Uncombable Hair Syndrome and Other Rare Genetic Conditions

Поделиться
HTML-код
  • Опубликовано: 31 окт 2024

Комментарии • 190

  • @Nyokicat99
    @Nyokicat99 Год назад +1826

    The last segment made me cry, that mom saying if her baby wants to hike she would carry her just so she could have that experience. That is so wonderful and sweet.

    • @victorsamsung2921
      @victorsamsung2921 Год назад +32

      Right! That's when you know the child got sent to the right address. No matter how hard it might be, accepting this rare condition. But love and goodness knows no boundaries. One way or the other.

    • @feliciajenkins5041
      @feliciajenkins5041 Год назад +4

      Yes 🥲

    • @brandonbarton9016
      @brandonbarton9016 Год назад +5

      It is so wonderful it shows u what we will go through for others it's just so sad but life's so beautiful

    • @kayla7562
      @kayla7562 Год назад +4

      @@brandonbarton9016 exactly what I was thinking too

    • @Pink-756d33
      @Pink-756d33 Год назад

      How about "mom I want to kill myself because you gave me this embarrassing unlivable condition"

  • @ellaknox4544
    @ellaknox4544 Год назад +769

    I was born with something called mirror movements disorder. Which means my hands involuntarily do the same thing. It's less than one in a million and I'd love to meet someone else who has it one day

    • @SobrietyandSolace
      @SobrietyandSolace Год назад +44

      Meanwhile I find it impossible to mirror someone. I don’t have the proprioception! Very interesting

    • @bennekin
      @bennekin Год назад +19

      Is it just your hands or is it your whole arms? And does it always happen or just sometimes

    • @hase4681
      @hase4681 Год назад +122

      bro the way you could work an assembly line would be unmatched

    • @sarcasticallyrearranged
      @sarcasticallyrearranged Год назад

      Ella, record and upload a video clip of it.
      Educate us about it.

    • @adfadgaqgv
      @adfadgaqgv Год назад +21

      I thought it was just being Italian

  • @BK-mo5xh
    @BK-mo5xh Год назад +427

    Omg, those triplets really cute. I can’t stop smiling.

    • @justlift213
      @justlift213 Год назад +7

      I was stuck on them too, some of the cutest babies ive ever seen

    • @LiliWhyte
      @LiliWhyte Год назад +3

      Oh yes, I think they're just so adorable! Such sweet innocent cherubs!

  • @kayla7562
    @kayla7562 Год назад +64

    Omg I was going to say something about someone else but that mom at the end just made me feel emotional. So glad both of those little girls have such loving parents that will give them the best life possible.

  • @Bettinasisrg
    @Bettinasisrg Год назад +72

    And all my "big" issues suddenly became a lot smaller! I love brave people they're the true celebrities.

  • @bing4783
    @bing4783 Год назад +40

    “she can ill help her”. best five words i’ve ever heard.

  • @melissadwiggins
    @melissadwiggins Год назад +85

    I was born with a form of icthyosis too; lamellar icthyosis to be specific. You can't even really tell I have it anymore as I have the mildest case they'd ever seen when I was born.

  • @gamebreadanimal
    @gamebreadanimal Год назад +36

    That mother saying if her daughter wants to ski, she will help her. Or if she wants to hike. I’ll pack her. Where did the worlds mothers like this go. I’m a grown man and this brought a tear to my eye. Prayers for these people and there conditions 🙏🏼

  • @LiarNobody
    @LiarNobody Год назад +44

    If the first dude ever becomes a superhero, I'm 100% volunteering as his bizzaro version.

    • @bullgravy6906
      @bullgravy6906 Год назад +7

      I’m already the bizzaro world. Two steps from the couch to the fridge and it’s time for a breather.
      Or is that opposite world?

  • @ballistic2527
    @ballistic2527 Год назад +8

    I hope they all lead long, happy and fulfilling lives.

  • @sharonanderson6161
    @sharonanderson6161 Год назад +25

    My heart goes out to these people and for their loving families who give them support and encouragement and teaching their to be independent.The young lady with the skin disorder she has such a beautiful heart and spirit

  • @aleffush
    @aleffush Год назад +28

    I pray the best for these people and applaud their strength! Inspiring!

  • @yiandrea84
    @yiandrea84 Год назад +21

    Thanks for sharing these stories!

  • @she_sings_delightful_things
    @she_sings_delightful_things Год назад +8

    The last mother 💔
    That teared me up.

  • @rescue9810
    @rescue9810 Год назад +79

    1:40 y’all seen that one triplet hanging there 😂 post operation….
    They’re so adorable ❤ each of them looked so different from the other

  • @sarahschilanakratzer2561
    @sarahschilanakratzer2561 Год назад +19

    The mom at the end was so sweet If she wants top Go hiking and she cant she can i Just carry her... I almost was moved tob tears... I have a Chronicle desease too and my Mum helps me a Lot witch Things i cant do im 30 and she is still with me at every important doctors appointment and Sometimes at normal doctors appointment too

  • @Epicface888chu
    @Epicface888chu Год назад +19

    So sad. All beautiful kids and people. Love the parents that truly love their children as is. Trying to help them as much as they can!

  • @vadim9342
    @vadim9342 Год назад +19

    The runner is an absolute badass :)

  • @kyodizzy
    @kyodizzy Год назад +22

    There's so many unexplainable conditions out there... I'm suffering from a neurological condition where I feel like I'm constantly rocking on a boat 24/7 every second... It's depressing and early on thought about ending life... Wish there was a cure

  • @havik9581
    @havik9581 Год назад +6

    The first running guy - just strap me to his back during a zombie apocalypse 🧟‍♀️🫠

  • @its1121skull
    @its1121skull Год назад +7

    No one noticed when it showed distance from Los Angeles to San Francisco, the point was not all the way on San Francisco

  • @AdverbsAndNouns
    @AdverbsAndNouns Год назад +27

    That man that has superman strength definitely needs a documentary. He looks cool!!

  • @Animalfarm6cats
    @Animalfarm6cats Год назад +37

    The lady with Epidermolysis bullosa is lucky, to be able to shower. I worked with plenty of little children who have it. They had to be wrapped in sterile gauze. My heart hurts for them.

  • @ineedauhmmmuhu
    @ineedauhmmmuhu Год назад +44

    Damn, running from Los Angeles to San Francisco feels like running from cambodia to Thailand, But thats crazy, I can’t even make it to a mile, Further than one mile, Nice one!!

    • @anthonyguarino4242
      @anthonyguarino4242 Год назад

      Only sonic the hedgehog can do that in the few minutes on earth!

    • @bullgravy6906
      @bullgravy6906 Год назад +1

      Imagine being able to run 350 miles in a single session and instead of running endlessly away from California you just go north to SF.

  • @kellyoyen3421
    @kellyoyen3421 Год назад +32

    My friend Eva has the skin condition where the skin grows really fast

  • @manningmusic5160
    @manningmusic5160 Год назад +18

    Bro the first guy is Forrest Gump irl 😂

  • @aicelgr7872
    @aicelgr7872 Год назад +22

    God bless them 🙏 love ❤️ for them. I had my daughter with a genetic disorder called I-cell disease. Very very rare, too. She is my angel now 🙏😇

  • @TheSouthIsHot
    @TheSouthIsHot Год назад +14

    I would love to have that first rare genetic condition.

    • @redlight3932
      @redlight3932 Год назад +5

      We could possibly make a pill that breaks down lactic acid to have the same affects as his condition some day we might be able to take a superhuman pill

    • @TheSouthIsHot
      @TheSouthIsHot Год назад +5

      @@redlight3932 Great! Let me know when we get there. 👍🏼

  • @Crazy_Schizo
    @Crazy_Schizo Год назад +3

    The one with more layers of skin is actually a trait to survive better in colder conditions

  • @saiyedf
    @saiyedf Год назад +4

    May God Bless All These People And Us Too.

  • @Rayman1971
    @Rayman1971 Год назад +9

    I saw a pic of my maternal grandpa, and noticed his hair looked like mine! Mom and my Aunt tell me that he always looked liked that, no matter what he did. I can't keep my hair looking brushed/combed, they also told me that I have his hair too!!!

  • @Royalty_girlie
    @Royalty_girlie Год назад +4

    I'm just going to put this out there as a black woman before any other ignorant person comes along as says that uncomable hair syndrome is just a white person with black hair type, it is NOT just like black hair. Comparing the two is not only disrespectful to black hair but to the people with uncomable hair syndrome. Their experience is not the same as black people's, black people's experience is not the same as theirs. That's why it's called uncomable hair syndrome and not "a white person with black type hair that doesn't know how to take care of it". Not everything is about us, we do have to insert ourselves with the slightest things that resemble us. Thank you.

  • @rosamunddrag8971
    @rosamunddrag8971 Год назад +6

    So basically the first guy is like a Husky, that can use an alternative source of energy and run for hours lmao

  • @Jay-td5wp
    @Jay-td5wp Год назад +4

    Uncombable baby hair is cute .the 1st guy just wow

  • @prototypefilmproductions
    @prototypefilmproductions Год назад +4

    The triplets holding hands 😍

  • @elijahevangarcia
    @elijahevangarcia Год назад +9

    I can’t even run one mile Without stopping 😂😂😂😂😂😅

  • @AsjadSS
    @AsjadSS Год назад +4

    If she wants to hike, I'll carry her😭😭

  • @BabbyEl14
    @BabbyEl14 Год назад +6

    Impressive😮

  • @Eevanova
    @Eevanova Год назад +4

    My heart alwalways been hurting about people with ihtiosis

  • @dankification
    @dankification Год назад +5

    The guy that can run 4 marathons in a single session will genetically cheat on being first place each time

  • @callamastia
    @callamastia Год назад +3

    needing surgery on my baby is my biggest fear 😩

  • @heidihajny2663
    @heidihajny2663 Год назад +26

    My niece also had the hair disorder, but she was so cute 💜😊💜

    • @zaza2141
      @zaza2141 Год назад

      My baby has it. It's funny.

  • @JenniferWash
    @JenniferWash Год назад +3

    I would love to know more about Dean

  • @paramsinghkaila882
    @paramsinghkaila882 Год назад +7

    God bless this all people ❤️🙏 God with you ❤️🙏

  • @southerngal7582
    @southerngal7582 Год назад +3

    Great Job 👍😄.
    I'm happy l can just walk to my mailbox.

  • @kokokat584
    @kokokat584 Год назад

    Running 52 miles is crazy

  • @jafinch78
    @jafinch78 Год назад +3

    Let's get cures out for all diseases and genetic conditions, regardless of the socioeconomic situation. That's the U.S. Jurisdictions spirit and intent to the letter of the law that I'll advocate!

  • @sukokium
    @sukokium Год назад +2

    rn i can't even run 5 feet without panting

  • @garyhibbert4875
    @garyhibbert4875 Год назад +1

    Boris Johnston have that type of hair too

  • @midnightcereal6973
    @midnightcereal6973 Год назад

    Shame on me, i don't have any of this disorder but sitting in my room all days all week. Feeling insecure about thr outside world.

  • @azankan6734
    @azankan6734 Год назад +2

    The first guy looked tired and sweaty after one marathon!

  • @johnsmif7229
    @johnsmif7229 Год назад +1

    I Carrey my lil bro with cp ,he's 90 lbs ,I'm 6'4 170, with terrible back.i got him on my back and walked up a creek to a waterfall and it blew his mind .I was juss glad to make it back lol but I love doing things like that and just being around him is like he glows lol

  • @smallfry1463
    @smallfry1463 Год назад +2

    Crazy that all 3 babies were born with the exact same helmets! 😆

  • @Nullgative
    @Nullgative Год назад +1

    I can see that baby at the beginning rockin a mohawk.

  • @RawBombshell
    @RawBombshell Год назад +1

    Dude has the lungs of 50 people lol wow

  • @imarvlog
    @imarvlog Год назад +2

    They were already Hockey players since when they were born😃

  • @martianmurray
    @martianmurray Год назад +2

    Sounds like the first guy has an entire body made of cardiac muscle since he never tires

  • @mr.williams7911
    @mr.williams7911 Год назад +1

    Dean hasn't met goggins.

  • @IAmJKey
    @IAmJKey Год назад +7

    Someone with psoriatic arthritis and skin arthritis I feel for the Harlequin gal.

  • @bahngchanz
    @bahngchanz Год назад +1

    He’s in his terry fox era 😭❤️

  • @goblin6037
    @goblin6037 Год назад +1

    I have a rare genetic disease,not as rare as these but still rare,Hypermobile Ehlers Danlos syndrome

  • @locuscuztheyfocuse4581
    @locuscuztheyfocuse4581 Год назад +3

    damn glad she still doing what she loves and not letting it stop her. now she is a strong women then those women posing just for likes so called strong womens now a days.

  • @marcelshousewife
    @marcelshousewife Год назад +2

    My brothers had the same condition the triplets had, what does that mean for twins?

  • @thashroko
    @thashroko Год назад

    that mom on the end.
    superwoman

  • @fajarkurniawan9434
    @fajarkurniawan9434 Год назад +1

    Why people laugh at that hair?
    That is so cool
    The baby straight up look like anime protagonist

  • @HighTher3
    @HighTher3 Год назад

    Wow, that one made me tear up.

  • @thelocal0170
    @thelocal0170 Год назад

    Surprised the first guy and David goggins haven’t crossed paths in the desert somewhere 😂

  • @nicholasc.5944
    @nicholasc.5944 Год назад +10

    first guy would have made a great footballer(not soccer 😡) if he was discovered at a young age, level 9000 endurance he would be like kante on steroids

    • @liamtgreat
      @liamtgreat Год назад +1

      The ball is made of rubber/plastic, not feet

  • @kimitohanahala8674
    @kimitohanahala8674 Год назад

    That blonde kid got Son Goku hair.

  • @-justmecubing-
    @-justmecubing- Год назад

    mui came to my school and i got a autograph

  • @PitsTasteGood
    @PitsTasteGood Год назад

    Who else remembers Stew Pickles' Bonkomatic Baby Bumper?

  • @AngelJuliet
    @AngelJuliet Год назад

    Sometimes I feel like my hair is uncombable 😅 or maybe just untamable 😅

  • @StarryNightt.
    @StarryNightt. Год назад

    First guy is Chris Traeger in real life.

  • @janelle9707
    @janelle9707 Год назад

    that's me, I can do these things, I love it.
    however pregnancy was tough on me, and harder on my body, not to be able to run.

  • @ktro007
    @ktro007 Год назад +2

    Forest Gumps brother!! 🏃 Run Forest, run!!

  • @RickCp3
    @RickCp3 Год назад +2

    Hope he's okay

  • @Magic_Doge
    @Magic_Doge Год назад +2

    why does the voice almost sound like AI?

  • @Anonymous-hf3ko
    @Anonymous-hf3ko Год назад +3

    You’re all beautiful

  • @tammy3138
    @tammy3138 Год назад

    That's awesome..

  • @lilhysterectomy7794
    @lilhysterectomy7794 Год назад

    W parents compilation

  • @2007Club
    @2007Club Год назад

    He hasn’t met David Goggins . They two should meet

  • @debbiecooper1677
    @debbiecooper1677 Год назад +1

    I was good till that started crying

  • @Qwertyen12345
    @Qwertyen12345 Год назад +2

    Zoolander Baby

  • @rowlandortiz1621
    @rowlandortiz1621 Год назад +10

    I declare complete healing for all of them in Jesus name. Amen.

  • @killerwolfthekingofwolves7704
    @killerwolfthekingofwolves7704 Год назад

    The flash is real ⚡️⚡️

  • @ramtinmoharrami
    @ramtinmoharrami Год назад

    Terry fox has joined the chat.

  • @jayone8888bb
    @jayone8888bb Год назад

    They look like baby spaceman Apollo 11

  • @carolynjones4595
    @carolynjones4595 Год назад

    "uncombable Hair Syndrome" I wonder if that is what Boris Johnson has.

  • @dejavu9040
    @dejavu9040 Год назад

    Who is the professor who gave the name of the syndrome.💀💀
    The name is very painful sufferers..

  • @abdishakuraden9612
    @abdishakuraden9612 Год назад +1

    Wow

  • @LadyBug-cc3ep
    @LadyBug-cc3ep Год назад +4

    My these ppl have an “extra” beautiful glorified body when they enter Heaven

  • @stewpidasso3910
    @stewpidasso3910 Год назад +1

    Is that what Einstein had?

  • @gozzi7483
    @gozzi7483 Год назад

    The first dude is nothing compared to Forrest Gump

  • @BugsNStuf
    @BugsNStuf Год назад

    Real world flash

    • @schlydops6352
      @schlydops6352 Год назад

      He's not fast, he just last longer running and walking, the real flash is Usain Bolt

  • @roben9580
    @roben9580 Год назад

    Who cares about the child's hair with that smule

  • @chillies4156
    @chillies4156 Год назад +1

    Hi

  • @JediZombieMedia
    @JediZombieMedia Год назад

    I have triplet girls! I applaud you guys. Get a sitter so you can sleep

  • @baksinghay9856
    @baksinghay9856 Год назад

    300+ miles 😯😯😯😯

  • @misterjwestcoast
    @misterjwestcoast Год назад +1

    Baby helmets.

  • @Beantastrophe
    @Beantastrophe Год назад

    Ah that's what Boris Johnson has