🎉Weekly Facebook Live 🎉

Wednesday 18th August 9am 2021 AEST
Dear diary…What’s in my bag I call a luggage??
Sorry it took so long to do, hayfever got in the way but I got there 💪
Please read the bio 👇👇👇
Fist of all,
Thank you for taking the time to watch this live. Comment #replay if on the replay.
I started these weekly lives 2nd Wednesday of September in 2020. Their like a diary and document for my rare disability.
I don’t always do these lives longer than 5 minutes for I have noticed I have a respiratory condition. I also noticed, which is a pain in the butt 😣 my connection on knowing how much voice to use and the strength of forming words. It does take a bit out of me 😒 Doesn’t help that being in the spotlight freaks me out but I do these lives for confidence, tell my story, mention what helps me that may help you. I stuff up words or how/what to say and i have a thought stutter (brain fart 😂) andI’m ok with that. I do have an older brother that has this disability more advanced than I have.
The next step in my journey I have noticed and am in the process of, with my helpful and understanding OT, is I getting a scooter. My walker helps but a scooter will give me more freedom to get around. I don’t want to not move for it’s easier, this weekend was the only exception, so I’ve got off my butt and do something while I can but if I’ve had enough, I’ve had enough of pushing myself in walking.
It will make my life a lot easier. I found out, the lighter the scooters are, the more unsafe they are 😞 Same with walker 😒 The lightest and safest scooter I looked at is 15kg. The scooter place can make a strap on the back of the scooter to lug my walker around too 💃
I have hired out the scooter I have for longer for the process to buy one can take a bit and I know I need it. Not so much with this lovely pandemic 😷
I’ve already set up taxis or I’m able to get a maxi taxi to get to places if family or friends cannot help, I’m still used to last minute 😣 I have a lot set up so it takes the pressure off family and friends, I know how hard it can be.
Every step about my journey may not look or seem like much but for me, it is. I’m honest about what is happening to me for as I mentioned above it is also for another.
I started getting meal prep assistance. I’m Open for any meal ides. I do the ketogenic diet so I will swap and change 😊
I have to wear glasses for long distance and it’s ok to wear 24/7, I checked. Instead of taking them on and off, I choose to wear then 24/7.
Here s a link I found, awesome to follow if your on a video call and don’t want the reflection shown, if you don’t have the anti reflective coating.
• How to Look Good on Zo...
Don’t hesitate to ask me anything. Questions are welcomed by commenting down below or private message if you feel more comfortable that way. On a live I may not always respond to a question in the comments but I will answer 💪
I like to add my online shopping link to lives. Variety of products based on science 💃
jfk1984.mynuskin.com/
Find value in my lives?? Feel free to share away for I am only one person and are so grateful that you do 🙏
Want to watch my weekly lives direct that is on every Wednesday 11am AEST?? Here is my Facebook link / jfk842
.
.
.
.
.
#weeklylive #justfollowkindness #gettingitdone #positiveandconsistant #motivated #raredisability #disabilitylife #perraultsyndrome #hearinglossawareness #justkeepswimming