Fantastic webinar, and so helpful for informing us on the spectrum of hypermobility disorders. It really is true that you need to find the right practitioner or group of practitioners to help understand the full picture. I was told by a rheumatologist that I don't have EDS or Fibromyalgia (although at the time I scored 6 but 7 is required for diagnosis) but I do show signs of some connective tissue disorders but not enough to meet criteria for any one diagnosis (although close to a diagnosis for some). In the end I was told that I may have mixed connective tissue, and to keep an eye on how things progress over the next 10 years. I was also diagnosed by a cardiologist with POTS after years of not knowing what was going on and why I was so dizzy and had terrible reflux and crazy heart rate. I have always been hypermobile but I had no idea that it was all connected. It was only recently that I came across Joint Hypermobility Syndrome just before this webinar came out. It all makes sense now. It would be great to try and inform clinicians as much as possible of the wide range of symptoms of these type of disorders so that there is a greater understanding and a more informed level of care. Great work in getting this information out there.
These webinars are very helpful, and seem to always come out at the perfect time - very grateful to you for the time, your effort and years of work that brought you to these phenomenal understandings! Question - have you ever noticed a link between hyper mobility and vestibular system disorders (for example Ménière’s syndrome)? Let’s say a person inherited an inner ear disorder, and the brain is not provided with information about balance, motion, and the location of their head and/or body in relation to their surroundings in the optimum way - could that affect the way their muscles develop and function; and that, in turn, lead to something like hyper mobility? Thank you in advance ☀️
Continued - maybe collagen fibers spin and form differently in people with vestibular disorders because information they receive about their relationship to gravity is different. Like cosmonauts - they experience bone and muscle loss or atrophy.
Fantastic webinar, and so helpful for informing us on the spectrum of hypermobility disorders. It really is true that you need to find the right practitioner or group of practitioners to help understand the full picture. I was told by a rheumatologist that I don't have EDS or Fibromyalgia (although at the time I scored 6 but 7 is required for diagnosis) but I do show signs of some connective tissue disorders but not enough to meet criteria for any one diagnosis (although close to a diagnosis for some). In the end I was told that I may have mixed connective tissue, and to keep an eye on how things progress over the next 10 years. I was also diagnosed by a cardiologist with POTS after years of not knowing what was going on and why I was so dizzy and had terrible reflux and crazy heart rate. I have always been hypermobile but I had no idea that it was all connected. It was only recently that I came across Joint Hypermobility Syndrome just before this webinar came out. It all makes sense now. It would be great to try and inform clinicians as much as possible of the wide range of symptoms of these type of disorders so that there is a greater understanding and a more informed level of care. Great work in getting this information out there.
These webinars are very helpful, and seem to always come out at the perfect time - very grateful to you for the time, your effort and years of work that brought you to these phenomenal understandings!
Question - have you ever noticed a link between hyper mobility and vestibular system disorders (for example Ménière’s syndrome)?
Let’s say a person inherited an inner ear disorder, and the brain is not provided with information about balance, motion, and the location of their head and/or body in relation to their surroundings in the optimum way - could that affect the way their muscles develop and function; and that, in turn, lead to something like hyper mobility?
Thank you in advance ☀️
Continued - maybe collagen fibers spin and form differently in people with vestibular disorders because information they receive about their relationship to gravity is different. Like cosmonauts - they experience bone and muscle loss or atrophy.
Gostaria de ter acesso a tradução
Em português please
Really Dr. Anderson? You doubt that connective tissue disorders exist?