Thank you for touching on Primary CNS Vasculitis mine is located only in my front left lobe. There is so little patient level information on PCNSV I realize my type of vasculitis is very rare but it is important to touch on this type. It is scary not having as much info that is easy to understand for the normal patient. I am very thankful for this information and overview. Thanks much
We are so glad you found this helpful. You are so right. It is very rare, but also very important to provide information and education on this type of vasculitis so that patients can understand. If you have not already visited our website, I'd encourage you to do so. We have additional information on CNSV and you can also learn more about future in-person webinars, local conferences, virtual support groups, and more www.vasculitisfoundation.org/
Thank you for touching on Primary CNS Vasculitis mine is located only in my front left lobe. There is so little patient level information on PCNSV I realize my type of vasculitis is very rare but it is important to touch on this type. It is scary not having as much info that is easy to understand for the normal patient. I am very thankful for this information and overview. Thanks much
We are so glad you found this helpful. You are so right. It is very rare, but also very important to provide information and education on this type of vasculitis so that patients can understand. If you have not already visited our website, I'd encourage you to do so. We have additional information on CNSV and you can also learn more about future in-person webinars, local conferences, virtual support groups, and more www.vasculitisfoundation.org/