Cancer Survivorship (As a Pessimist) | Luis’ Story (3 of 3) | The Patient Story | The Patient Story
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- Опубликовано: 28 июл 2024
- “My message for my fellow cancer tribesmen is this: if you’ve been diagnosed, or you’re having the symptoms, or you’re doing treatment, and you’re doing everything wrong, and emotionally, you’re just shattered and everything’s broken and there’s nothing except this cold wind that blows through you every day from the moment you get up to the moment you fall asleep, that’s OK.
You can still survive, and you can still turn it around. Don’t feel bad. It’s all right. Yeah, you’re a lump on the floor. You know what? Lumps on the floor? They have a right to live, too.”
Luis is a self-described pessimist. When he was diagnosed with stage 4 non-Hodgkin lymphoma, he admits he took it pretty badly. As he was going through his R-CHOP and methotrexate chemotherapy, along with all the side effects, he learned how to manage the emotional roller coaster.
In this segment, Luis shares how he got through scanxiety, fought the guilt, and honored his journey.
In this Series: Our 3-part series with Luis covers everything from how he got diagnosed, to the intense chemotherapy regimen (R-CHOP + methotrexate) and getting through side effects, and living life after a cancer diagnosis - as a pessimist. Thank you, Luis, for sharing your story.
Videos:
(1 of 3) Getting Diagnosed with Lymphoma : • Getting Diagnosed with...
(2 of 3) R-CHOP Chemotherapy & Dealing with Side Effects : • R-CHOP Chemotherapy & ...
(3 of 3) Cancer Survivorship (As a Pessimist) : THIS VIDEO
Full story & transcript → www.thepatientstory.com/cance...
The interview has only been edited for clarity.
Join Our Community:
Website : www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
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Contents of this video:
00:00 : Intro
01:17 : processing emotions through the high and lows
06:20 : Dealing with the hair loss
08:09 : Getting though "scanxiety"
10:49 : Dealing with cancer as a pessimist
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#thepatientstory #patientstories #cancerstories #cancerpatient #cancersurvivor
#nonhodgkinlymphoma #dlbcl #lymphoma #stage4
I don't know if Luis will ever read this, but I want him to know how much his series meant to me. Our 38 year old son was just diagnosed with Stage 4 lymphoma. Luis' beautifully articulated insights, and his raw honesty has taught me so much about what to expect on the road ahead as we shepherd our son through his fight.
Debra, thank you for letting Luis know. We will make sure he is aware of your message. Thinking of you and your son. ❤️ Stephanie
Debra, Luis here. Glad I was able to help. My thoughts are with you and your son. You tell him from me that whether he can see it yet or not, he has what it takes to fight and survive, and there is life yet to be lived ahead of him.
The messages in this segment really helped me and resonated
You have no idea how much this mattered and how much peace this has given me, hearing your journey and hope that can be had. Thank you for making your situation known so that we can have something to point to for comfort.
David, so glad Luis' story resonated with you so deeply. Luis is incredible. And as someone who also went through cancer and treatment, reading your words really motivated me even more to seek out stories like Luis' and share them. Our team will be working hard to continue doing that. -Stephanie
David, sorry it took so long to reply, and I’m glad my story could help you. If there is one thing I learned in my journey, it is that hope is a valuable, legitimate response to one’s cancer diagnosis. The pace of research is very, very fast. Sending you my best wishes for a long and successful survivorship. There is so much life after cancer to be lived, and it starts on the very day you get the news. Fight on!
🇬🇧I’m a Lymphoma B survivor who had RChop, but my symptoms were nothing like Luis’s. June 2018 my taste changed, everything tasted very sweet. It was dreadful. No weight loss at all. By the end of July the pain in my stomach was unbearable. It was about 3 inches from my navel on my left. I saw a NHS doctor on the Monday who just looked at my files on line and never even looked at me or take my blood pressure or anything and said I had diverticulitis. Take these 2 lots of antibiotics and come back in 2 weeks if it’s no better. (She didn’t stay long in our surgery thank goodness) saw another doctor in the practice a few days later. He was much better sent me straight away to the hospital for tests. By 7th September I was seeing my oncologist who said he would start me on very strong RChop chemo the following week and every 3 weeks for 6 lots. He said “You have a 1/100 chance that the bowel will burst but you will be ok”. I had 3 cancers that had attached themselves to my bowel just after my stomach, and one on my neck. (The one on my neck went after first lot of chemo.) I had the first lot on the Friday. Took all day to drip through. I felt fine till Sunday evening meal and I started to be sick. By the Tuesday I was in hospital because I couldn’t stop being sick. I was there for 3 weeks, came out on the Monday, on the Friday I was back having my 2nd chemo. The following Tuesday/Wednesday night I went to the toilet about 2am and fell to the floor in pain. Finished up in hospital again this time it was an emergency operation for burst bowel. I was the 1 in 100. In for 6 weeks, out of it for 10days with sepsis and pneumonia. The family were sent for twice. I had to have a ileostomy which I had for 3 yrs. they said I was too weak for any more chemo for the moment, in the May they did a scan and said I was in remission. I see my oncologist again this November and get the all clear after just 2 lots of chemo. 👏🏻👏🏻
Thank you so much for sharing Luis’ story. I’m sure it will help many people! God bless you both! ❤️
Iv just finished my 1. Chemo diagnosed with NHL stage 1. I hope rchop is gonna deal with it. Hope your doing well and you are cancer free now. Thanks for sharing.
Semir, best of luck! RCHOP is very effective, hang in there.
Thank you Luis for your advices. You are awesome!!
Thank you for your kind words!
Thank you so much for sharing this with us. Stay well and yes there is life after cancer. That’s why I started my channel. God Bless!
Luis is another great ambassador for the channel.
This is what I needed today!! Thanks again. The anxiety is the worst part of this process I’m getting my fifth treatment this Friday. Rchop
So true every word you say!! Thanks so much! I’ve got bcell lymphoma and all of what you say is exactly what I’m going through ❤. It’s not easy we know 🙏
Robert, I don't usually follow comments, but saw this, and want to wish you luck. You are not alone, and the pace of research in b-cell lymphomas is meteoric. Stay strong.
@@luisvera5362 thanks again Luis!!your support means a lot to me I just finished my rchop and getting my pet scan Wednesday. Aloha my friend 🧡
He has his shit together.
Thank you Luis
Hey Luis, how are you these days? Would love to see some more episodes of survivors some years after remission. Much love from Germany!
So far, so good. Stillcancer-free as of the moment, taking it one day at a time. Thanks for asking!
@@luisvera5362 Luis I can’t begin to tell you how valuable I found this video. Curious though can you elaborate on the chemo fatigue, I’m extremely active and work at a computer. At what chemo cycle would you advise someone they will probably not be able to continue with strenuous excercise, or work at a desk for longer than 3 hours? I have to plan this chemo treatment as best as I can appreciate your input - obviously everyone is different I know
I wonder if I’ll be joining you as a cancer survivor ?? 🧐🧐🧐 I’ll be going for my 4th infusion chemotherapy cycle R-CHOP on February 24 for NHL DBLC ! Two more after that!
Good luck! You’re already a survivor.
Love this, Luis! Totally agree! -Stephanie
God bless! 😎
❤❤❤❤
Bonjour Did you have a transplant?
Thank goodness There are wigs for women, because there's no way I would have a bald head. Once I see the hair loss I'll be down at the wig shop.