still true? I need to be able to get good testing on Medicare and Medicaid. Does anyone know whether there are labs accepting assignment or some sort of sponsorship program for people who don't have that kind of money?
+IAMGiftbearer My daughter was just tested and it was CASH $800-$900 plus about $600 for the doctor visit. Out of Pocket.
+Faye Vice OMG! I don't know anybody who has that kind of money! Which tests did your daughter have? Was she tested for all the co-infections or just for Lyme?
Please get the basic lyme panel for $275 thats what bob personally recommend to me when called me! Just got my results in today and im positive on igg meaning chronic infection. Igm means recent infection. Also took the $140 bartonella test and that too is igg positive. Next is test i will take is Babesia and Ehrlichiosis and herbal protocols of cats claw, chlorella, Japanese knotweed and a healthy gluten free low sugar low yeast diet to bring and prepare my immune system for the necessary evil world of antibiotics.
the IGeneX is still in that price range. We just paid $1500 for a first-time doc visit and the test. We went to a LLMD and she ordered more blood work at Lab Corp. Just saw the bill for that lab work - after a $7K adjustment our part to pay out of pocket was over $800. It's way more than we can afford so I may be looking at spending my life savings and my daughter the sick one, may have to take ban kruptcy on the medical bills. Not fair. She has insurance, I only have my SS and some retirement savings which will quickly go down the drain for medical.
I doubt seriously that Medicare or Medicaid would cover any of it.
Won't hurt to ask though. The only way to get around some of the exp is if your doctor will "call" your sickness something besides "lyme", like Chronic Fatigue, or fibromyalgia.
Lyme Disease is not a clinical diagnosis, it is a disease caused by infection. Lyme Disease can be clinically diagnosed using certain specific symptoms, but many symptoms are not specific which can't be used to diagnose clinically definatively.
It IS a clinical diagnosis because mainstream testing (Patetened by the CDC) sucks balls....Labs results from Igenex or other specialty labs are much better, but they cost out of poscket, except if a patient has Medicare Part B (and not an Advantage Plan...they also suck). So learn something new today....yes doctors are allowed to diagnose clinically. I know a Lyme patient the minute I see one.
My PA told me the lab tests for co-infections are also not entirely accurate.
that's why you want this lab doing the work. all the naturopaths in the san fran area mention this lab as the one for lyme.
volume level is low
The test isn't FDA approved. The new Ceres Nano nano-trap antigen test should be.
NO Testing is FDA approved. FDA has no oversight or authority in testing
The test is not FDA approved, we know labs aren't FDA approved.
Aren't you an f-ing know-it-all.
@@LoriLymeCoach Yeah, well I'd say all that testing is bad information anyway. I think people are more dealing with intestinal dysbiosis and fungal dysbiosis. That is causing the immune dysregulation and countless conditions. Most of that is iatrogenicly caused from young age and cumulatively.