day in the life living with 3 paralyzed limbs + chronic illness

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  • Опубликовано: 16 ноя 2024

Комментарии • 10

  • @dianewatson5015
    @dianewatson5015 2 года назад +1

    Hi there! I love that you shared the picture of the rainbow! Greetings from a country life (more cows than people in my county, lol!, and I saw two deer in my yard this morning)... Thanks for sharing your story.. We all have different issues and challenges, don't we?, and I liked your generally positive attitude, my friend. You are an inspiration
    :0) ...my limbs are slowly getting paralyzed with ALS, and I have found two big things that brighten each day- that make a huge difference in my life right now. Can I share them with you?... They are counting my blessings (like the coffee, or the rainbow, or the deer), and the presence of a friend who never leaves me, who stays with me even when I am alone and can't walk or drive to get out on my own anymore. His friendship fills me with peace in the face of loss and suffering, because he understands what I'm thinking and going through, and he loves me unconditionally. He has known what it's like to have literally everyone abandon him in his darkest hour, and he's promised, Never will I abandon you... maybe you know him too? It's the Jesus of the New Testament, and He has become a personal friend. I know it might sound odd, but wow, what a difference he's made in my life!... I'm hoping you know (or read and soon find) his help and compassion and strength for the day too!

  • @barrytaylorprofoundlydeafi2479
    @barrytaylorprofoundlydeafi2479 2 года назад +1

    Hi hoa 💖 you are such an amazing lady I know exactly what it's like using one arm! My doctor/physio still cannot work out why my left arm is paralysed from the shoulder to my hand! One thing it could be is a mini stroke but I am already on blood thinning drugs! I am going to have an MRI scan by the end of march as it could be a damaged disc in my neck pushing on the nerve in my shoulder causing the paralasis! I also hope your swollen leg not got worse! I am having the same problem the last time I had to have compression bandages to get rid of the water etc!
    Some comments really annoy me like the one asking if you wear diapers! So what if you did it's your business like I have a catheter & pee bag!
    I hope your now in rehab & they at least get your arm working again! Thinking of you 💖💖

  • @Jessinking
    @Jessinking 2 года назад +2

    hi there. my name is jessica and i found your page searching for people who talk about being disabled some way. not sure if you knew but march is National Disabilities Awareness Month and i am an alternative disabled content creator on multiple platforms including here on youtube. i didn't know about it until i googled myself. if you are open to having someone to do a collab on your channel/content i'm avaialable and would love to work with you! have a great day.

    • @barrytaylorprofoundlydeafi2479
      @barrytaylorprofoundlydeafi2479 2 года назад

      Hoa is a lovely lady that has been through so much in her young life! It's good people care! Being disabled I wish I had that support at her age! 💖

    • @hoaslife
      @hoaslife  2 года назад

      Hi ! I wasn’t aware because I don’t live in the us where it is based. But since a lot of my audience is from there I would love to do a collab with you and bring some awareness to disability. Do you have something in mind already? My instagram is hoaslife if you want to dm me there to make this happen!

  • @07ikkin
    @07ikkin 2 года назад +1

    Is it a partial paralysis or something? I saw legs moving the wheelchair a bit

    • @hoaslife
      @hoaslife  2 года назад

      It’s a neurological condition that make the part of my brain responsible for movement not function properly. Until a few month ago it was complete paralysis but I recently started to be able to move my toes and I use them to push myself sometimes

  • @brandonbills2037
    @brandonbills2037 2 года назад +1

    Got a ? Do u wear diapers

    • @hoaslife
      @hoaslife  2 года назад +2

      No I don’t need to my disorder only affects my capacity to move not any of my organs