I have been dealing with RLS for over 40 years. If anyone that also suffers want to discuss this, reach out. These folk don't suffer, they are trying to analyze, but that is a good start. I suffer, they don't.
I am at the end of it. I suffer all evening and all night most nights. I can’t take it. My doc prescribed Mirapax and I’ve been taking it but it really hasn’t been working. The last few days I’ve taken two instead of one and I don’t like doing that. I have high blood pressure that I’m now taking clonidine for. I’m a mess. I could deal with anything if I didn’t have this. I watched a video of people who gave their accounts of their RLS. It made me cry. Watching these people made me feel so bad for them. This is not ITCHY. It’s agony. Mine is not just the urge to RUN. I get up and walk around but when you’re dead tired that is horrible. It goes on ALL night long until I have to get up. My mother USED to have it, she’s 93, and I’m soo glad she says she doesn’t anymore. I’m seeing my doctor today. I don’t call this “pain” I call it AGONY.
I so feel your pain!! I have had RLS for over 30 years now and it has continued to get worse over the years!! I have become totally dependent on my medication to get any sort of rest, and I have allergic reactions to it!!
The brain probably doesn't want the iron because it is Thiamin deficient. Myelin production requires thiamine B1, and the potentia nigra has a very high B1 concentration. Low B1 therefore means much less need for iron because it can't be used. So imo the iron deficit is only a symptom of B1 deficiency. Iron injection might help in some cases because for women it is hard to get enough iron in the first place, so whenever there happens to be a nutritional improvement in terms of B1 intake, now you don't have enough iron which takes a long time to get back into the brain and peripheral nerves. Regarding 30% of kidney dialysis patients having RLS: thiamine transporters are significantly lower in CKD, so the thiamine can't be absorbed in gut or reach where it needs to go.
I had never heard of RLS, but I know about it now. For the last year, I've been sleeping about 3 hours a night - off and on and during the day when I'm at work, I have to take Ropinirole but I'm now taking more than I'm suppose to and it takes forever to work. Iron infusion seems to be what the doctor thinks might work. I took iron pills for a month and it didn't do anything except constipate the heck out of me. Believe me, I'm no sissy, but this is just about more than I can take.
My symptoms don't improve with movement. It's just the urge to move my legs, arms, shoulders, back, etc. is *very* strong and overwhelming. What improves it while I'm doing it is slapping my legs. The stinging sensation overwhelms the urge to move, but the relief only lasts 10-20 seconds. I also do not, and never have had PLMS. Neither have my family members with RLS. And I have SCA5, and my family members with RLS also have SCA5.
My symptoms are usually solved by opiates, vicodin and oxycontine. I'm probably addicted by now, though. But I've tried all the other drugs, either no effect or made me sick in another way.
me too. I've never had the oxycontine because I'm afraid of addiction. I take the weakest opiod vicodin [hydrocodone] for the last 12 years and it still works. best wishes.
I had a sleep study and told I have restless leg / plmd. I also get it where a thought loops in my head like a broken record. I think this is due to my body spasming and my mind being woken each time. It’s torture. I’m only 38. I don’t have pain. I’m in really good physical health generally. Which makes it more irritating. Anyone know any good natural remedies?
I have been wondering why I haven’t been able to fall asleep since I turned 22 without drugs, maybe I should get this checked out with a proper sleep study. Sometimes even with the drugs it takes me straight up 3 hours to fall asleep. Sometimes it feels like I didn’t sleep at all.
I want to find pure , THC included CBD. Is there such a thing? I just can’t see how hemp without the flower where the effective medicine is can help anything. But what do I know?!
vsv nrg I don’t either! I want to put it ON my legs. It’s even effecting my hands. No kidding. I’ve done so much with my hands; all kinds of crafts like macrame, embroidery, cooking, making homemade bread, etc., that I got carpel tunnel I had to quit stuff. But now this is in my hands. I have to make fists with my hands for relief. It sucks. I’m so tired, I can’t get a good nights sleep. Ugh. Sorry! I’m so frustrated!
@@robinmartz9052 , i've put my own personal cures all over all and sundry videos on rls. go look for them. the best for me is grape seed extract. eat vegies. quit tea, coffee and coke.
talk, talk, talk. tried all the drugs. - side effects. a naturopath put me onto pine or oak tree bark extract. grape seed extract works too and is cheapest. that's what i use. has anyone listened all the way through this? boring!
@@camofrog ,of course i rely on naturopaths. doctors only offered drugs which didn't work or had undesirable side effects or were addictive. the naturopath that directed me to tree bark extracts was the last in a line of naturopaths who could not help. if i was in a car accident i wouldn't be calling for a naturopath. by the way, the only other professional that could help was a chinese trained herbalist who told me it was after 15 years, yes, that's right, 15 years of training before he was even allowed to touch a patient. unfortunately his blend of herbs to suit my case of rls was so bad tasting it made me throw up. and then when the herbs ran out i would have to return to him for more bad tasting herbs. i figure only doctors or people with rls would be watching this video. if you've had rls what is your solution?
I have been dealing with RLS for over 40 years. If anyone that also suffers want to discuss this, reach out. These folk don't suffer, they are trying to analyze, but that is a good start. I suffer, they don't.
I am at the end of it. I suffer all evening and all night most nights. I can’t take it. My doc prescribed Mirapax and I’ve been taking it but it really hasn’t been working. The last few days I’ve taken two instead of one and I don’t like doing that. I have high blood pressure that I’m now taking clonidine for. I’m a mess. I could deal with anything if I didn’t have this. I watched a video of people who gave their accounts of their RLS. It made me cry. Watching these people made me feel so bad for them. This is not ITCHY. It’s agony. Mine is not just the urge to RUN. I get up and walk around but when you’re dead tired that is horrible. It goes on ALL night long until I have to get up. My mother USED to have it, she’s 93, and I’m soo glad she says she doesn’t anymore. I’m seeing my doctor today. I don’t call this “pain” I call it AGONY.
How are you doing?! My Mom had it too... bad... poor thing. And I guess I inherited it. 🤷♂️
I so feel your pain!! I have had RLS for over 30 years now and it has continued to get worse over the years!! I have become totally dependent on my medication to get any sort of rest, and I have allergic reactions to it!!
I heard blood preasure pills delete vitamin d3
The brain probably doesn't want the iron because it is Thiamin deficient. Myelin production requires thiamine B1, and the potentia nigra has a very high B1 concentration. Low B1 therefore means much less need for iron because it can't be used. So imo the iron deficit is only a symptom of B1 deficiency. Iron injection might help in some cases because for women it is hard to get enough iron in the first place, so whenever there happens to be a nutritional improvement in terms of B1 intake, now you don't have enough iron which takes a long time to get back into the brain and peripheral nerves.
Regarding 30% of kidney dialysis patients having RLS: thiamine transporters are significantly lower in CKD, so the thiamine can't be absorbed in gut or reach where it needs to go.
I had never heard of RLS, but I know about it now. For the last year, I've been sleeping about 3 hours a night - off and on and during the day when I'm at work, I have to take Ropinirole but I'm now taking more than I'm suppose to and it takes forever to work. Iron infusion seems to be what the doctor thinks might work. I took iron pills for a month and it didn't do anything except constipate the heck out of me. Believe me, I'm no sissy, but this is just about more than I can take.
My symptoms don't improve with movement. It's just the urge to move my legs, arms, shoulders, back, etc. is *very* strong and overwhelming. What improves it while I'm doing it is slapping my legs. The stinging sensation overwhelms the urge to move, but the relief only lasts 10-20 seconds.
I also do not, and never have had PLMS. Neither have my family members with RLS.
And I have SCA5, and my family members with RLS also have SCA5.
My symptoms are usually solved by opiates, vicodin and oxycontine. I'm probably addicted by now, though. But I've tried all the other drugs, either no effect or made me sick in another way.
me too. I've never had the oxycontine because I'm afraid of addiction. I take the weakest opiod vicodin [hydrocodone] for the last 12 years and it still works. best wishes.
My legs are fine. What sucks is when you punch yourself in the face when your asleep. Sucks.
I had a sleep study and told I have restless leg / plmd. I also get it where a thought loops in my head like a broken record. I think this is due to my body spasming and my mind being woken each time. It’s torture. I’m only 38. I don’t have pain. I’m in really good physical health generally. Which makes it more irritating. Anyone know any good natural remedies?
I have been wondering why I haven’t been able to fall asleep since I turned 22 without drugs, maybe I should get this checked out with a proper sleep study. Sometimes even with the drugs it takes me straight up 3 hours to fall asleep. Sometimes it feels like I didn’t sleep at all.
Are there any effective physical therapies?
He is missing the point. Its not pain - and I still have it after going to the gym. It's bloody awful.
Cannabis and CBD hemp help the best
Really? Cream?
techman042, i agree they work, from personal experience. but i don't want to be stoned anymore. it comes with age.
I want to find pure , THC included CBD. Is there such a thing? I just can’t see how hemp without the flower where the effective medicine is can help anything. But what do I know?!
vsv nrg I don’t either! I want to put it ON my legs. It’s even effecting my hands. No kidding. I’ve done so much with my hands; all kinds of crafts like macrame, embroidery, cooking, making homemade bread, etc., that I got carpel tunnel I had to quit stuff. But now this is in my hands. I have to make fists with my hands for relief. It sucks. I’m so tired, I can’t get a good nights sleep. Ugh. Sorry! I’m so frustrated!
@@robinmartz9052 , i've put my own personal cures all over all and sundry videos on rls. go look for them. the best for me is grape seed extract. eat vegies. quit tea, coffee and coke.
Chemo neuropathy!
talk, talk, talk. tried all the drugs. - side effects. a naturopath put me onto pine or oak tree bark extract. grape seed extract works too and is cheapest. that's what i use. has anyone listened all the way through this? boring!
Probably placebo effect, but if it works it works.
And yes, I listened to it all the way through, jumping through parts that didn't apply to me. I found it quite interesting.
@@camofrog ,you're kidding? you obviously have never had it. are you a doctor?
Lol you are relying on a naturopath for your treatment and you ask if I'm a doctor?
@@camofrog ,of course i rely on naturopaths. doctors only offered drugs which didn't work or had undesirable side effects or were addictive. the naturopath that directed me to tree bark extracts was the last in a line of naturopaths who could not help. if i was in a car accident i wouldn't be calling for a naturopath. by the way, the only other professional that could help was a chinese trained herbalist who told me it was after 15 years, yes, that's right, 15 years of training before he was even allowed to touch a patient. unfortunately his blend of herbs to suit my case of rls was so bad tasting it made me throw up. and then when the herbs ran out i would have to return to him for more bad tasting herbs. i figure only doctors or people with rls would be watching this video. if you've had rls what is your solution?