"i mean we're already freezing from the anemia..so" lol I am so glad I found your channel. A little while back I went to give blood but they told me I couldn't because my iron was low so I went o the doctors and they said I had anemia but your channel has really helped me just figure things out and feel less alone I guess, so thank you :)
I had my first iron infusion yesterday. (Venofer) They did not give me steroids, benedryl or zantac. They just hooked up the Saline first to the IV then they added the Venofer. Afterwards I was nauseated (I did not eat breakfast before I went, lesson learned) and I got a bad headache. The site of my IV hurt and felt very cold. This could be because the vein rolled as the nurse was inserting the needle so she had to dig around for it and the iron and saline are very cold. The nurses were very friendly and helpful. One even baked goodies for all the patients getting transfusions and chemo. I was thankful for that! Today I have felt dizzy and tired with the headache still pounding. I will have my infusions once a week for the next 6 weeks. I am glad I found your video's and learned about your organization. Thank you for sharing!
Thank you so much! Yes, the protocols for infusions are changing and I think they are mostly given without steroids or antihistamines now. (I used to take a Claritin before mine.) I hope you’re not still struggling with low iron, but if so, or to keep your iron up, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best! ♥️
Courtnie Washington, thank you so much for this sweet comment! I really appreciate. I hope your infusion goes well and I hope you’ll be feeling better soon. To keep your iron up, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best! ♥️
I was like an ICE Demon! I knew where every ice dispenser was on every floor of the hotel I worked at.... forget filling my water bottle with water, it was ice I was craving like crazy!.... CRAZY!....chomp, chomp, chomp!.... ;)
Same as me! I chewed ice 24/7 and even broke a tooth once...and kept on chewing!! Thank you for watching my video and supporting this community. If you have iron deficiency, you may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I'm so glad I found your video. I have battled anemia for more than 12 years and am only now finding a doctor who wants to do something about it other than iron tablets. Those make me so sick on top of barely being able to function. I will have two rounds of iron infusions soon. I just met with the hematologist yesterday for the first time. All the other videos I found were mostly horror stories about the experience, or they didn't really give any good insight on what to expect. Thanks for telling it like a girlfriend would.
Ronetta--your video was so helpful and I enjoyed the witty onscreen comments! It was a well-done and hearing your experience was very interesting. I'm hoping to have infusions soon after far too long on failing oral therapy. I heard a healthy ferritin level was somewhere around 50 or 80 in order to have healthy stores. Best wished to all with your first infusion experience!
Thank you. Very informative. I have been suffering from anemia since I was 16 yrs old. I have been in treatment for 30 years with oral and finally my doctor refered me for the 2nd time to a Hematologist and I am schedule to receive Iron infusions. I am looking forward to it mainly because I'm ready to feel better. THANK you for all the tips. I was scared until I saw this video.
Thank you for your kind comments Sheila, and for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
Hello and thank you for watching my video and supporting this community. I hope that your infusion went well and that you are feeling MUCH better now! I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
Starting the first of 3 infusions Monday and I am a bit nervous about it, mostly afraid of having a reaction. I have Crohns and my doctor said these may be a regular thing for me so I guess I should get used to it. Thank you for sharing your experience, it helps me feel a little less afraid!
Thanks for posting this video. My doctor told me today that I may need to get an iron infusion and so I wanted to understand the procedure. This was perfect. Thanks for sharing your experience.
Great documentation of your experience. My iron levels were 2-4. I cut out all GLUTEN which blocks absorption, and my iron levels went back up to normal! It was a gluten allergy that was causing me to chase the symptoms (iron infusions) and not tackle the cause - Gluten. All is well now...as long as I avoid gluten which can be challenging. Iron infusions were a temporary "fix" for me.
Thanks for the tips! I'm always cold! I have my first one May 30 this is 2018. I have been anemic so many years. I pray this works, I'm rdy to be ME again.
Tracy J, I hope that your infusion went well and that you are starting to feel some improvement! It can take a number of weeks so hang in there. To keep your iron up, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best and thanks again for your kind comments! ♥️
Hi. in 4 hours i will be facing my first infusion. i am so grateful that i found your video. not only helpful re: tecnique and the how to's but your personal journey which absolutely made me feel less alone. not to mention, that we could be girlfriends. i have long dark hair, various hoop earrings, my "jackie o's" sunglasses, red is my favorite color and when the Burberry came out. i yelled YEA!!! she is my kind of girl. if you ever come to LA.........lemme know. thanks for posting.
So glad to have found this video. I’m getting my first infusion in the upcoming weeks. I love the take of this topic, creating something more personal and comforting. I’ve had to do a good bit of research on low iron and how to treat it in the past several months for a potential job. This has been a draining and often discouraging journey and I have yet to come across something more informative and nerve easing as this video. It was crazy seeing all of the similarities and realizing I’m not alone but that there’s a whole community going through this at the same time I am. In addition, I loved hearing the part about your dad being a diabetic and growing up around needles because my dad is also a diabetic and I grew up always having to be pricked to check my glucose. I definitely believe that it contributed to my fear of needles as I got older. The good news is that I’m gradually facing my fears throughout this process and am slowly overcoming it! Anyways, thanks so much for making this video and good luck with getting your iron where it should be!
Brooklyn, this is one of the sweetest comments I have every received. So many similarities between us! I hope that you are doing so much better now. Thank you for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I am so happy (and lucky) that I found your channel!! This really helped settle my fear (I have IDA and have to have my first IV infusion sometime soon) All I’ve heard are such horror stories about these, thank you so much!!
Thank you so much for your sweet comment Alyssa! I hope that you are feeling better. Thank you for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
Thank you for sharing this information. I have been really struggling with iron deficiency for months. After watching your videos I realize I have had the wrong diet (coffee has been keeping me alive) . This is such a real struggle. Thank you for sharing your story... I have a little hope. This has been debilitating in a really scary way. Thank you again
Thank you for doing what you did! Last year my iron was 3. I’m getting another blood work up done to see where am I now. I’ve had no treatments of any sort bc I had a doctor who said I wasn’t anemic. At a 3!! Well, I was just told if it’s still low, I may want to get infusion but I didn’t know it was multiple infusions. Very helpful. Hope you are well!!
Thank you, this is so helpful. I wish I could get an iron iv. I've been a vegetarian for 25 years....and not the healthy kind. I developed a strong taste for cola and coffee and just wanted to share my experience with others. I have a ferritin level of 10 and realized my insomnia, adrenal, and thyroid issues were related to my ferritin. They say that "pica"...the taste for dirt comes from being iron deficient and craving dirt...I realized my diet coke habit stopped when I started taking iron. Colas and coffee kinda taste like dirt to me. I have had bad experiences with iron supplements where my adrenals felt like they were going to bust....but found Pur Absorb Iron good and recently started doing "frozen liver pills" because they say copper/zinc/and iron are needed in order to increase ferritin iron stores. They say 80-100 is the Ferritin level to achieve. What I also understand is your Hemaglobin and Iron level can be good but ferritin low...if ferritin is low you're anemic...this is me. Had to share....and if you're doctor says you're within range...research online.
@@lzjz5679 - Thank you for asking. It was a bit of a mess both times that I want, my body didn't tolerate the infusion initially and I "lost my stomach". However, I was able to get through them, and my blood count levels are back up. I have to go back to my doctor in a few weeks to draw blood again and pray that things are normal still. If now, we have to figure out why my counts continue to be low.
Hi, thanks for sharing your story. I just learned today that I have hypothyroidism and iron deficiency anemia. My doctor asked me to try taking an over the counter iron supplement again, although he does know that I have tried it before and they make me feel very ill. At my next appointment he said we will discuss doing the IV infusions instead. It was great to hear your story and how it all goes about. Thank You!
I had Benedryl in an IV and it kept me awake ALL night, was hoping it would help me sleep. The worst night ever, this was in the hospital after having "minor" brain surgery. Glad to hear I'm not the only one who was hyped up instead of relaxed. I have low iron and wonder if this infusion would do me any good...?
Ronnetta, thank you for sharing. I just found out I'm at a 7.7 after being at 9.4 last August... (it's a long story of course) and they say in CA I need to be a 7 or lower to get a blood transfusion and keep telling me iron infusion isn't an option. Finding that weird. I want to send you love, energy and strength.
Leah Richmond Cooper, hello! Sorry for my delay - I’ve been having trouble getting logged into my RUclips account. Anyway, I am so sorry that you are suffering. When you say 7.7, is that your Hemoglobin or your Ferritin? Feel free to send me an email at ronnetta@ironology.life and I’d be happy to try to help. Also, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best! ♥️
I love your videos. I went for my first infusion a week ago. Have another one next week. Just a side note for the videos: the music is so loud but your voice is so soft! Thank you for all the information, I truly enjoy your videos!
I always get cold whenever I have any kind of IV. I kind of figured out that the reason why is probably because the IV solution is at room temperature which is usually much lower than body temperature. So when you're having that cool liquid pumped directly in your veins it tends to make you cold.
I'm supposed to go for my 1st infusion and I'm already considering not doing it. I already cancelled all of my November appointments. I feel there is something so unnatural about putting blackish sludge in your body. I decided to try dietary changes first with organic supplements of iron,folic acid and b12. After 4 weeks I'm not as fatigued,my period wasn't as heavy and I feel overall better. I have a little over a month before my first December appointment and I'm determined to change this naturally. I also don't like the idea of steroids in my body at all. I have steroid puffers and rarely use them. When I do I'm wired for hours and hours and I'm often awake like that for well over 30hrs. I truly believe anemia can be changed by altering your diet to include more leafy greens.
Thank you so much for sharing your story. I've watched your video a gazillion times. i have my infusions scheduled Tuesday and Wednesday of next week. I'm very nervous about it.
Love it..I'm going for the 1st time tomorrow for my iron infusion. My levels are 6.5 . My hair is falling out so much. Thanks for posting this video! This issue definitely needs more awareness. 💕
@@kflo2059 hello ! My infusion went well.. I'll had three In total. But the fibroid in my uterus is now 9inches. It's taking up most of my uterus 🤦 and it is tipping it. I have been in and out the hospital for a few months because of heavy bleeding. My levels are still super low but because of the covid 19 my embolisation is on hold. I have my 1st virtual appointment with the surgeon tomorrow to talk about where we can go from here. My hair is still falling out but I'm hoping once they cut the blood supply off to the fibroid
@@kflo2059 I should feel better. So I'm just frustrated because I had no insurance two years ago and when I went to the ER they could of inform me of this so I could have got it taken care of but because of having no insurance at that time they really didn't help... So two years later I'm in pain.. losing hair and had to quit my job of 20 years because the bleeding became so bad I couldn't work. So, tomorrow I will find out my surgery date 🤗
@@kflo2059 my ferritin was a 10 last time they checked so that's was maybe 3 months ago. I did a few blood transfusions but really dnt help when I bleed out so much. It's a constant game of catch up but when yr just feeling better boom ...gets low again
Hello I went this morning and got my infusion done. My appointment was at 8:00am I got there around 7:30. I was called in to see the nurse about 7:45. The nurses were all very nice. She gave me Tylenol in case of any fever which I didn't get. Then she ran saline first than steroids and the test iron. Just that alone took about 2 hours. My iron infusion was supposed to take 5 hours, but when my nurse read my chart she informed me that my hemotologist recommended it only be done for 3 hours. Overall it went well. I got a really bad headache and I've been feeling really tired and weak.
Thank you Thank you Thank you My son is having his first iron infusion next week and I had no idea what to expect. He's 8 and had bad experiences with hospitals lately, and I needed info to reassure him. Your video was very helpful about what to anticipate. THANK YOU
Thank you! This was a very informative video as I consider doing the procedure. Currently my ferritin level is 6, iron supplements not working fast enough. Thanks again, very helpful!
My iron levels are currently at 3 ng when they should be between 38-100. My last dr told me to take over the counter iron... fired her and new dr has me scheduled for several infusions. Also eat ice like no tomorrow.
WOW thank you so much for this - makes me want to get checked again for the exact levels I am at so i can somehow return to martial arts and be a better mother
Thank you so much for posting this and that it is still here 3 years later!!! I agree with you that all I find is clinical explanation of Iron Infusion and only have found your video that gives me an idea of what to expect. I don't think what I have is an Iron Disorder, but rather a just a horrid side effect of gastric bypass surgery. So big thank you!!!!
thank you so, so, so, so, much for this video cause I to was so scared of having iron fusions, your video helped calm my nerves a lot thank you so much.
Hello Phyllis! You are so welcome and thank you for your very kind words! I am so happy to know that this helped. Thank you for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I have just finished watching the RUclips video which is excellently and tastefully done. Thank you for such calm information with your smile and sweetness pervading all the medical jargon! I am heading for first ever infusion next week which is why I perused the RUclips channel, finding this one the most pertinent for myself. Heading over to the websire now....:)
I had my first fusion yesterday, February 13. When you had your fusion did you have a funny taste? I tasted celery, I mentioned it but nothing was said. I’m scheduled to have 5 minute fusion once a week for 6 weeks. Also I had a B12 injection yesterday, today and tomorrow. Thereafter once a month. I’m curious why your is given over hours vs mine (5 min). Although I was there an hour & a half. Thank you, Donna (I’m turning 65 in August) Also, I fell this AM
I've probably had low iron for years, didn't find out until I googled why the whites of my eyes are blue. My doctor ran tests and my iron level is 3. Wish I knew this decades ago, but with hypothyroidism I'm used to being tired all the time!
Sorry, Ronnnetta, always late to the party. Thanks for sharing your story with us. I love those hoop earrings, too. I hope you are doing well and your iron levels are maintaining. Iron On!!!
thank you for the video, i'll be having my 1st iron infussion next week... i'm so afraid that i almost cancel my treatment. ur video really make me understand the procedure more. on top of that i have anxiety disorder, asthma and gastric 😳 all of this problem makes my anxiety worst. but i think i'll go with the infussion ☺
My gums and inside eye are white. And yes, chronic mega ice eater. Recently had a hysterectomy so the heavy periods are no more! Halleujah!! But I've been anemic since a child and it worsened over the year.
My ferritin is 12 right now and I'm going to be getting iron infusions. I've been getting panic attacks, anxiety, exhaustion and almost passed out in Target yesterday.
Mine was 2, 60 days ago - I am now on feramax 150 2x's a day and hopefully that has helped - redid blood work yesterday so we will see. I get the panic attacks and the exhaustion too.....hang in there :)
My iron is 6 and I'm going to get my iron infusion on Sunday. They haven't gone over the whole process with me yet, but I am also in my first trimester of pregnancy which complicates the course of treatment quite a bit. I wonder if I'll have to wait between infusions?
You're just so darn cute....! Anyway, thanks for letting us go with you, the video was very helpful. I'm glad you're feeling better, all the best to you.
Hi Cori! Thank you so much for your kind comment. Thank you also for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I have my first tomorrow. I am so nervous of side effects. I have Fibromyalgia, LQTS and I also have Syncope Episodes. I also have a BP of 151/110 (my norm is 120/80)
I started iron infusions 4 weeks ago. I had a port placed cause I have the infusions once a week for 10 weeks. I get benadryl, a steroid and a pepcid before each infusion.
Hello, do any of you know what is the underlying condition for being so low on iron, ferritin and saturation? It's this just a condition on it's own or were diagnosed with something else?
Your ferritin should actually be much higher than 18- it should be at least 70 to prevent fatigue, hair loss, brittle nails, etc. Most doctors don't know this because the lab range is so broad.
Thank you so much for this video. I'm going through alot, I just found out I have rocky mountain spotted fever and unknown blood loss as well. so I'm also very anemic. I'm getting my first iron transfusions in 2 days and nervous because I have a hard time with iron orally.
Going for my 1st iron infusion on Friday and have been having a lot of anxiety about it and possible side effects. Thanks you for your video! It has helped calm me...... a bit. Lol
@@danjsark totally fine. No side effects or anything. Went shopping after lol only needed to do 3 of them. A girl there did have a little bit of a reaction in the form of hives but they just gave her some Benadryl and she was fine
Am I the only one? They did no test runs and they ran my iron infusion through me in 30 minutes. also I get 1 infusion one day and the other exactly one week later. No steroids or any other meds whatsoever
I have MTHFR mutation and found that I can't handle synthetic iron, specifically Venofer. I would spend months getting the infusions and later found out it was just floating in my body but by body wasn't actually using it. Do you know any other iron that would be suitable for anemia?
How do I advocate for myself to make sure they do my infusion slooow and to do small dose like half dose? I'm too sensitive post brain injury and I'm scared as hell but I really desperately need it . From me in New Zealand
I had Venofer injections, with B-12 shots weekly 2 years ago. I didn't know there was a community for anemics and venofer patients. I had 10 weeks Venofer, starting ferritin level of 2 (extremely low). After 10 weeks of infusions, iron went up to 38, but then after a few months, it dropped back down again - hematologist was not sure why, colonoscopy did not reveal any GI bleed. I went through another 10 weeks of Venofer, second round. 10 months of B-12 injections, starting weekly first few months, then monthly. You were getting it every day? I got it once a week for 10 weeks. Its been 2 years, and even though my iron has fluctuated a bit, it has remained at about 40+ for the past 18 months or so, so no more injections. I now eat paleo, good quality red meat, lots of lentils and spinach (mostly green smoothies). I also take iron tablets 2 or 3 times a day, and hematologist thinks I am doing ok now. I hope you are doing well.
How are you doing now? So glad someone made a video about this. Yes, the infusion clinic is filled with chemo patients, which makes you feel bad. I had PICA too, classic textbook, my doctor laughed about it because I was craving blood of raw meat, raw potato peels, and dirt lol. Now I don't, but I do love love love my lean red meat. I do still have to take iron tablets and B-12 but am holding my own. Have you had to have any more iron infusions? I did 20 weeks total Venofer once weekly, B-12 montly for almost a year but have been OK for the past year or 18 months. I never used the Claritin or steroids, and I was OK. I didn't get Benadryl either, guess I was not as sensitive to it, no allergic reactions.
I don't understand.....First of all, HUGE fan and longtime subscriber of yours! My doctor knows that I'm an iron deficient anemic due to heavy and painful periods. My iron level is 7.5 and he said that the only reason he would give me iron infusions is if I have kidney or renal failure. Now, I know a couple of people who do and who don't, but those who don't still got the infusions. Why not me? I'm trying to be objective with this although I am soooo drained and am losing my quality of life. Please help!
Try and get a infusion mine is 5 ferritin is 29 but I feel dead literally my hemoglobin may not be considered as being soo severe but we are all different our bodies react differently I have to pay my GP in the UK won't give me a infusion on the NHS she says only if you HB is 7. I think that's ridiculous.
bustinasscoach Yeah I'm going private gps just know how to give these iron tablets which cause havoc on the stomach. It takes forever to make a difference. Doctors never consider any alternative medicine when in actual fact for other ailments of mine I've improved them and practically cured it too. Their pills are poison all they ever did was cause side effects.
bustinasscoach yeah so have I my B12 is normal it is 593 I'm taking supplements though to increase folic acid that was abit low needs to be higher. That could be adding to the fatigue, so you inject yourself with B12 how?
bustinasscoach looooool the porn reference dude man that was jokes. Lol I'm wondering if I go and ask my local chemist they'd probably look at me like I'm mad I don't think they sell it in the UK, maybe regulations etc. I was wondering if you can have folate injections again if I ask the GP she will say no and to take tablets which I'm gonna do anyways.
I don't understand why they say ferritin levels between 12-150 for females is normal. why is there such a huge gap? 12 sounds way too low to me. Mine is 45 now, when I first started out it was 6. I still feel the same though, even though it has been since November 2018. Still really tired, weak and bruise easy. I'm technically no longer anemic, but I still feel no different from when I first started taking the pills.
I am scheduled for Friday to get my IV infusion done. I'm nervous but happy that I will finally feel alive again.
Kiara Clark I have an appointment on Friday for mine lol
Hi Kiara. How did it go for you. I'm going in today for my first treatment. I'm nervous
Kiara Smith dame my body only saturates 5%
Thank you for this! I have my first infusion in two hours, and this has helped my anxiety.
My first infusion is tomorrow, your vlog is reallyyyyy helping my anxiety. Thank you for posting this very useful information.
"i mean we're already freezing from the anemia..so" lol I am so glad I found your channel. A little while back I went to give blood but they told me I couldn't because my iron was low so I went o the doctors and they said I had anemia but your channel has really helped me just figure things out and feel less alone I guess, so thank you :)
I had my first iron infusion yesterday. (Venofer) They did not give me steroids, benedryl or zantac. They just hooked up the Saline first to the IV then they added the Venofer. Afterwards I was nauseated (I did not eat breakfast before I went, lesson learned) and I got a bad headache. The site of my IV hurt and felt very cold. This could be because the vein rolled as the nurse was inserting the needle so she had to dig around for it and the iron and saline are very cold. The nurses were very friendly and helpful. One even baked goodies for all the patients getting transfusions and chemo. I was thankful for that! Today I have felt dizzy and tired with the headache still pounding. I will have my infusions once a week for the next 6 weeks.
I am glad I found your video's and learned about your organization. Thank you for sharing!
Thank you so much! Yes, the protocols for infusions are changing and I think they are mostly given without steroids or antihistamines now. (I used to take a Claritin before mine.) I hope you’re not still struggling with low iron, but if so, or to keep your iron up, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best! ♥️
HaileeBug CP how did it go ?
Ronnetta Griffin hello 👋 how did U manage to have such lovely hair with anemia?
lol l totally thought I was addicted to eating ice
I am addicted
Best gift anyone could’ve given me before my first infusion! Thank you
Courtnie Washington, thank you so much for this sweet comment! I really appreciate. I hope your infusion goes well and I hope you’ll be feeling better soon. To keep your iron up, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best! ♥️
I was like an ICE Demon! I knew where every ice dispenser was on every floor of the hotel I worked at.... forget filling my water bottle with water, it was ice I was craving like crazy!.... CRAZY!....chomp, chomp, chomp!.... ;)
Same as me! I chewed ice 24/7 and even broke a tooth once...and kept on chewing!! Thank you for watching my video and supporting this community. If you have iron deficiency, you may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I'm so glad I found your video. I have battled anemia for more than 12 years and am only now finding a doctor who wants to do something about it other than iron tablets. Those make me so sick on top of barely being able to function. I will have two rounds of iron infusions soon. I just met with the hematologist yesterday for the first time.
All the other videos I found were mostly horror stories about the experience, or they didn't really give any good insight on what to expect.
Thanks for telling it like a girlfriend would.
Yes I have a new doctor that ordered this for me. My blood been just about the amount of years of yours..
Ronetta--your video was so helpful and I enjoyed the witty onscreen comments! It was a well-done and hearing your experience was very interesting. I'm hoping to have infusions soon after far too long on failing oral therapy. I heard a healthy ferritin level was somewhere around 50 or 80 in order to have healthy stores. Best wished to all with your first infusion experience!
Thank you. Very informative. I have been suffering from anemia since I was 16 yrs old. I have been in treatment for 30 years with oral and finally my doctor refered me for the 2nd time to a Hematologist and I am schedule to receive Iron infusions. I am looking forward to it mainly because I'm ready to feel better.
THANK you for all the tips. I was scared until I saw this video.
Thank you for your kind comments Sheila, and for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
Sheila Faberlle i
Thank you very much for documenting that! Hope you are well wherever you are
I'm having my first infusion tomorrow. Please keep making videos.
Hello and thank you for watching my video and supporting this community. I hope that your infusion went well and that you are feeling MUCH better now! I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
Thank you for making this video I am so nervous but happy that I will finally feel alive again!!
Kiara Smith how did it go ?
Starting the first of 3 infusions Monday and I am a bit nervous about it, mostly afraid of having a reaction. I have Crohns and my doctor said these may be a regular thing for me so I guess I should get used to it. Thank you for sharing your experience, it helps me feel a little less afraid!
Thanks for posting this video. My doctor told me today that I may need to get an iron infusion and so I wanted to understand the procedure. This was perfect. Thanks for sharing your experience.
I have my 1st infusion tomorrow! Thank you! This video helped! 😊
Thank you for documenting and sharing your experience...I will be going for iron infusions soon and this was very helpful.
Great documentation of your experience. My iron levels were 2-4. I cut out all GLUTEN which blocks absorption, and my iron levels went back up to normal! It was a gluten allergy that was causing me to chase the symptoms (iron infusions) and not tackle the cause - Gluten. All is well now...as long as I avoid gluten which can be challenging. Iron infusions were a temporary "fix" for me.
Tracey Ann-Marie Nelson thanks very much for the info... are u taking diary ?
Have you been checked for celiac? The combo of malabsorption and anemia with gluten intolerance are the 3 key symptoms!
Thanks for the tips! I'm always cold! I have my first one May 30 this is 2018. I have been anemic so many years. I pray this works, I'm rdy to be ME again.
Tracy J, I hope that your infusion went well and that you are starting to feel some improvement! It can take a number of weeks so hang in there. To keep your iron up, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best and thanks again for your kind comments! ♥️
Tracy how did it go ?
Hi. in 4 hours i will be facing my first infusion. i am so grateful that i found your video. not only helpful re: tecnique and the how to's but your personal journey which absolutely made me feel less alone. not to mention, that we could be girlfriends. i have long dark hair, various hoop earrings, my "jackie o's" sunglasses, red is my favorite color and when the Burberry came out. i yelled YEA!!! she is my kind of girl. if you ever come to LA.........lemme know. thanks for posting.
So glad to have found this video. I’m getting my first infusion in the upcoming weeks. I love the take of this topic, creating something more personal and comforting. I’ve had to do a good bit of research on low iron and how to treat it in the past several months for a potential job. This has been a draining and often discouraging journey and I have yet to come across something more informative and nerve easing as this video. It was crazy seeing all of the similarities and realizing I’m not alone but that there’s a whole community going through this at the same time I am. In addition, I loved hearing the part about your dad being a diabetic and growing up around needles because my dad is also a diabetic and I grew up always having to be pricked to check my glucose. I definitely believe that it contributed to my fear of needles as I got older. The good news is that I’m gradually facing my fears throughout this process and am slowly overcoming it! Anyways, thanks so much for making this video and good luck with getting your iron where it should be!
Brooklyn, this is one of the sweetest comments I have every received. So many similarities between us! I hope that you are doing so much better now. Thank you for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I am so happy (and lucky) that I found your channel!! This really helped settle my fear (I have IDA and have to have my first IV infusion sometime soon) All I’ve heard are such horror stories about these, thank you so much!!
Thank you so much for your sweet comment Alyssa! I hope that you are feeling better. Thank you for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
Same here. All new to me this disease and I have my first Iron Transfusion January 2024. This video is helping me calm down💝💝
Thank you for sharing this information. I have been really struggling with iron deficiency for months. After watching your videos I realize I have had the wrong diet (coffee has been keeping me alive) . This is such a real struggle. Thank you for sharing your story... I have a little hope. This has been debilitating in a really scary way. Thank you again
Yes thank you for posting this video, I have my first infusion Tuesday and was a little scared, but now I think I'll be fine thanks you😊
Thank you for this video. I'll be having my first iron transfusion tomorrow.
Thank you for doing what you did! Last year my iron was 3. I’m getting another blood work up done to see where am I now. I’ve had no treatments of any sort bc I had a doctor who said I wasn’t anemic. At a 3!! Well, I was just told if it’s still low, I may want to get infusion but I didn’t know it was multiple infusions.
Very helpful. Hope you are well!!
This is so helpful! I was wondering what to expect.
Thank you, this is so helpful. I wish I could get an iron iv. I've been a vegetarian for 25 years....and not the healthy kind. I developed a strong taste for cola and coffee and just wanted to share my experience with others. I have a ferritin level of 10 and realized my insomnia, adrenal, and thyroid issues were related to my ferritin. They say that "pica"...the taste for dirt comes from being iron deficient and craving dirt...I realized my diet coke habit stopped when I started taking iron. Colas and coffee kinda taste like dirt to me. I have had bad experiences with iron supplements where my adrenals felt like they were going to bust....but found Pur Absorb Iron good and recently started doing "frozen liver pills" because they say copper/zinc/and iron are needed in order to increase ferritin iron stores. They say 80-100 is the Ferritin level to achieve. What I also understand is your Hemaglobin and Iron level can be good but ferritin low...if ferritin is low you're anemic...this is me. Had to share....and if you're doctor says you're within range...research online.
I have my first Iron Infusion next week. Thank you for sharing your experience.
How did it go?
@@lzjz5679 - Thank you for asking. It was a bit of a mess both times that I want, my body didn't tolerate the infusion initially and I "lost my stomach". However, I was able to get through them, and my blood count levels are back up. I have to go back to my doctor in a few weeks to draw blood again and pray that things are normal still. If now, we have to figure out why my counts continue to be low.
Hi, thanks for sharing your story. I just learned today that I have hypothyroidism and iron deficiency anemia. My doctor asked me to try taking an over the counter iron supplement again, although he does know that I have tried it before and they make me feel very ill. At my next appointment he said we will discuss doing the IV infusions instead. It was great to hear your story and how it all goes about. Thank You!
I had Benedryl in an IV and it kept me awake ALL night, was hoping it would help me sleep. The worst night ever, this was in the hospital after having "minor" brain surgery. Glad to hear I'm not the only one who was hyped up instead of relaxed. I have low iron and wonder if this infusion would do me any good...?
Ronnetta, thank you for sharing. I just found out I'm at a 7.7 after being at 9.4 last August... (it's a long story of course) and they say in CA I need to be a 7 or lower to get a blood transfusion and keep telling me iron infusion isn't an option. Finding that weird. I want to send you love, energy and strength.
Leah Richmond Cooper, hello! Sorry for my delay - I’ve been having trouble getting logged into my RUclips account. Anyway, I am so sorry that you are suffering. When you say 7.7, is that your Hemoglobin or your Ferritin? Feel free to send me an email at ronnetta@ironology.life and I’d be happy to try to help. Also, you may want to check out www.ironology.life - it’s my brand new company I’ve worked on for 6 years and I’m thrilled to finally be able to offer superior iron supplements. Wishing you all the best! ♥️
L R C qa
I love your videos. I went for my first infusion a week ago. Have another one next week. Just a side note for the videos: the music is so loud but your voice is so soft! Thank you for all the information, I truly enjoy your videos!
I always get cold whenever I have any kind of IV. I kind of figured out that the reason why is probably because the IV solution is at room temperature which is usually much lower than body temperature. So when you're having that cool liquid pumped directly in your veins it tends to make you cold.
I'm supposed to go for my 1st infusion and I'm already considering not doing it. I already cancelled all of my November appointments. I feel there is something so unnatural about putting blackish sludge in your body. I decided to try dietary changes first with organic supplements of iron,folic acid and b12. After 4 weeks I'm not as fatigued,my period wasn't as heavy and I feel overall better. I have a little over a month before my first December appointment and I'm determined to change this naturally. I also don't like the idea of steroids in my body at all. I have steroid puffers and rarely use them. When I do I'm wired for hours and hours and I'm often awake like that for well over 30hrs. I truly believe anemia can be changed by altering your diet to include more leafy greens.
It's been a year how are you doing now with iron
Thank you so much for sharing your story. I've watched your video a gazillion times. i have my infusions scheduled Tuesday and Wednesday of next week. I'm very nervous about it.
Love it..I'm going for the 1st time tomorrow for my iron infusion. My levels are 6.5 . My hair is falling out so much. Thanks for posting this video! This issue definitely needs more awareness. 💕
Crystal Rodriguez how did it go? My hair is falling out and just found out my ferritin is 12.
@@kflo2059 hello ! My infusion went well.. I'll had three In total. But the fibroid in my uterus is now 9inches. It's taking up most of my uterus 🤦 and it is tipping it. I have been in and out the hospital for a few months because of heavy bleeding. My levels are still super low but because of the covid 19 my embolisation is on hold. I have my 1st virtual appointment with the surgeon tomorrow to talk about where we can go from here. My hair is still falling out but I'm hoping once they cut the blood supply off to the fibroid
@@kflo2059 I should feel better. So I'm just frustrated because I had no insurance two years ago and when I went to the ER they could of inform me of this so I could have got it taken care of but because of having no insurance at that time they really didn't help... So two years later I'm in pain.. losing hair and had to quit my job of 20 years because the bleeding became so bad I couldn't work. So, tomorrow I will find out my surgery date 🤗
@@kflo2059 my ferritin was a 10 last time they checked so that's was maybe 3 months ago. I did a few blood transfusions but really dnt help when I bleed out so much. It's a constant game of catch up but when yr just feeling better boom ...gets low again
@@kflo2059 what has your doctor done for you?
Hello I went this morning and got my infusion done. My appointment was at 8:00am I got there around 7:30. I was called in to see the nurse about 7:45. The nurses were all very nice. She gave me Tylenol in case of any fever which I didn't get. Then she ran saline first than steroids and the test iron. Just that alone took about 2 hours. My iron infusion was supposed to take 5 hours, but when my nurse read my chart she informed me that my hemotologist recommended it only be done for 3 hours. Overall it went well. I got a really bad headache and I've been feeling really tired and weak.
venetria tolbert how long did you feel like that after
Thank you Thank you Thank you
My son is having his first iron infusion next week and I had no idea what to expect. He's 8 and had bad experiences with hospitals lately, and I needed info to reassure him. Your video was very helpful about what to anticipate. THANK YOU
Thank you for this I start my infusions May 11th and I am extremely nervous I will go once a week for four weeks
I start infusions next week. Pretty nervous! This helped.
Thank you for this ...I getting my done on February 20th
Thank you! This was a very informative video as I consider doing the procedure. Currently my ferritin level is 6, iron supplements not working fast enough. Thanks again, very helpful!
My iron levels are currently at 3 ng when they should be between 38-100. My last dr told me to take over the counter iron... fired her and new dr has me scheduled for several infusions. Also eat ice like no tomorrow.
Wow that was rude! At least they didn't try to give you a blood transfusion.
thanks i will get it on my writing hand because i have school the next day and my teacher will have to give me her notes again
WOW thank you so much for this - makes me want to get checked again for the exact levels I am at so i can somehow return to martial arts and be a better mother
Thank you so much for posting this and that it is still here 3 years later!!! I agree with you that all I find is clinical explanation of Iron Infusion and only have found your video that gives me an idea of what to expect. I don't think what I have is an Iron Disorder, but rather a just a horrid side effect of gastric bypass surgery. So big thank you!!!!
thank you so, so, so, so, much for this video cause I to was so scared of having
iron fusions, your video helped calm my nerves a lot thank you so much.
Hello Phyllis! You are so welcome and thank you for your very kind words! I am so happy to know that this helped. Thank you for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
They gave you yours back to back?
Mine are set up 3 Fridays in a row. A week apart.
I have iron defficiency anemia and these videos are very helpful , thank you !
O my God thank you so much for this. I have to start this and was very clueless about it. God always send messages.......❤
I get my first infusion tomorrow. My hemoglobin is 6.9
I have just finished watching the RUclips video which is excellently and tastefully done. Thank you for such calm information with your smile and sweetness pervading all the medical jargon! I am heading for first ever infusion next week which is why I perused the RUclips channel, finding this one the most pertinent for myself. Heading over to the websire now....:)
I appreciate this. I'll probably be getting this soon due to needed surgery
Thank you so much for sharing. I will be going for my first iron infusion tomorrow and your story has helped put my mind at ease. :-)
I had my first fusion yesterday, February 13. When you had your fusion did you have a funny taste? I tasted celery, I mentioned it but nothing was said. I’m scheduled to have 5 minute fusion once a week for 6 weeks. Also I had a B12 injection yesterday, today and tomorrow. Thereafter once a month. I’m curious why your is given over hours vs mine (5 min). Although I was there an hour & a half.
Thank you, Donna
(I’m turning 65 in August)
Also, I fell this AM
Thank you. I'm going on the 16th for my first infusion.
Thank you so much for this video. I started my infusion on Monday have 2 left to do.
This is just what I was hoping for! Thank you so much!
13 years and counting due to stomach surgery. I can relate going in soon for two iron infusions.
I've probably had low iron for years, didn't find out until I googled why the whites of my eyes are blue. My doctor ran tests and my iron level is 3. Wish I knew this decades ago, but with hypothyroidism I'm used to being tired all the time!
Thank you so much for this video! I'm getting an iron infusion this week!
Thank you so much for this.....My ferritin is 3 right now, feeling miserable today going for tests and possible transfusion
Thank you so so so much for this! I suddenly discover I am not crazy and these infusions will be okay!
This was very helpful. Thank you!
Thank you for the information. It was very helpful. It answered a lot of questions I had.
Sorry, Ronnnetta, always late to the party. Thanks for sharing your story with us. I love those hoop earrings, too. I hope you are doing well and your iron levels are maintaining. Iron On!!!
You are very welcome and I'm so glad that you found it to be helpful! Hope you're doing well! :-)
thank you for the video, i'll be having my 1st iron infussion next week... i'm so afraid that i almost cancel my treatment. ur video really make me understand the procedure more. on top of that i have anxiety disorder, asthma and gastric 😳 all of this problem makes my anxiety worst. but i think i'll go with the infussion ☺
My gums and inside eye are white. And yes, chronic mega ice eater. Recently had a hysterectomy so the heavy periods are no more! Halleujah!! But I've been anemic since a child and it worsened over the year.
Thank you for sharing this with us
My ferritin is 12 right now and I'm going to be getting iron infusions. I've been getting panic attacks, anxiety, exhaustion and almost passed out in Target yesterday.
Life with the R family have you ever had congestion as a side effect?
Grachelis Rodriguez no.
Mine was 2, 60 days ago - I am now on feramax 150 2x's a day and hopefully that has helped - redid blood work yesterday so we will see. I get the panic attacks and the exhaustion too.....hang in there :)
I can't take my prescribed oral supplements of iron, it makes me so nauseous that I end up throwing up the pill every time...
Take betaine HCL with it. (Stomach acid)
You probably have low levels
Also vitamin C
Can you tell me how you get to this point? What do you have to do to convince your dr that you need this?
Great video! Very helpful and informative! Thank you for posting!
My iron is 6 and I'm going to get my iron infusion on Sunday. They haven't gone over the whole process with me yet, but I am also in my first trimester of pregnancy which complicates the course of treatment quite a bit. I wonder if I'll have to wait between infusions?
You're just so darn cute....! Anyway, thanks for letting us go with you, the video was very helpful. I'm glad you're feeling better, all the best to you.
Thank you for making this video. It has helped my fears a lot.
Hi Cori! Thank you so much for your kind comment. Thank you also for watching my video and supporting this community. I have had many infusions over the years, but it's been a number of years since I did this video. Personally, I found that time and time again, the IV iron did not "hold" and my ferritin just wouldn't stay up. You may want to check out my new iron supplement that I formulated and launched in 2018! After years of suffering and trying every iron supplement out there, I decided to just do it myself based on everything that I learned volunteering with the Iron Disorders Institute and after becoming one of the world's first and only Certified Iron Educators. The product is called Ferritin Boost and it's the only solution for my iron deficiency that actually worked long term! www.ironology.life
I find this was very helpful...I start tomorrow.
I hope it went well! My first one is tomorrow, kinda nervous
I have my first tomorrow. I am so nervous of side effects. I have Fibromyalgia, LQTS and I also have Syncope Episodes. I also have a BP of 151/110 (my norm is 120/80)
I started iron infusions 4 weeks ago. I had a port placed cause I have the infusions once a week for 10 weeks. I get benadryl, a steroid and a pepcid before each infusion.
Did you go back to normal after 2-3 weeks? I just had my first infusion and I'm curious about your progress.
Hello, do any of you know what is the underlying condition for being so low on iron, ferritin and saturation? It's this just a condition on it's own or were diagnosed with something else?
Your ferritin should actually be much higher than 18- it should be at least 70 to prevent fatigue, hair loss, brittle nails, etc. Most doctors don't know this because the lab range is so broad.
I had my first infusion earlier this week. I'm extremely low iron (like 4?) for most of my life... But no anemia.
What's the cause of low RBC?
Thank you so much for this video. I'm going through alot, I just found out I have rocky mountain spotted fever and unknown blood loss as well. so I'm also very anemic. I'm getting my first iron transfusions in 2 days and nervous because I have a hard time with iron orally.
Going for my 1st iron infusion on Friday and have been having a lot of anxiety about it and possible side effects. Thanks you for your video! It has helped calm me...... a bit. Lol
how was it?
@@danjsark totally fine. No side effects or anything. Went shopping after lol only needed to do 3 of them. A girl there did have a little bit of a reaction in the form of hives but they just gave her some Benadryl and she was fine
@@MarilynJ26 Did you take anything before infusions?
My Dr isn't doing a test run. I start my first one tomorrow then the next 2 Fridays after (totalling 3 infusions)
Am I the only one? They did no test runs and they ran my iron infusion through me in 30 minutes. also I get 1 infusion one day and the other exactly one week later. No steroids or any other meds whatsoever
How did you feel during and after the iron infusion? You mentioned you didn’t receive any of the previous mentioned protocols.
Was very helpful.
Love this! Thank you so very much!
Thanks ! It helped a bunch!
I have MTHFR mutation and found that I can't handle synthetic iron, specifically Venofer. I would spend months getting the infusions and later found out it was just floating in my body but by body wasn't actually using it. Do you know any other iron that would be suitable for anemia?
I was put on Feramax 150 , just redid my blood work after two months of it 2 x's a day - so will see if it helped
Thanks for this! Very helpful.
How do I advocate for myself to make sure they do my infusion slooow and to do small dose like half dose? I'm too sensitive post brain injury and I'm scared as hell but I really desperately need it . From me in New Zealand
I had Venofer injections, with B-12 shots weekly 2 years ago. I didn't know there was a community for anemics and venofer patients. I had 10 weeks Venofer, starting ferritin level of 2 (extremely low). After 10 weeks of infusions, iron went up to 38, but then after a few months, it dropped back down again - hematologist was not sure why, colonoscopy did not reveal any GI bleed. I went through another 10 weeks of Venofer, second round. 10 months of B-12 injections, starting weekly first few months, then monthly. You were getting it every day? I got it once a week for 10 weeks. Its been 2 years, and even though my iron has fluctuated a bit, it has remained at about 40+ for the past 18 months or so, so no more injections. I now eat paleo, good quality red meat, lots of lentils and spinach (mostly green smoothies). I also take iron tablets 2 or 3 times a day, and hematologist thinks I am doing ok now. I hope you are doing well.
How are you doing now? So glad someone made a video about this. Yes, the infusion clinic is filled with chemo patients, which makes you feel bad. I had PICA too, classic textbook, my doctor laughed about it because I was craving blood of raw meat, raw potato peels, and dirt lol. Now I don't, but I do love love love my lean red meat. I do still have to take iron tablets and B-12 but am holding my own. Have you had to have any more iron infusions? I did 20 weeks total Venofer once weekly, B-12 montly for almost a year but have been OK for the past year or 18 months. I never used the Claritin or steroids, and I was OK. I didn't get Benadryl either, guess I was not as sensitive to it, no allergic reactions.
Thank you for this. I am going to my first iron infusion today, and this is exactly what I needed!
I don't understand.....First of all, HUGE fan and longtime subscriber of yours! My doctor knows that I'm an iron deficient anemic due to heavy and painful periods. My iron level is 7.5 and he said that the only reason he would give me iron infusions is if I have kidney or renal failure. Now, I know a couple of people who do and who don't, but those who don't still got the infusions. Why not me? I'm trying to be objective with this although I am soooo drained and am losing my quality of life. Please help!
Try and get a infusion mine is 5 ferritin is 29 but I feel dead literally my hemoglobin may not be considered as being soo severe but we are all different our bodies react differently I have to pay my GP in the UK won't give me a infusion on the NHS she says only if you HB is 7. I think that's ridiculous.
bustinasscoach Yeah I'm going private gps just know how to give these iron tablets which cause havoc on the stomach. It takes forever to make a difference. Doctors never consider any alternative medicine when in actual fact for other ailments of mine I've improved them and practically cured it too. Their pills are poison all they ever did was cause side effects.
bustinasscoach lol preaching to be in the correct bmi when they not themselves that is kind of jokes too. The pills just cause constipation
bustinasscoach yeah so have I my B12 is normal it is 593 I'm taking supplements though to increase folic acid that was abit low needs to be higher. That could be adding to the fatigue, so you inject yourself with B12 how?
bustinasscoach looooool the porn reference dude man that was jokes. Lol I'm wondering if I go and ask my local chemist they'd probably look at me like I'm mad I don't think they sell it in the UK, maybe regulations etc. I was wondering if you can have folate injections again if I ask the GP she will say no and to take tablets which I'm gonna do anyways.
I don't understand why they say ferritin levels between 12-150 for females is normal. why is there such a huge gap? 12 sounds way too low to me. Mine is 45 now, when I first started out it was 6. I still feel the same though, even though it has been since November 2018. Still really tired, weak and bruise easy. I'm technically no longer anemic, but I still feel no different from when I first started taking the pills.