I FEEL YOUR PAIN!!.... how? well im 50 too and i also have parkinson's disease!!..since 2016 :( bless you have a husband and kids and grandkids to help out, i have only a daughter and my mom and dad and to those i have a huge dept with that i can never repay, its soulcrushing to get help from my 70+ year old parents while i should have been the caregiver.. and you right nobody knows unless youre a parky like you and me... keep up the fight, never give in, never give up, never give up hope for a cure.
Janet, I'm 57 and have been in same boat as to constant pain in body more than a decade. The stiffness took over a couple years ago. It can seem so overwhelming and crushing when you look 10 or 20 yrs down the road. Your doing great kiddo, keep that fighting spirit 💪❤
Hi Janet know how it hurts when u can’t do what u loved I ran once and it still breaks my heart when someone just’s gliders bye got the T-shirt 6 years now I’m amazed at how you’re fighting back at it. I say it because it feels like there’s a demon slowly tearing bits from us but you keep fighting made me smile too see your determination and I know how hard it can get but we can’t give up
Similar to me I'm 51 diagnosed 2014 , walking is my main issue, adequate medication, planning your day around on and off times and the feeling of being robbed of the independence you once took for granted.I also take magnesium before bed this helps to relax with helps with sleep . Hope this helps
Hello, I’ve just seen your video. I help s friend with Parkinson’s and just wanted to say how well you’re doing and I’ve learnt some good tips here from you. I hope you’re doing well and enjoying life and well done, this way a brave and kind thing to do
Dear Janet, Use every day before exercises during 20 or 30 minutes coldpacks on your painful and potential painful joints. Do every morning a cold shower with controled deep breathing. Start the first week with 5 seconds. Next week 10, Third week 15 seconds, etc. till 3 minutes. That's the cold shower duration for the rest of Your life. Try also once a Wim Hof therapy. Success!
Hi Aprill, Janet got in touch to say this - "the reason I don’t use patches is simply because they have never been offered to me." Hope that helps! Best wishes
In another video, posted three years ago on this channel, Janet is doing weight training and feeling great. She says it saved her life. I’m confused, which is the truth?
I am disappointed that you insinuate an untruth but I’ll try alleviate your confusion. I was in immense pain then and I still am now. ALL the exercise I do is non impact because of this - yoga, Pilates, cycling, weights, so walking was a challenge then too. I do these despite the pain because it’s always there. So yes, I do feel great when I exercise, celebrating what I can do rather than what I can’t.
@@jkelephantmrsk.6150 I was not accusing you of an untruth Janet, my statement was aimed at Parkinsons UK and probably rather rash anyway to be honest. So apologies. Yes I was utterly confused as your weight training video was from three years ago. I was wondering what happened in the meantime? I have a lot of fatigue from Parkinson’s and was looking to your weights video as inspiration to overcome it. I was rather disillusioned to see your more recent video from two years later where life seemed to be not so good. Anyway glad you clarified it for me. Glad you feel better when you exercise, keep it up. Thank you.
@@bucko163 there have been some additional mitigating circumstances but it’s only brought to light my determination and resilience that I didn’t know I had based on my achievements post PD diagnosis, all whilst battling the pain. The way I see it, I could be sitting on the couch, doing nothing, in pain, so I may as well do something! I’m sorry you felt disillusioned, but I only wish you were inspired because despite this, I still exercise, albeit, I’ve had to adapt. Please be assured, despite these difficulties, I have set and achieved remarkable goals but there’s no denying, the pain does get me down but the benefits to my mental health far outweigh the pain I’m in. I’m not sure if you’re on FB but there’s a great inspirational group called Parkinson’s Exercise in Action Group that you’re welcome to try.
What is confusing for you? Your question is confusing? Do you think she's lying: because that what your question implies when you say "which is the truth? but you don't explain what you are comparing? She is pouring her heart out, to raise awareness.
I FEEL YOUR PAIN!!.... how? well im 50 too and i also have parkinson's disease!!..since 2016 :(
bless you have a husband and kids and grandkids to help out, i have only a daughter and my mom and dad and to those i have a huge dept with that i can never repay, its soulcrushing to get help from my 70+ year old parents while i should have been the caregiver..
and you right nobody knows unless youre a parky like you and me...
keep up the fight, never give in, never give up, never give up hope for a cure.
Janet, I'm 57 and have been in same boat as to constant pain in body more than a decade. The stiffness took over a couple years ago.
It can seem so overwhelming and crushing when you look 10 or 20 yrs down the road. Your doing great kiddo, keep that fighting spirit 💪❤
Wow, so glad I don’t have pain with my (late onset) Parkinsons, just tremors & midday fatigue. Best for the future Janet
Hi Janet know how it hurts when u can’t do what u loved I ran once and it still breaks my heart when someone just’s gliders bye got the T-shirt 6 years now I’m amazed at how you’re fighting back at it. I say it because it feels like there’s a demon slowly tearing bits from us but you keep fighting made me smile too see your determination and I know how hard it can get but we can’t give up
Stay strong Janet
Similar to me I'm 51 diagnosed 2014 , walking is my main issue, adequate medication, planning your day around on and off times and the feeling of being robbed of the independence you once took for granted.I also take magnesium before bed this helps to relax with helps with sleep . Hope this helps
Hello, I’ve just seen your video. I help s friend with Parkinson’s and just wanted to say how well you’re doing and I’ve learnt some good tips here from you. I hope you’re doing well and enjoying life and well done, this way a brave and kind thing to do
Such a lovely lady
Wow! I’m VERY similar to her! Wow!
Dear Janet,
Use every day before exercises during 20 or 30 minutes coldpacks on your painful and potential painful joints.
Do every morning a cold shower with controled deep breathing.
Start the first week with 5 seconds. Next week 10, Third week 15 seconds, etc. till 3 minutes. That's the cold shower duration for the rest of Your life.
Try also once a Wim Hof therapy.
Success!
I feel the pain so much. I feel it too much. F*** Parkinson's
Hi Janet. Could you tell me why you take tablets Instead of using patches. 🤔💕
Hi Aprill, Janet got in touch to say this - "the reason I don’t use patches is simply because they have never been offered to me." Hope that helps! Best wishes
I know the pain youre in , I have Lymes disease!!!
Tell me about it
In another video, posted three years ago on this channel, Janet is doing weight training and feeling great. She says it saved her life. I’m confused, which is the truth?
I am disappointed that you insinuate an untruth but I’ll try alleviate your confusion. I was in immense pain then and I still am now. ALL the exercise I do is non impact because of this - yoga, Pilates, cycling, weights, so walking was a challenge then too. I do these despite the pain because it’s always there. So yes, I do feel great when I exercise, celebrating what I can do rather than what I can’t.
@@jkelephantmrsk.6150 I was not accusing you of an untruth Janet, my statement was aimed at Parkinsons UK and probably rather rash anyway to be honest. So apologies. Yes I was utterly confused as your weight training video was from three years ago. I was wondering what happened in the meantime? I have a lot of fatigue from Parkinson’s and was looking to your weights video as inspiration to overcome it. I was rather disillusioned to see your more recent video from two years later where life seemed to be not so good. Anyway glad you clarified it for me. Glad you feel better when you exercise, keep it up. Thank you.
@@bucko163 there have been some additional mitigating circumstances but it’s only brought to light my determination and resilience that I didn’t know I had based on my achievements post PD diagnosis, all whilst battling the pain. The way I see it, I could be sitting on the couch, doing nothing, in pain, so I may as well do something! I’m sorry you felt disillusioned, but I only wish you were inspired because despite this, I still exercise, albeit, I’ve had to adapt. Please be assured, despite these difficulties, I have set and achieved remarkable goals but there’s no denying, the pain does get me down but the benefits to my mental health far outweigh the pain I’m in. I’m not sure if you’re on FB but there’s a great inspirational group called Parkinson’s Exercise in Action Group that you’re welcome to try.
@@jkelephantmrsk.6150 thanks Janet I appreciate your replies.
What is confusing for you? Your question is confusing? Do you think she's lying: because that what your question implies when you say "which is the truth? but you don't explain what you are comparing? She is pouring her heart out, to raise awareness.